May 29th
2009
3:10 PM
I was prescribed generic Wellbutrin two weeks ago today. I took it for 10 days with no problems except mild headache, mostly pressure. I felt great even after only 10 days and had tons of energy. I know it usually takes 3-6 weeks for the full effects but I was already happy after only 10 days. I thought this was a miracle drug. On the 11th day I had a few hives on my inner thighs and on my chest but I didn't think too much of it. On the 12th morning I had tons on my thighs, entire torso from abdomen to chest, shoulders upper arms, neck and back. I even took pictures to show my doc of the ones of my back. I tried to get in touch with my doc which was this past Wednesday 5/27/09 but his office closed early that day. I then called my pharmacist. He told me to go to the ER immediately. He asked if I was having shortness of breath and I told him I couldn't tell if it was related to meds because I am prone it anxiety and I was a bit anxious about the hives all over. I went to the ER and they gave me a shot of Solu-Medrol (a steroid) in the hip and but me on a steroid (prednisone) pack for 6 days. I only took the prednisone that Wednesday night. Yesterday (Thursday the hives were visible but soo much better, and today (Friday) they are completely gone. I am so disappointed that I had this reaction because I loved taking buporion (generic wellbutrin). I wonder if it's just the generic that does it because I read someone else say that the name brand didn't give them hives but the generic did. I will have to check in to that. The ER doc told me to stop taking so my last does was Wednesday morning. (ohhh by the way I was on 150mg once in morning and once at night, so 300mg/day and I was on the wellbutrin SR kind)
-- By mindybellerose | Reply | Private Message me
April 9th
2009
11:37 PM
My 4 yr old daughter took 1 dose of BACTRIM Tuesday night by Wednesday morning she looked like I had forgotten her in the sun. Her entire body was severely red from head to toe she was swollen all over her face, nose, lips,eyes ears hands and feet. Her eyes were so bloodshot and she complained of her throat being sore, couldn't see and her eyes hurting. We took her to our local ER where they stabilized her and then transferred her a hour away to a pedaratic trama center @ Levine's Children Hospital. She was diagnoised with a mild Steven Johnson's disease. Her fever went up to 102 and the heat from her skin and the SJD blistered her face to where she looked sunburn. Luckily the doctor that prescribed this RX to us new exactly what needed to be done and said no more sulfa drugs ever!! She is fine today but things could have been much worse for us.
-- By kriscapps | Reply | Private Message me
February 27th
2009
2:26 PM
I just got bactrim prescribed to me when I had to go to the emergency room a few nights ago for an extremely high fever. They found it was a UTI and Kidney Infection. I started taking bactrim Wednesday morning and almost right away I started developing a headache. About an hour after it had begun, it turned into the most painful, throbbing headache I have ever experienced in my life. It does not go away at all. I have literally had it since Wednesday, all day, all night. Finally I called my doctor today and they said they had "no idea" why I was experiencing these problems. I told them that it started almost immediately after starting to take this medication and I was simply told that "antibiotics don't cause headaches". I beg to differ!!! I'm on day three, four more to go. I honestly can't stand this. It's interfering with my whole life. I would avoid this antibiotic if possible.
-- By l_ashington | Reply | Private Message me
February 16th
2009
1:29 PM
On February 9th, 2009, I went to my PCP because I had been sick for over a week. I knew I had had the flu and unfortunately I got a sinus infection and bronchitis from it. The dr. prescribed me Avelox. When I went and had the RX filled, the pharmacist told me that it was a very very strong antibiotic and that I needed to make sure to drink plenty of water. I took the first done on Monday at about 3:00pm. By that evening, the tremors were starting but I really didn't pay much attention to them because I still felt so horrible. At about 9:00pm I turned out my lights and attempted to go to sleep. Each time I would actually fall asleep, I would twitch or jerk myself right back awake. That first night, I got MAYBE 2 hours of sleep.
When I got out of bed Tuesday morning the tremors were so bad, I could hardly hold a glass to take a drink from. I was dizzy and was even having problems talking. My speech was very slurred and I sounded like I had been drinking. I took my second dose at about 1:00pm on Tuesday, which I never should have done. By 4:00pm my tremors were even worse, I was having a hard time walking, and I started to notice that when I went to the bathroom, urinating was becoming difficult. By that evening I had decided that if things did not get better, I would go to the ER the next morning. That night, once again I did not get any sleep at all and I started having auditory hallucinations. Three or four times through out the night I turned my bedroom light on because I swore I heard someone crawling on my floor.
Wednesday morning when I woke up, tremors were worse, I was having abdominal pain and could barely stand up. I called my doctor's office and left a message and then called my mother and she immediately took me to the ER. When we got there, my blood pressure was 160/100 and my heart rate was through the roof and completely erratic. They immediately did an ekg and asked me if I was having any chest pains or shortness of breath. It was at that point I became VERY nervous about the whole situation. While I was registering at the hospital, my mother actually had to fill out all of the forms because I could not write at all. Once I got back to see the dr. I explained all the symptoms and he said he was going to give me a shot of benadryl but it most likely wouldn't help since I wasn't having an allergic reaction. They waited 30 minutes and it did no good so the doctor gave me Atavan and we waited another 30 minutes to see if it helped. The atavan helped but only because it was masking the symptoms. The dr. explained that I was just going to have to wait for the drug to get out of my system.
It has been a week since I took the first dose and I still have some side effects. My vision has been slightly blurred and I normally have 20/20 eye sight. Also, my typing skills are noticeably worse. I use to be able to type 75 wpm and now I am lucky to get out 40.
I find it absolutely amazing that a drug like this can be approved by the FDA!!!!! Something needs to be done.
-- By mlb2374 | Reply | Private Message me
January 26th
2009
11:36 AM
Like many others on here, I am happy I found this site last week and no longer think I am going crazy! I had the mirena inserted 3 months ago. I have gained 6 pounds (which stinks because I had the mirena inserted two months after I had my baby and at the time only had 5 more pounds to lose in order to be pre-pregnancy weight) and I am very moody and depressed. I was thinking that maybe I needed to see a doctor about my depression, but then I realized that it all started back when I had mirena inserted. Then I googled and found this website. I made an appointment to have it removed this Wednesday morning - but I admit I want to try to remove it myself like two other women who have posted. I just want to get this thing out! I'll post again once I have news....
-- By thurthunder | Reply | (1) replies | Private Message me
September 18th
2008
10:19 AM
I'm so glad that I have read all of these. The last 3 days have been horrible. This is my second month using the NuvaRing. I put the 2nd ring in on Monday night and I starting throwing up Tuesday night and haven’t stopped. I can’t hold anything down (not even water). I drove to work on Wednesday morning, while throwing up and literally falling asleep at the wheel. I couldn’t see anything, my vision was awful. I had lost feeling in my arm earlier that day. I took an early lunch yesterday and fell asleep in my car. I fell asleep at my desk and couldn’t see my computer screen. I thought I was dying. A few girls looked up this website and told me to immediately take the ring out after lunch. I had become so dehydrated and weak I left work early and went to the doctor. The Doctor immediately referred me to ER. I have a horrible infection that has gone through my body. I am on strong antibiotics to get better.
Now that I read all of these stories; I realized that I have been extremely tired for the past month and would fall asleep anywhere all the time. Like mentioned from the other girl below it was like I was in a coma. I have lost all my energy. Others have noticed a change in my attitude. I’m usually really hyper and now I’m very quiet. This ring could have wrecked my new relationship. (He noticed my attitude change and that I couldn’t even stay awake to watch a movie) I had a rash on my forearm a few weeks ago that freaked me out. I started getting acne on my face and dark spots on my cheek. And now that I think about it I have thrown up many times in the past month for no apparent reason.
Now that I have read all of these and have went through this horrible experience; I have a much better understanding and will never use the ring again. I feel bad for the girls that are going through this horrible experience now and in the future.
July 26th
2008
6:51 PM
I am my husbands caregiver. He is on many medications the last 26 years due to chemical poisoning thanks to our government not protecting their civilian painters at the Army Depot where he worked.
He has permanent brain damage, CRS damage, memory loss and short term memory, CHF and Bollis Emphysema. Now he also has Type II diabetes a severe case as he was not diagnosed for 7+ years of testing.
To make this short. He has been on many drugs for pain, diabetes, blood pressure, the brain damage, ( he is a recovering, not drinking alcoholic)
Recently the doctor took him off the Codeine # 3 that he had been taking for almost 15 years, 8 per day. and gave him time release Morphine Sulfate.15 MG. They also gave him Gabapentin for the neuropathy which is severe in his feet and starting to go up his legs. He is over weight, above the waist, and has not had a problem with High Blood Pressure, for many years since taking 60 mg daily of Inderal. His Blood Sugars have been between 98-140 without medication. When he was first diagnosed he was put on glyberide and it worked so good he was off it in 6 months and totally diet controlled since then but about every 3 years he would go on it for about 6 months and then he was ok again.
He has not needed it for the last 7 years. Since starting the gabapentin he went from 300 to 600 to 900 and slowly increased the dose to 1600 mg. The 300's are caps, the 600's are tablets.
All the sudden he has pounding headaches, I took his BP which we had not been watching and it was 198/115 with a 98 pulse. The only change was the gabapentin and Morphine. The morphine does not seem to be causing any side effects, once he was used to getting sleepy.. but once the gabapentin was added, all he does is sleep. The blood sugars also went up with the blood pressure. His were 358 higher than they have ever been except when he was first diagnosed. I was able to get the glyberide and that is bring down the sugar levels only taking 1/4 tab 2 x a day, and the blood pressure is also coming down, it was 139/85 with a pluse of 76 which is still too fast. I talked to some pharmancy friends and they said " Its the gabapentin " so I told the doc I wanted to stop it and he said to start leveling off, one 300 mg cap every 4 days. We were down to 2 a day till Friday and saw the doctor. Due to his taking Cymbalta they did not want to give him any of the other anti depressants so they want him to back on the gabapentin up to 1200 a day instead of the 1600 a day.
Taking into consideration his medical issues and meds, I don't believe this is a safe or sound decision, but I know how much pain he was in before the gabapentin.
I wish they would be more forthright about the side effects of this medication. They said it only causes blood sugar issues in 1 % and they did not even address the high blood pressure etc.
His pupils are also different, he has the kidney pain, but his biggest problem is sleepy.. hopefully it's not his kidneys or his heart. They did blood tests on Friday and I am asking for a EKG.. in the mean time we are monitoring both blood pressure and blood sugar 6 or more times a day. Thank you so much for sharing. It really helps to know we are not alone.
June 19th
2008
8:45 AM
Has anyone had extreme heavy bleeding/clots after having the Mirena removed? This is day 3. The last time I had such heavy bleeding I had just had my son. When do you start to worry about the bleeding?
-- By gabby24hrs | Reply | (30) replies | Private Message me
April 30th
2008
10:45 AM
I discovered this site last Wednesday morning - without taking the time to list all of the grief I felt reading through the pediatric postings, I will briefly note my 4 year old daughter has been on Singulair for 2 years now. What I now realize is all the behavior issues, night screaming, etc. are so easily dismissed as stages of a toddler. She has suffered (as well as our family) every symptom and behavior listed by parents on this site with the exception of leg cramps.
Our entire family can see the dramatic results since taking her last pill last Tuesday night. The melt downs and tantrums are all but over, she even commented "hey, I listened right away" on the second day without Singulair. She is still having night terrors - I call them that because they are in no way a dream or nightmare, but rather agonizing moments that break our hearts to hear. I hope those will soon go away as well so her sleep pattern results in a restful night.
Am I angry that we have all suffered for 2 years only to find we have been basically poisoning her? Am I angry that for the 2 years her dad and I have sunk pretty low, feeling inadequate as a parent to teach and discipline our child? Am I angry that after 20 years of marriage, raising a great 16 year old in the midst of all this, we were to the point of the ADD, bipolar, etc. theory that would have been misdiagnosed? Heck no, we are all so thankful to have come across this site and are so giddy and excited to be happy again.
What I am angry about is this - when I called our pediatrician last Wednesday and relayed what I had seen on the Merck website for side effects added in recent months she had not heard this information and asked where I saw it. At that point I had not seen this site. I asked her how is it the well dressed pharmaceutical reps come in with doughnuts, exotic trips, etc. to market a drug with "ABC" treatments and "XYZ" side effects, continue to market the drug and never update the doctors when original selling points are altered - ie; new side effects.
The FDA website is troubling for two reasons: Merck is in charge of their own investigation regarding recent complaints and the FDA expects this to take 9 months. Gee, who gets to investigate themself? Secondly, in February the site notes the FDA and Merck are trying to find the best way to communicate the concerns being investigated to prescribes and patients. HELLO - we live in a world of real time, instant communication methods, two examples being the United States Postal Service and an internet connection.
Today is April 30 - a full two months after "trying to decide how to pass this information on" and my doctor, nor my pharmacist have received any information. Apparantly since we missed the story and coverage on Dateline we are out of luck.
I plan to start from ground zero to get our voices heard to change the way, or the law if you will, to implement an immediate communication link between the FDA and prescribes when an investigation such as this has been initiated. I realize Singulair has most likely benefited more humans than it has destroyed while on the drug and the FDA would have to clearly not communicate "panic". However, when a drug is used for pediatric treatments we need information quickly to assess on behalf of our children. In my case, since my daughter had been on the drug since 2 years old, I do not know what her "normal behavior" should be as that is the age they start to develop and show personality. Additionally, when enclosed prescribing information is updated with a prescription -MARK IT IN RED, "UPDATED INFORMATION". I read every ounce of information that accompanies a new prescription for any family member. I would NOT, however read the information every 30 days for an ongoing, long term prescription over the course of 2 years.
I am looking for anyone that may have started contact with a congressional representative or otherwise to change the communication to our doctors. Please note - I am in no way interested in any legal action regarding Singulair and our nightmare. We are moving forward and do not wish to live the nightmare one moment more. I simply want to see our doctors and pharmacists have vital information as it happens.
Thank you to all for sharing your experiences - I truly believe it is changing lives and making a difference. I am personally telling everyone I know about what is happening with our child and all of yours. Andy by the way, by telling one of my long time friends our amazing discovery, she realized she had been suffering from depression for some time and chalked it up to various things going on in her life. She had her last Singulair last week and feels tremendous! So keep the word going!
-- By rlcoffin | Reply | (5) replies | Private Message me
April 29th
2008
5:24 PM
I started taking Yasmin on Monday April 21st, and by Wednesday morning I wanted off of it. I started getting really bad leg cramps all the time, I feel dizzy all the time, I have trouble concentrating, and I have trouble breathing. The worst part is that I have heart palpitations now. My heart feels all butterfly-like or it feels like it's beating really slowly really hard. I just spoke with my doctor, and she says to stop taking it immediately.
After reading this website I see I'm not the only one affected by horrible side-effects from Yasmin.
-- By weezee | Reply | (3) replies | Private Message me
April 6th
2008
12:20 PM
I am 24 years old and I just starting taking Loestin 24 three weeks ago today. I have PCOD (polycytis ovary disease) which stops me from having my period for months at a time, December was the last time I had my period. I have never taken any type of birth control pill until now. The doctor put me on provera pills to get steady progestrone in my body, I couldnt take it. I had severe headaches, to the point that I thought my head weighed 1000 pounds. She took me off that and put me on Loestrin 24. I was fine the first two weeks,a slight migraine but no other sides effects. On Wednesday morning I starting spotting, but by the afternoon it was a full flow, with severe cramps. It is now Sunday and I am still bleeding and still cramping very bad. She told me that it will take 3 months for the side effects to go away, but I dont know what I should do? Should I stick it out the 3 months being that it has been so long since I had my period? Should I call the doctor and see if I should stop taking the pills and go on something else? I appreciate the advice.
-- By daqueenfrmqueenz | Reply | Private Message me
February 12th
2008
10:26 AM
I'm not sure if this is related to Singulair 5mg. chewable, but now that I've been reading everyone's experiences, I fear that it may. My 7 yr. old has been taking Singulair 5mg chewable tablets these past 2 years. He takes it during the months of Sept. to October. His pulmonologist has not determined whether or not he is an asthmatic or not. When he would get a common cold, he would almost always cough as if he had the croup and he would need to use a nebulizer with Pulmicort. The Singulair worked great. He hasn't needed the Pulmicort for almost a year now and colds this year were limited to two minor sniffles.
My son just started experiencing sharp pains on the left side of his chest. They would come quick and hard and disappear within 2-3 seconds. We immediately rushed him to the Emergency Room. He had experienced 5 quick episodes during Sunday, February 10th. The first 3 were spaced out about 20 minutes apart. the fourth was about an hour apart and the 5th and last occurred 2 hours after. The ER conducted a chest x-ray and an EKG, Neither showed any abnormalities. He felt a quick pain today, which is Tuesday. He has an appointment with a cardiologist on Wednesday morning. Now that I have read a number of postings, I am frightened. My son has not only experienced pains in his chest on the left side, but night sweats. occasional leg cramps. nightmares and is extra sensitive to emotional situations.
I'm pulling him off Singulair. Last night was his last dosage.
June 16th
2006
10:46 AM
Bad sinus infection which almost cauesd my eardrum to burst. I took my first pill(500mg) of Levaquin on a Monday afternoon and the 2nd on Tuesday morning. That Tuesday night I noticed my hands were ver hot as I rested them on my stomach...thought I had fever so didn't think much about it. I woke up in the middle of the night and my feet were feeling funny and my left shoulder was starting to hurt. Took my 3rd pill on Wednesday morning as I lie in bed. When I got up my feet felt as if they on on fire. I could hardly walk. Both hands and feet feel as though the nerve endings are exposed. About midday, my shoulder pain had grown to feel like it had been dis-jointed(left-shoulder only). I have absolutely NO movement of my left shoulder. My knees also feel like they could give way at any moment. I cannot walk barefoot on anything. imagine yourself in the summer, about 110 degrees, walking on rough concrete....that would be mild. Wednesday was the last pill. It is now Friday and all pain is still there. Waiting on call from Doctor. I would NOT advise anyone to take this stuff!
-- By mark.yoder | Reply | Private Message me
Singulair (2) Bactrim (2) Mirena (2) Lisinopril (1) NuvaRing (1) Wellbutrin (1) Avelox (1) Loestrin 24 Fe (1) Neurontin (1) Yasmin (1) Levaquin (1)
August 19th
2009
1:04 PM
My experience with this medicine was a nightmare, I started to taking it on a Thursday by Saturday, I had a very bad headache from coughing from Thursday night, I also have a lot of mucus, swollen tongue and saliva gland, on the 6th day, I was very tired and body was aching, I slept from 4:30pm Tuesday evening til 5AM Wednesday morning, while sitting at my desk Wednesday morning I'm still falling asleep, I can do without this medicine
-- By kxxthomas | Reply | Private Message me