October 8th
2008
12:13 PM
Oh my....... I have found people with the same symptoms, I feel normal now. I have been in and out of the hospital taking many different antibiotics. It started with strep throat, so they gave me erythromycin, and it lead me to pneumonia, and a big drop in my oxygen levels. They ended up admitting me and had me on a ventilator overnight, they gave me intense antibiotics of Clindamycin, which helped me somewhat, I now am out of the hospital and they switched me to Doxycycline for bronchitis, and Iv'e been having major hormone problems, heartburn, dizziness, hot flashes, I feel like I am out of my own body. I looked up on web md the side effects of this medication and none of these are included, then I came upon this site, and most of you are experiencing the same thing that I am.
-- By ivansmom101504 | Reply | (1) replies | Private Message me
May 12th
2008
2:30 PM
My friend just died Saturday from using Herceptin in treatment of her cancer. Herceptin fused and burned the air sacs in her lungs. She was placed on a ventilator in mid April.
Such a loss to so many. Her name is Pat B.
-- By delise54 | Reply | Private Message me
April 29th
2008
3:36 AM
My son is 5 years old. He was put on Singulair in August following a case of pnemonia. He has asthma. I found it worked well since I was barely using inhalers anymore. His eczema was even getting better. So I was happy with the medication. He also seemed to be getting more agitated with us. At least three times a day he would have an outburst towards his brother or us, like he was going to punch or hit us. Then I would say "why are you mad at me" and he would say "I'm not mad, I'm frustrated" and then burst in tears. He was getting a lot of time outs. Then two months ago he started saying "this is not a good day" or "this is a sad day". I was wondering if singulair was to blame, but it wasn't until I heard concerns from other moms. I took him off it as an experiment and noticed the next day was without his outbursts. Then I just never gave him anymore...and I am relieved to say he is as "normal" as I remember him before Singulair!!! He also was unable to get to sleep easily on Singulair, sometimes 1, 2 and even three hours to get to sleep. Now he is out in 20 minutes if not less. I haven't talked to the Doctor yet. I have noticed his eczema is flaring up again and he has used his inhaler this week (although he has a cold). I think I can deal with that without Singulair and the problems I am suspicious come from it's use.
-- By sunflowergurl76 | Reply | (4) replies | Private Message me
March 29th
2008
12:42 PM
After reading the recent news reports and reading other parents opinions on Singulair I thought I should be fair to the company, and to other parents seeking advice on this drug, to write about our POSITIVE experience with Singulair. Our 7 year old son was diagnosed with seasonal Asthma when he was 3. We have him on the Ventilator and Advair. During spring time allergy season he would begin wheezing and coughing on a regular basis. We would then give him his puffers. While it would relieve him of the wheezing he would be quite hyper and out of control. Therefore, our goal was to wean him off the puffers. We added Claritin to his diet each day. When he was 5 he struggled through his spring soccer season. As the months went by he looked tired, very sickly, and worn out. His coach recommended that we investigate Singulair. It really turned his child's life around! We talked to our doctor about it. She wasn't familiar with children using Singulair but she prescribed the 5mg chewable but recommended that he use both puffers before his soccer games. We followed her advice. He took his Singulair before bed and the puffers before the game. Sadly, we noticed that he was completely "out of it" during his games. He had no focus (not shocking for a 6 year old boy), no real interest in the game, and no energy. We just assumed it was because he was tired after a full day of school. One day we forgot his puffers but decided to let him play anyway. He had a great game. During a daytime tournament he was back to having his head in the clouds, so for the second game we decided to "forget" his puffers again. He played a great game. But best of all..no breathing problems. We decided to omit the puffers for the rest of the season and just use Singulair. It worked wonderful for him. None of the side effects that the other parents have described. We use it when spring begins and for the the first part of the fall season. He doesn't use it during the winter months. We are experiencing a real dry March so I started the Singulair on Tuesday. Then all of the negative comments came out. I certainly will not dismiss the concerns of the product. We are watching him closely to make sure there are no negative side effects. So far, so good. And no need for the puffers!
-- By cookielady | Reply | (5) replies | Private Message me
March 28th
2008
2:08 PM
Headaches??? Really i have been getting headaches recently
I hate the new HFA inhalers
I have been a chronic user of the old inhalers for years and i never complained, I actually really liked them. I have been on a ventilator 3x and I am only 24 years old. The most recent hospitalization was the worst. I have been found to have an under productive heart. They did exploratory lung surgery and also gave me a chest tube and took numerous lung samples. I honestly believe that this was due to the new inhalers. Whenever I take the new inhalers I feel slightly better (not much) approx. 1/3 of the the way the old ones made me feel. I feel slightly better after about 15 minutes, but as soon as I take it I actually have a harder time breathing and it just SUCKS!!!
January 20th
2008
10:22 PM
My mother drank Gastroview and is now in kidney failure, liver failure, and on a ventilator. She had symptoms of shock soon after the test and then went into problems breathing and was found with no blood pressure. The doctors will not commit to this "crash" being caused by Gastroview but everything I've read indicates she had a severe reaction to this contrast. Has anyone had any similar experiences? Looking for answers...
-- By gerks90 | Reply | Private Message me
November 12th
2007
9:40 PM
I was given Levaquin in the ER via IV Push which should never have occurred. It should have been infused over 60-90 minutes. Almost immediately I had a strong metallic taste in my mouth, my face and head felt hot and throbbing and I told the nurse I was having a reaction. Her response was that I could not have reaction that fast. I immediately stood up and began pacing and felt a burning sensation travel down my arms, to my legs and up the center of my body. I FELT LIKE I WAS ON FIRE. Then it was if a heavy brick was dropped on the center of my chest. The last thing I recall is seeing the ER doctor's face and hearing him say, "Pupils dilated. She's gone". When awoke I was in CCU on a ventilator. Since this experience I have had intermittant chest pain in one area only, EXTREME fatigue, and tinnitus. Most days are spent in a haze. I am so tired all of the time, but have difficulty falling asleep because of the ringing in my ears. I have not had one moment of quiet. There is no peace or quality left to my life. NO ONE SHOULD EVER TAKE LEVAQUIN. Many other antibiotics are available without the potential devastating, permanent adverse reactions of this one.
-- By beltran9 | Reply | (1) replies | Private Message me
May 13th
2006
1:38 PM
Wow! Maybe I'm not just falling apart. I was put on advair 500/50 2 months ago after a 12 day stay in the hospital for status asthmaticus. I was on the ventilator for 3 of those days then bipap. I have gained 13 lbs, and have joint pain-worse in my fingers. My fingers also feel stiff. Thrush has been a constant problem that started before I even left the hospital. I also have mouth pain even when there are signs of thrush. Now I have 2 strange looking small white bumps on the roof of my mouth on the soft palate. It seems different than thrush. I found thisweb site trying to figure out if it is a side effect. I had no idea that all of these other symptoms I have been having were from the advair. I have so much anxiety and nervousness that i shake sometimes. I am also very moody and have no sex drive. I have headaches almost every day. I do not have the leg and foot cramps, but I do have muscle tightness and pain in my back. I just cannot believe this. My pulmonoligist kinda looked at me like I was crazy when I was telling him about all of these strange symptoms that I have been having. I was beginning to think maybe I was! I stay tired all of the time and have no energy. I am also on singulair, protonix for GERD, and i take flovent and xopenix nebulizer, and allbuterol inhaler. my asthma has been pretty much under control compared to what it was, but I still cough and wheeze. I'm scared to take myself off of it. I don't want to end up back in the hospital again.
-- By laureek | Reply | Private Message me
January 7th
2004
1:29 PM
weight gain, especially in face, stomach, and arms; rash on face, chest, and arms; mood swings; insomnia; increased appetite; hot flashes and increased sweating; am on 80mg one day and 20mg the opposite day to keep me breathing, was on a ventilator for about 2 weeks after a thymectomy to control my myasthenia gravis; am glad to be breathing but the prednisone seems to be doing more harm than good
-- By tinaana | Reply | Private Message me
February 12th
2003
5:43 PM
we had a patient have a full blown anaphylatic reaction to Navelbine, complete with tongue swelling. Pt coded and had to be shocked, placed on a ventilator. Pt was recovered and has since been discharged from the hospital. It was my first experience like this with Navelbine. I have been giving navelbine for several years and never witnessed such an event. Just wanted to know if any one else has experienced this type of reaction.
-- By nanlawary | Reply | Private Message me
Navelbine (2) PredniSONE (2) Singulair (2) Gardasil (1) Advair HFA (1) Herceptin (1) Doxycycline Hyclate (1) Levaquin (1) MD-Gastroview (1) Albuterol Sulfate HFA (1)
March 8th
2009
12:07 PM
My 13yr old niece has always been a healthy, active and straight A student. Then on 11/5/08 during a routine physical, she received her 1st dose of Gardasil. On 11/28/08 she started to complain that she felt weak and had a headache. Since it was 2 days after Thanksgiving we thought that she was tired from all the holiday activities. On 11/29/08 she had a headache and stayed in bed all day. She got up that afternoon & had 2 seizures. She was rushed to the ER.
-- By charity1432 | Reply | (2) replies | Private Message meAs of today, March 8, 2009 she is still in the hospital in Intensive Care Unit. She has been in critical condition since. Within 2 days after her seizure, she lost the ability to eat,speak,walk and communicate in anyway. She is completely unresponsive. She is on the ventilator, she is basically in a coma. We do know she has an viral infection with a shadow on the left side of her brain. All of the testing that has been done all show negative for any illness or diseases.
We are still unsure if she will come out of this. This has been completely devastating to our family.
We have no answers from doctors. Even though we know in our hearts that this was a side effects from Gardasil. I don't know if they will ever fully admit it.
We are left to watch and wait. That is what the doctors tell us daily..