March 2th
2009
11:25 PM
I have AIHA and am doing better since getting off the Prednisone.
I posted back in Oct. 2008. I finally got off the Prednisone in Nov. and surely don't want to be on it again, ever, (hopefully). I'm still using Danazol but was at 400 mg a day, am down to 200 mg hopefully will go in remission, if not it's spleen surgery time. All the fat pockets do go away, it just takes time. I would advise anyone using Prednisone to take good daily vitamins and minerals ( got mine from the health food store), also Calcium with Vitamin D (Citracal caplets w/ D maximum dose). Prednisone depletes minerals, stay on a regime. I also have to take prescription folic acid. Eat and orange EVERY day for extra vitamin C, DR. advised me. I eat 3 good square meals a day and made sure breakfast was a main meal. Eat a small container of plain yogurt daily to ward off fungus, such as thrush, and to keep the intestinal track clean, plain is nasty, just wolf it down (Dannon makes a small container) A lot of people taking Prednisone have problems with acne. Wash your face daily then using cotton balls apply "Topical Hydrogen Peroxide" to the facial skin and let dry, then a moisturizer, face and body (Gold Bond is very rich for body). I use to turn on the fan and let the air blow in my face because it seemed to take for-ever for the peroxide to dry and the smell of it will gag you too! My skin stayed very clear while I was on the Prednisone for 9 months. My skin was the softest ever while I was on the high doses and I felt soooo good then also, but my mind was so foggy and feeling of being heavily medicated was hard, plus all the muscular shaking. I use to get mad getting behind people in traffic that drove like the little old lady wearing coke bottle glasses. Then I became that little old lady when I was on the high dose Prednisone. I told myself I would NEVER complain about any one going to slow in traffic again!!!! I still have joint problems after 4 months off but also heard it takes 2 months recovery for every 1 month on Prednisone. hopefully I will be better within the next year. I had a lot of nausea after getting down towards the lower doses, hated to get up in the morning, was like having morning sickness and bouts through out the day also. I would just go home after work and lay down and also on the weekends. I feel for anyone with small kids who have to keep up with work, daily family life and trying to cope with illness and drug life. I'm just glad my kids are grown while I'm going through this mess. My daughters have been very supportive and helpful. Lower doses for me were the worst though. My Dr. wouldn't give me anything lower than 2.5mg. I was having a hard time and cut those little suckers in 4 pieces and took them a week every day and then every other day till I could stop. It's hard at first going off but once off, didn't go back again. I haven't found anything yet to help the joint pain but they say time cures all. I still have racing thoughts at times and some concentration issues also. Sometimes I think I'm a little old lady with ADD!!!! ha ha Had some issues with anger, wanting to slap co workers into next week at times. A lot of problems with taking Prednisone is because the adrenals shut down and it affects what is called the HPA axis. The Hypothalamus in the brain controls numerous things in the body and I think that's why the body balance becomes disrupted, it effects hunger,taste, smell, weight, on and on and on. Everything at first tasted to salty or sugary. Some foods I didn't want to eat because they tasted awful. Maybe that helped me also with not gaining to much weight. The pituitary and hypoThalamus try to balance everything and with out the adrenals not working a person becomes screwy bodily and mentally. I did a lot of reading online while I was off work for 2 months, especially with trying to take care of my self physically. If you have problems with being hungry eat something protein, it will stick with you longer and eat small snacks between meals, like bananas or avocados, raw veggies too. I would make a pot of beans once a week, because of lower calorie intake and they are high in protein, any kind of legumes are good. For awhile I craved liver maybe needed the iron and B12. Try to take a short walk everyday, even if it's 2 blocks. Maybe this will help someone out there cause the Prednisone is crazy stuff. Take care of your selves and you will be better, it may not seem that way but you will get better in time, just don't GIVE UP!!! L. from Kansas
October 22th
2008
6:28 PM
I'm a 46-year old male and went to my family physician 10/20/08 and was prescribed Avelox for an ear/sinus infection. Like others I've read about I also was given a (free) coupon/voucher for 10 pills redeemable at my local pharmacy. I ingested one 400mg tablet and went to work, within 1-hour I began feeling oddly all over having numbness passing across my arms and shoulders and had to leave work remainder of day. 10/21/08 I ingested pill #2 and that was the back breaker...within hours of taking the pill I began having numerous complications consisting of numbness in chest and arms, numbness in legs, I lost control of my muscles having wobbly legs and weakness in arms, I experienced neck fatigue, had weird receptor flashes, pain in my knee joints, continually thirsty...all these symptom generated panic attacks and paranoia and I was frightened thinking that something more medically severe was wrong with me. I began to think the only thing different is my ingesting Avelox, that's when I began researching the side affects and bingo the testimonials from others whom have taken this antibiotic have experienced same or similar complications indicating Avelox is at fault. Avelox is bad news period and I am so bummed that I was prescribed this devil antibiotic....this drug(antibiotic) must be taken off the market and I will support any cause that supports removal of this evil drug and I strongly urge that no person accept Avelox. My only regret is that I did not research this drugs potential side affects prior to ingesting. I have always felt reasonably safe taking medication prescribed my my family doctor but I now doubt my doctors competence in terms of awareness as it related to the consequences and/or endangerments the medications prescribed may have on any patients health.
My question is; can you and I count on the FDA to protect us? No we can't and that's disturbing because this is another case where another of our Federally controlled agencies has failed miserably, don't be mislead thinking that because it's federally controlled that We or all drugs prescribed are safe. What's the problem? The problem is there are to many powerful drug companies pushing new drugs daily/yearly and the FDA has no possible manpower means to keep up and thoroughly test and time evaluate each drug, large caliber drug companies are aware of this having millions invested in development of drugs therefore pressure for FDA releasement and the FDA crumbles allowing unproven and/or toxic drugs such as Avelox and others to pass into our pharmacy markets. Fact is not only does the FDA miss the boat but so do physicians, arguably many physicians spend little to zero effort actually researching the drugs the powerful drug company reps are pushing on them, as a result we have far to many doctors over medicating and/or prescribing dangerous and sometimes deadly drugs to their patients.
In closing many people have stated they have taken Avelox having no side effects, later these same people claimed they now are experiencing side affects. This invites curiosity; curiosity such as; what has changed? Why no previous side affects and suddenly the drug causes side affects leaved one wondering did the drug manufacture change the drugs chemistry components thus the once affective drug has now become a health risk. Lastly one must question who is chemically auditing/testing and how often are drug manufacturers audited to insure that a drug that passed FDA approval standards still meets health and safety requirements months and years later.
-- By honda52 | Reply | Private Message me
March 7th
2008
7:31 PM
Hi ..this is a follow up on my first posting of Jan 31 (see kookoo). I have been off Lipitor (20mg/day) for about 6 weeks now and I feel better than before but nowhere near normal yet. Hands are stronger but weakness in arms still persists. I have not had a bad tremor incident in about 2 or more weeks. But I have a lot of involuntary twitching and light burning in my arm muscles. I constantly feel like I have a stiff sore neck and the fatigue is unbearable some days. My neurologist (my hero since he is the only one who believes this is statin related) has sent me for additional tests like EMG, MRI and thoracic vascular scan to eliminate other causes. So far all my tests have come back within normal ranges. I still cannot exercise much because when I try it seems to trigger the burning and pain in my arms. Night time is very scary to me for all my symptoms seem to heighten and I think this brings on some added anxiety which leads to sleeplessness. Well I fired my primary care physician and am scheduled to see someone new next week. Hopefully she will listen to me more intently and have some beneficial suggestions. Hang in everyone, I have to believe we are on the right track and soon someone with some sense will finally listen and do something about these terrible statin drugs. KOOKOO
-- By kookoo | Reply | Private Message me
February 20th
2008
1:05 AM
Many strange things have been happening to me for the last year and a half, that I did not ever experience before. I just turned 38 years old. I am now suspecting these are side effects from the MIRENA. I want to get opinions about what I'm experiencing and what happens when it's removed.
The most profound thing is the feeling of being in a mental bubble. Even though I'm aware of it and I try to be alert, I feel cloudy minded and can't even rely on myself to remember things or commit to things because I never know how I will feel when I wake up each day. Some days are okay while others are completely LOST because I may have struggled to sleep the night before, sweating and soaking my pillow case and waking up with a rapid heart beat, panicking for no apparent reason right out of sleeping. Or, I'm irritable due to discomfort which takes several forms like these:
- major moodiness, like feeling totally peaceful one minute and then something small triggers me and I'm angry for hours, later realizing that I was overreacting
- visibly shaking hands, especially when I drink just 1/2 cup coffee.
- increased oily skin and acne on face, back, shoulders and even in ears, along with thinning hair around face
- fatigue and stiffness in the morning, so it takes me forever to get out of bed
- off and on fatigue that has me uncontrollably dozing off during the day
- bloated tummy (visible), gas and menstrual cramps in no predicable pattern, but I never go more than a week without these things
- strange libido, one day I wouldn't care if I ever had sex again, the next night wake up horny as heck at 2 am
- ears ringing, jaw pain, mystery pains in back and joints regularly
All along I've been assuming these odd things were stress and age related but the more I think about it, there's just too many things, and these things don't necessarily represent the stress of a typical stay at home mom.
Sure, I have had stress and anxiety in the past, but they could always be connected to something large going on in my life. Now, the anxiety and moodiness hit unpredictably and indiscriminately, it seems. For a long time now I feel like I'm a total mess physically and mentally, even more so because I realize something is wrong
I am pretty sure as of right now that I should get this removed. If the symptoms go away I'll then know what caused them in the first place.
I am wondering what happens upon removal, will it also be a roller coaster of physical and mental anguish???????? How long will it last?
July 5th
2007
12:48 PM
had two sets of injections in my neck for neck spasms. First set in March 2nd in June. after the first injections I notice fatigue, I lost 33lbs. of muscle mass in three weeks. been lifting for 28 yrs. and it's all gone. Burning sensation in legs weakness in arms, legs. Adrennal and pituary glands have shut down testosterone level dropped from 675 to 75. chronic thrush (yeast infection) on fluconazole 150 mg. once a day. Drs. do not know when this will leave the body. Now have to see infectious disease Dr. because of the recurring thrush, possible liver damage from fluconazole. Also lost at least 3/4" in height.
Thsi stuff is vicious.
December 13th
2006
8:58 PM
I am a 69 year old female and have always been in good health and very active. I have been taking Lipitor for years and the side effects have been gradual. After my daughter gave me an article on the side effects of Lipitor, I could not believe what I was reading. I have so many of the same side effects that are in the article -- weakness in arms and legs, dizzy most days till late afternoon, my hands have become shakey and I recently have been falling a lot. My hand writing is getting worse and I can't seem to remember things. I have bad pain in neck and back and I feel fatigued almost all the time. I don't enjoy doing things I used to do as I just do not seem to have any energy. If I had my way, I would stay in bed most of the day. People that have know me for awhile say that I have not been the same person for awhile. I have an appointment with my doctor and plan on discussing all of this with her.
-- By kbradley | Reply | Private Message me
August 9th
2005
7:35 AM
I started taking Singulair about a year and half ago. Six months ago I started having muscles twitching in legs and arms as well as other parts of my body. I have had 2 EMG's ans 3 MRI's and the doctors can not find any reason for the problems. I also have some muscle weakness in arms and cramps in the lower legs. Has anyone else had this type of reaction while taking Singulair? Please report if you have.
-- By al462 | Reply | Private Message me
July 28th
2005
11:42 AM
Muscle weakness, dry eyes, fatigue.
My dad has been on Lipitor for at least 3.5 yrs. He started getting muscle weakness in arms and legs and last week it had progressed to him being wheelchair bound. He was getting muscle weakness when on Lipitor and went to two Drs. which one diagnosed him with Myastemia gravis and the other with Lou Gehrings disease. He finally went to a third Dr. last week and she got him off Lipitor. Between the three Drs they had him on prednisone, mestinon etc, totalling 8 different medicines. Family members finally told the Drs to get him off all medicine except an aspirin and vitamins. He is starting to respond, not slurring speech, more movement in arms and looks much better. Hope he can get his life back.
February 26th
2005
6:42 PM
Numbness in face , weakness in arms and legs when going up the stairs.
-- By mjconnick | Reply | Private Message me
November 28th
2004
7:02 AM
My unabashed opinion - do whatever you can to get yourself OFF Advair - then, off of Corticosteroids, too. I'm a 39 year old, 5'2", 95lb. , athletic woman. First daignosed with Asthma when pregnant with first child, 6 years ago. Immediately put on Azmacort throughout remainder of pregnancy, and beyond. OK, diagnosed with Preecclampsia during labor (dangerously high blood pressure), then, severe post partum depression. Also, kept feeling like I was blacking out or fainting. Continued for months, until I requested an MRI - diagnosed with "WORST SINUS INFECTION THEY HAD EVER SEEN". Ok, finally a bit better - then, started having severe Anxiety / Panic Attacks - Many times to ER. Therapy and anidepressants prescribed. Knew that Paxil and Celexa felt REALLY bad - weaned myself off. THat resolved those. Next - multiple repeated sinus infections. And, since all colds go directly to my chest, which causes my Ashtama - that was bad. Put on ADVAIR about two years ago, after my second child. Since then, I've had:
Meningitis (unknown source)
Shingles
Repeated Infections
Headaches
Arthric joints
Urinary Tract Infections
Pain / Weakness in Arms
Heart Palpatations
Mood Variations - severe bad moods
and, much more
NOTE: prior to my first experience with steroids - I've NEVER taken any medication - not even Antibiotics (for 25 years)
Last week, I just had it. I had already instructed my Dr. to lower my dose of Advair to 100/50. I had been on 250/50. I was on that for over a month, but still felt awful. Most notable side effect was nervousness, and anger. Just instructed him to put me on Flovent 44. (One of the components of Advair). Two days later - nervousness has stopped significantly. Also, much lower resting heart rate. I'm going to an Osteopath next week. I want off of everything, soon!
-- By jaug | Reply | Private Message me
Lipitor (3) Advair HFA (1) Ventolin (1) Lotrel (1) Zocor (1) Singulair (1) Mirena (1) PredniSONE (1) Kenalog-10 (1) Avelox (1)
July 13th
2009
5:34 PM
Been taking Lotrel (at least 5 years), then generic without connecting the dots. Constant back pain, easly fatigued, leg muscle soreness, occasionally a swelling in the inside of the mouth over a couple of days until a layer of skin flakes off and goes away (to return many weeks later), light spotted rash on topside of forearms, muscle weakness in arms with arms elevated, definite loss of sex drive, no endurance, easily prone to heavy sweating, back muscles extremely tight and rigid causing pains when exerting with repeated constant motion, blood work showing muscle damage, possible short term memory issues and ability to concentrate, periods of times with the feeling of constrictions on the body compared to a inflated balloon walls stressed with pressure. Exercise (walking) causes a drop in blood pressure to normal (110-125/68-84) compared to 140/90+/-.
-- By fpk | Reply | Private Message me