September 9th
2009
11:14 PM
My daughter is now 20 years old. she received her 1st gardasil shot in 3/08 and the second in 8/08. She didn't get the last one and will not be getting it. From the day she got the first shot we should have known something. She nearly fainted immediately after both shots and complained of weakness and flu like symptoms. Started feeling poorly in the days and weeks to come. It was the end of her senior year the doctor tested her for mono. and it was negative but she had an extremely heavy schedule at high school. He chalked it up to the stress of that. Between the two shots she started having numbness and pains in her hands,elbows and arms. She continued to feel poorly and terribly irritable in the upcoming months. We saw a orthopedic doctor for her pains in her arms. He referred us to a neurologist. She was beginning her first year of pharmacy school and we put off the neurologist because she didn't have much time until spring break. During her 1st year of school after her 2nd shot. Her personality changed completely. Became insecure, moody, very anxious , constantly complaining of flu symptoms, bladder infections and had a hard time urinating. When my daughter returned home from her first year away at college I knew immediately that she had changed. She had been a very bright, intelligent, independent daughter and came home the daughter from hell. I couldn't believe what I was seeing. She was miserable, disliked pretty much everything. I had been talking with the doctor and friends over the course of the year and they all said that she was in a very stressful field (pharmacy) and college life takes some time to adjust. Then just a few weeks home from college she was complaining of dizziness, light headedness, headaches and saying she was having an episode. I thought maybe low blood sugars.....until I witnessed one. She was having Myoclonic seizures. She could feel them coming on but couldn't move or react. By the time I witness one of them she hadn't slept in 3 days. She was diagnosed within a week seeing a neurologist and having 50 to 60 a day. It took 4-5 weeks to get them under control in and out of the hospital . She has been on many seizure medicines it seemed like if it worked to stop the seizures she had crazy side effects. She was diagnosed with Juvenile myoclonic epilepsy. No one in our family has ever had seizures. I asked about the shot right away everyone said no and it was dropped. Since last July 08 we have been trying to help our daughter get her life back and it has been the worst year of our lives. She was unable to return to pharmacy school. The first fall 08 she was completely disabled. It looked as if she had had a stroke. They were saying it was the meds or maybe she had a breakdown of some kind. I am learning that it was side effects of this horrible shot. This is why I am posting this lengthy message because I wanted to let other people know that you and your daughter are not crazy!! We just started 2 weeks ago investigating the possibility of the gardisil shot being the reason for this madness. We have learned many things and are very sure that it was the shot that change our daughter.. I was contacted by a friend of a friend about a similar girl having the same pains in her arms and the focal seizures. I am learning more and more everyday about similar situations.. If this information can help one person it was well worth the time to jot it down. I will be praying for all of your families out there dealing with side effects from this vaccination.. I will let you know what we hear when we visit the neurologist at the end of the month. Any comments or information that may help us help our daughter can be sent to ******
-- By tdrich | Reply | (3) replies | Private Message me
May 13th
2009
2:12 PM
Just read posts. Will think how to make experience better.
I have taken my three doses within two days, as prescribed so far.
(100mg twice a day).
I may just take one dose today to give my system a reprieve and then think I will stock up on things to help, and go again and try to do the week prescribed.
I AM NOT A DR. so don't take what I Say, as Your authority...but remember that doctors are "practicing" experts at their work" and drug companies like money. Some prescriptions save lives, and others, well...one needs to research and work with or change the method or part of the method. I go herbal whenever possible and hardly take any medications.
My adverse symptoms during this prescription are: Feeling a bit depressed anxious, and withdrawn, almost toward paranoid, Almost. But still ok,"riding the rim" so to speak.
1. "I have heard"... alpha lipoic acid crosses blood brain barrier so that ought to help with brain talking to itself re:
low heavy mood.
Also amino acids, thanks for that too!
2. WATER.
3. Exercise.
4. I think nettle tea as general tonic:
(must boil first for 25 minutes for fresh nettles)
5. I'll get some dandelion root if I don't have milk thistle on hand, or maybe even if I do!
6. I know Omega 3's help with mood
and more so I hope that won't interfere
(does it have minerals???),
I will likely take it anyway between pills.
7. Stay out of sun for now.
8. Vitamin D3.
9. Eat good size meal first.
10. Some Vit. C seems good and also B Vit for stress.
11. Rescue Remedy is a Bach flower remedy for stress. Take as directed, but AGAIN, go slowly if you are listening here, as EVERYONE is different.I take no responsibility for how these things
may effect YOU...but i hope it helps.
One needs to think and trust...
"How do I really feel?" and do the research and look for YOUR options. What works for one doesn't always work for another. I am going to think: what is an immune booster and what is a mood stabilizer, with foods and vitamins, and see if I can keep the prescription going for the week. Coffee~caffeine causes me anxiety. But Turkey has tryptophan in it, that calms.
This is how I NEED,
to THINK...very carefully.
Will call Dr. NOW and let him know what's up for me, and meanwhile, I will try to manage it from info I can muster.
Will see...I don't know outcomes yet, but I do feel, depressed right now.
Stay alert, be gentle and pampering where possible, with my day, calming music, meditate on PEACE...call a friend for temporary support, and do my best.
Here I go....water, big meal, pay attn. to what I need.
CHANGE prescription if too hard!
But...try this way first.
Some people generally absorb meds well and some don't.
March 24th
2009
10:00 PM
I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,
March 23th
2009
11:30 PM
My husband has been taking Lipitor for a year. Several weeks after he started taking it he had muscle aches and when he went for a follow-up we discussed this concern and the neurologist said that it was ok and would go away. He had a stroke several years before and had some damage and he was tired. He complained about him getting weaker and his muscles hurting, he has left shoulder and arm pain. His chest hurts on the right side and doctors told him that he has inflammation between the muscle and chest wall but it has not cleared up after many months and meds. He is so weak now and is dropping things. He has some muscle twitching. I think it is from the Lipitor because the symptoms started after he was put on this drug. Doctor says that it is very unlikely..Has anyone else had these problems while taking Lipitor???
-- By kathy57 | Reply | (3) replies | Private Message me
March 8th
2009
9:39 PM
having bad night sweats and racing heart
-- By tornadohardyboy4 | Reply | (2) replies | Private Message me
January 22th
2009
12:46 AM
JILL HERE . THANK TO THOSE WHOM HAVE RESPONDED TO WHAT I TALKED ON WITH LIPITOR AND MY EXPERIENCES. THE PRINCIPLE OF WHICH IME STILL INTERESTED IN WITHOUT BEING DIVERTED.
ONE WEEK ON EATING VEGIES, FRUIT,SALADS, WEIGHED OUT PROTEIN, FISH,CHICKEN. BROWN BREAD, NO MARGARINE OR BUTTER,VERY LITTLE CHEESE, NO LIPITOR, A GOOD QUALITY VITAMIN C. NOT USING ANYTHING ELSE BUT A GOOD FISH OIL AS WELL, NOW TOTALLY BACK ON TRACK. LIPITOR WAS MAKING ME NOT ONLY FEELING ILL BUT ILL IN A WAY I KNEW I WOULD BE IN TROUBLE TAKING IT ANY MORE.
THANK GOD IME NOT. I MAY NOT STAY ON THE VIT.C. BUT THE GOOD QUALITY FISH OIL , YES. IME WORKING HARD ON OTHER THINGS ALSO AS A ALL ROUNDER WITH PERSONAL GROWTH, AND WILL ASK FOR A BLOOD AND URINE TEST IN SIX WEEKS TIME, AND TAKE IT FROM THERE, ON THE RIGHT TRACK NOW, THANK YOU FOR YOUR INPUT.
HOPE ALL WORKS OUT FOR ALL OF YOU. BY THE WAY THE DR. WILL BE A DIFFERENT ONE TAKING MY BLOOD AND URINE NEXT TIME. IRRETRIEVABLE DAMAGE NIPPED IN THE BUD JUST IN ENOUGH TIME.
REGARDS. JILL.
FOR ME IVE BANNED STATINS. AS A LADY WHOM HAS NOT HAD ANY MOOD ALTERING CHEMICALS FOR OVER FORTY YEARS. IME NOT ABOUT TO MESS MY LIFE UP WITH ANYTHING JUST BECAUSE SOMEONE SAYS ITS OK, AND HAS QUALIFICATIONS.
I QUESTION ALL , AS THERE IS TOO MANY SCIENTIFIC CONS OUT TODAY. TAKING RESPONSIBILITY FOR ONES HEALTH IS A MINE FIELD I ADMIT AND I WILL ALWAYS HAVE THINGS CHECKED THROUGH, IME NO FOOL. BUT ALONG WITH THIS I ALSO MUST KEEP AN EAGLE EYE OUT , AS A INDIVIDUAL I CANNOT TELL ANOTHER WHAT TO DO.
GOODBYE. J.
December 9th
2008
3:22 PM
I recently increased my dosage from 25 mg to 50 mg and noticed my hair has been falling out. I just feel tired all the time. I thought I was going crazy until I read this site! I will talk to my doctor very soon. I did not think there would be problems with a "low" dose.
-- By flmanatee | Reply | (2) replies | Private Message me
August 4th
2008
2:41 PM
I was prescribed Levaquin for a bout of diverticulitis six weeks ago. About a half hour after taking it each morning, I felt completely unwell--dizziness, fatigue, overall weakness, odd sensations of pressure in my head, chest, and bladder, weird bouts of sudden joint pain. The worst side effect was terrible insomnia. I'd go to sleep OK, but wake up after 3 hours and not be able to get back to sleep, sometimes for the rest of the night. Instead of getting the rest I needed to get better, I was getting more and more exhausted. Now, a month after stopping the medication, my sleep hasn't returned to normal. I'm still awake in the middle of the night for two or more hours. Is this a residual side effect from Levaquin? Has anyone else experienced it? When can I expect my sleep to improve? Is there a way to detoxify from this drug?
-- By cindyo | Reply | (4) replies | Private Message me
July 9th
2008
12:32 AM
I took Levaquin for five days, beginning on June 5th. My doctor gave them to me in the individual "blister packs", not in the box or with any pamphlet. I had/have horrible joint pain in my ankles, knees, and hips. The pain in my hands and wrists is almost gone, but the rest is still there and, in some areas, getting worse. I called the doc. and told them about my problem, they said all the side effects should go away after about 72 hours from the last dose. Has not happened, its been over a month and my left ankle and hip are worse. Does anyone have any advice? I'm ******
-- By donnaford3 | Reply | (1) replies | Private Message me
May 8th
2008
3:50 PM
I have a question to NuvaRing users...I am not allowed to take Vit C or E while on the NuvaRing? I take Vit C everyday and am now worried it will decrease the effectiveness as it states that on some websites..any one have any valid info on the statement?? Thanks so much!
-- By dancingqueen | Reply | Private Message me
March 25th
2008
9:24 PM
Here is the link to the information about vitamin deficiency and medications. You can search different types of meds so I hope it is helpful...this is where I was able to go through and figure out which vitamins would be useful for me to take to help with the side effects. Now this is good because these are vitamins that Topamax is absorbing ouot of your body so all you are doing is replenishing it into your body to help prevent the side effects. The only side effects that I couldn't really find a vitamin for was the eye strain (and after asking the pharmacist she said that is a nerve thing so there wouldn't be anything) if you are having that, and the weight loss. Hope this is helpful. I have been searching since my first post hoping I could find the link...
****
-- By blessed08 | Reply | (2) replies | Private Message me
September 16th
2007
5:11 PM
In the past I had taken two separate three day courses for diverticulits, it worked right off, no problems. Last time I had diverticulitis, my doctor prescribed 10 day course of combo levaquin and flagl. After 7 days, I started to get hip joint pain, foot joint pain, and mild numbness in fingers on both hands and toes on one. I called doctor, and stopped the levaquin, and fortunately, the divertiltis was gone. However, the joint pain lessened after stopping but is taking weeks to fully go away.
I have found that silica (usually found in horsetail or oceanic) is helpful against the joint pain. (I had also tried selenium, msm, but were of no help for this joint pain.) Most of the joint pain is gone after several doses of silica, but the numbness, though lessened, lingers on a bit.
i don't think I'll take levaquin again for diverticulitis unless I'm dying. I've found that garlic tablets (I like solary's) very helpful, as is vitamin-c, for fighting back my intenstial bugs, and if I use garlic & vit-c for 5 or more days, it seems to cure the problem. Also I've heard that bacteria do not build up immunity to garlic, that it is a broad-spectrum antiboitic and antiviral, and so even if I stop taking it too soon and the bug comes right back, I can just get back on the garlic for a longer time, no worries about mutant bacteria.
-- By guest0222 | Reply | (1) replies | Private Message me
May 21th
2007
7:13 PM
How long does the fatigue and weakness last after switching off Lisinopril. My dad was on it less then a month and he started suffereing from extreme fatigue and lightheadedness. He's been off it now for a week or two and still seems to be suffering from these side effects. They've switched him to a different low blood pressure med now.
-- By miwig | Reply | (1) replies | Private Message me
May 9th
2007
10:30 AM
Feeling like one is not all here, and, shortness of breath are a symptoms of thyroid system problems caused by lisinopril that I have had, along with weight gain, favoring sweet sugary foods (I've traditionally a meat eater, no dessert, no sugar, few starches).
The most likely action seems to be that the lisinopril creates a chemical toxicity that overdrives the immune system, which then runs the body low on or out of zinc and selenium. (Of course then there is the more direct lung dammage that lisinopril causes too.)
I have found the following helpful: Zinc, selenium, L-Cysteine, tyrosine, iodine, boron, and other trace minerals help and nourish the thyroid system. Manganese and molybdebum help the lungs function better (they are used in asthma treatment). Iron, copper, and chromium sometimes also helps the lungs work better. Sulfur (MSM), L-cysteine, and silcia (found in horsetail form or oceanic form) nourish the lungs as they are found in high concentration in the lungs. Calcium and magnesium, vit-e, vit-c, vit-b are also helpful. Since I'm in the hbp camp, I also try to get plenty of magnesium, which relaxes muscles including arteries, and potassium, which helps transport other nutrients into the cells.
-- By guest0222 | Reply | Private Message me
February 8th
2007
9:35 PM
tommy,
My experiences taking lisinopril convince me that my immune system was hurt by the drug. In trying to clear out the cough, my immune system used up my body's stores of zinc and selenium, which weakend my immune system, let the cough get worse, and also caused other problems since zinc and selenium are used for other functions too (like thyroid system) and those then suffer too.
For your dad, you might consider getting off the lisinopril, and, taking extra zinc, selenium, vit-c, vit-e, vit-b, and, bioflavinoids and betaglucan. I personally have found zinc & selenium very helpful with clearing up my lungs - these minerals are key to the functioning of the immune system. Also vit-c and vit-e are good for healing. Bioflavinoids are good for certain kinds of sores. And betaglucan stimulates the immune system. (If you beef up with these minerals for an extended time, you might also consider beefing up all the other ones too somewhat to avoid imbalances.) These things helped me a lot, I hope something in the list helps your dad.
-- By guest0222 | Reply | Private Message me
February 4th
2007
6:13 AM
I have been taking 20 mg. Lipitor for so many months now and continuously experiencing sore muscles and my wrist seems to have arthritis. I have told all these symptoms to my cardiologists and just told me it is not from lipitor. Iam a Veterinarian and I am not convinced with his response. The only good thing is that he is monitoring my blood chem and my cholesterol is within normal level. I am taking antioxidants (cod liver oil,Vit C and E,Mg,CoQ10,Chromium) and lots of olives and nuts. I am also taking those expensive drug- acid reflux and BP lowering drugs. I stopped using Lipitor for 7 days now and will go organic.
-- By romeo_suing | Reply | Private Message me
November 17th
2006
10:34 PM
There is something seriously wrong with this generic drug, maybe quality control. It now has 68 pages of complaints, and continues to grow rather fast. It seems even worse than other ACE inhibitors, even the brand-name/non-generic versions of this same med, like zestril or prinivil. It is obviously toxic for some people, like me. I compare this to other meds I know about that have 1 or 2 pages of complaints.
For what its worth, a bit of extra zinc and selenium seem to help a lot with the cough, also with other problems from this med. Also vit-c and vit-e. Best of luck to all.
-- By guest0222 | Reply | Private Message me
October 29th
2006
11:45 AM
THANK YOU guest 31854, that was a very helpful response to many women on this site!
Silke
BitterRN here. OMG! you have been stressed! I think you need to slow down! I think we dont realize the stess that adds up in our lives. But your body needs rest right now so that it can keep up with hormonal demands. I think you understand. I think you were taking good care of your body and when you started to feel better, you started to do too much:) This is a common response though, I am guilty of the same thing. Remember you need your tank to be full before your body wont feel the effects of increased stress and activity in day to day life, and it sounds like yours is a busy one!
YES! I think it would be beneficial for you to get your hormones checked still, if you find the right doctor I think you may find you will be feeling better much faster. Try googling or yahoo bioidentical doctors in (whereever you live), or sometimes they are listed under anti-aging doctors. But if you do end up going to your gynecologist again when they test your hormones again, ask for a copy of the last report and get a copy of the report they do again so that you can compare the results to the last. This will give you an idea of which hormones have come up and which have not.
Last thing also a long time ago I gave you this website which has lots of hormone teaching on it. I think you would find it very informative... salivatest.com... look under hormones 101.
Ok Silke, take care, and remember to eat right, REST, and take time out for yourself! OK. I take a B complex vitamin with vit. C in it for stress ( I think you said you were taking these vitamins as well.) Drink lots of water and little to no caffeine ( caffeine stresses the adrenal glands) but I think you are already doing this too. Oh and also Silke I was reading back one of your earlier posts you said your face was swollen and a neighbor asked if you were taking a medication because you looked hormonal, I experienced this too especially on my face, it would feel swollen and almost like I had a sunburn and mushy too!
Well take care and keep in touch,
BitterRN
October 10th
2006
9:47 AM
Lisinopril seems to put a heavy detoxification load on the immune system. As a result, the body seems to use up zinc and selenium (and other things, of course, like vit-c, vit-e) at a high rate.
When the body runs out of zinc or selenium, additional problems happen. The immune system is not able to keep up with the detoxification needs, and I think this is a major factor with the cough.
In addition, other systems besides the immune system are also negatively effected when these nutrients run low. For example, selenium, is very important for joint health, and, it is also key in thyroid function (both at the receptor site as well is in the thyroid itself), among other things.
The combination of direct lung damage related to the cough, plus the lowered thyroid function from lack of selenium seem to me to be the major causes of the breathlessness or shortness of breath problems that I've had so much of.
Another problem is that taking selenium supplementation, even when deficient in selenium, further depresses the thyroid. So, I have found a number of things that help me counteract that, in order that I can take the necessary amount of supplemental selenium to feed my immune system. These other things are calcium, boron, iodine, tyrosine, zinc, magnesium. Also, I take the extra selenium only at night, when extra thyroid depression is more tolerable.
Also, for really damaged lungs, as mine were, I found that cysteine, msm, and horsetail (for silicia) also helpful.
And to help with the stomach problems that lisinopril caused me, I found glutamine helpful.
My problems persisted for a long time (2+ years) after quitting lisinopril, however, each time I discovered one of these helpful nutrients, my recovery took a leap forward. I'm pretty sure that if I'd known right away about the zinc & selenium, in particular, I'd have been able to get back on my feet in several months instead.
-- By guest0222 | Reply | Private Message me
August 3th
2006
8:48 AM
At night when I go to bed parts of my body jerks. Sometimes both shoulders, sometimes a foot or a muscle and other parts of the body. Also, my fingers lock. Plus, my hands aren't steady and my legs feel weak. I'm 72 and have been on Lipitor for about five years. I don;t if I should stop taking it and what I should try. I take 500 mg of Vit. C and omega 3.
-- By twinkle | Reply | Private Message me
July 3th
2006
3:44 AM
Thanks for your help Sandrak.... i am taking vitamin B complex, vit. c, and vit. E... Recommended by my doctor.... So, like you said, hopefully I will be getting better soon...
-- By queenofsnow | Reply | Private Message me
April 28th
2006
9:39 AM
After taking lipitor 6 weeks, both of my upper arms down to my elbows began to ache 27/7. Some leg and back muscle pain also. My VA doctor took me off lipitor 8 weeks ago. The pain continues. I just started taking 3000 mg Vit. C daily to hopefully lower or eliminate muscle pains. Any one know of a cure for this awful muscle pain? My VA doctor doesn't have a clue what to do for it. ths.
-- By bill344 | Reply | (1) replies | Private Message me
August 12th
2005
11:47 AM
I'm guest 12586 jules, could u explain why vit. c is helpful for after pred. use? Glad to see u back. No more insults and I sincerely apologize again.
-- By trailblazen | Reply | Private Message me
July 23th
2005
1:41 PM
Very stiff and sore neck, very tired.
All of this talk about lipitor....I am having real problems, and have just now discovered it is caused by lipitor! How I wish I had found your site sooner.
My real problem is triglycerides....lipitor has brough them down from in the 1100 range to a lower but still too high.
I am convinced that lipitor is hurting me very much....but what can I do to control my triglyceride problem. I am taking 1 tab of lecithin daily, and now will start 3000 ml of vit c. What if it all gets out of control again. Help
Lipitor (9) Lisinopril (9) Levaquin (3) Topamax (2) Yasmin (2) Gardasil (2) Advair HFA (1) Doxycycline Hyclate (1) PredniSONE (1) NuvaRing (1) Zocor (1)
September 22th
2009
10:13 AM
My daughter has periods of not being able to eat. She feels as if she can't swallow the food. She has terrible time breathing. She had to go to the doctor three times in one week because she couldn't breath. Within an hour of her last visit she had her first Grand Mal Siezure. After her last shot she had another seizure within the week.
She continues to complain that she just wants to feel better. Other symptoms include no energy, lethargy, rash, vertigo, aggression, irritability.
-- By mlbk | Reply | (3) replies | Private Message me