June 6th
2009
9:34 AM
After reading all of this - I take Simvastatin 40mg - then had to go off of it, cause I got layed off & couldn't afford to get my med's filled. Went off the med - felt better (unknowingly). Then, I got a new job, got it refilled & started taking it again - my knees are killing me & fatigue is overwhelming me. I am emailing my doctor today - this is not right after all of what we are going through. M. J.
-- By joharely19 | Reply | (2) replies | Private Message me
May 28th
2009
12:41 PM
I am in shock and so glad that I came to this website. I have been taking simvastatin for about 5 months now and this morning I decided to do a web search with the words simvastatin and headaches. Everyday I for the last two months I have been asking myself why am I having these terrible headache. My Doctor did a CT scan, I had my eyes tested, I had my hearing tested, my blood tested and everything comes back good. I realized that I have to do something about this problem myself because my doctor prescribed another pill for the headache and that's that. Today I did not take the medication and I will not be taking it again. The symptoms that everyone described are so real to me but the headaches were the worst. I have to thank you all for posting this information. I now feel that I will get my life back.
Thanks verdul1
May 13th
2009
11:20 AM
Hi and please feel free to email me. I was on Lipitor for quite a while (20mg)without any issues. Due to insurance etc I was switched to 40mg of simvastatin-(Zocor-generic)--with in a short time i noticed i was waking nearly every morning with a mouth full of junk requiring a deep throat clearing. Then a low level sore throat that persisted for more than two weeks. I went to my doctor who agreed that it may be related (though I think she doubted it) and had me stop. Now i have been off for 5 days and still my throat is sore (though not sore to swallow) and mouth generally feels "messed up".
If any of you have had any sore throat experiences etc please let me know. Also how long did your side effects last once you came off the drug?
-- By ahcb87 | Reply | (3) replies | Private Message me
May 5th
2009
11:55 AM
I have been on Lipitor for five weeks. I can't believe how awful I feel. I ache all over. I my arms and elbows are sore; I have had pins and needles in my hands; charley horse like spasms in my calves (mostly at night); sharp knife like pains in my upper thighs; even my teeth hurt. I am a 46 year old female – I can’t believe this. I have made an appointment with my doctor as I have to get off this drug. I have experienced some blurred vision and hearing impairment too. If I hadn’t of found this website – I truly would have thought I was a bit crazy….
I have never had any symptoms like this before and never thought of myself as an old lady - but that is what I feel like. It is unbelievable.
.
April 14th
2009
9:33 PM
I get these painful cramps in both legs the back of my legs above my
calf muscles. They always come after midnight when I am asleep. i
get up and I have to walk 30 minutes or more until they stop,and for
two days my legs are sore.
April 10th
2009
1:42 AM
I've been on Simvastatin 40 mg for about eight months now. Cholesterol levels dropped significantly. But man have I been hating life! Joint pain mainly in the legs. Beginning to walk like an old man and I'm only 62. Also more pain in my back than ever before! I talked to my doctor, who suggested I get off them for 6 weeks. I did, and I feel like a million bucks. I've got to get back hold of him to find out what he recommends? Probably some other pill!!! Just today I was talking with my pharmacist, and I told him my symptoms. He said the muscle deterioration could actually lead to death. I don't think I'll ever go back on them. I'm going to try and watch the old diet and get more exercise. Hope this helped someone? Good Luck!!
-- By mobo4 | Reply | (1) replies | Private Message me
March 22th
2009
7:05 PM
I am only 42 years old and have been on zocor for the past 30 months. I've had mild tingling in my feet and achy joints along with slightly elevated liver enzymes and fatigue since then. Ever since my doctor increased the zocor to 80 mg per day ( because although my cholesterol level is normal, my triglycerides are still very high) , I feel like I am 100 years old! All my joints ache so bad and my feet and hands alternately tingle or feel very cold! I am also having trouble focusing when I look from something close up to something far away! I am also clumsier and more forgetful. Could these symptoms be caused by coenzyme-Q deficiency?
-- By rjohngm | Reply | (3) replies | Private Message me
March 22th
2009
12:12 PM
I was on 40 mg of simvastatin for 4 months with seemingly no side effects when my doctor said my cholesterol wasn't coming down quickly enough to suit him, so he added lovaza - had me taking both at the same time. Within 2 months I was noticing sore muscles but didn't relate it to the meds. After about another 2 months I was so bad I could hardly walk - extreme muscle and joint pain over my entire body, severe weakness, shortness of breath. Then I found out that both of those drugs can cause these side effects. I wish I had tied it together sooner. I have been completely off of them both for about 3 months and still have some pain in my feet, shoulders and elbows, along with severe pain in my hands, and I am still weak and short of breath. I don't know how long this is going to hang on, but I certainly hope it isn't permanent. I can't stand to think that I might have to live with this pain for the rest of my life. My hands are so close to useless, and I am so weak, that it's about all I can do to take care of my job and make a living. I haven't been able to work around the house for months. I want to work on my cars (my hobby). I have 2 antique cars that I enjoy working on and driving, but I don't think I'm going to be able to do very much with them this summer. My hands just won't let me. And the beauty of it all? My cholesterol numbers did not come down any great amount. Since I stopped taking the meds I have brought the numbers down by changing my diet - eggbeaters instead of whole eggs, less beef (venison is very low in cholesterol) more chicken & fish, oatmeal, plus I'm taking vitamin C, D3, garlic and cinammon for cholesterol and B complex for muscles, msm and glucosamine for joints. I also bought a hot tub, which helps with the pain and stiffness. This has definitely not been a fun thing. I just hope it goes away some time soon.
-- By hoosier_daddy | Reply | (3) replies | Private Message me
March 3th
2009
7:55 PM
I started taking simvastin (the lowest dose) about 6 months ago with amazing results when it came to my cholesterol. After about 2 months I started getting headaches. I went off the drug for about a week and the headaches went away. I went back on the drug and 3 weeks later the headaches came back. This went on for a few cycles. This last time I went off the drug was February 7. I have not taken it since and I have had a headache since then. This time it has not gone away. I HAVE NEVER had headaches before taking this drug. And all I know now is that for the last month my life as I knew it completely changed. Of course the Dr. put me on some pain meds for the headaches that made me sick, sick, sick after 3 days. I just can't take the pain meds as they are worse than the headaches themselves. HAS ANYONE HAD THIS and if so how long did these headaches take to go away.
-- By lynnk | Reply | (1) replies | Private Message me
February 17th
2009
2:07 PM
omg, im 32 years old been on zocor for 3 months now and am experiencing dizziness and disassociation with myself. I know now that it is from the drug. It seems like i want to sleep all the time. I was pretty convinced it was from stress but i have been in war in Iraq and under stress-post war depression and its nothing like statin side effects!! I went on statins because of a genetic disorder that runs in my family, the cause, well high cholesterol. Now my levels are fine but i feel like im a zombie most days? i know in the long run its healthier for my heart and veins to have low levels but at what extent? i think im going to go off for a few weeks and then back on it.
-- By mike61704 | Reply | (1) replies | Private Message me
February 10th
2009
12:07 PM
Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******
-- By rednael | Reply | (8) replies | Private Message me
January 31th
2009
5:12 PM
My mother took Zocor and has the similar side effects. But has anyone
had shaking hands or been told they might have ALS (lou Geric's disease)?
Please contact me if this has happend to you. My mother thinks she has less than 3 years to live.
Contact me at ****** Please! Thank you.
-- By jlandry44 | Reply | (2) replies | Private Message me
January 30th
2009
3:56 PM
I am 38 years old and had my second child 7 months ago. My family history for heart disease is very poor and my cholesterol was 6.2 so my doctor prescribed 10 mgs of simvastatins in November. Before taking them I felt fine in myself, since taking them I have felt exhausted, not just tired, I have insomnia, very bad nightmares when I do manage to sleep. On top of this I have started to feel depressed and anxious, short of breath and my hair is falling out! I had myself convinced that i had post natal depression but decided to stop taking statins a few days ago, feeling slightly better. My doctor prescribed me an anti depressant today, should I take them? Does anyone know how long statins stay in our system?
-- By smartie80 | Reply | (2) replies | Private Message me
January 20th
2009
10:03 AM
Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.
-- By 1dmm | Reply | (1) replies | Private Message me
December 8th
2008
12:54 AM
WOW! My jaw is on the floor. I have been taking Simvastatin for 4 years! At around that time I started feeling ill. I ended up in the infection clinic. There they did 6 spinal taps since they could not understand why I had this major headache, and stablike pains.
I was hospitalized for 2 weeks and during the last 4 years I have been in and out of hospitals and doctors.
After they found 'nothing' they told me that I might have LUPUS/RA. So they started me on drugs to treat reumatism. I was on 2000mg per day! Complained and said that the meds where not working and I needed help and someone to listen to what I was saying. Then one of the many doctors I had was telling me to shut up and go see a psychiatrist. That got to me and so I started writing letters. I got a 'new' doctor and he said odd. Told me he was only interested in my joints. After the second time w him he passed away and so I met a fresh doctor, on that was right out of med school.
She looked at me and said...*You cant go on living like this, this is no life.* she sent me to the hospital for 2 weeks so that I could get the right treatment. There they realized that I have no sings of reumatisum but rather a connection w Simvastatin.
They right away told me to stop taking all the reumatisum medication and they will now focus on removing Simvastatin.
I am blown away.... I was so sick, so may hours lost from work, family and friends. I almost left my husband because I felt like I was just 'there' not ever being able to do things. I was so sick all the time.
Wow is the only word I have in my head right now- I am in a shock.
November 20th
2008
3:35 AM
My hair kept coming out by the handfuls. I've lost at least 8 inches since I started simvastatin! I mentioned this to the endocrinologist and he said he didn't know, but he prescribed it. I am furious, hair is a woman's crowning glory.
-- By tiredoffeelingsick | Reply | (1) replies | Private Message me
November 15th
2008
9:41 PM
About eight years ago I felt heaviness in my chest along with some pain/discomfort when doing hard physical labor and occasionally in the hot-tub. Following my doctor’s advice and an angiogram, a stint was placed and medication administered – Lipitor and plavix I also went through a 6-month program for cardiac recovery including dietary changes and a proper exercise program. About six month following that I gradually just stopped taking my Lipitor and plavix and returned to my old eating routine and other life-style. I don’t smoke (never did) and don’t drink or otherwise indulge in any recreational drugs. I’ve never been hypertensive with blood pressures typically at 115/68. I maintain a trim and healthy appearing body just naturally or genetically. I eat lots of red meat, not a lot of vegetables, drink gallons of orange juice, and eat much more junk-food than I should. About six years after that (near heart attack) event I was given a “stress test” by my physician… I was then 61 and tested at the level of a 38 year old! Two years after that I had a significant heart attack out in the middle of nowhere! It took almost 6 hours to get me to an emergency room in Spokane, Washington (that’s a story of its own). That was on a Thursday – I was back to work full-time the following Monday (four days later). This time around with more drugs than I could swallow in one gulp! Lipitor, Plavix, Coumadin, aspirin, and carvedilol. The combination or amount was more than I could tolerate and I was weaned off all but the Lipitor and aspirin within a year. My heart has returned to nearly full-function and I have no physician imposed restrictions. All that said, I’ve been gradually developing muscle soreness (pain, actually) in my fore-arms and legs. I’ve been growing more lethargic and tired with each passing month. I’m now 65 and feel that the Lipitor is inhibiting my health… I want to get off it and be “normal” again. Or is it just being sixty five? Can I just quit taking the drug? Leaving only aspirin for blood thinning and the hope of a better diet for cholesterol control.
-- By fgwilder | Reply | (6) replies | Private Message me
November 9th
2008
10:49 PM
Get off the Lipitor, me and me husband, both had the severe joint pain. The pain moved from one joint to the next. It would be in the shoulder, then the next day or so, it would move to our feet, then to the hand and wrist. It would swell , so bad, that it felt like, that part of the body was going to burst !!! My husband was on LIPITOR for 1 1/2 years, before it hit him. Doctors thought it was gout, and my husband was walking on a walker ,at 49 years old, and never being unhealthy. I was on LIPITOR for only one month, after a stint was put in my heart. Believe me, it is not the stint , it is the LIPITOR. I knew what it was when it got in my joints, so I went off it right away. It still takes about 2 weeks to get it out of your system. I now know of other people, who are on LIPITOR, that have severe muscle cramps. If this is happening to you, then you can not take anything with STATINS , in it. If you are allergic to STATINS, it can cause another muscle disorder , that can destroy your muscle tissue.
-- By marshalynn1952 | Reply | (2) replies | Private Message me
November 4th
2008
10:41 PM
PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.
His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!
-- By reneedejager | Reply | (7) replies | Private Message me
November 2th
2008
11:00 PM
I have extreme thumb spasms, often both thumbs at the same time. i had an episode a few weeks ago of a severe pain in my hip running down my leg. I was in bed all weekend as a result and needed a cortisone shot to help relieve the pain. I forgot a name right after they tell me and I am only 50 years old. I lose my balance and sometimes almost fall and have vertigo every now and then. I wonder if all these symptoms are from lipitor. I have been on it for at least 3 years.
-- By rosenbergelisa | Reply | (3) replies | Private Message me
November 2th
2008
7:59 AM
In people close to me I have seen the following side effects:
All statins have similar side effects. They can come at once or after many years.
Pain in neck, shoulders, elbows, hands, hips, legs, feet
Pains that keep moving to different parts of the body and could be unbearable -like nerve pains.
Head ache
Burning, tingling sensations in the different body parts mentiond above and numbness
Weakness in hands which caused the person to drop things
Hair loss, difficulties to swallow, ringing noise in the ears, loss of taste, memory problems - particularly with short term memory, difficulties to find words and to remember what just had been read, impotens, extreme sensitivity in the skin (abdomen).
Please "educate" yourself.
Read books and look for information in many different places. Remember to find out who is behind a certain webb-adress. Could it be a pharmaceutical company.
Unfortunately I am not allowed to write webb-adresses here - but Google the titles of the books/writers below and you will find some webb-adresses.
The Great Cholesterol Con (Anthony Colpo)
--------------------"--------------- (Malcolm McKendrick) - this is another book
The Cholesterol Myths (Uffe Ravnskov)
Malignant Medical Myths (Joel F. Kauffman)
Overdosed America (John Abramson)
Lipitor - thief of memory (Duane Graveline)
Duane G. has an interesting site
The Truth About The Drug Companies (Marcia Angell)
Google "Stopped our statins" and you will find this webb-site.
Under print articles to the left you will find an interesting article from Weston Price Foundation.
It takes time to look for information and then read it, but often it`s quite essential to do that and to make up your own mind.
It`s your body and you know best how you feel.
Remember it`s a lot of money involved and that`s why news about serious side effects quite often are delayed.
The cholesterol issue - that high cholesterol should cause heart attacks etc - is very controversial. But it`s only the pharmaceutical companies who have the money to "brainwash" by advertisements, ghostwriters etc.
I hope my suggestions can make you more interested in the medications that you are taking.
Finally - a very interesting book about a certain kind of antibiotics - Bitter Pills by Stephen Fried.
English is not my native language but I was forced to read a lot of English books because of the suffering of my relatives, but without the Internet I would not have found them.
Remember new drugs are not necessarily better than old, but always more unsafe. They are also more expensive and that`s why they are so highly promoted.
-- By swedish | Reply | (2) replies | Private Message me
September 27th
2008
9:06 PM
My doctor prescribed 40 MG Simvastatin to be taken 1 on Thursday and 1 on Sunday.That doesn't seem like much but I have only taken them 3 times and the pains in my knees are much worse also my feet hurt, my neck is a little sore, I have bad cramps a few minutes after I eat and even during the night....I also have had 2 nights of very strange dreaming.
Several years ago I was on Lipitor and after a year I could hardly walk with my knees so I told the doctor I was not taking that any more..he put me on Zetia and I did well on it and the pain in my knees lessened a lot ,until my insurance co. decided not to pay for Zetia anymore, I told the doctor and he put me on Simvastatin. I am not going to take any more of it and will discuss it with the doctor next week,.
September 24th
2008
1:47 PM
I was prescribed Zocor for high cholesterol. Almost immediately I began to experience body aches -- some days more severe than others. I would take ibuprofen and it would help. Then, I started getting a pretty strong pain on my hip which radiated down my leg onto my foot. The pain was so severe, even the Motrin 800 mg. pills didn't help it. I am 53 years old, but I felt like a 90 year old. I had problems walking, especially after sitting for an hour or so. I had problems with stairs. Even laying down was painful. I tried heating pads, ointments, etc. When I told my doctor about it, she said that this was a typical side effect of statins, and that because I am diabetic, I need to continue taking Zocor to keep my cholesterol down. Just the other day, I stopped taking Zocor for 3 glorious days and guess what? NO pain!!! I resumed it because my doctor insists that I stay on it, but I wish there was something else I could take that wouldn't cause pain.
-- By michellerodriguez2392 | Reply | (12) replies | Private Message me
September 23th
2008
10:35 AM
Three years ago, my Doctor said he wanted my cholesterol lowered. He prescribed Lipitor 10 m every other day.. Last year Cat Scan revealed a clogged minor artery so doctor increased to 20m PER day.. Test results proved Cholesterol down to " perfect" said the doctors BUT the rest of me was falling apart.. Severe muscle cramps in both legs, fatigue, muscles all over had no strength, weakness, nausea, headaches etc.. My cousin who is a doctor had been taking Lipitor herself but stopped because of the above symptoms.. Both my Cardiologist and internist have told me to stop taking Lipitor for a period of time to see if these symptoms dissipate.. After three days I already feel better. I have begun to eat 100% healthy: taking vitamins: vitamin C, Omega 3,6,9. lecithin & exercise, etc. And praying a lot..
-- By johnpeace | Reply | (3) replies | Private Message me
June 27th
2009
3:42 AM
June 27/09
-- By base77 | Reply | (4) replies | Private Message meI am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!