October 29th
2009
8:37 PM
I started NuvaRing 3 weeks ago yesterday after having the Mirena IUD removed (kept in all 5 years). I removed it yesterday as planned. 1 week ago, I felt a terrible pain in my right side under my ribs. I started having very slight trouble breathing, pain when laughing or coughing, etc. I applied heat and the pain subsided over the weekend and I could breathe easily. On Monday, I decided it best to go to the doctor since I had trouble breathing, I didn't want to assume it was nothing. I went to a doc in the box (bad idea) and I was told that I had a swollen rib cage (the cartilage). I'm certain I was misdiagnosed because the dude didn't even do xrays, even after I explained that I had just started NuvaRing. I wanted them to be aware of everything. The doctor dismissed it.
On Tuesday night, I was in so much pain and my difficulty breathing was worsening that I cried myself to sleep. Wednesday I went to work and was in so much pain that I was in tears and headed to URGENT Care, as my primary care physician could not fit me in. They xrayed, ran a urinalysis, a CBC to check my white blood cells and found nothing except for a bit of what appeared to be constipation, though I have regular bowel movements. My white blood count was slightly elevated, but distributed normally. I was prescribed a laxative and Lortab for the pain, which was excruciating. The doctor told me to come back the next day (today) to retest my white blood count. It went down a tad, as I had taken the Nuvaring out yesterday evening. The doctor seemed puzzled, but gave me my CBC results and urinalysis just in case I developed a fever or an infection of some sort, but told me that she thinks I am having side effects from the NuvaRing. She asked me to not put it back in.
On a side note, I had called my OBGYN on Wednesday before I headed to Urgent Care and explained the situation and they advised me to remove the NuvaRing as well.
I'll have to bite the bullet and pop the daily bc, such as Ortho Lo.
-- By eightthirty | Reply | (1) replies | Private Message me
August 17th
2009
12:26 PM
))REMOVED IN APRIL 09, STILL HAVING SYMPTOMS, ANYONE ELSE PLEASE CONTACT ME..I THINK I'M GOING CRAZY(((((
To spare everyone of a very long read of the SAME symptoms as everyone on here, I will list:
Dec08 inserted
PAIN PAIN PAIN CONSTANT PAIN
BLEEDING
Cramping so bad I had to stay in bed
Insist something is wrong
Dr. says all this is "normal"
April 09 Removed
PAIN CONTINUED CONSTANTLY
Dr. Says all this is "normal" be on you way
May 09 switched to new Gyn
US revealed retroverted uterus ( I knew previously)
Cyst on rt. ovarie
A small amount of fluid in cul de sac ( Dr. states that the mirena perforated my uterus & now the fluid is sitting there)
Given 2 antibiotics & a pain reliever (did nothing)
June 09 Went back to new Gyn
States that " I don't know what to do, I have never had a patient with these problems, you may want to get a 2nd opinion."
August 09 (now)
Continue to have same daily, continuous pain & pressure in uterus & rectum area.
Sometimes feels like a bowel issue as well?????? Some sort of connection here.
Pressure, heaviness down into my upper legs & knees feel swollen
Sharp knife like pains in breasts
Nausea that wakes me from sleep
Tearful, sad, becoming depressed, feel like Dr.'s think I'm crazy!
Spending money we do not have on$50 copays and GETTING NO CLOSER TO THE ANSWER!
WHEN WILL THIS STOP??????????????????????????????
Contacted Mirena, they just jotted down notes & said hope you feel better.
Blood work some white blood cells, but nothing major.
I eat Advil like PEZ candy, if a friend can give med a pain med I get a days relief then it's just right back the next day. I don't dare ask for meds from Dr.'s they already think I'm nuts!
I have wasted so much time with this, I am missing my infant experience life, my 4 yr old needs me as well! My husband can not take another minute watching me in pain & crabby all the time.
Seriously, enough already, I get it, I made a mistake.
Contact mee if you want to chat.... ******
Not doing well .....M.
-- By mirenaruinedmylife | Reply | (1) replies | Private Message me
July 17th
2009
6:43 AM
Hi,
I'm fit, tough and extremely healthy. Tried Mirena. Ok for one year then within six months I experienced increasing upper abdominal pain and ultimately the sensation of something bursting central chest and the first of three Emergency Hospital admissions. Bloods clear. Xrays clear. ECG's clear. Endoscope clear (had experienced severe and sudden onset gastroenteritus/IBS acid reflux, extreme food intolerance.) Also had a large cyst needed draining (and multiple smaller) appeared in left breast. Lymph glands in neck up. High histamine, raised albumin, white blood cells relating to allergy/parasite. Allergic reaction/systemic rejection of coil?
No uterus pain at all.(Not had period for over a year)
So very ill after sixteen weeks being consistently told it wouldn't be the coil I took it out. Hard to describe but an extreme sense of relief, reduction in pain from entire GI tract swelling/sensitivity.
QUESTION.
One week on huge improvement but I still have continual upper body/chest pain (diaphragm?), and additional pain sharp pain through left ribs to shoulder blade, worse with sudden movement. Anyone had residual/slow to improve nerve damage? Need to be fit for my job.
Thank you for reading.
PS. Its not a 'coil'. Its a nasty sharp edged piece of plastic.
-- By spook007 | Reply | (1) replies | Private Message me
January 22th
2009
10:17 AM
I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!
Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.
-- By valinal | Reply | (5) replies | Private Message me
October 26th
2008
8:35 PM
My mother is 40 yrs old and has RA and gets remicade treatments through an iv . It seems to help with the pain of her RA, but the side affects are out of control!!!! she has white puss pockets that show up on her hands and feet. She was told that that was her white blood cells dieing from the treatment. her hands and feet peel and swell making it hard for her to walk or touch anything. her throat has these awful spasms that make it hard for her to eat or drink anything. Theres so much more, it would take all day to explain! Is this really the price she must pay for RA relief??????
-- By chrystin | Reply | Private Message me
May 15th
2008
2:26 PM
I am glad that I found this website! I have been trying to find out how long it takes for my moon face to go away. I was prescribed 60mgs daily of Prednisone while 35 weeks pregnant for 3 weeks. When pregnant, I developed a condition called Thyromocypenia (my white blood cells die off during my pregnancies). In order for my OB to not have to put me under again for a repeat c-section, she referred me to a hematologist who put me on this drug. I asked him about side effects and he stated that the most common is increased appetite, which did not affect me. Even though I was pregnant at the time, my appetite did not change, but what did change was my face after I stopped taking the Prednisone. While in the hospital after the birth of my son, they did taper the dosage for 3 days and at the point of discharge, I was completely off the drug. I left the hospital on a Wednesday and overnight my face had swollen so strangely that I went back to the hospital on Friday. I had no idea that there was such a thing as this moon face syndrome. The nurse that attended to me in the emergency room told me about it. She said that she had taken Prednisone before for asthma and it took her face 3 weeks to return to normal.
I just had my son on 5/4, and my face has been swollen exactly a week today. I can see where some areas are reducing, but it is still not back to normal. My face did not swell at all during my pregnancy and I only gained 18lbs, so this was really startling for me to have been through 9 months looking great and after giving birth sitting up with a pie face, swollen nose, swollen lips, a swollen neck, and swollen shoulders. I also experienced a couple of migraines that nearly took me out. I hope to never have to take this drug again!
-- By tscott | Reply | Private Message me
May 11th
2008
3:16 PM
Quinolinic acid and neurotoxicity:
Montelukast contains a quinoline radical. Quinolinic acid, a well known damaging neurotoxin that kills neurons, can be produced from a quinoline and hydrogen peroxide. The body produces hydrogen peroxide for a numbers of reasons. White blood cells produce hydrogen peroxide when activated by antigens such as bacteria, virus, fungus etc. It is also produced under conditions when the body is stressed. It is also produced in the gastrointestinal track.
If we knew how montelukast could break up to free the quinoline radical, then we might be able to define a number of different scenarios under which hydrogen peroxide could cause montelukast to generate the neurotoxin quinolinic acid.
If we could prove that montelukast is capable of produce quinolinic acid under unusual circumstances (doesn't happen to everybody), then we would have a very good explanation for all of the psychiatric adverse drug reactions that are mentioned here which include hallucinations, anxiety, depression, suicidal ideations, night mares, etc. etc.
Anyone looking for answers should try to pursue the possibility that quinolinic acid is causing bad side effects. I wish that I was much better at chemistry. I am stuck here at the moment. I keep hoping that somebody else with more expertise will come here to tell us how it happens.
-- By concernedcitizen | Reply | Private Message me
November 15th
2006
9:14 PM
I ave an auto immune arhritis where the white blood cells are destroying & eradicating all glands that make moisture. I no longe produce saliva & could it be true Prednisone is drying m out more I feel it is drying my eys out more & skin & hair, I have Sjogrn's Syndrome.
-- By seeleywendy | Reply | Private Message me
July 14th
2005
1:53 PM
I am a 24 year old male. I started taking 25 mg toprol because I was rushed to the hospitol with left face, back left of my head and left arm going numb. At arrival my blood pressure reading was 202/120 and they couldn't get it down right away and I don't think they had any idea what was wrong. They did a million test and the only thing they fpund out they thought was that my (I think my white blood cells being at 56) so they said I had polysithemia( not sure of the spelling) so they sent me home with 25 mg of toprol and every other week drawing a pint of blood from me. Which sort of helped but then I started getting these terrible headeaches in the back left of my head that are the worst pain, it shuts me right down its hard to function. and at this time blood pressure was still pretty high 165-170/95-105 on average. so they upped my dose to 50 mg and for a couple of months I just dealt with the pain that I was still having cause I gave up on my doctors they were realy starting to piss me off. then I had another check up and my blood pressure I told them was still high 145-155/95-100 so they upped my dose again to 100 mg. but know I have terrible lower back pain which I thought it was my kidneys but got check and it isn't same damn head aches tingling in my left part of my face, deep muscle pain, leg cramps all the time specially my left calf for some reason, my eyes are swelled shut 3 out of 7 days a week and through out the day my eyes are almost always blood shot red, like there bleeding. and like all this isn't enough I have had mono, tharyngitis lyarangitis, scarlet fever, pneumonea, and broncittis all in the last 6 to 7 months. Fun!!! any feed back would be greatly appreciated
thanks
don cross
March 17th
2003
6:41 PM
My husband wanted ambein to help him sleep and the doctor told him he would not give it to him because it is dangerous and that it would destory his white blood cells and kill him is this true
-- By blue19542002 | Reply | Private Message me
PredniSONE (3) Mirena (3) Ambien (2) Singulair (1) Leukeran (1) NuvaRing (1) Remicade (1) Toprol-XL (1)
October 29th
2009
9:32 PM
Marini IUD side effects and marina crash side effects for my daughter….still going
February- pregnant 19 by 25 yr old first pregnancy...
Abortion first ever
IUD marina same day insertions as abortion
Yr later Sept bloated tummy, anxiety attacks, paranoid, tummy flutters, pushing sensation.. Odor, discharge something’s wrong
Next day….Marina removed, antibiotics, bacteria infection
Lab test all negative.
Next four weeks…. Barley any sleep, barley any food, depression, anxiety, out burst, rage anger, sadness, self verbal destruction, blaming self, tossing turning, moaning, soul hurts, very moody up and down, no patience, confusion, face breaking out…looking pale, skinny, unhealthy….It’s like a drug addict addicted to drugs but this is addicted to the guy who got her pregnant… no drugs ,no alcohol,
Call radio station, ask why are they not making sense…
TV.. fate/Destiny, symbolic meaning meant to be…..
Reality. .NOT an option….
25 yr old who got me pregnant was a fling off and on a yr..
Convinced self…… had to be with him ,loved him,
Drove over to his house daily,
Called daily, text daily,
Believe the earth was putting signs of fate and destiny to be together with him
Couldn’t be in public, took time off from work, saw counselor, who said needed anti- psychotic pills, depression pills, and sleep pills have hormones checked, thyroid level…. Alice in wonderland can’t separate reality from fantasy.
-- By amercngrl | Reply | (2) replies | Private Message meSaw another doctor, had test….white blood cells moderately high have to go do more testing. doctor said doesn’t need hormones checked…. said ADHD need meds again…
Feel crazy, feel like losing mind, drifting in and out of thought conversation, space out get into trance like sate, and feel as if I can’t control self,
Have to be with this guy, have to protect him. Pregnant because of him,
Convincing self destine to be together, family marriage future with guy..
Other times acceptance of rejection from him, never wanted to be together.
Lost three weeks of work., keys to car taken, keep texting him calling him…Girlfriends tell to stop….Ignore her..
What’s real and what’s not. Keep repeating questions seeing signs, from TV, radio, he wants me……he needs me…All in my head??? Everyone tells me…All in my head..
Can’t take ADHD pill, can’t sleep,….Confusion, blurry vision, see colors…..What’s real???
Snapping at family, angry, disbelief,he wants me….
Reality. Is he doesn’t can’t accept it….
Family thinks I’m loosing my mind…am I?
Over a guy? Who was just a fling? Who I thought was the One….
The reality shows, We are meant to be together…..But told It’sall in my head…
No family history of mental disorder, never have gone though this..
Always had confidence before marina IUD…..
Never chased guys, never had too…what’s wrong??? Why this behavior??
know’s better, he wants me,
Began Sept 26th..anxiety,flutters,pushing,bloating….swollen belly..
Still going Oct 28th..Removed Sept 28th 09…..after removal instantly feel better then BOOM!!! Downhill spiral of emotions began’s…..Still feel very clouded in her head, confusion expression......head tells her the opposite of what the family tell's her...
What can I do as a mother with great concern???? How do I get her back to the happy,outgoing,confident 19 yr old she was????