July 28th
2009
3:34 PM
Murdered by Levaquin.
This may be hard so bear with me. I need to give you a little background to show what an injustice (criminal you be the judge) happened to my soulmate. Her lifelong dream was a humble little spot in the wilderness and at 58 and on a disability we were able to make that happen; and she was happier than I'd seen her in years. Existing conditions included depression, anxiety, fibromyalga and chronic fatigue, and a thyroid condition that she got from over radiation for Graves disease many yrs. ago. Oct. 07 she came down with pnemonia and made a trip to ER. the Dr. saw something he didn't like so prescribed Levaquin. She left there sure she had lung cancer. Three days into a 10 day course her lower extremities became extremely painful and swollen, a call to her GP was never returned. We thought she was experiencing some effects of pneumonia or cancer. 2-3 wks. later a dr. appt. where she was in such bad shape she had to wear my shoes and be carried from car to wheelchair she could barely walk. An alternate dr. saw her. got xrays prescribed more levaquin and prescribed water pills for her swollen lower extremities. 2-3 weeks later side effects much worse has now traveled up to her midsection (peripheral neuropathy) she is now wheelchair bond going to dr. office and guess what lung hasn't cleared up yet so more levaquin with no solution or idea what is happening to her body ( she was terrified and in horrific pain. So she was prescribed 3 courses of levaquin and ignored the blatant side effects. The next several months at home were hell, the neuropathy continued up her body, she could no longer feed herself or hold anything in her hands. Every day the pain and frustration were unbearable and she cried for hours at a time. I couldn't get her to go to hospital as by now we knew what we were dealing with PN and it is irreversible and she knew she was dying and if she left she'd never see her dream home again. We finally got her to the hospital, they wouldn't accept my Achumes Razor and suggested numerous things conducted numerous tests including a Gallum scan and still no answers. She deteriated fast. She was within a week about 63 pounds and suffering severe sycosis with hallucinations. She experienced depersonalization. She had severe pain to the touch. I now know she is going to die and I'd promised her I'd never let her die in an institution but we could get no home care. They now wanted to kick her out of hospital after 3 months and suggested a hospice and although terminal she was undiagnosed so did not qualify. I have seen both parents a brother and numerous people die from a variety of ailments but this was truly a horror show esp. the psycosis and pain she was in. It scarred my heart and soul forever. No insurance so I am fighting to keep our dream home and keep her memory alive, made it a year but the future is uncertain. She died July 5 07, 2 days after she died the FDA put out a black box warning label so how come every time i insisted it was that poison they would not take me seriously. I now know what drives people over the edge to retaliate in some way. In Canada I don't think there is any class action happening, but in everybody that knew about it it would appear like gross negligence at least giving it to her 3 times after showing adverse reactions after first course. She was stolen away form me and her daughter just as she had reached peace and serenity. It breaks my heart continually and I don't know what to do with this rage I feel. It is now 13 months and no autopsy, apparently a hold up at pathology. Feel free to comment I really can't believe she's gone I haven't disposed of anything or even changed the house in any way.
M.
July 20th
2009
2:34 AM
I was given Levaquin for a kidney infection. It seemed to help break my fever but after only one dose, I broke out in rash and later that night had tingling in my legs. My hand felt numb. When I called the oncall doctor she told attributed to anxiety. I told her I was anxious because all of a sudden my hand had gone numb and knowing that was a danger sign I refused to take anymore. Later that night, I could not walk or stand or bear weight on my legs. My shins and Achilles tendons were burning and only because of the internet did I know what was happening to me. Only 1 out of three doctors would agree I was having a drug reaction. For some odd reason, the doctors REFUSE to believe or acknowledge this was caused by Levaquin. No wonder the side effects are "rare" if no doctor will acknowledge the pain their patients are going through....how can the drug companies get any real feedback. Funny thing is only after I sent an email out to my team essentially warning them about this drug did I find out my coworker who had been on medical leave had suffered the same fate of torn achilles tendon and only after 3 months of PT is finally walking without pain. WHAT IS WRONG WITH our world when no one will listen to us. Thank God for the internet. I can walk now and have no pain standing (lasted only 2 and half days) but I am scared about the future as I know the results are lingering. I have been exhausted this whole weekend and wonder if its just me recovering as my PCP had me quit all antibiotics even at the risk of getting my kidney infection back. Well nice to know our stories are the same...and its not in our heads. BTW, my ER doctor told me it was a good drug and very unlikely the cause of my leg pains. They rather believed I had pneumonia or lyme's disease before they would believe it was caused by their beloved drug. All I can think now is I hope one day they are given this drug and it cripples them like it has so many others. Sometimes that is the only way they will acknowledge the truth. It has to happen to them or someone they love.
-- By seaturtlemom | Reply | (1) replies | Private Message me
July 16th
2009
8:38 AM
I have been on Warfarin since October 20th of 07 after being bedridden for 3 weeks in excruciating pain in my hip/butt which kept me from moving & i'd drag my left side of body from my waist down, into our bathroom in excruciating pain unable to turn to flush a toilet or stand for more then a minute. I begged my primary doctor to "give me an mri as my back was in so much pain with the hip/butt". I had been getting epidurals for what doctor assumed was a herniated disk.i was in a wheelchair now & my husband took me several times to E.R. AND THEY SAID "WHY ARE YOU CRYING IT'S ONLY BACK PAIN." I labored more & more just to breath. I couldn't get my breaths. "Frightening" finally Then, I walked myself into the local E.R. and told them "I think I have a clot in my lung because I don't have a cold or a bronchitis & I've been in bed so much I believe it is a clot." It was two clots in my right lung. My lung hurt a little more each day I recall I went about two weeks gradually having more & more difficulty getting my breaths. I was hospitalized and then my primary wanted NOTHING to do with my care when E.R. doctors called him.local hospt. took care of me & the clots resolved. I am still on warfarin for coumadin. I really do have a memory problem I fear now, "short term", especially now after 2 yrs on this med. Also, Last time I went in the sun I was so wiped out exhausted like it beat me up. I am afraid to go back to the beach. I get headachs also and one time when my INR. went up over 3, my ankles got these little red spots and also on my chins of both legs like blood specks showing thru the surface.Still there but not as evident. My avg. INR is 2.4 I feel most comfortable at.I try to maintain. Back in 1998, I got two clots in my left leg after a botched knee surgery to repair a torn cartledge and awoke with an in place fractured knee cap.. two weeks later horrible pain in my left leg revealed two clots one at ankle to groin in my vein=d.v.t. and the other at the side of my knee in artery to groin when the tornaquat was.
-- By barbiemime | Reply | Private Message me
May 31th
2009
11:27 PM
Hello i'm 20 and i had Mirena put in because me and my husband aren't planning on having kids for a while. when I got to the doctors i told the doctors the i had been cramping out of the left side of my abdomen for a month he said it was okay to go a long with the procedure so i did it. He had to use the tool with hooks to straighten my cervix (which hurt like no other) and inserted the iud. The second he put the mirena in i lost control of my body and vomited everywhere i couldn't hear anything and couldn't focus on anything but the pain. It was a military hospital so of course nothing is close by i had to wobbly walk through the waiting room with my pants half way put on to get to the bathroom i barely made it (because i lost control of my bowls) but, once i sat down i nearly passed out. When i pulled myself together i met my husband and told him how i felt and he not only could see it my face but he could also see i was hardly coherent i was scared and in a lot of pain so much that had to be put in a wheelchair to get back to the room i was in. I hyperventilated and had to have to shots given to me for pain and nausea. I beg and screamed for them to take it out and no one would do it. Two days after i went home after the placement i went to the emergency room do to a shooting pain in my uterus they were very rude and said that it was just my head and that i was doing it to myself the did some ultrasounds and turns out i have had cysts on my over that cause my body to do this. I plan on getting the iud removed in 5 days and i have only had it for 2 weeks do not let your doctors push you around if you want it out take it out.
-- By aegreene | Reply | Private Message me
April 11th
2009
6:12 PM
I have been on Prednisone for 3 months for PMR (polymyalgia rheumatica)and so far the pros have far outweighed the cons. PMR is an extremely painful condition that affects the shoulders and hips especially at night and early morning, I spent all of December and January sitting upright in a chair trying to sleep, untill I was diagnosed and prescribed Prednisone and oxycodone. I started at 25 mg and I'm now down to 15mg. The side effects that I do have are weight gain (about 10 pounds), mild mood swings and insomnia.I am an avid bicycle rider (25-35 training miles per day on week days a lot more over the weekend),I am 60 years old and now back on the bike. The strange thing is after about one month back in training I am much stronger this year than last even with the added weight. Last year, a solo, 30 mile hard ride I would average about 17 mph this week I went out on my same training ride at 19.4 mph, over 2 mph faster. Everything I read about Prednisone says that it wastes muscles,but I have become stronger. Is it possible that it's the Prednisone?
-- By andycolnago | Reply | (5) replies | Private Message me
February 10th
2009
12:07 PM
Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******
-- By rednael | Reply | (8) replies | Private Message me
February 9th
2009
6:37 PM
february9th,2009 please do not take ciprofloxacin!!!! swelling in both ankles and feet,elbows swollen red and hot.i had to use a wheelchair and a cane for a few days.my husband had to help me off the bed and to help me to the bathroom.i couldn't walk! my doctor put me in the hospital for three nights.i had serum sickness from it. PLEASE DO NOT USE CIPROFLOXACIN!!!!!!! i'm doing better.
-- By missywhittaker | Reply | Private Message me
December 7th
2008
8:31 PM
I'm 46 years old male. I am very active. Water Ski, Snow Ski, Weight Lifting, Hockey etc. I was on Simvastatin 40mg per day for about two months. Although I have a bit of arthritis in my knees and shoulders I couldn't believe how horrible I felt on this drug. I felt so weak and I had joint pain that was incredible. I walked around feeling like I had the flu or something. I ached every where. My knee swelled up really bad and I didn't know what to think. So I called my doctor and he said to go off it for now and I can't believe how good I feel again. The scary thing is he wants me to take a two week break then go back on it. According to him, he has read stories that statistics show if you go off this drug for a few weeks then go back on it ,that most of the time people don't experience the same side effects ever again. If anyone has been off then back on it without side effects I would like to hear from you. I really don't want to gamble with this again. It was horrible.
-- By dynodan | Reply | (4) replies | Private Message me
October 23th
2008
12:30 AM
Sorry to repeat this post, but I wanted to make sure people know about it. I replied to a 19 yo who sounded perfectly ok with being on this pill, and it made me shudder. Here's what I told her:
I was looking for information about class action suits against the makers of Aviane, and I ran across this web page. When I saw your post, I just had to respond. Who knows, it might save your life.
My 17 year old daughter was on Alesse, then Aviane ( the latter for over a year) for a total of about 2 1/2 years, for acne. On Nov. 19, 2007, she was alone at home, and did jump roping for exercise. After jumping for about 5 minutes, she collapsed. Over 2 hours later, her brother came home, found her barely responsive outside, and called 911. She had had a stroke. She was in the hospital for 1 month, in rehab for a month, and then came home. It's been a horrendous nightmare. She couldn't say more than 1 or 2 words for a few weeks, and spent about 3 weeks in a wheelchair. Gradually, she learned to walk again. Now she walks pretty well, but she still has almost no use of her right hand. She can't move her fingers at all except for a weak grip. For you medical folks, it was a left MCA stroke. Her cognitive function was massively affected. She is relearning speech,math skills, writing, etc. All of her friends left her, except for one who was very negative, and an alcoholic. Finally, we encouraged her to let that one go, and make room in her life for some quality friends.
There's much more to the terrifying journey that this has been. We feel fortunate that she continues to recover. I wish someone had warned me about the pill. I thought only fat, old, chain-smoking people got strokes. Now I know better.
If any of you find out about a class action suit against this company, please let me know.
Thanks,
WH
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October 22th
2008
11:34 AM
My dad is 73 years old and has been in the hospital, rehab, nursing care, back to hospital, currently back in rehab since August 3, 2008. He was on Flomax which he was taken off of the first week in August after arriving to the hospital with low blood pressure and leg weakness to the point of being unable to walk. He had been taking it for years so doctors did not think Flomax the cause. However, once they ret'd him on Flomax he was unable to hold his head up when sitting in wheel chair (drooling) and very unresponsive. He also vomited and just stared at it, unable to respond to try to clean himself up. They took him off Flomax with some improvement. (He could hold his head up and respond.) His weakness declined to the point that he can no longer pee/poop without a diaper, can't swallow, can't speak (due to weakened vocal chords), and has no energy. He has a feeding tube. To date, they have not been able to pin point what dad's problem is. I noticed that on October 10, 2008, they returned him to Flomax. He again is sitting in wheelchair with head hanging down. No energy to do rehab. I have requested they take him off Flomax and LEAVE him off. I don't trust this drug. I think his long-term use of this drug could be what's killing my him.
-- By donnaraleigh | Reply | (2) replies | Private Message me
October 17th
2008
12:17 PM
Three years ago I was prescribed Levaquin for an infection. After the Levaquin I was unable to stay up in my wheelchair for more than two hours. I started taking two extra strength Tylenol and I was able to increase that to three hours. I added Naproxen 325 mg and that has decreased the pain and has also increased the time in my wheelchair by about an hour. I am also on a drug called Lyrica 150 mg which has decreased the pain further. I am a quadriplegic so I cannot feel anything below my shoulders but my body responds to pain. I can tell that my body is in constant pain but of course I cannot feel were it's coming from. Ever since the Levaquin I also have a condition called Terry's nails. I looked at this condition on the Internet and is says that Terry's nails occurs when the body is in distress usually with kidney disease or liver disease or cancer. I've had more blood tests than I can count and all of them are normal. My body's sensitivity to pain appears to be getting worse. I'm not sure what can help anymore, have any of you found anything out about pain management?
-- By billwrs | Reply | Private Message me
September 26th
2008
4:54 AM
I have been on Wellbutrin XL for 2 years with no ill side effects and it has worked well. 2 1/2 months ago my script changed to the 'generic' BudeprionXL. Since this change, I have been experiencing severe muscle and joint pain, my hands go numb, my skin crawls to the point that I have scratched myself to the point of bleeding. Sleeplessness has just recently started to occur and my teeth have also become very sensitive. General irritability has also set in. I have not yet started to get the headaches most get with the Budeprion and it a good thing as I'm already taking 1600 mg a day of Advil to try and arrest the muscle and joint pain. After reading these other ill effects of this drug I'm now very scared and will be calling my doctor to get her to represcribe Wellbutrin -only- 'no generic'. It is clear to me the FDA did not do the proper research or makes me think TEVA has a friend in the FDA's office.
-- By clane | Reply | (1) replies | Private Message me
September 18th
2008
8:56 PM
I had my Mirena put in on 9/11/08 last Thursday. I got it done on the recommendation of two of my co-workers that recently got theirs a few months ago. I had been having stomach problems, found out I have food allergies and than suddenly couldn't stomach my birth control that I had been taking for several years. Mirena seemed to be the answer. I had it put in on Thursday which hurt like hell. I was a little sore Friday and only spotting from my 2nd day on my period. By Saturday I was very sore and felt nauseous. By Sunday I was bleeding heavily, nauseous and had migraine headaches. By Monday I couldn't keep water down and had the worst headache. I called the doctor and she told me that the side effects were normal and I needed to give it time. I had read these post from Saturday and was getting worried. On Tuesday I couldn't even lift my head off the pillow. I woke up with my hands in a cramped position and couldn't feel them or my feet. I had tingling and numbness in my hands, feet and lips. I called my regular doctor who got me in right away. I had to be rolled in a wheelchair to his office because I couldn't even walk. I throw up about 4 times on the way down to hall to his office also (thankfully they had trash cans along the way). He immediately took the Mirena out and I got feeling in my hands and feet about 10 minutes later.
I was finally able to go back to work today after being out sick. I still have a dull pain on my right side around my ovaries and my stomach is very tender. I have felt like I was in a fog all day today and still a little sick to my stomach. I hope these symptoms wear off soon.
-- By dcaston | Reply | Private Message me
August 20th
2008
10:22 PM
I had mirena inserted today and I feel awful. The pain was worse then labor, and I had drug free labor and births. My husband literally had to carry from the car to the house. I wish I would have found this site before today. Do any of you know if I can have it removed as soon as tomorrow? After reading all the horrible experiences, I am to paranoid to keep it in. Thanks for any input.
-- By cosmored | Reply | (10) replies | Private Message me
August 14th
2008
8:09 PM
I only just started taking it (Avaine) yesterday, and everything is fine so far; nothing out of the ordinary is going on. I'm 19 years old, healthy, have mild acne around my period and usually terrible cramps and mood swings, I don't know if this will benefit me in those areas or not yet. We'll see though, from what I've been reading this might not turn out so well but I think I will keep an update going on here when any side effects or benefits arise.
-- By lizznack | Reply | (1) replies | Private Message me
August 14th
2008
12:00 PM
Last week I had an issue with my INR - it has always been unstable, but this time was weird. My INR had been 6 and so I stopped the warfarin for 4 days, and went back on my regular 2 mg dose. Then we went on holiday to Washington DC for a week. 3 days in, my pee was the colour of cherry kool aid. Went to the local hospital (thank god for travel insurance). My INR was 7.89 - In the US this is considered critical and I was admitted, and treated with Vitamin K and 2 units of plasma. Within 8 hours my INR had dropped to 1.8 - now too low. The next day down to 1.25, and a week later I am still 1. I am taking fragmin now until I can get my INR theraputic again but Fragmin shots are even worse than warfarin.
An ultrasound showed now issues with my bladder or kidneys, but I do not understand why I was bleeding.
Guess that this just shows the importance of regular checking of INR levels while on warfarin.
-- By fiona | Reply | (1) replies | Private Message me
August 8th
2008
10:49 PM
My husband initially took Prednisone after getting strange lesions, severe joint pain, severe fatigue and severe stomach cramps/nausea. It worked great he was tapered off and no problems for about 18 months. Then he go sick again (2/08) and has been up and down on Prednisone for 7 months- currently taking 60 mg. daily. Some doctors think he has Wegener's, but testing is inconclusive (Wegener's starts with upper respiratory stuff, which he also had). His mood swings are severe and he's a different person, twitching, hand trembling, muscle spams, malaise, anxiety/depression, very fatigued, insomnia, severe stomach cramps/vomiting. How do you tell which symptoms are the Prednisone and which are the disease process? They want to taper him to make him sick enough to get some test results that show organ damage or something, but everyone chickens out and he ends up getting increased. How long should he be on Prednisone and not be put on something stronger?
-- By sonjajazz | Reply | (3) replies | Private Message me
July 5th
2008
1:52 PM
Started Simvastatin 20mg Jan. 08, just quit June 16th. I 've had all the problems the rest of you have had, arm, chest pain, thought I was having a heart attack for about a month, eye problems,no sex drive, memory loss, weird thoughts, stomach problems, so tired I could barely move, just could'nt wake up. Since I've been off this stuff I'm up one day and down another. I can see some progress, but it seems slow. Does anyone know how long it takes to get this stuff out of your system? Talked to a friend of mine who was on a statin, he quit , and told me it took him 6 months before he felt right. It does'nt seem to go away over night. Anyone else feel this way?
-- By ltj559153 | Reply | (1) replies | Private Message me
March 22th
2008
7:47 PM
I'm feeling really scared now because I've had the Mirena, well 2 of them, in for around 8 years. In all that time I've experienced really debilitating back problems and I thought at one point i would end up in a wheelchair. I just didn't connect it to the mirena even though my back problems worsened after having it fitted. I've also developed swollen ankles and fluid retention generally. Over the last three years I've had migraines and throughout I've been irrational and impossible for two weeks around my period.
My skin is awful now and seems to have lost most of it's elasticity.
I am finally booked to have this thing removed but I fear it could be too late to reverse much of the damage. I'm sure that skeletally my back is just too messed up. My skin hangs now like a 60 year olds because of the excess weight I'm carrying but if I could just get some energy back I'd be so happy.
-- By diddleedum | Reply | (1) replies | Private Message me
March 10th
2008
10:10 PM
I'm 17 and I took Levaquin back in November and still have to use a wheelchair to get around. I ended up having to go to the Mayo clinic because there were so many factors to my case, and we were not getting anywhere with my doctors at children's hospital. i also have mono and west nile virus and so all that viral activity made the reaction so much worse. They discovered Levaquin caused severe tendinitis in each and every tendon, but my hips mainly affected causing them to be extremely fluid-filled. I also have a permanent peripheral neuropathy from it. They discovered an autonomic syndrome called POTS (postural orthostatic tachycardia syndrome) , however that can logically be attributed to either the mono or the reaction.
I go to physical therapy every week now for my hips and my ability to be ambulating well enough to go to college in 6 months is being questioned.
December 26th
2007
5:05 PM
I was put on Levaquin for 21 days to treat chronic sinusitis and I am only 17 years old. After about the 3rd day I was having great pain in my hips and knees and we called the doctors office to say we were having some of the side effects you're supposed to notify your doctor for, and they told me to keep taking it because all medicines have side effects and not to freak out. By the fifth day I had to be rushed to the ER because of serum sickness and i finally stopped it. Now, 2 and half months later, I still walk like a 95 year old and have to use a wheelchair to get around. I've also developed hypersensitivity to cold and touch and my limbs go numb randomly.
-- By bears2623 | Reply | (5) replies | Private Message me
September 13th
2007
11:25 PM
Prednisone is a catabolic steroid, not anabolic which increases muscle, so people should know that continued use over time will literally break down and destroy muscle tissue. Without muscle, a person has no way of even standing more than a few seconds and could suffer many falls.....these falls are worse on the prednisone patient because prednisone also effects bone density and multiple disc fractures can result, leaving the person wheelchair bound.
How do I know? That's what happened to my mom. Also, if you are in a nursing home and contact scabies, forget about ever getting rid of them prednisone supresses the immune system so it can't kill them off, even with all the meds and treatments out there for scabies. Again, my mom.
-- By cookiecndy | Reply | (1) replies | Private Message me
June 28th
2007
4:47 PM
on zocor since dec 2006, i have alot of other medical problems, arthritis, fused foot, very bad lower back and some osteoporesis, but i believe more so, than not; that my symptoms increased after a change in dosage. now i'm very tired, extreme muscle weakness, knee pain, having trouble walking, weight gain (10 lbs in last 2 months) and unbelievable swelling in ankles and top of foot, very painful
It's hard to blame zocor on this, but i don't just want to wear compression socks and so forth, because that could be masking the cause, and maybe just a change in lipid medication will change things around. it's a vicious circle, cant work out or walk, to tired to do anything, but work 14 hours a day, it's such an effort to walk (I keep blaming the weight gain) but maybe its really the swelling and joint pain along with the muscle weakness that's to fault.
December 27th
2006
4:16 PM
My mother took Yutopar when she was 5 months pregnant with me and continued to take it until she delivered. At first I appeared to be a healthy baby but within hours of my birth I became increasingly sick. Now at 19 years old I have an unknown condition that causes my muscles to be very weak and force me to rely on my wheelchair for ALL mobility needs. I have used my wheelchair all my life and have had numerous tests, including 3 muscle biopsies, to try to find a diagnosis but the doctors do not know what it is. My parents both think it is Yutopar, but the doctors say no however they are unable to say what caused this.
-- By lil_gabby88 | Reply | Private Message me
Levaquin (9) Lipitor (7) PredniSONE (4) Mirena (4) Simvastatin (2) Aviane (2) Warfarin Sodium (2) Depakote (1) Avelox (1) Flomax (1) Flagyl (1) Periactin (1) Yasmin (1) Ciprofloxacin (1) Lupron (1) Budeprion (1) Paxil (1) Yutopar (1) Clexane (1) Zocor (1)
August 3th
2009
11:43 AM
this is probably the worst thing Avelox caused, besides death, which would have happened without help..
7th day on Avelox for sinusitus - massive pain back of my head, sweating so much my clothes were soaked, threw up 2 times, legs were uncoordinated when trying to walk
Called 911 - paramedics took blood pressure - guess what.. 210/180.. something was definitely wrong. Rushed to hospital - passed out in ER - woke up with wife and family present - CT scan found my brain bleeding and brain surgery was performed to remove the clot..
But wait, it gets better... 2 days in the ICU my brain swelled from the surgery and the fluid stopped circulating.. I was semi conscious in the ICU for probably 4-5 hours and nothing was done. My wife came in early in the morning and thought I was sleeping, but could not wake me.. The nurse said that a doctor was called and will be there later. I'm DYING right before their eyes in the ICU!!! My wife demanded I get a CT scan immediately. If she didn't I would have stopped breathing. Later CT showed my ventricles enlarged with fluid backed up so much that my brain and brainstem was ridiculously squeezed so much, my head was all ventricles and barely any brain showing in the CT. I attribute my current brain damage to this episode.
A shunt was placed in my head for about 3 days.. basically a needle is inserted into my brain and left there to drain the excess fluid.. After my condition stabilized, the shunt was removed.
Spent 1 week in the hospital, then transferred to another hospital to stay in for inpatient PT and treatment. I didn't know left from right, had double vision, was throwing up constantly, was hot, then very cold, my legs hurt, had hallucinations (was believing certain things were happening, that really weren't) was incontinent, had a new catheter inserted every single day, was taught to walk again, had to use a wheelchair.
I had always been healthy, was vegetarian and did not smoke cigarettes.. I exercised regularly, did not use drugs (i.e. - cocaine or methamphetamine which can cause high blood pressure leading to a stroke)
Didn't know what happened to me, but realized I had to be there.. After 1 month, decided to go home (the hospital was becoming too stressful, somebody was always screaming and yelling at night and the daily catheters were uncomfortable), to be back in the lifestyle I knew.. my wife, my granddaughter, my house, my dog, cats, and other pets were sorely missed.
Once home I found that I couldn't do what I used to anymore - could not mow the lawn, drive, speak well, walk properly, had double vision, a tingling on my face, a metallic taste in my mouth so bad that good food tasted bad.
My wife set me up for physical therapy three times a week daily outpatient at the hospital I was at. Vomited regularly from the daily dizziness.
This was most disturbing, I developed a pain in my left hand and left shoulder, to the point where I could not raise my arm above my head and had to sleep with my arm straight down for at least a year. After playing guitar for 30 years, I found myself unable to play my guitar anymore. My left hand had lost all its dexterity and was not usable. I did not realize what happened to me until my wife explained the entire thing to me.
In the next few weeks I spent each day trying to put "2 and 2 together" and figure out why this happened to me. When doing research on strokes, I realized that certain things happened to me that were not consistent with having a stroke. In my brain damaged condition, I remembered taking the antibiotic Avelox, based on a physicians prescription. I researched the adverse effects and to my amazement, the listed side effects were consistent with what happened to me.
I began a quest to file a lawsuit - was unable to find a lawyer willing to tackle such a huge case.. although one lawyer did file before the 2 year time limit expired.. I had MRI's performed on my hand and shoulder which revealed scarring and previous ligament tearing.
During the time of having more outpatient and in home therapy, I regularly visited a psychologist and my physician confirmed that the Avelox most likely caused the brain bleed, tendon tears, and other mysterious symptoms when I presented him with my research. I was unable to work and my only income was from monthly Social Security Disability benefits that didn't begin until 6 months after the incident.. leaving me with no income and unpaid bills for 6 months. The mortgage payments fell behind and soon foreclosure notices arrived. We decided that an alternative would be to sell the house.. it could not be sold after 1 years attempt, so my wife and I moved to an affordable apartment. I put household items in a storage facility. I either sold to pay bills or threw away much of my personal things,since I was devastated by what happened to me, I didn't think I was going to survive long after reading statistics on strokes.
While in the apartment, I needed an income and was forced to take what was in the scpoe of my limited ability. I accepted an early morning paper route and then made deliveries for a courier company using my own vehicle.. That was a 12 hour work day. Being completely upset over what happened, losing everything including my house.. I decided to attempt to escape the overwhelming things that happened and were still happening. I found a house for rent that was less than the apartments rent, except it was in North Carolina. At the time that seemed perfect, a 3 bedroom house located in a far away place where I could forget everything that happened and make a fresh start. Only problem is my wife not want to go, but I was adamant upon doing it. She helped me move everything, including all storage items.. I had moved to North Carolina, but soon found being alone and unable to find suitable employment unbearable. I was being contacted for back rent owed, but could not do everything alone - I became more depressed to the point of feeling suicidal, so I called my aunt in NY and she said just leave everything and get myself to her house. I did, leaving everything behind, and stayed with her for a month until my cousin invited me to stay with him.. which I did. I stayed with him for 3 months, all the while searching for employment.
With help from my family I moved back to my familiar area in NJ in the summer of 2008. I had lost everything..unable to be physical with my wife and being seperated for 18 months, she has requested a divorce. Currently I live by myself and am still slowly recovering, yet my left arm and hand are uncoordinated, my talking is difficult, slurred and gravely (diagnosed with dysarthria), my balance is bad and am dizzy every single day for the past 4 years.. Although brain damaged, I am attempting to rejoin the computer support business again.
My entire past, everything I knew and did, everyone I knew, who I was, etc.. is all a strange hazy memory. If I don't take a sleep aid, I wake up around 4am with racing thoughts, unable to sleep.. My depression and anxiety are so bad, it is difficult to function and interact with others. My psychiatrist has diagnosed me with post-traumatic stress disorder and prescribed Zoloft and Xanax.
Upon proper research, I have to blame the prescription and subsequent use of Avelox for causing the brain bleed which led to my life being completely and utterly destroyed. My intentions are to file suit against the manufacturer Bayer and/or the hospital for allowing me to die in the ICU
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