October 17th
2009
11:19 AM
Hello, I can't help but get into the Mirena conversation. Three months after my son was born, I was put on the Mirena IUD. I had a ton of symptoms. My hair was falling out, tired, weak, headaches, stomach cramps, and just all around felt like crap. I went back to the doctors to have the Mirena removed positive that it was the Mirena that was making me feel like crud. The doctor persuaded me to keep it in longer and after much debate and feeling flustered with the doc I agreed for a couple more months. Well symptoms got ten times worse to the point I called and demanded to be seen right away to have it removed. Well after it was removed, I felt better but not completely. I started losing weight, I had periodic migraines which mind you I never had a migraine in my entire life, and felt like a truck ran over my body every morning when I got out of bed. I went to the doctors and they ran a slew of tests and NOTHING! Well about a month after a car ran a stop sign and crashed into me. I hit my head. IT was the best damn thing ever, I got a cat scan and it showed something on my brain. A MRI picked up a right cerebellum hemangioblastoma about 3cms. I had to have brain surgery to have it removed. They decided to do a full scan and I now currently have a kidney hemangioblastoma. Moral of this story. I am 31 years old, I have always been healthy with no migraines, no ailments, nothing. I have the Mirena put in and I feel like shit and they found a brain and kidney tumor. The estimated both my brain and kidney tumor to be about 2 yrs old. THE EXACT TIME I GOT THE MIRENA IN. Hemangioblastomas are either sporadic of VHL. With sporadic, usually you only get 1 and if you get another its later on down the road and my two tumors would not be the same age so it rules that one out. VHL, I had a genetic test done and it came up negative. So anyone of answers for my mishap. I know the Mirena caused this for me. Im just looking for someone with a similar story
-- By kahmrk | Reply | (3) replies | Private Message me
October 16th
2009
2:20 AM
I had my mirena removed about one week ago after a year and a half of having it in. my doctor had told me that I would have no side effects as it only dispersed hormones locally. My experience was very different! The most noticeable were: immediate weight gain (10pounds in 6 weeks from inserting it), inability to lose weight with diet and exercise, terrible mood swings and depression for no reason at all, extreme fatigue and lack of energy (I couldn't stay up past 9pm), bad acne, hair loss on my head and increase of facial hair (go figure!), constant bloating (I looked pregnant all the time), definite decrease of libido, nausea (which led me to see many gastro dr's as I was convinced I had a stomach bug), vertigo, terrible discharge...you name it, I've had it. The thing about Mirena is that the side effects are accumulative and subtle to begin with, so it takes a while before you make the association. Since removing it a week ago, I have noticed a major increase in my energy level (I love it! i feel alive again...), increase in libido, sudden disappearance of depression and mood swings, and bloating is gone. I'm happy to have my body back and feel liberated! I replaced mirena with a regular Copper IUD. In the past I've had increased bleeding during periods with the copper IUD but I'll have that any day compared with my experience with Mirena. The doctor that removed it for me told me that she never advises woman to use mirena unless they have a medical problem such as fybroids, very heavy periods etc...Mirena is used as a cure for these conditions. Her reasoning is that if you are a healthy woman with no hormonal problems, why would you ingest hormones into your body in this manner and mess with your system? The fact that periods stop with mirena means that hormones are all over your system... I advise all women to listen to their bodies...you know better then any doctor if a contraceptive is right for you. There are always other options for you if you are not happy.
-- By tdf | Reply | Private Message me
October 15th
2009
1:09 AM
Ok, I have PCOS and had the Mirena put in 3 months after the birth of my last child in 2004 and thought it was great. No more fluctuations never knowing when or if I was getting a period...I just never had one, have not had one in 5 years years. The strings disappeared several years ago, had an U/S and they said it was still in place. I have had zero libido in that time, terrible mood swings, fluctuating weight and depression, thyroid problems, etc etc, all put down to depression. Well 6 months ago the headaches started, the vertigo... the ensuing DR trips have turned up an abnormal brain MRI and not much else no one has thought to think of the IUD. The MRI shows possible demyelination, vasculitis or sequelae to migraines...these are little white spots in my brain. If I find out these things are caused by this IUD there will be hell to pay. I am due to have it removed at the 5 yr mark in November..... I guess dig it out if they can find the strings. Will be interested to hear comments on this.
-- By kiwibaitnz | Reply | (1) replies | Private Message me
October 11th
2009
8:08 PM
Wow. I am in awe. I lost my mother June 7, 2009. I plunged into severe depression. I was already on Paxil. I started the generic brand of Wellbutrin (Bupropion) around June 30th. I noticed a big difference neurologically. But on to why I am posting... I noticed last week my hands were shaking uncontrollably and I could not stop them. I ran out of Wellbutrin and waited a couple of days to pick it up. I noticed a lot of the symptoms stopped. I have also had off the chart vertigo. I am talking extreme. I had tremors this morning and thought something was under the pillows on my sofa and jumped up to look. I then wondered if I was going crazy. I then went to my desk to work and crossed my legs on top the desk and the tremors started again.
I had thick bit fat hair naturally curly hair (which I still have most of it) . I started seeing hair everywhere in the car seat, the desk chair, on the sofa, the floor blah blah. Everywhere! If pulled on the end to check for split ends and the freaking hair came out. I notice last night that I could see through the temples of my hair and freaked out. So now what? Am I going to have to have a Donald Trump comb over. Seriously I had enough hair on my head for two people. You know how people buy really bad wigs that have way too my hair on them. They are long bushy and you know they aren't real? Yeah well that's my natural hair. So when I looked last night and saw what I saw - I totally freaked. The tremors this morning did it along with the postings here. I just flushed my entire bottle. I had only taken 3 out of it. I'm over it. I like my too big nappy natural hair. I'm going to do everything I can to get it back. My dermatologist friend told me to go to Costco and buy Men's Rogaine gel form (I'm a chick). Can I just say I'm about to put my little dog in my purse and we are off to Costco. This is really, really, really the suck. So here are the choices; do you want to be sane and bald? Or do you want to be semi-crazy and shake like a junkie? I say screw it. Hey, I have cold turkied off Ambien before (it took 14 days but do not try this at home!). I'm done with Wellbutrin. No guts, no glory.
-- By writerchick | Reply | Private Message me
October 1th
2009
6:19 PM
Vertigo, weakness, fatigue, exhaustion, aching numbness in arms, numbness in face arms and legs, extreme pressure in head and neck, burning feeling radiating from the base of my neck through shoulder blades to arms, foggy brain, waking up feeling (for no reason) like I have a major hang over, chills, aching feet, weight gain, feeling very fearful of my symptoms because they feel like nothing I have ever experienced.
THESE LAST 4 WEEKS HAVE BEEN HELL!
I had my Mirena inserted on June 30 2008. I experienced mild discomfort for the first 4-6 weeks. The spotting was the worst of it and that was no more than an inconvenience. I was happy with my choice of birth control.
Then this hell began about three months after insertion.
During the last week of September the symptoms listed above started. They were mild at first but by within a week and a half I felt HORRIBLE. I suspected that it may be the Mirena, but at the same time I thought I was dying.
October 1 or 2nd (it is all a blur) I was home by myself when I started feeling the numbness and head pressure coming on again (my symptoms were coming and going, not constant) so I laid down on the couch to get off my feet. All of a sudden I felt like I was losing consciousness. I grabbed the phone and called my husband to get me to the ER. I thought I was dying. A blood clot or something. Once there, they did blood test after blood test, an EKG, urine tests, and basically I was told that there were no major system problems. I know this sounds a like classic anxiety, but I know it is not. I have to say they were very good there and encouraged me to see my family physician (whom I had already been to earlier that week) again.
I called to make an appointment to have the Mirena removed the very next day. My GYN kind of shrugged off what I was going through saying that it was anxiety and asked if I still wanted the thing removed!!! of course I did. Having that thing removed was very empowering. I was feeling so helpless and it was the one thing that I could do to possibly help my situation. The feeling of relief was amazing.
I did see my family physician again who agrees that what I am going though is related to the Mirena. She did ordered a CAT scan (came back negative) just in case.
Post removal (It has been 17 days) I have been slowly getting better. My "episodes" are getting more and more diminished and further apart. I have noticed that I am flooded with exhaustion after each of these "episodes". I also never know when there going to strike making it hard to make plans. My husband has been very supportive through out and was convinced before I was that it was the IUD. He has volunteered to get a vasectomy.
GOOD LUCK TO ALL YOU LADIES.
If you have stumbled across this because you are desperately searching for answers, all I can tell you is that I believe that the Mirena IUD has had devastating effects on many, many women, but hang in there you are not alone and you are not insane. What you are experiencing is very real. Have it removed ASAP!!!!!!!!!!
September 18th
2009
12:16 AM
Was prescribed HCTZ and started taking it off and on in early August. Pain in the butt cutting the pills in half. Started to feel weird feeling in my left ear and cheek and then numbness spreading up my face, forehead and scalp.(I did have a few beers the weekend before this happened) Took myself to ER. MRI, CT, full blood work, thyroid check, EKG, heart and lung xray. ALL PERFECTLY NORMAL. Of course I was diagnosed with possible MS, Belle's Palsy, and was told I might just be wired weird.
Went to primary the following day for follow up and was told that my blood pressure may have been the cause of the episode. Prescribed Lisinopril and started taking it immediately 10/12.5. Started feeling good pretty quick, but noticed a few crazy dreams and almost like I was falling.
Missed a few doses and and had a few beers over the labor day weekend. Started meds on Monday but started feeling pins and needles coming back in different parts of my body. Continued to take meds and then went camping. Had a few beers around the fire. Woke up next morning with slight case of Vertigo. Continued with meds through the weekend and have felt dizzy, dumb, tired, my eyes don't move correctly, my left arm has felt numb and swollen, my left cheek tingles and I feel so swollen in my gland area under my ears. Knee pain too.
I didn't take a dose today, and I feel 100% better. Still tingly and numb in spots, but better. A little anxious and my heart feels like it's beating really deep and fast. BP is 154/82 after going down quite a bit on the drug.
Anyone else had trouble with the alcohol? Any similar symptoms? This site has calmed me down as I've always been a worrier/hypocondriac type. any response or idea would be really appreciated. Thanks everyone...good luck!
-- By jbwyatt | Reply | (2) replies | Private Message me
September 9th
2009
1:06 PM
I had been taking Omeprazole 20 mg for about a year and a half. Recently, my symptoms (chest pain) seemed to be getting worse so my doctor told me to take one in the morning and one in the evening. That didn't seem to help my symptoms. For the past few years, I have been having crushing fatigue--I was afraid I might have leukemia or something of the sort. Five days ago I stopped taking Omeprazole and I now feel like a new person--my fatigue has practically vanished. Also, my feelings of vertigo have disappeared, as well as the chest pain I had been experiencing which had led my doctor to increase my dosage.
-- By kathyfc | Reply | Private Message me
September 3th
2009
8:13 PM
Seriously this is ridiculous. I have been dealing with all of these same issues and have been debating on whether to see a counselor because I feel like I am losing my mind! My boyfriend tells me I have mood swings and my mom says she cant even talk to me anymore. I had an acquaintance at work tell me that she hopes that I am okay because I look so down. I am anxious and depressed - have to self talk just to get out of bed. During the month if I am not cramping - my breast are almost to sore to move. I read someone on hear define a side effect of vibrating sensations throughout their body I get that for at least a week and a half every month. I would describe it as how you feel when you first are coming down with the flu....kinda achey. I was actually off for a week a few months ago due to extreme vertigo. I wondered if there was a correlation...from what I read I guess so. I have severe lower back pain -sometimes to much to stand straight and walk. I am so frustrated because I was told no side effects. I had Norplant back in 1991 and gained 70 pounds in 5 months. Well I am up to 19 pounds with Mirena - it hasn't been quite a year. I told the doctors that I had significant weight gain with Norplant and developed a blood clot while using the pill. I was assured no such side effects with Mirena. Mirena was a great choice for women who cant take anything else! I feel so misled!
-- By kreg | Reply | (3) replies | Private Message me
August 22th
2009
8:35 PM
I thought I researched this product thoroughly, I even worked with a lady who had one inserted and she said she was just fine. My specialist said it was "new improved technology, the best on the market". So I had it inserted which apart from being poked and prodded which is never nice, and him pinching my skin, was reasonably ok.
I was fine for a long time, but after a year or so I found that my quality of life was very low. I am 40 years old so put some of it down to that, I have a one year old so put some of the tiredness down to that, but whatever I did I never felt better. The iron levels in my blood are high and all other checks, i.e. thyroid, are fine so why was I suffering from:
Nausea and Weight Loss (the weight loss is the only good part)
Extreme Tiredness
Thrush
Dry Itchy Skin
Dizziness and Vertigo
Facial and Scalp Breakouts
Greasy Hair
Depression
Anxiety
Headaches and Migraines (I am a migraine sufferer anyway)
Sore Itchy Eyes
Spotting for Two Weeks (6 months of the year!).
I didn't have any problems with my periods before, I had just decided to have the Mirena inserted to avoid further pregnancies.
I hadn't been on any type of contraceptive pill since I was 22 years old and I now remember why I stopped taking the pill in the first place.
Some days I felt great, but would then feel like I'd hit a brick wall about 4pm so would have a very strong coffee to get me through the evening. I'd then sleep like a log and wake up feeling hungover even if I hadn't drank any alcohol the night before (I may as well have and I probably would have felt better).
I then decided to google 'Mirena Side Effects' and found this webpage. I discovered that thousands of women around the world are having the same problem. I got on the phone instantly and made an appointment with my Doctor to have it removed.
I had the Mirena removed last Tuesday, and within a day I wasn't so tired, I didn't need a coffee to get me through the day, or a nap, and my eyes felt better. It's now been five days and I feel much calmer (no anxiety). I'm still tired from running around after my daughter but not like before the removal. I have been having crazy dreams but I assume that is just my body adjusting.
It appears that the Mirena device works for some people, but just not me.
If you feel this way, then have it removed - your quality of life with worth so much more.
Oh, and I can drink wine now and not get migraines - yay!
-- By jklmartin | Reply | Private Message me
August 22th
2009
2:56 AM
This is to serve as a personal warning to ANYONE taking
Effexor XR or thinking about taking it.
After my husband and I experienced HORRIBLE withdrawal symptoms within a week from coming off of our medication, and has continued for 4 months now. I feet compelled to inform people about the risks that this drug carries with it.
This drug helped my husband and I immensely while we were on it, but I just wish that I had been more knowledgeable about the risks of going off this medication so abruptly.
I understand that the medical professional that is prescribing you the drug is supposed to inform you that you are not to stop taking the medication abruptly (which is exactly what I was told). IN NO WAY was I told the consequences of NOT taking the medication.
So here are some of the symptoms that I experienced within the first two days (there are many more symptoms that other Effexor XR patients have experienced, but I feel that it is only right to list mine):
• Akathisia - a syndrome characterized by unpleasant sensations of "inner" restlessness that manifests itself with an inability to sit still or remain motionless.
• Ataxia – Loss of the ability to move the body with coordination.
• "Brain Zaps", "Brain Shocks," "Brain Shivers" or "Head Shocks" Descriptions include dizziness, electric shock-like sensations, sweating, nausea, insomnia, tremor, confusion, and vertigo.
• Cold Sweat – The skin is clammy and moist and you feel chilled. This is a reaction to a shock or pain as well as to fear and nervousness.
• Colitis – A condition where the large intestine becomes irritated from the use of the drug.
• Dehydration – An extreme loss of water from the body or the organs of the body as in sickness or not drinking enough fluids.
• Depersonalization - A feeling of watching oneself act, while having no control over a situation. (A sufferer feels that he or she has changed and the world has become less real, vague, dreamlike, or lacking in significance.)
• Diplopia – A condition where a person is looking a one object and instead of normally seeing just the one object he sees two. This is also call double vision.
• Disequilibrium - Dizziness, light-headedness and vertigo with a sense of losing balance.
• Dysarthria – The inability to control the mouth muscles when forming words so the words are not clearly spoken and heard.
• Gastric Irritation – An inflamed and sore stomach.
• Hyperhidrosis – The triggering of an excess of sweat being produced on the soles of the feet and/or the palms.
• Hypoesthesia – A partial loss of sensation or general loss of awareness.
• Influenza-like - Fatigue, lethargy, chills, sweating, headache, weakness and palpitations.
• Insomnia – Not able to fall asleep or sleeping for a shorter time than desired, thus not being able to properly rest and feeling un-refreshed. As a result, a person can become irritable, have difficulty concentrating and feel a lack of energy.
• Irritable Bowel Syndrome – A painful condition where the either the muscles or the nerves of the lower intestines, are not responding normally. This results in an alternating condition of diarrhea followed by constipation, back and forth.
• Mania – Unusually irrational, excessive and/or exaggerated behavior or moods ranging from enthusiasm, sexuality, gaiety, impulsiveness and irritability to violence.
• Mood Swings – An emotional shifting as from a state of happiness to a state of depression for a period of time.
• Night Sweats – With night sweats you become wide awake in the middle of the night shivering and cold and wet with your sheets/pajamas soaked in perspiration making it difficult to go back to sleep.
• Nightmare – Dreams that make you afraid or leave feelings of fear, terror, and upset long after waking up.
• Abnormal Orgasm – Unable to have an orgasm with normal sexual stimulation.
• Pain in Extremity – A painful feeling in the legs, arms, hands, and/or feet.
• Paresthesia - A sensation of tingling, pricking, or numbness of a person’s skin with no apparent long-term physical effect.
• Photopsia – A condition where a person sees lights, sparks, or colors in front of their eyes.
• Pressure of Speech – A condition where the individual cannot voice his ideas fast enough with the pressure of there being not enough time to say it.
• Pyrexia – Fever or the increase in body temperature that is usually a sign of infection.
Now some of you may be thinking that I might be overreacting, but I assure you that I am not. Quite the opposite actually, I feel that there are probably more symptoms that I am leaving out.
When I went online to research the symptoms that we had been experiencing, there was little information that I could find. I went onto the website for Wyeth (the company that produces Effexor XR) and the only thing that I could find was, and I quote,
“When people suddenly stop using or quickly lower their daily dose of EFFEXOR XR, discontinuation symptoms may occur. Talk to your doctor before discontinuing or reducing your dose of EFFEXOR XR.”
Wyeth also states that Effexor XR is, and I quote AGAIN,
“ Effexor XR Is Not Addictive. Effexor XR and other antidepressants are not addictive. You cannot become addicted to an antidepressant even if you take it for long-term maintenance therapy. An antidepressant is not a controlled substance like a narcotic or a stimulant.”
I am very sorry Wyeth, but I disagree.
-- By chugpow21 | Reply | Private Message me
August 20th
2009
4:22 PM
I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.
I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.
I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.
-- By dizzyguy | Reply | (10) replies | Private Message me
August 19th
2009
5:49 PM
18 yr old female here...This is my 5th day taking Amoxicillin, it was my first time taking it, didn't get a allergic reaction yet, this medication makes me feel nauseous all day, i can barely eat a whole plate of food, i only eat 1/3rd of it, i feel weak, depressed, unsteady, a little itchy, and i got gassy this morning and farted a lot lol, i had mild diarrhea, i think i might've gotten a yeast infection, and i just feel gloomy and quiet, i feel distant and i have to force myself to get out of bed and do anything, eating is the worst part i force myself to do, i also became sensitive to bright light and noise, and it made me feel unsteady like if i was going to pass out, i am using this medicine to treat my ear infection because i get vertigo from it. I have Menieres Disease...
-- By rvasquez | Reply | (1) replies | Private Message me
August 18th
2009
5:06 PM
How long did it take for the migraines and dizziness/vertigo to go away after removal? I can't keep missing 3 days of work here and there b/c I'm unable to walk, drive, or leave a dark room despite medication?????
-- By ameigh | Reply | (2) replies | Private Message me
August 16th
2009
4:09 PM
I am 18 years old. I started yaz three months ago. During my first month taking yaz, i had a really bad fever and started getting these electric shock sensations in my head. My heart was racing and I couldn't stop twitching. I was panicking and will skip the long er story but the doctor told me it was anxiety and an allergic reaction to my cough medicine and sent me home with vicodin and atavan. I got better and didn't have that sensation for the next week. However, I was growing increasingly anxious and panicky for no reason at all and would have long crying jags where I couldn't calm myself down. I am usually a very happy person, and I just feel so depressed. The shocks started coming again, along with the twitching and feelings of vertigo. I started thinking that maybe it could be the yaz causing it and went off it mid pack. I went to my doctor for the shocks and she had no clue. I had a mri of my brain and it came back normal. I have been off yaz for two weeks now, and have since seen a neurologist. She put me on an 80mg prednisone pack which she said would stop the shocks but only have me the worst migraine of my life and shaking so bad that I couldn't function or leave my bed for for four days. I went to a new neuro and am on an new migraine medication which seems to be working better as I am up and my headache is better. He seems to think the shocks are a result of yaz. Have any of you had this symptom, and the twitching? I feel like someone has turned an electricity switch in my body and I cant stop moving. I have no clue whats wrong with me and its really scary. The only way I can sleep at night is with ambien, and I cant stop twitching even during the day. If yaz can cause this why can they even sell this awful pill?
-- By kaitlxo | Reply | (1) replies | Private Message me
August 16th
2009
9:33 AM
dizziness, vertigo, bursitis in shoulders, sore throat, constant mild cough, tooth abscesses, tooth loss, hair loss, bone and muscle pain, diarrhea, flue symptoms, sinus, nasal drip,
-- By alison1 | Reply | Private Message me
August 14th
2009
12:54 PM
Hi everyone, I had my mirena put in feb of 2008. Around June 2008 I started having dizzy spells, and headaches. Went to ENT and ruled out inner ear problems, went to neurologist and he said it could be migraines. I never had them before but have a family history. I have in the last couple months been having really bad dizzy spells and nausea, like 4-5 times a week. Has anyone else had any of these problems? Not sure if its the mirena or not, but have been to just about every doctor and no one can figure out why i have been so dizzy and nauseous> Any suggestions?????
-- By candpmom | Reply | (5) replies | Private Message me
August 7th
2009
8:19 AM
I have been on Prednisone 40mg x 5 days and am now reducing to 30mg x 5 days followed by a 10mg reduction q 5 days until I am off the med. I have read your blogs and my heart goes out to you all.
Has anyone lost their sense of taste? I can only taste salty things, but just the salt only. I have the nausea, stomach pains, depression, mood swings, inability to focus and a tremendous amount of 'floaters' in my eyes. In general, I am extremely drug sensitive, but the Prednisone has brought me to a place I don't want to be.
I welcome your input on the sense of taste issue. Thanks in advance for your comments.
-- By winny | Reply | (1) replies | Private Message me
July 26th
2009
10:52 PM
I started singulair a week ago in order to treat my allergies and mild asma. At first, I did not realize that I had headaches and head pressure due to its adverse reactions. On Friday night after my dinner I got very bad vertigo, and I did not take singulair for a day. Believe it or not my vertigo and headache went away. Tonight, I tried it again, and my ear and head pain came back.
I am calling my doctor tomorrow and stopping it right away.
Thank you all sharing your experiences.
V.
July 23th
2009
9:09 PM
lower back pain, hair loss,joint pain, complicated migraines, vertigo, palpitation, hormonal imbalances (lowered DHEA, increased aldosterone-it affected my adrenal glands and kidneys), epigastric pain, bleeding, extreme fatigue, anxiety,pulmonary failure etc. I had to go through ER, 2 CT scans ( abdominal and brain), 2 MRIs, neurologist, endocrinologist, GI, gyno etc. I threw my Yaz pills in the trash after the first CT scan that revealed multiple tumors in my liver and left adrenal gland ( i took the pills for about 3 and 1/2 years)... the past 6 months have been a hell, but there are no more migraines, anxiety or other neurological symptoms at this point. By the way, one of my best friends who just started on Yaz recently ended up in the ER last week with a blood cloth in her left lung. Please stay away from that drug!
-- By ingridm | Reply | (2) replies | Private Message me
July 22th
2009
2:54 PM
I had my Mirena inserted March 27, 2009. I have had constant bleeding and exhaustion. I cannot sleep on my stomach or back at night due to the cramping. Though my body is thin, I look like I am pregnant due to the bloating and have actually had people ask me if I am pregnant. My breasts are huge and swollen, size 34dd! I just developed severe vertigo, and am having the Mirena removed tomorrow. I am scared that the symptoms will not improve, and many have noted that the symptoms worsened before improving. I switched to the Mirena from birth control because I had depression and anxiety from the Pill, and now am worried about the post-Mirena crash, depression, and anxiety being worse.
-- By jenbarnes | Reply | Private Message me
June 30th
2009
8:10 PM
I am absolutely ecstatic to have found this webpage, although I feel like I have lost YEARS of my life to this drug. After reading the online article from The Plain Dealer (newspaper), my mom urged me to stop taking this medication.
I am 25 years old and have been on this medication since I was 12 years old. Over the years I have had NUMEROUS problems including migraines, chronic vertigo, anxiety, severe insomnia, irritability, urticaria, hives, eczema, and all sorts of GI issues ranging from GERD to diarrhea.
I have seen an allergist, a neurologist, a GI specialist, a family physician, a physical therapist (for the vertigo) and have had countless medical procedures ranging from MRI's to endoscopies.
I am horrified that ALL of these problems have stemmed from this one drug. I will NOT be taking my prescribed dosage before bed tonight and will be calling my allergist in the morning to inform them that I am going to quit taking Singular.
Thank you all for your support and for sharing your stories!
-- By dooleyme | Reply | (1) replies | Private Message me
June 26th
2009
9:11 AM
UPDATE - Day 11 post removal
Still have not bled.
Still having vertigo migraines.
Still have numbness in R foot.
Still moody/irritable.
Still bloated and GAINING water weight.
Still crying (though not as much).
Still have NO energy.
Still having severe memory issues and BRAIN FOG!!!
NEW ACNE ON ARMS!!! :-(
Taking B12, B6, magnesium, multivitamin.
I'm upset/disappointed. I thought taking it out would make me feel better right away and gradually get better and better. So far I'm the only one on here who didn't bleed right away and start feeling good. Maybe more of the progestin got into my system and it will take a bit longer for it to leave?
NEED ENCOURAGEMENT!
-- By ameigh | Reply | (3) replies | Private Message me
June 23th
2009
9:46 PM
Has anyone had side effects pop up after 3 years? Yes, you heard me. Three years. Hair falling out. Joint pain. "Foggy headedness." Chest discomfort. Gotta be that. Please share.
-- By lucgie | Reply | (9) replies | Private Message me
June 20th
2009
10:10 AM
Sorry to post again, but NO ONE REPLIED TO MY POST!
I am 5 days post removal and need reassurance. Unlike everyone else, I have NOT felt better right away. I am just as tired (if not more), more irritable, and JUST GOT ACNE on my face and arms 2 days AFTER removal! I'm still dizzy and the brain fog is just as bad. Have not bled a drop at all.
I know everyone is different, but my removal experience has been completely different... don't feel better, no bleeding/clots, no immediate improvement. IS SOMETHING WRONG WITH ME??? Was it not the Mirena after all???
-- By ameigh | Reply | (8) replies | Private Message me
Mirena (37) Yasmin (34) Lipitor (15) Lisinopril (15) Simvastatin (8) Levaquin (8) PredniSONE (7) Topamax (6) NuvaRing (6) Effexor (6) Omeprazole (6) Paxil (5) Synthroid (4) Singulair (4) Kenalog (4) Effexor XR (4) Wellbutrin (4) Toprol-XL (3) Lamictal (3) Zocor (3) Zithromax Z-Pak (2) Yaz (2) Risperdal (2) Maxidex (2) Meclizine Hydrochloride (2) Trileptal (2) Advair HFA (2) Avelox (2) Doxycycline Hyclate (2) Sulfamethoxazole (2) Depakote (2) Fosamax (2) Optimine (1) Pseudoephedrine Hydrochloride (1) Guaifenex GP (1) Biaxin XL-Pak (1) Metronidazole (1) Prednisone Anhydrous (1) Warfarin Sodium (1) Lupron (1) Tramadol Hydrochloride (1) Ambien (1) Methylpred DP (1) Metoprolol Succinate ER (1) Atenolol (1) Crestor (1) Vivelle (1) Clopidogrel (1) Amoxicillin (1) CellCept (1) Seroquel (1) Lipoflavonoid (1) Salonpas Pain Patch (1) Zyrtec (1) Lyrica (1) Methotrexate (1) Tegretol (1) Neupogen (1) Welchol (1) Solu-Medrol (1) Coreg (1) Celexa (1) Fluorescein (1) Elmiron (1) Levoxyl (1) Biaxin (1) Ultracet (1) Gabitril (1) Advair Diskus (1) Guaifen-C (1) Nasacort (1) Naproxen Sodium (1) Femcon FE (1) Biaxin XL (1)
October 29th
2009
1:32 PM
I was literally in tears when I found this site and read all of your posts. It was as if I was reading something I HAD WRITTEN. Having just returned from getting a CT scan of my head, I started researching "causes of severe headaches not related to migraines" and lo and behold this site popped up in my search. What caught my attention was the word "Mirena". Up until today I had never even considered that all of the issues I have been having since the birth of my daughter in August 2008, were in any way related to Mirena. When my daughter was about 2 months old (after my 8 week check up and insertion of the implant) I became extremely moody, sad, social anxiety kicked in, I cried for no reason, had no desire to talk to anyone, not even my husband - VERY unlike my personality. After talking to my doctor it was determined I had post partum depression so I was prescribed zoloft. Didn't work. Was still irritable and lethargic but maternity leave was up so I went back to work. I was exhausted, couldn't process my thoughts, was constantly dizzy and had blurred vision and it was all attributed to the "baby schedule (nightly feedings, no solid sleep, adjusting to schedule, etc.). My mood swings were out of control and it got to the point that I even through a knive (albeit a butter knife) at my husband. I began seeing a psychiatrist who determined I had mild bipolar disorder so he put me on medication for that. It has helped some but still doesn't control my crying spells or occasional outbursts. Recently I was so dizzy that I saw my ENT doctor who said I had vertigo. I was prescribed something for that. Still, I am dizzy and feel off balance. Most recently, I have had severe, severe, severe headaches and though there is a great possibility it is a viral issue, I was ordered to have blood drawn and to obtain a CT scan. Nothing much revealed so we set an appointment to see an neurologist next week. So, because of the worry over it, I started doing an internet search and her I am. Reading these posts brought on an overwhelming sadness because my poor family has had to endure my wrath for past 12 months. I am so angry that I didn't see this sooner and moreso that their !@#@#$% side effects didn't list ANY OF THESE discussed here. Additionally, my hair has been falling out in clumps and I can't seem to lose weight despite my 1500 calorie diet and exercise.
-- By valjo | Reply | (3) replies | Private Message meI made an appointment TODAY to have it removed. If I could yank it out myself I would. Thank you all for your posts. You may have just saved my marriage and my life.