June 24th
2009
3:49 AM
Hi I am feeling the exact same way now. I'm 20 and I've been on it for about 8 weeks. I'm having horrible hot flashes and anxiety attacks and feeling tingly literally all through out the day. I just constantly feel hot all inside my body. I'm feeling crazy and whacked out in the head and i am terrified. If you are off Loestrin how long did it take for your side affects to wear off and do u feel like ur normal self now. Also yesterday I decided to quit taking the pill all together and now I'm taking estroven extra strength, iron pills, and vitamin b12
-- By briauna2003 | Reply | Private Message me
May 28th
2009
6:53 PM
I went absolutely insane on this pill after 10 weeks. I'm a pretty confident person and I had NIGHTMARE anxiety attacks and nausea completely out of nowhere. Lost weight, and was just generally shaking all the time. This would lead to crying and feeling completely out of control and like I wanted to jump off my balcony. I went on this pill to relieve horrible cramps associated with my period but I would seriously rather have horrendous cramps two days out of the month than feel like I am losing my mind.
If you are at all sensitive to hormones (and isn't that most of us?) PLEASE do not take this pill.
-- By pk22 | Reply | (1) replies | Private Message me
April 29th
2009
4:07 PM
ALERT!!!
If you have been having any one of these side effects, then AcipHex may be causing nerve damage.
-- tingling or numb hands or feet
-- confusion / "fuzzy head"
-- ringing in the ears
-- vision changes
-- anxiety
-- depression
-- apathy
-- fatigue
It may be serious. In my case it certainly is. I can barely use my hands. Why it happens:
AcipHex cuts down on stomach acid. Sometimes it cuts down too MUCH acid. In that case, you are unable to break down animal products enough to absorb vitamin B12 from it. Without vitamin B12, your nerve sheathing erodes. My advice would be to stop AcipHex and get a good vitamin B12 supplement (sublingual -- the type that dissolves underneath your tongue, and at least 1000 mcg). I would also advise to get the book -- Could It Be B12? By RN Sally Pacholock. Before starting supplements, insist on a urinary MMA test. It is the only B-12 test that does not give false positives or negatives often.
This book has literally saved my life.
-- By wowokagoo | Reply | (2) replies | Private Message me
March 18th
2009
7:12 PM
My 12 year old daughter completed the 3rd round of the Gardasil shot in late August of 2008. School started the next week. A couple of weeks later, she became ill and I rushed her several times to the doctor and to the emergency room only to have the doctor say she had a virus. After 2 weeks of horrible pain, nausea, and headaches, I took her to the emergency room at Wake Forest Baptist Medical Center. She was referred to a Gastroenterologist where she has been going ever since. The doctor has had her on pain medicine since December to help her cope. I analyzed all of her information and compared it to the 12,000 cases in the VAERS database and I am convinced that the shot made her sick. NO DOUBT! The database is located at http://www.medalerts.org/ and you can run the lot # of the dose given to you through the database to determine if their has been any adverse effects noted. The first dose that Lauren had was listed 78 times. Her second dose was listed 70 times. Her third dose was listed 74. I researched the ingredients contained in the shot and the one that I am concerned with is Aluminum. After researching the effects of aluminum poisoning, I believe that she has all of the signs. I begin treating my daughter at home with sublingual (dissolves under the tongue) Vitamin B12 and Vitamin C tablets available at the local drug store over the counter. My daughter has been sick for 7 months and has missed almost her entire Eighth Grade year. As you can see, since starting the vitamins, she has gone from being sick 97% to only being sick 28% of the time. This is a BIG improvement and this may help other young ladies who are affected. I don’t think it will help all, but as sick as these girls are, I don’t see how it could hurt. Her doctors at Wake Forest are aware of what I am doing and agree.
Month Sick Well
SEPT 93% 7%
OCT 97% 3%
NOV 83% 17%
DEC 87% 13%
JAN 71% 29%
FEB 43% 57%
MAR (WK 1-3) 28% 72%
My daughter has been referred to Duke Medical Center now and will go for her first appointment in about 1 month. The FDA and CDC need to pay attention to what is going on and pull this drug off the market. If you have been affected, please ensure that you report your reaction to the VAERS Database. Your doctor is required to report adverse effects, so demand that they do so.
I hope this helps, and if anyone tries the vitamins and it does help or if you would just like to ask me some questions about my daughters experience, email me at ****** and let me know. I will update the doctors at Wake Forest and Duke. Hopefully, if we band together, we can get to the bottom of this and figure out what to do help these vaccine injured girls.
-- By rdmathis2 | Reply | (2) replies | Private Message me
December 31th
2008
8:47 AM
I was on the Yasmin pill for 5 months and suffered severe health problems for 3 years. It almost took my life. I actually heard popping sounds in my head when I first went off of it and on it. My symptoms were digestive, head aches, numb limbs, weakness, tired, severe menstrual bleeding, clots, depression, instability, low immune system, heart palpitation etc. In short I was very sick all of a sudden for no other reason than taking this pill If this has happened to you I advise the following which saved me. You need to do the following. Find a doctor that will take you seriously and understand that your problems started with this pill. My OBGYN resisted it for a long time until I was so sick it scared her. Seek an endocrinologist and neurologist if needed. Make sure your blood work checks the following: Any issues with blood clotting including protein c antigen. Mine was low which left me at risk of a blood clot after this pill. Also the pill can lower and this one more than others your b12 levels in your blood which is very dangerous. Research b12 deficiency and see it the pill did this to you. B12 levels should be no lower than 500. Also have your vitamin D levels checked in your blood. This pill depletes b12, vitamin D, causes clotting, affects the liver and so on. It took me 3 years to fully heal. Once I was on b12 shots, Vitamin D daily and had other blood deficiencies corrected after being on this pill I began to get better, but that took 3 years and I was so sick at one point I could hardly do anything and my heart so affected I almost had a heart attack. My blood pressure was uncontrollable. I am currently involved in a class action suit. You can be a part of it too. Good luck with your health first. I can say I am finally on my way back to health fully. Some have not been so lucky after taking this pill, but it took me personally 3 years to get back to the healthy woman I was before this pill. In the process I also lost a pregnancy due to the severe health problems. Don't lelt anyone tell you it is not this pill. If you know it is, no one knows your body better than you!
-- By karina69 | Reply | (1) replies | Private Message me
December 15th
2008
9:09 AM
I was using every excuse possible for what I have been experiencing. I started NR in May, now it's December, I was scheduled to take it out. Since I started I noticed acne, which I never had even in my teen years. I blamed it on the towels in the gym, stopped using those, then on the sweat from workout... kept trying new acne treatments, but acne magically disappears during the ring out days. I'm not sure if I can call depression, what I felt, it was like I'm never happy with anything and many days in a month my thoughts were very dark, unhappy. I noticed serious decrease in energy, blaming it on 2 children, but my son was a year old when I started NR and I had more energy before with newborn and a toddler daughter. Again I thought, he's so active... I have hard time getting out of bed, sometimes sleep is ok, sometimes no sleep for hours, but this happens to many people. night sweats I was blaming on the blanket, the thinnest one we have(my husband uses 2 at night), I was waking up many days in a month drenched in sweat. No discharge, yeast infection for me, lower sex drive. Even more interesting- I noticed the smell of my partner to be less attractive... Then I read in a magazine that BC messes up with the smell as well. I had horrible headaches, feeling I'm going to pass out< dizzy< especially if I was trying to rush(blamed it on rushing too much). I was growling(like my daughter said) at the kids with the smallest mischief, it's like a little bomb heating up and bursting in my head, I felt rage, not anger, total rage.Life has lost any appeal for me, this is not living, just suffering, I thought all the time. But here I am at home with two little children, hardly ever see friends, always doing work around the house, laundry. Hot flashes during the day are frequent and I feel like I want to tear my clothes off. Recently I started to have a lot of pressure in my chest, like it's hard to breathe. Just last week I almost went to the ER, because I was laying on the couch unable to speak out loud, just whispering, could not move. Then couple of days ago my heart started to ache, it aches now, so last night I looked up the side effects of NR, because I didn't even know where to start with this condition, that has all these symptoms I have been listing. I was planning to go to the doc for all the test. My stomach has been hurting slightly in the last 3-4 weeks(I thought it was food, but no one in our family had any problems). I am 28year old in great shape(I cut back on my food intake to keep th weight the same), I work out 2 times a week and have a very active lifestyle. My relationship with my husband is great, my children are well behaved for their age, So I'm stopping NR before I get divorced like some other women did. If you want to try NR go ahead, it's really convenient, but be aware of all these side effects, so you know, it's not something else, before it's too late.
-- By elena1980 | Reply | (1) replies | Private Message me
December 4th
2008
9:56 PM
I was on Nuvaring for one month and things were okay but not great - nausea and cramping. Then after taking it out for a week and putting it in for the second week I only made it 3 days before I thought I was going to die. I did the patch years ago, which admitting that raises eyebrows but that was a cakewalk compared to this! I feel like it's ruined me for good because I took it out two weeks ago and the symptoms aren't getting better - they're just changing. I feel pregnant and I know I'm not. I feel like I have cysts or something and I know I need to see a doctor. I'm so scared that using this for a grand total of 3 weeks 3 days has ruined me. I have heartburn, cramps, abdominal pain, swollen breasts, weight gain in the mid-section...this was THE worst idea ever!
-- By cawheels | Reply | (2) replies | Private Message me
November 4th
2008
12:04 PM
Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?
-- By 3surgeries2many | Reply | (6) replies | Private Message me
July 10th
2008
9:51 PM
Hello-
I took Yasmin for a 1.5 years. I am now 2 years post Yasmin. In hind-sight, had I known what I would live through both while taking Yasmin as well as the 2 years following, I would never have taken it in the first place.
I am going to summarize some of those side effects below:
For the first 1.25 years, it seemed like I was living in an dream. I was that spaced out all the time. No affect, if you will. I felt like a zombie.
Exhaustion/Fatigue:
I became lethargic all the time. Previously, being very athletic, I had no energy at all. A walk made me yearn for a nap. 2 years post Yasmin, I am still trying to recover and bring back all the muscle tone I lost. Reading through alot of possible side effects, ataxia (muscle atrophy/loss) was one of them I suspect could be linked to becoming dehydrated.
Painful plugged eardrums:
Every morning after i would take Yasmin, my ears would have this "popping sensation" much like what it feels like when you are on an airplane and the pressure changes. Over time, my ears became quite painful like I had alot of pressure built up in them. I later learned from a Hearing Doctor that it could well have been the potassium sparing diuretic as the inner ears are composed of potassium/sodium and the diuretic could offset its balance. This doctor also told me that in their field they have known forever that artificial/synthetic hormones are toxic to the inner ears. No other doctor I saw coming off of Yasmin knew this...
Melasma:
I developed brown spots on my forehead, beneath my eyebrows and on both cheeks within starting Yasmin in the first month.
Constant Urination:
I urinated every 15 minutes for 1.5 years straight that I was on Yasmin. Learned later about the potassium sparing diuretic in it a little too late. My blood tests showed I was dehydrated and was deficient in Folic Acid and Vitamin B12. Both 2 common deficiencies seen with artificial/synthetic hormone use.
Chest Pain:
1.25 years into taking Yasmin, at the onset of menses, I developed this pressure in my chest and sharp stabbing pains. The next month, again at the onset of menses, the pressure occurred again, this time spreading across my chest. I went to see a Doctor at that point who discounted that Yasmin could be involved at all. (Not sure why a member of the medical community would say that given I have since read a number of articles that suggest that Yasmin and Yaz both run a higher risk for clots/pulmonary embolisms then other birth control pills). Regardless, I had a chest x-ray to ensure my heart was not enlarged and had an EKG which just showed an abnormally slow heartbeat-Sinus Bradycardia. It was recommended at that time that I have a ECG (echo-cardiogram). Tests start at $5000 each and I did not have coverage for this kind of test.
I went off of Yasmin now, almost 2 years ago. Going off I spent the last 2 years getting sick every month at the onset of menses with severe bronchitis, chest pain that still occurs at menses (I have since learned can also be brought on by low levels of oestrogen and progersterone at menses) and gained 30 lbs.
Blood tests showed I was depleted of Vitamin D, B and Folic Acid, dehydrated and also had elevated potassium (a possible risk with Yasmin's potassium sparing diuretic.
I would encourage everyone to google anti-mineralocortoid (diasperonone) and anti-androgenic effects (Spironolactone)
These are both acting ingredients in Yasmin.
This has been the toughest couple of years in my lifetime. Initially it seemed like a great pill. My skin cleared up, I lost weight and my periods were only 3 days long. On that note, it took a whole year and half for my periods to go back to 5 days from 3 days long so again, doctors telling me that Yasmin would not and could not be affecting my body after stopping, just went to show it took that long for my own body to start re-producing its own natural hormones.
Through all of this, I have met amazing women and other survivors who have offered enormous support. I would suggest to any of you that find your way here to trust yourself and your body first and foremost to what anyone else may discount or try and remedy with anti-anxiety and anti-depressant medications. There are a host of amazing authors out there as well who enlightened me enormously on the role of hormones in our bodies, and ultimately, their balance to our overall health and immune function:
Dr. Lee and Dr. Hotze. They both have websites and books which are wonderful. I would also suggest googling Yasmin Survivors online, which will take you to another resource/forum of women who are sharing side effects and healing and survival techniques coming off of Yasmin. The site is: ******
-- By yasminsurvivor2008 | Reply | (1) replies | Private Message me
June 30th
2008
6:22 AM
Hello all Yasmin Survivors.
I stopped taking Yasmin in July 2005 and three years on I am still re-building my life! I feel this pill and its side-effect stole some of my best years, I am 33.
My main side effects were extreme anxiety, agoraphobia, pounding heart, panic attacks, fear of doing anything (even going 10 minutes away from my own home). I was on it for 12 months and the side-effects started very gradually at about 5-6 months, I barely noticed them creeping up on me. It took me another 6 months of taking it to start to question whether Yasmin could be causing the extreme change in my personality. I think if I hadn't stopped I'd have had a major breakdown. I had lots of weird physical symptoms too including, bloating, passing urine all the time, leg cramps, dizziness, hair loss.
Anyway, all the extreme anxiety and stress caused by Yasmin left me with exhausted adrenal glands - which I'm now trying to re-build. Anyone feeling fatigue, nervousness, anxiety, inability to handle stress in the same way as you used to, PMS several months after stopping Yasmin should look into Adrenal Fatigue as a possible cause of their symptoms. It's hard to treat and can take a long time to recover - but there are lots of things you can do to help your body re-build. Visit ******(doctor Andrew W. website on Adrenal Fatigue) as a start to find out more about the condition and how to find out whether you are suffering from it.
It would be good to hear from more people re-building their lives after the impact of taking Yasmin on this site. Also, is anyone out there trying to put together a class action?
Sarah
August 7th
2007
6:45 PM
I was having terrible heartburn and would start vomiting this acid stuff from my stomach in my sleep. It was awful...actually coming up my nose as well. My doc gave me prilosec and after about 10 days my face was so swollen I couldn't even open my eyes. Now my doc gave me about 30 days samples of aciphex and I am having severe prickly feelings in my legs and arms. I still don't have a diagnosis for my problem....guess it's GERD or something. This has been six months for me and I am just at a loss what to do. For now I think the prickly feeling is better than choking half to death in my sleep.
-- By mishmaria | Reply | (1) replies | Private Message me
June 22th
2007
4:47 AM
I too have been taking Aciphex for acid reflux for about three weeks and although it seems to have helped with the burning and nausea, I have just recently (four days ago) been experiencing a slew of symptoms. They include headache, blurred vision in my left eye, facial numbness, both forearms numbness, leg (knee down) numbness, and tingling sensation in head. I went to the ER yesterday due to the left arm and left side facial numbness. They ruled out heart attack, blod clot, stroke, bleeding in brain, and brain tumor via a CT scan and a host of other neurological examinations. Doctors have suggested an MRI to rule out something else neurological (MS, neurofibromatosis, etc.) that a CT scan might not pick up. Also, will do a neck MRI to rule out a bulging disc or pinched nerve. I am hoping that it is just the Aciphex.
-- By dgarabedian | Reply | (3) replies | Private Message me
May 2th
2007
7:25 PM
Been on Aciphex about 3 months I have daily tingling feeling throughout my spine.
-- By tandmkelly | Reply | (1) replies | Private Message me
April 21th
2007
11:56 PM
I have only been on Aciphex for 1 day, and I have tingling/burning in my arms and hands! My stomach feels great, I can actually eat without curling up into a ball on the floor in pain, but I don't like this tinging, almost funny bone, feeling.
-- By schorno | Reply | (1) replies | Private Message me
March 29th
2007
2:31 AM
About three or four weeks into the aciphex, i started getting strange tingly almost numbness sensations in my arms, elbows, face, around the mouth/jaw, back of the head/scalp, sometimes it feels very "whole body"ish. It feels like i'm being pricked with something with electrical current and getting a shock. It's very strange and quite worrisome! Searching the net it sounds like this is a possible side effect of the aciphex. I hope that's all it is, but I will ask my doctor if there are any other possible causes we should rule out. At this point if it turns out to be a side effect and it doesn't go away (it's been 4 days now), I'm not sure if i'd decide to stay on the aciphex or try something different. It helps the reflux but doesn't solve it.
-- By jessica262 | Reply | (1) replies | Private Message me
March 20th
2007
10:25 AM
Sucess Story:
I am a 38 yo female, I have severe endo, I had a bowel re-section because it ate through a portion of my small intestine. I just received my 6th shot today, and my doctor and I agreed that I am going to start the regiment over next month. (another 6 mths)
I have actually had an okay experience with Lupron. I have had hot flashes, night sweats, moodiness, and bone/joint pain and headaches. These symptoms seem to occur more toward the end of the month within a week or so of getting my next shot.
The symptoms are not fun, but neither are they unbearable. I have a good quality of life and the symptoms do not interrupt that in any way.
Additionally, sorry if this is TMI, but I have had no drop in my sex drive/urges, things just take a little longer to get going. My partner understands this and is most supportive.
Every day I take:
Multi-vitamin
Calcium/Magnesium supplement: 1000 mg Calcium/667 mg Mag
Omega 3 Fish Oil: 1000 mg
Vitamin B12: 100 mcg
I drink quite a bit of soy milk also
Good luck to those of you who are either on it, or considering it. My empathy to those who are having a horrific time with it.
-- By taraljohnson | Reply | Private Message me
February 5th
2007
10:26 AM
About 2 years ago, I stopped Aciphex because I was getting muscle pains and ocasional pins and needles. I went Pepcid AC. About 6 months ago I decided to give Aciphex another try, feeling that maybe it wasn't causing those symptoms. Now, I've started getting ocasional pins and needles again, only worse than last time--so now I'm back on Pepcid. I hope the pins and needles go away.
-- By robertwpsu | Reply | (1) replies | Private Message me
December 4th
2006
6:25 AM
tingling and prickly feeling - have been taking it for years..this is new development.. have had neuorological tests..negative.
Any input?
September 27th
2006
1:26 PM
Hi - I have been taking Aciphex for just over a week and have noticed that I have muscle aches in my arms and legs with ocassional pins and needles and that my face tingles. I was begining to think I had some other major illness but it just sounds like the medicine. Do many of you have the same?
-- By viks | Reply | (1) replies | Private Message me
July 8th
2006
5:25 AM
I had headaches with prilosec and nexium so I switched to aciphex which is great for my headaches but I still get frequent heartburn which I guess could be a result of my esoph. ulcer which is not yet healed. I have chapped lips, sometimes anal pruritis, pins and needles in my legs and I was having very large b.m.s in the beginning but now am contstipated.
-- By dasingeresq | Reply | (1) replies | Private Message me
June 3th
2006
5:57 PM
I've been taking Aciphex for a couple of years now. It has taken care of my heartburn very well. However, for some time now I've experienced difficulty breathing when I lie down along with a cold tingling sensation in my feet that at times is almost unbearable. My Doctor can't tell me why. A friend mentioned that she has just received a prescription for aciphex and read that these are some of the soide effects. Can anyone expound on this?
-- By heykid | Reply | (1) replies | Private Message me
February 28th
2006
4:21 PM
Constipated, headache, weak, extremely tired, fuzziness in head/ears as if too strong, felt like lungs/chest was tight/pressured/beginning of congestion.
-- By regner | Reply | (1) replies | Private Message me
February 2th
2006
8:31 PM
I took this drug for UTI almost 10 years ago. A few days after I started taking it, I became extremely nauseaus, losing 10kg (about 22 Lb) in 1 week. I couldn't eat, lost all my energy. Even to this day, 9 1/2 years later, I still suffer side effects from this drug. I cannot absorb vitamin B12, which has also caused pernicious anaemia, and also have anaemia, irritable bowel syndrome, constant nausea, fatigue and am highly susceptible to stomach bugs and food poisonings.
Before taking it, I was fine, perfectly healthy and never had any gastro problems.
But since taking trimeth, I have never been the same.
Aciphex (12) Yasmin (4) Omeprazole (3) Lupron (2) NuvaRing (2) Loestrin 24 Fe (2) Hematogen (1) Levaquin (1) Sulfamethoxazole (1) Zantac (1) Lipitor (1) Metanx (1) 5-Aminosalicylic Acid (1) Gardasil (1)
July 16th
2009
4:59 PM
I have been taking Omeprazole for nearly 3 years and am experiencing severe fatigue, stabbing pains in toes, tingling or numbness in toes and sometimes in fingers too, also unsteadiness. I was prescribed it because I am taking aspirin daily due to raised blood pressure (also taking something for the blood pressure! which is now back to a very good reading). I also take Naprosyn for arthritis but only when it is very bad as I don't like taking that every day. Omeprazole is supposed to help prevent possible stomach ulcers when one is taking aspirin and also Naprosyn, but I am beginning to think that the constant side effects from Omeprazole are worse than the stomach ulcers!!
-- By elvirab | Reply | (1) replies | Private Message meI read in the press very recently that Omeprazole can cause a deficiency of Vitamin B12 in the body and a lack of B12 can cause many of the side effects listed for Omeprazole. Does anyone have any knowledge reference Omeprazole and Vitamin B12? From the posts I have read on this site, it does appear that very many people are experiencing similar side effects from this drug. What are the alternatives?