January 5th
2009
10:59 AM
My 9 year old son started Singulair 5mg about 8 months ago. Shortly after, he started to occasionally complain of stomach pain and not being hungry. About 2 months ago, they changed the dosage to 10mg. He now has chronic diarrhea and severe weight loss. We stopped the medicine about 2 weeks ago, but he's not "back to normal" yet. He's never had any digestive problems before. The doctor's recommending endoscopes, and we're at our wit's end.
-- By worriedinva | Reply | (3) replies | Private Message me
September 23th
2008
4:54 PM
My 12 year old son started on Singulair 10 days ago. Yesterday, he threw up blood twice, so I took him to urgent care. He said it felt like someone was shoving knives into his stomach. He had blood tests and a CAT scan -- the connective tissue in his abdomen was inflamed and his lymph nodes are slightly enlarged. His white blood cell count is up slightly -- just above normal -- and his liver enzymes are elevated, which the doctor said is common with a viral infection. He has also had migraine-type headaches twice in the last week. HOWEVER: my 16 year old son has been on Singulair for four years, and it has been a lifesaver. He has had some hand tremors, which could also be aggravated by the decongestant he also takes, but no other side effects.
-- By erincon23 | Reply | Private Message me
June 25th
2008
6:10 PM
Hi everyone
My little boy who is nearly two was put on Singulair as a preventative.
I did check on forums when we started using Singulair and I was concerned that there has been descriptions of negative affects. Always trying to be objective I rationalised that the people in this forum are a small part of the greater Singulair population and as a result there was a low risk of negative affects on my little boy.
I have to say I think I was wrong. As soon as he was using Singulair, he had restless nights of sleep. Every night he would cry off and on until 2am and I guess he was so tired he slept. During the day he was very short tempered and became upset very easily. We put this down to tiredness. After 10 days of the lack of sleep for parents and little one, we told our doctor.
He advised to take him off Singulair for 5 days and make observations and then put him back on. Last night, his first night off Singulair was bliss. Not a sound. He had a great sleep. As I type he is now having another great sleep.
Let us see what happens after 3 more days and after putting him back on Singulair.
It would seem that if we are correct and that Singulair is a cause of an issue for my child, am I a quasi beta testing laboratory for a drug?
We are from Australia.
Thank you for reading.
May 29th
2008
6:33 AM
hi, im not sure what to do. my 3 1/2 year old daughter was today given the prescription for singulair. i voiced my concerns to the doctor after my friend telling me its no good due to the side effects.she said that there are risks and side effects with any drug you take but for some reason i don't feel right about this. don't doctors know better than this. anyway Would like to know if all the people who take singulair suffer some sort of side affects or is it minimal? or going by this side it looks like its probably best not to give it to her at all.
-- By ramata | Reply | (12) replies | Private Message me
May 28th
2008
1:39 PM
I have been on the nuvaring for 1 year now. Over the past 4 months, I have been getting what feels like a UTI, blood in urine and increased white blood cell count (per urine tests), but doctor's say it is not a UTI. I thought it could be the nuvaring, so I took it out 8 days ago, but the pain with urination has not gone away. Has anyone had a similar experience?
-- By crazyapplegate | Reply | Private Message me
April 24th
2008
1:18 PM
I am very scared right now and concerned, but recently I have been sick for the last 3 weeks or 4 weeks. I went to the doctor about 2 weeks ago and he prescribed some Amoxicillin for my sickness. He said he couldn't identify what I had so he gave me a broad based anti biotic. For about a week I took it and didn't get any better. The medicine caused me to get dizzy spells after sleep and before sleep. So this week I went back to the doctor and he said the medicine wasn't helping me and my white blood cell count had gone up. So I had to get some blood taken . Then the nurse couldn't find my vain easily. She managed to get a little blood though and took it for lab samples. The doctor came back and said I needed to take some Avelox and gave it to me. So for about two days I took it and I felt ok, but later the second day I started having a panic attack for no reason. I told my dad I needed to lay down.
After that, my dad made me some food and I laid down and watched TV and the feeling soon left. I was really feeling sick so I got a cold rag and put it on my forehead. I was looking forward to my mom coming home from Wednesday night church. I fell asleep for about 30 minutes. Then my mom came home and woke me up and we talked for a bit and then I went back to sleep.
Well, today I got curious about my medicine and looked it up and found out some terrible news. The medicine I am taking has actually landed people in the hospital. I found a site where people who had taken it posted what the side affects were. They all had reports about having anxiety, depression, panic attacks, and muscle aches.It was then I realized that my medicine is what caused the panic attack the day before. I called my dad instantly and told him about the bad side affects. He didn't really seem to care that much. He listened to me though, which is a step up from my mom. Then I called my mom and explained to her. She just ignored me and didn't care. I was crying and I felt so terrible and frustrated. I was just trying to explain to her that my medicine caused very bad side affects and even thoughts of suicide. She didn't really seem concerned though, she said she'd call my doctor and talk to him about it.
Right now my parents and I are just really stressed about this whole thing. I refuse to take my medicine because of it's dangerous side affects... but if I don't have any medication at all I won't get better. I'm just in a really bad situation and I am just so depressed I feel as if I could burst!! Everyday I feel like utter crap and my vision is screwed up and I don't have an appetite so I have to make myself eat. Also, my white blood cell count keeps getting higher and if something isn't done soon what I have could be very dangerous.
I keep praying to God... but it doesn't feel like he hears me. I am in great emotional pain, my parents are never home and I'm lonely the majority of the day to , and being sick doesn't help. I am starting to experience a bit of the thoughts of suicide.I keep convincing myself I need to live and I'll get better and I don't need to die. It's hard though I am fighting with all my might to keep it away.
-- By pookiepoops | Reply | (4) replies | Private Message me
March 31th
2008
11:36 AM
Has anyone had a High White Blood count due to the Mirena? I was given the Mirena to help with the Progesterone because I'm so young and I didn't want to have a hysterectomy. I haven't had children and want to try even though I've been told it's not possible. I have a 1% chance which is why I want to give it a try, but I'm almost 34 years old, so I only have a little time since I'm already in Pre-Menapause. I have had horrible headaches and also bloating, but I thought it was from my GI problem I've been dealing with for over a year now. I had the Mirena insert on February 11th, but my White Blood Count has skyrocketed to the point they want me to go on to a Hematologist. I was on Seasonable and I almost had a heart attack because my blood pressure went up to high because of the side effects. Just be careful. Now reading this website has me suspicious, so now it maybe hysterectomy time. This was my last chance to try something.
-- By morecows | Reply | (6) replies | Private Message me
February 22th
2008
9:35 AM
I started the NuvaRing in October of 2007 and I have had some very interesting side effects. While I can't say for sure that all of my side effects are directly related to the NuvaRing after reading all the comments on this website I took it out last night. In November I started having trouble breathing and it felt like I couldn't get enough air into my lungs. I called my doctor and although I have never had a history of Asthma he felt I was having an acute Asthma attack. He gave me an inhaler to use three times a day until I felt better. But I never got better. I went back to the doctor and he started me on Spiriva and sent me for a chest x-ray. My chest x-ray showed walking pneumonia so antibiotics were the course of action now. I felt better for a bit but about three weeks later I was right back where I started. I was very weak and tired all the time. I would become winded just by walking up the stairs. Nothing I did seemed to work. A few weeks later I went back to the doctor for the forth time with a cough I could not control. It was hard to breath but I didn't feel sick. No cold or flu symptoms just a nonproductive cough. So now this is late January and I finally get a diagnosis from my doctor - full blown pneumonia but he did not do a second chest x-ray. So I take the antibiotics and for a few weeks I'm feeling pretty good. But last week I started up again with the shortness of breath and coughing but this time it's accompanied with headaches and a fever of at least 102.5. I went to the emergency room and found out that my heart is working harder than it should and I may have been throwing blood clots from my legs. The ER doctor did a chest x-ray which was normal although all my symptoms were exactly the same as a few weeks before when I was diagnosed with pneumonia. My lab work showed that my white blood cell count was normal so I don't think I had pneumonia at all. Signs of blood clots can present themselves like signs of pneumonia. I was told to look for pain or swelling in my legs and so far so good. I have a follow-up appointment in two weeks so it will be interesting to see if my heart is back to normal. I'll post back to let you all know but please ladies think twice before taking this BC. For me it was not worth the risk.
-- By aeskie28 | Reply | (2) replies | Private Message me
January 6th
2008
8:29 PM
My son is 4 1/2 years old and has been on Singulair since he was 2. We have been happy with the improvement we have seen in regards to his asthma. No more breathing treatments have been great. The last couple of years though he has continued to get severe headaches that put him out for at least a day with high fevers. The first time it happened was when he was 2 and he had a mild seizure with spiked fever. I haven't thought about it at all until he was due to get another headache and hasn't. We have missed some doings due to the holidays and walked out schedule. The timing and symptoms are seeming a little to coincidental. We have seen a hematologist and immunologist for his chronic headaches but no one knows why he is having them. He has even been admitted for them. His white blood cell count has been elevated with no known cause as to what his body is fighting. I think we will take him off of the Singulair for at another month and see if he gets anymore headaches.
-- By hudsongrant | Reply | Private Message me
January 4th
2008
7:28 PM
Remicade did wonders for me, my Crohn's disease went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.
-- By gillisbarbara | Reply | (1) replies | Private Message me
January 4th
2008
11:49 AM
I have had Mirena for 6 months and things seem to be getting worse. I am now bloated (yesterday was bad), and my period lasts for almost 10 days now and counting even though it is light. I am also moody and tired. I have not been able to lose one single pound from pregnancy since it was inserted. Now I am wondering if my eye problems could be related -I have had dry eye and blurry eyes and my eye doc thought Mirena could have something to do with it since the timing is similar? Anyone had eye/contact problems?
I thought this birth control was so great until recently!! and I hate the pill, and I've tried almost everything else (patch, ring, different pills) what else is there??
January 1th
2008
2:43 AM
I started having extreme pain in my shoulder. Then in my hip and lower back. Then one day I was fifty miles from home and I had extreme pain in my stomach and back. The pain was so bad I couldn't hardly drive. I had to call someone to come and pick me up and take me to a doctor.
I was given a pain shot and an antibiotic shot. He said my white blood cell count was pretty high. The pain shot did nothing for me.I've been given a round of antibiotics, Z pack, inflammation tablets, and muscle relaxers.
The pain has eased up a little, but the pain is still pretty bad. The doctor wanted to know if I had started a new medicine recently. The only new medicine I was taking is Vytorin. I had also had chest pains. I had no idea that any of these pains had anything to do with each other.
To me Vytorin has been a nightmare.
My whole Christmas was ruined because I was in extreme pain.
December 6th
2007
7:25 PM
I've had the Mirena IUD inside me for 4 years now. In the beginning I absolutely loved it because I went from having very heavy long lasting periods to having none at all. First year I had no periods but began experiencing extreme allergies. The next year the allergies to everything worsened and my stomach would inflate to the size of a 6 month pregnant woman overnight only to disappear and reappear a few days later. Doctor diagnosed me with IBS, sinusitis, and also prescribed me anti-depressants and sleeping pills. Continued to think nothing of it and did not make the connection between the Mirena and my deteriorating health. Now at 4 years with the Mirena I have numbness of the left side of my face, sores in the corners of my mouth, severe allergies, hair loss, increased facial hair, depression, fatigue, low white blood cell count, and now psoriasis of the scalp. After many blood tests and countless prescriptions I have decided to stop listening to the doctors and demand that this thing be taken out of me. Wish me luck.
-- By kelmichele | Reply | (4) replies | Private Message me
September 26th
2007
8:02 PM
I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.
-- By smoore74 | Reply | (21) replies | Private Message me
December 8th
2005
6:26 PM
It's been 2 more months off of Advair. The mouth sores are gone, but the productive cough is not gone. I have gone through 4 different antibiotics to get rid of sinus infections and still the green mucus coughing spells. I went to the hospital and blood count was high white blood cell count. Saw an ENT and he did cat scan and sinus probe. Nothing. He said he cant help me the damage is in the lungs. I wish I had never inhaled Advair.
-- By moneebee1 | Reply | (2) replies | Private Message me
January 11th
2005
8:45 AM
My son, 15, has been taking doxy for acne for about 3 mths. He took it at night, with food. He recently told me that he has been having severe stomach pain (like spasms) in the mornings at school. After the pain subsides, he feels mildly queasy for a while, then he's okay until the next morning. We saw the doc about this and discovered that he also has a low white blood cell count. I know that a month before beginning the doxy, his blood values were all perfect. Has anyone else had anything like this???
-- By lgmains | Reply | Private Message me
July 8th
2004
8:48 AM
I'm a 25 year old female and I was diagnosed with Grave's Disease during my pregnancy at the age of 21. The following year I was treated with radioiodine and subsequently was placed on synthroid. Since I have been on the medication (3 years now on varying doses) I have experienced severe to moderate anxiety, alarming hair loss, loss of appetite, piercing headaches, dry skin, fatigue, leg pain (mostly at the joints), dry mouth and eyes, and I feel I react very slowly (thinking and physically). THe most predominant symptoms at the moment are the dry skin which has never gone away, I still notice my hair hasn't stopped falling out at the rate it was when first starting the medication, sleeping isn't very restful, anxiety attacks and tight chest. I have told my doctors both primary and endocrinologist of my symptoms and was basically told to put on lotion (which I do religiously), see a psychiatrist, and buy a better mattress. I could almost make out a question mark hovering over my primary doctor's head as she thought of what could be the source of my afflictions.
When i had my yearly visit with my endo recently, he became agitated by my question asking and basically brushed me off. He told me point blank "There are no side effects with this medication". I asked, "None?" and he insisted, "None." I found out later that week (He's an Associate Professor at a local University) by a research statement I found on his website "Review of Graves' Disease outcomes comparisons, antithyroid drug therapy vs. radioactive iodine treatment". He's funded by the makers of Synthroid. Needless to say, I'm calling around for a new Endocrinologist. In his haste to administer radioiodine, (he said my white blood cell count was very low due to the PTU i was taking for Hyperthyroid, mind you, I had an infection not too long before his findings) he may have miscalculated how much radioiodine I should be given and now I am taking varying doses because he can't seem to get it right. I just found out today that soy bean decreases absorption of levothyroxine sodium. I have been taking my synthroid with soy milk for the past few months, which may account for my thyroid hormonal change. I'm thoroughly disappointed.
-- By leti1028 | Reply | Private Message me
August 17th
2003
2:01 PM
I had posted before about severe muscle/joint pain and weakness while taking Zocor. I was also having a problem with my white blood cell lymphocyte count. They were less than a tenth of what they should have been. This would adversely affect my disease fighting capability. After several visits to a hemotologist/oncologist and over 20 lab blood samples, nothing was found. I told my doctors that I had read on the Internet that Statins had been found to be immunosuppressors, lowering both T & B cell counts dramatically. None of them knew of or had read about this.
The only reason my blood cell count was even checked was because I complained of tiredness, pain, etc.
I decided to stop taking Zocor on my own and the improvements were dramatic. The muscle pain and weakness lessened considerably but did not totally disappear. My vision sharpened. The Lymphocytes went back to normal in a little over two weeks.
With so many people taking statins, are our immune systems being weakened making us more susceptible to cancer and disease? Certainly this question needs to be answered.
June 11th
2003
8:00 AM
I was prescribed Levaquin 750 q day for what appeared to be a breast abscess and swollen nodes in my left axilla. By day 3 I didn't feel a whole lot better, the infection didn't seem to be improving greatly, day 4-6 spanned a weekend, by day 7 I was so miserable I checked into the ER. There they did blood work that showed that my bone marrow was completely suppressed, which meant that my body was unable to fight the infection at all. The result was a two week stay in hospital, IV antibiotics x 4 weeks, incision and drainage of stated area x 2, and a lengthy recuperation. I am an RN, have never been sick a day in my life before this episode. I am still unable to return to work because of my low white blood cell count, and will very likely have to change jobs because I doubt whether I will be able to return to 12-hour shifts on an ortho-vascular floor. I am still quite weak, tire easily, need to rest frequently, do not have anywhere the ability to work a full day that I had before this episode. The affected areas are finally healing, but it is now 6 weeks post appearance of the infection. My WBC is still about half of what is should be to be low-normal. I am being followed by a oncologist-hematologist to correct the damage that was done to my bone marrow by this dangerous medication.
-- By ebwells | Reply | Private Message me
June 11th
2003
7:05 AM
My name is Evie Brien-Wells. I was prescribed Levoquin 750 q day for a breast abscess and swollen nodes in my left axilla. I took the medication, but didn't feel much better, in fact the infection seemed to be getting worse. Days 4-6 spanned a weekend, by day 7 I was so miserable I went to the ER, where they found by doing bloodwork that my bone marrow had been so completely suppressed, that my body was unable to help fight the infection. The result was a two week stay in hospital with IV antibiotics, need for incision and drainage of the areas in question x 2, and a lengthy recovery. It is now 5 weeks past my first hospital day, and my white blood cell count is still less than half of what it should be. I can't work with an immune system still that compromised. I am an RN, age 54, never been sick a day in my life before this episode. I still feel weak, altho' that is getting better every day. I still find I need to nap during the day, and that alone is very unusual for me, as I worked 12-hour shifts before this little episode. I am going to have to find a job that is less demanding, as I doubt that I will be able to do 12-hour shifts any time soon.
-- By ebwells | Reply | Private Message me
Singulair (5) Mirena (4) NuvaRing (2) Levaquin (2) Lisinopril (1) Bactrim (1) Zocor (1) Avelox (1) Synthroid (1) Vytorin (1) Advair HFA (1) Remicade (1) Doxycycline Hyclate (1)
August 5th
2009
11:45 PM
Have had a horrible reaction to Bactrim. Started with loss of appetite, body aches and headaches within a week of taking Bactrim. Progressed into fever and the chills by a week and a half but just thought I had the flu. After taking Bactrim for 13 days I started breaking out with hives on my face, neck and chest which later spread to my arms and legs. I was diagnosed with an allergic reaction to Bactrim, pumped full of iv fluids, steroids and anti-histamines once they figured out what was going on. I had a fever of 101-102 for over 4 days. I was dehydrated and had a low white blood cell count. I'll be taking oral steroids and anti-histamines for 5-6 days. Such a horrible experience, I'll be glad when I won't be on any more of these medications!
-- By eranderson23 | Reply | Private Message me