November 4th
2008
12:04 PM
Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?
-- By 3surgeries2many | Reply | (6) replies | Private Message me
October 31th
2008
3:51 PM
My 18 yr old daughter has been on singulair for several years and has complained this week of numbness in her feet and toes. I have told her to stop the drug. Is this a reversible side effect? Does anyone know if there is anything else to do?
-- By mlouk | Reply | (5) replies | Private Message me
October 22th
2008
11:34 AM
My dad is 73 years old and has been in the hospital, rehab, nursing care, back to hospital, currently back in rehab since August 3, 2008. He was on Flomax which he was taken off of the first week in August after arriving to the hospital with low blood pressure and leg weakness to the point of being unable to walk. He had been taking it for years so doctors did not think Flomax the cause. However, once they ret'd him on Flomax he was unable to hold his head up when sitting in wheel chair (drooling) and very unresponsive. He also vomited and just stared at it, unable to respond to try to clean himself up. They took him off Flomax with some improvement. (He could hold his head up and respond.) His weakness declined to the point that he can no longer pee/poop without a diaper, can't swallow, can't speak (due to weakened vocal chords), and has no energy. He has a feeding tube. To date, they have not been able to pin point what dad's problem is. I noticed that on October 10, 2008, they returned him to Flomax. He again is sitting in wheelchair with head hanging down. No energy to do rehab. I have requested they take him off Flomax and LEAVE him off. I don't trust this drug. I think his long-term use of this drug could be what's killing my him.
-- By donnaraleigh | Reply | (2) replies | Private Message me
September 15th
2008
12:41 AM
In the past five years I've gone through two six month Lupron treatments. The first Lupron treatment was given without a Laparoscopy. After being told for ten years that I was one of the unlucky few who have "bad periods", I finally found a doctor who would listen. She diagnosed Endometriosis after I listed my symptoms and put me on a Lupron treatment plan. I had one one-month injection and two three-month injections. Most of my side effects were tolerable; weight loss (almost sixty pounds but I was over weight to begin with), hot flashes, night sweats and memory loss. However, I experienced horrible back and hip pain...to the point of following up with a pain management doctor who insisted there was no reason for me to be in pain.
About four years later I found a really great doctor who performed a laparoscopy to diagnose my endo. She removed fibroid tissue from both ovaries and my colon. My next period was just a horrible so she suggested we follow up with another Lupron cycle. I expressed my concerns with the pain I experienced the first time and she suggested I have add-back therapy. She prescribed a regimen of Estradiol and Norethindrone along with six monthly Lupron injections. The side effects were worse this time around. My depression kicked into overdrive, I was constantly struggling to keep my anger in check, I would wake up dripping from night sweats, hot flashes were bad, blurred vision, memory loss, insomnia and the pain in my back and hips was excruciating. She prescribed Celebrex for my back and hip pain, which didn't help too much. I have a three year old son and had to use a wheel chair when we went to the museum because being on my feet for more than fifteen minutes was impossible.
I've now been off the Lupron for about six months and I have yet to regain any sort of short term memory. My vision is much worse than before I started the second cycle and has yet to reverse. My depression is still bad, as well as anxiety and irritability. However, as soon as the last month of Lupron started to wear off, my back pain did dissipate. I'm still having trouble sleeping but have found solace in Ambien...which could be a bad thing. I don't want to depend on chemicals to help me sleep at night. I just had my yearly exam with my doctor and she apologized for all the pain I experienced. She told me that in all the years she's given Lupron treatments, she had never seen a patient in as much pain as I was in. I don't think I'll be undergoing the Lupron treatments again in the future. I'm currently starting Yaz as a way to keep my periods at bay and only have three or four a year. I'm not real sure if that's a good thing either but we'll see. I have sympathy for all the other Lupron patients out there who experience the bad side of the drug. I don't understand how a medication such as this, which has such drastic side effects, can be marketed to people who are already suffering from pain in the first place.
-- By jackie_vandyke | Reply | (3) replies | Private Message me
September 6th
2008
12:09 AM
Boy, after reading all the negative testimonials on Lipitor, I will throw mine in the garbage. That is what they are meant for. I have severe headache, and muscle pain, and foggy head, and I have only been on the crap for 2 months. I believe a lot of people's health is being ruined, and a lot of deaths are happening as well because of Lipitor and other statins. Mark my word, one day this drug will be withdrawn from the market, and the poor Pharmacutial companies will be in huge trouble.. They have the world convinced that we all need statins to bring cholesterol down.. The era when my parents lived , and lived long lives, and on farms, with butter, bacon, lots of fats, and never heard the word STATIN. I think every one that is writing to this forum and complaining about LIPITOR, should make a phone call to PYzier and tell them your side effects, that is the only way anything positive will come from this forum.. thank you for listening... I have called Pyzier and told them as well.
-- By tennis | Reply | (5) replies | Private Message me
August 18th
2008
5:49 PM
I'm 58 years old and I've been on 10 mg Simvastatin for 14 months since I was diagnosed with Diabetes 2. Also Metformin and Glipiside as my bs got up to 499 at diagnosis with high cholesterol.
I had NO IDEA that my suffering the past year could possibly be tied to one of the drugs I've been prescribed. In the first three months after diagnosis, my Diabetes was controlled and I've even backed off some of the meds. My cholesterol also came down beautifully. However, the debilitating weakness and muscle aches (which has increased over the 14 mos.) has become so bad (especially this last week) that I came to the Internet looking for possible reasons for 'body ache'.
And get this: I take a packet of vitamins every day which includes a daily dose of Q10... BUT I haven't been able to take them for about a week and this last week I felt like I was ready for a wheel chair~!!! Worse than it's ever been, knees and feet in horrible condition, hands and wrists unable to open a water bottle. Total body aches so severe it made me want to research something, anything to see what might be the problem.... before seeing the doctor about it!
My shock at seeing my medication here listed with the horrible side effects I'm experiencing has been a revelation~!! I am going to stop the Simvastatinn and see what happens. BTW, I've been an active person all my life, was a 2nd Degree Black Belt and taught Tang Soo Do and know what muscle aches and pains are, know my body (at least I did) and pretty much thought my active life was over.....
Not now~!!! I'm FURIOUS!!
-- By scottyz2cents | Reply | (3) replies | Private Message me
August 17th
2008
10:00 PM
I am a 72 year old white female who has been on Fosamax over 5 years for osteoporosis which runs in my family. In December, I had severe discomfort in the thigh area of my right leg. X-rays ordered by my GP showed nothing. Sent me to orthopedic surgeon whose x-rays also showed nothing. He ordered bone dye test which showed stress fractures of BOTH femurs. No one, NOT EVEN THE ORTHOPEDIC SURGEON, could figure out how it happened since I had not fallen or had other trauma. When I began to do my own research, I found answers to other problems I had been experiencing, for which no one had answers.....bone and muscle pain, hair loss, depression. I realize doctors are overwhelmed with info but I am especially disappointed in the orth. surgeon who should have known this was a possibility since the study came out in The Orthopedic Journal. As I continued my research, I find that women have been experiencing these side effects for years. I was previously very active and a dedicated walker, but this has robbed me of my confidence since I fear breaking other bones. The femur is the largest and strongest bone in the body and if I broke both of those with no trauma, what else could happen? I want to get the word out to women but am not sure the best vehicle for that. Any suggestions? There are Fosamax lawyers anxious to jump on this but I am more interested in spreading the word, not litigation, however I think there are possibly many unreported cases of the Fosamax side effects just because people don't know where to turn.
-- By sandyj1936 | Reply | (1) replies | Private Message me
August 15th
2008
12:24 PM
This is so upsetting to me,i have a son that was born with spina bifida,along with that came bladder issues,he used to walk well only a slight limp,after years on cipro,well really the only thing i knew for sure was photo sensitivity and exaggerated taste and smell,but i was accustomed to this and knew i couldn't use fabric softener etc when he was taking it as it would make him puke,he would tell nurses they smelled and vomit if they had on purfume etc,but now i wonder as the years have gone by,and he has been on this drug so much,he is now completely dependent on a wheel chair i constant pain with his stomach unable to use his feet because of pain...could it have been cipro...we will never know
-- By flindy | Reply | Private Message me
July 13th
2008
2:23 AM
Hi all, I was amazed to find this site. I too have had a rough life for the past eight years! I am going to be 39 in a few days but this story starts back in August 21, 2000. The day that put me in HELL for the next eight years and still going through it. Prior to this day, I had a lot of UTI's and Pneumonia and several times prescribed both Levaquin and Cipro. I did develop Achillies tendinitis but I thought this was due to my active life style, see I was an LPN and a firefighter. So I went for treatment to fix the Achillies tendinitis. This was a foot Dr that of course gave me a cortizone shot in it. I cant remember how much earlier this was that this took place and I am still not sure if this is what did it but as I am thinking back these are the things that come to mind. On August 21, 2000 I was on a fire call and my right Achillies tendon popped off the bone! They took me away by ambulance. The Dr in the ER said to go home with an air cast on, eat or drink nothing and come back in at 10:00am and they would possibly do surgery. Well, I did just that. The orthopedic Doc said oh yeah it is achillies rupture will have to go in and tie back all the little fibers. So away to the operating room I went. They gave me a spinal and just knocked me out. I was awakened suddenly by my Dr. voice loudly saying " Holy shit it peeled off the bone!" And another nurse saying let me see! I came up on my hands and they grabbed me put me back down and knocked me back out! (I still have night mares over that!) Anyway, I spent the next 3 months in a cast. During this time, I was told from over usuage of my left foot, I now was developing tendinitis in my achillies tendon in the left foot! Which this sent me to a wheel chair. They took the cast off in 3 months then I was still no weight bearing for another month. Then i had physical therapy for about 6-8 months with little improvement. I complained to the Dr about the left achillies tendon and he said he would not do anything about it unless it too popped! So now many Dr later, and many many medications tried and many surgeries later, and now diagnosed with Lupus, Sjogrens, and Fibromyalgia, the most my rheumatoligist says is I have a connective tissue disorder, and taking cancer medication (Methotrexate) I am now disabled at 39! My life taken from me. I have situational depression, panic attacks, sleep trouble, Suffer from post traumatic stress, nightmares, basically my life is a mess and it is over. On July 1, 2008 I had to go to the ER cause I was sick. I had been run down and feeling bad and sleeping a lot, disoriented, couldn't stay awake. They found I had another UTI and a sinus infection. The Dr Says we will put you on Levaquin and that should take care of both problems. So he left, it took me a while for it to sink in that I should stay away from that drug, so I caught him and told him, he said to me that this was only found to be in kids while they are young and developing that it causes tendon rupture, and besides he said, one dose will not hurt you. I took 5 pills, one a day. Since then I have been in so much pain all over my body it is unreal! It still took me days to figure out that it was the Levaquin doing this to me! I feel like at random someone is sticking a knife in different muscles in my body! I felt like I had done Tie bo for 24 hours straight! Even my butt muscles hurt so bad to sit here and write this email! I have days when I cant even use my hands! Write my name with a pen. I am not sure if this is all due to these drugs, but I am most miserable and not a bit better. I may have just made it worse by taking this last round of them. Has anyone else had this kinf of symptoms?
-- By pwg | Reply | (4) replies | Private Message me
March 21th
2008
11:02 AM
My doctor (PA, actually) prescribed Lisinopril a few weeks ago because I'm diabetic and she said it would help protect my kidneys as well as lower my moderately-high blood pressure. Things went well for a couple of weeks, but the past few days have been unbearable. Not much of a cough, but I feel terribly weak, exhausted, and I can hardly think at all--am very confused, and can barely write this note (strange for a professional writer, eh?). I also have trouble walking, am quite dizzy and out of breath, and have severe muscle cramps; feels almost like my nervous system is shutting down. And truly, I feel like it could kill me. I was grateful to read all of your comments; makes me know that I'm not alone. I will have to discontinue this medication, as I simply cannot function while using it. (I'm a 62-year-old female, by the way.) Thanks again for your comments, and I wish you all luck and happiness.
-- By joannj | Reply | (4) replies | Private Message me
January 4th
2008
9:26 PM
My father was on Lipitor and he quit the medication almost one years ago, it looks strange that some times he felt good for about two days and back to his old symptom (weakness all over body, hard to turn around get out of chair or stinging down and many more) just 3 days ago he was back to normal almost 70%for 2 days and then worse gain does this happen to anyone else like this.by the way he is taking Zetia with 5mg he is doing good but with 10mg he felt very bad swell on feet very weak even felt like his heart is failing.
-- By hasina | Reply | (1) replies | Private Message me
December 24th
2007
1:11 PM
I took Levaquin 500 mg for 6 days. After about 3 days my left ankle, knee, and the back side of my left thigh became so sore I had difficulty walking. I was extremely tired and slept later than I normally do, which is rare for me. This morning, in bed, my left thigh became so hot it felt like it was wrapped in a heating pad with the temperature turned up extremely high. Later, while getting a shower, I noticed the back of my left thigh had a "hivey" type of red rash on it. I did an internet search and found this page. I'm very concerned because in September 2007 I had a triple heart bypass. I threw the remainder of the Levaquin down the toilet. NEVER AGAIN....
-- By mxyz | Reply | (1) replies | Private Message me
November 30th
2007
9:15 AM
I went to the Dr office for help sinus and kidney bladder infection. My regular Dr was off so I seen his partner. He prescribed Avelox , he said it would take care of both. I filled the script. When I got home my kids and their families had come to visit . so I took my pill ,started to cook. 15 minutes later it was time to sit down( they wanted breakfast food) I started to itch. The itch got worse to where I wanted to scratch my skin off . I got up from the table and went to the bathroom to grab some Benadryl pills I took 2 , they did not relieve anything so I jumped into an ice cold shower, still no relief. I called my youngest into the bathroom and said u have to take me some where now . At that point I was nervous , sunburn effect, eyes bloodshot a solid hive from head to toe and swollen really bad all over, mouth , throat and tongue really dry.confusion weak and sick to my stomach.. When I got to the ambulatory the nurse ask me insurance questions, a few minutes later I said all that is on file , look lady I can't think straight , my legs are weak and I feel like I could throw up on you as I am leaning on the counter more to keep me from falling. I said it a second time as all most of my weight is on that counter now. Then my daughter said I think she needs a wheel chair now. They got me into the wheel chair and into the room Which i don't remember getting there) stood me up and onto the first step they didn't turn me around then i just fell onto the table. The nurse said u have to turn over so I can get your vitals. I finally got turned over and she took my blood pressure. she said u have to go to the hospital, I said call my girl in and she can take me. she said no u have to go by ambulance I said she can take me and she replied back to me --------look lady u are fighting for your life, your blood pressure is 60 over 40 and dropping.they put oxygen mask on me and off we went. At the hospital the Dr gave me 3 intervenes shot and I think I passed out a few hours later I awoke and hives started to go away, but I was still anxious and weak when I left.he prescribed Prednisone and Pepcid A week and a half i still have problems sleeping and anxious but getting better will never take that pill again. I never have reactions to meds.
-- By piper5506 | Reply | (2) replies | Private Message me
October 23th
2006
10:51 PM
My Mom is in a wheel chair now we are trying to get her to walk again. I have her in san diego calif with me I took her to S.***
Please call for all the details
Donna
******
There are so many side effects with the Dr. should have noticed. EVERY MUSCLE IN HER BODY IS WEAK etc.............
-- By azaczar | Reply | Private Message me
August 30th
2006
5:42 PM
I am a little anxious now. Last Febuary I was prescribed levaquin for a serious I thought cold, but it was a respitory infection. After taking it a couple of days I felt really strange. Dizzy, not able to walk very well and really out of it. After 5 days I was done with the levaquin. But still had some symptoms. I grabbed the fridge door got something out closed the door, but my hand would not let go. I was looking at my hand and telling it to let go, but nothing. I had to pull my left hand away with my right. I went to the doctor they did a brain scan. I had had a stroke. The doctor saw my scan before he saw me. He was shocked because I was walking on my own. The size of my stroke should have put me in a wheel chair. Has any one else ever had this type or similar symptoms from this medicine. Because they now have me on it again.
-- By donia_38665 | Reply | Private Message me
April 24th
2005
1:23 PM
My wife took Levoquin 500MG for five days and it ruined both of her achillies tendons, one ruptured, the other frayed. After 6-8 weeks in bed or a wheel chair, there are weeks if not months of thearpy to go through before she can walk again. It has turned our lives upside down and the manufacturers of this poison must be called 5to account and compensate
-- By tpwarner | Reply | Private Message me
October 23th
2002
10:44 AM
tendonitis, horrible pain in both ankles. Crippling, in a wheel chair, ankle in cast. Overall body aches and pains, anxiety disorders, neuropathies. not fun. don't take and don't take with any cortisone product will double your side effects.
-- By wehlpu339 | Reply | Private Message me
Levaquin (5) Lipitor (3) Lupron (2) Flomax (1) Lisinopril (1) Fosamax (1) Singulair (1) PredniSONE (1) Avelox (1) Meprozine (1) Cipro (1) Simvastatin (1)
May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me