May 19th
2009
8:56 AM
I was 54 at the time (2007) and in good physical health, however, after having my first round of chemotherapy as a result of breast cancer, I developed a severe throat yeast infection and my white blood count plummeted. I had ceased taking my many vitamins that have kept me in reasonably good health for the past 25 years because of nausea and generally just not feeling good. The doctors prescribed Levaquin.
Almost immediately, I developed heart palpitations and continued to have fever, nausea, and a rushing feeling throughout my body that was draining me of all energy. I could tell I was fading fast. Upon calling the doctors I said then that I thought it was the Levaquin but they insisted I stay on it otherwise they would put me in the hospital.
After the 4th day on it and with my blood pressure sinking (80/30) my husband called the doctor and they said to go to the ER. I again said to the ER doctor that I thought it was the Levaquin and he scoffed at that. After several hours and many tests, the ER doctor released me and said I could stop taking the Levaquin and he prescribed something to help me to sleep.
By the next day, I already started feeling better and within 3 days I was back taking my vitamins and feeling much better. I never took chemo again after this experience. Unfortunately since then, I have experienced severe ankle and leg cramps in the middle of the night, muscle spasms in my legs. I don't trust my ankles, they feel weak. I assumed it was linked to the chemo and never guessed it could be tied to Levaquin.
I went to my internist doctor who prescribed Flexeril which has helped with the cramps. My massage therapist has noted many times that my tendons and ligaments seem twisted and she has to really work on them which ultimately feels better. I never thought any of these symptoms were tied to Levaquin until last night when I saw the ad on TV regarding Levaquin and tendinitis. I will show this info to my Internist the next time I see him. How does one know if what I am experiencing is linked to Levaquin.
-- By lydiak57 | Reply | (1) replies | Private Message me
September 3th
2008
4:21 PM
Let me start by giving you some history.
My sister is a 22 year old girl who worked full time and was never seriously ill until this summer.
During the last full week of June my sister started having headaches. She told me that these headaches were like none she had ever had before. Days later she started complaining that her legs and wrists hurt. She said that her legs were so tired and achy she could barely walk up the stairs. At that time I dismissed what she was saying. My sister constantly wears heels and I chalked up the complaint to a pair of shoes that were not yet broken in.
By July 4th, the headaches were so intense that she went to urgent care. The physician she saw in urgent care gave her an antibiotic and sent her on her way. By July 7th, she was having difficulty standing up and walking was almost impossible. My sister started complaining about severe joint pain. Her ankles began to swell and her stomach appeared distended.
On July 8th, my sister went to her primary care physician. I believe he sent her for an x-ray and said that she had a cyst on her sinus cavity which was causing her to have severe headaches. He then gave her another antibiotic and referred her to a rheumatologist never even thinking that these two symptoms may be related.
On July 10th, my sister saw the rheumatoid arthritis doctor her pcp referred her to. He dismissed her complaints saying that she probably has some form of arthritis, but that there are over 800 forms and it would takes months to pin point exactly which one she has. He then gave her a prescription for Celebrex and sent her on her way. She spent the entire week in bed because her joints were so swollen and achy that she could not move. She actually crawled to go to the bathroom.
By the middle of the following week, my sister's stomach began to burn. She contributed it to being a side effect of the Celebrex and stopped taking it on July 21st. We had no idea that the pain was so bad. My sister's last normal meal was on July 22. By the 23 she had no appetite and could not go to the bathroom. On July 24, the stomach pain was so bad that she could not work, or sit, or function. All she did was cry. She went back to her primary care physician who then prescribed her prevacid to help with the so called indigestion. He told her if the pain continues she could call him. On July 25th the pain became unbearable. My sister called her PCP as directed and he told her to go to the ER. Never once did he say he would meet her there! I brought my sister to the ER where they did an x-ray and cat scan of her stomach. They found nothing. At that time my sister had not gone to the bathroom or had anything to eat since the 22nd. The physician in the ER said that she was literally "full of shit" and needed to go home and take a liquid laxative. My sister is only 22 and my parents were away on vacation. We were stupid and didn't know any better and were so happy that they didn't find anything that we accepted his findings and got out of there.
My sister took the liquid laxative prescribed by the ER physician as soon as we got home. We waited anxiously for it to relieve her stomach pain. After many hours the laxative did not work and my sister ended up back in the ER. This time she was screaming in pain. One of the doctors there told her that if she couldn't calm down she needed to leave her ER. My sister did just that. At this point my parents (back from vacation) took my sister home and called Digestive Disease. A doctor there told my mom to give my sister 2 Enemas. He said that should relieve her pain. My mother followed the doctor's orders, but the pain did not stop. Sunday, July 27th my sister was right back in the ER - this time at another hospital. This time my sister was admitted to the hospital for severe stomach pain. After 5 days and numerous tests my sister was discharged. The doctors found nothing in her cat scans, x-rays or ultra sounds. The pain was more manageable (she was on morphine every 2 hours) and they said she was ok to go home.
August 1st my sister had a great day. She was sitting up in bed and seemed to be in good spirits. The following day she couldn't get out of bed. This time it was neck pain. My sister said the pain in the back of her neck was so severe that she could not lift her head up or move it side to side. By August 4th she was admitted to the hospital again. This time we brought her to University Hospital in Syracuse, NY. We were sure to get some answers there...or so we thought. As soon as my sister arrived in the ER they started treating her with antibiotics. They were certain she had an infection. They then told us they would have to do a lumbar puncture to check her spinal fluid for infection. We thought we would finally have an answer to what was wrong with my sister, so we agreed. The spinal fluid came back fine - no infection. At that time they admitted her to the hospital. While at University Hospital my sister was treated by a team of doctors. They tested my sister for lyme disease, west nile, lupus, leukemia etc. They performed a spinal tap, cat scans, x-rays, ultra sounds, blood smears, etc. All of these tests came back negative. The doctors could find nothing abnormal except for an elevated white blood count -22,000 (it was also very high during her last hospitalization), an elevated C reactor and a very high SED rate. After 4 days of numerous tests and pain killers (first morphine, then Dilaudid, then Dilaudid with a fentanol pain patch) they discharged my sister. The head doctor told her that he believed she had viral meningitis and that it would eventually work its way out of her system. By this point my mother and I were skeptical. We did the research and viral meningitis should only last approximately 10 days. Mig had been sick since the last week in June. No one was putting all these symptoms together. On the day of her discharge my sister started getting her stomach pain back. The pain was mostly on the left side of her lower stomach - under her belly button. Again she was told the pain was due to constipation and she should buy some Miralax when she got home.
My sister was home for a mere 2 days before she would be hospitalized again...for the 4th time. Her stomach pain was back and worse then before. My family could not believe this was happening. My sisters spirits were down and the excruciating pain was making her mentally unstable. This time the ER physician recommended a hematologist come in to see my sister. We just wanted answers so we agreed. This hematologist, Dr. R stated that she believed my sister had drug induced lupus. We were shocked as my sister was tested for lupus twice before and both times the test came back negative. Dr. R explained that she believed my sister got drug induced lupus from the Gardasil shot. My entire family was shocked. We had never heard of any severe side effects like this from the Gardasil shot. Dr. R asked my sister for her permission to test her again. My sister agreed and a week later my sister learned that she was positive for drug induced lupus. My entire family was so happy that my sister finally had a diagnosis and could begin treatment. We were told that after a 6 week steroid treatment (Prednisone) my sister would be back to her old self. We were ecstatic!
My sister was home from the hospital and on the steriod treatment for 10 days when things started to go wrong again. The doctors were very concerned with the dosage of Prednisone that my sister was taking (80mg. I'm not sure how many times a day). They cut the dosage down in half over the course of a few days to prevent kidney damage and other side effects. Once the Prednisone was decreased, my sister started getting sick immediately. Her forearms were very weak - she could not put any pressure on them. Her shoulders would tingle and she would get shooting pains down her right arm. One of her doctors believed she was developing fibromyalgia and prescribed her lyrica. Shortly after my sister began taking lyrica she started seeing stars. She had double vision and a migraine that would not go away. My mother called her doctor and told him about this. His answer was for my sister to stop taking the Lyrica. She did immediately.
On August 29th, my sister still had a migraine. This was day 3 without a break. She woke up early Saturday morning and began vomiting every 30 minutes. After a few hours of non stop vomiting my mother called her doctor. His nurse practitioner was on call and she told my mother to take my sister to the ER immediately. My mother went back into my sister's room to tell her they had to go back to the hospital and she found my sister having a seizure. My sister has no history of seizures. My mother called 911 and the ambulance came to bring my sister back to the ER...her 5th hospitalization.
Shortly after arriving at the ER, my sister had another seizure. Immediately after the seizure the ER doctor ordered my sister to have an MRI. My sister had one during her last hospitalization only 2 weeks before. That MRI was normal. This one was not. There are lesions all over my sister's brain. The neurologist told us that he cannot believe she does not have permanent damage. According to him there is no oxygen going to her brain.The neurologist also explained to us that her brain looks as though she has been poisoned. He said that her MRI is very similar to an MRI of a patient who has been poisoned with antifreeze. Later I learned that Gardasil has both aluminum and sodium borate (which is in both rat poison and cockroach killer). However, according to the doctor once your brain looks like my sister's all the poison is out of your body. My sister's team of doctors started debating as to whether this could all still be from the Gardasil shot...my sister's last shot was on 02/22/08. Some believe that the side effects started off as mild, but since they were left untreated for so long they've turned into a serious neurological problem. They told my family the only way to truly know what is going on is to do a brain biopsy.
Yesterday, my sister was transferred to Mass General in Boston. We were hoping for a bigger hospital, better technology, more seasoned doctors. So far my sister has been treated badly. When my mother told the doctors' about the Gardasil shot and the devastating effects it has had on my sister they dismissed it. When my mom asked the doctors to test my sister for heavy metal toxicity they completely ignored her. I fear that she will never get the proper care.
August 12th
2008
9:12 AM
My 10 year old daughter was given Bactrim at an ER for infected bites. Within a couple days she was running a 104.8 temp that would not go away and from her knees up she had a rash with whelps that was driving her crazy. She was pale under the rash and every bone in her body hurt. We rushed her to the hospital and she was admitted. They said her blood palates were low and her white blood count was low...then her potassium also dropped. We spent 3 days and 4 nights there. Today we go back for a check up with her doctor...and I will express my concerns about the kidney problems I have read about today. I am now warning everyone I talk to about this drug. Seems the more I share her story the more people I found out this has happened to ..I feel like I should of been warned of the side effects of the medication
-- By rbauders | Reply | Private Message me
May 17th
2008
1:46 AM
Hi,
I just found this site, as I am looking for an explanation for the extreme joint pain that I am having, along with swollen ankles/feet. I have been dealing with some type of chronic contact dermatitis that no one has been able to solve, since last July. I have been on numerous steroids, then on Cyclosporine, for several months, which can play havoc with your kidneys. I also started taking Singulair for the itching, which is one of the few things that has really helped. Since November, I was taking Singulair on and off. But, as I recall, I began taking it daily since around late January. Around late February, I began having joint pain, which still continues, and lately, is becoming excruciating! When it first began, I blamed it on the Cyclosporine and kidney breakdown. But, since I have been off that, the pain has continued to worsen. Then I thought it may have something to do with the Doxepin, which I also take at night for the itching. I stopped taking that two nights ago, but the pain continues to worsen.
Now, from what I am reading, these blogs make me believe it could be the Singulair. Can anyone tell me how long it takes for the pain to go away once you stop taking the Singulair????? I will gladly stop taking it if this pain will go away. In fact I will be thrilled, because I was suppose to begin testing next weak for possible Lupus, because it doesn't seem that the Physicians who prescribe Singulair, are well aware of these issues.
I would appreciate anyone who can give information as to how long it takes for the side effects to subside. Thank you!!!
(In pain in Boca Raton, FL)
May 13th
2008
8:34 AM
I am a 54 year old, very active female. Had a UTI and was given 750 Levaquin. I have taken 10 days worth and began having a sore swollen ankle, followed by right knee pain, followed by shoulder and arm pain. I have never experienced muscle pain to this degree before. I am scheduled for a doctor appt in 3 days. I started trying to imagine what could be causing this. I took a shot and looked up Levaqin side effects this morning, after another night of no sleep and severe shoulder pain. Well guess what, from everything I just read I think I found the source. The problem now is how do I get my life back???? The one thing I am sure of is it's time to stop taking the poison!!!
-- By bjboop | Reply | (5) replies | Private Message me
April 24th
2008
1:18 PM
I am very scared right now and concerned, but recently I have been sick for the last 3 weeks or 4 weeks. I went to the doctor about 2 weeks ago and he prescribed some Amoxicillin for my sickness. He said he couldn't identify what I had so he gave me a broad based anti biotic. For about a week I took it and didn't get any better. The medicine caused me to get dizzy spells after sleep and before sleep. So this week I went back to the doctor and he said the medicine wasn't helping me and my white blood cell count had gone up. So I had to get some blood taken . Then the nurse couldn't find my vain easily. She managed to get a little blood though and took it for lab samples. The doctor came back and said I needed to take some Avelox and gave it to me. So for about two days I took it and I felt ok, but later the second day I started having a panic attack for no reason. I told my dad I needed to lay down.
After that, my dad made me some food and I laid down and watched TV and the feeling soon left. I was really feeling sick so I got a cold rag and put it on my forehead. I was looking forward to my mom coming home from Wednesday night church. I fell asleep for about 30 minutes. Then my mom came home and woke me up and we talked for a bit and then I went back to sleep.
Well, today I got curious about my medicine and looked it up and found out some terrible news. The medicine I am taking has actually landed people in the hospital. I found a site where people who had taken it posted what the side affects were. They all had reports about having anxiety, depression, panic attacks, and muscle aches.It was then I realized that my medicine is what caused the panic attack the day before. I called my dad instantly and told him about the bad side affects. He didn't really seem to care that much. He listened to me though, which is a step up from my mom. Then I called my mom and explained to her. She just ignored me and didn't care. I was crying and I felt so terrible and frustrated. I was just trying to explain to her that my medicine caused very bad side affects and even thoughts of suicide. She didn't really seem concerned though, she said she'd call my doctor and talk to him about it.
Right now my parents and I are just really stressed about this whole thing. I refuse to take my medicine because of it's dangerous side affects... but if I don't have any medication at all I won't get better. I'm just in a really bad situation and I am just so depressed I feel as if I could burst!! Everyday I feel like utter crap and my vision is screwed up and I don't have an appetite so I have to make myself eat. Also, my white blood cell count keeps getting higher and if something isn't done soon what I have could be very dangerous.
I keep praying to God... but it doesn't feel like he hears me. I am in great emotional pain, my parents are never home and I'm lonely the majority of the day to , and being sick doesn't help. I am starting to experience a bit of the thoughts of suicide.I keep convincing myself I need to live and I'll get better and I don't need to die. It's hard though I am fighting with all my might to keep it away.
-- By pookiepoops | Reply | (4) replies | Private Message me
January 16th
2008
3:55 PM
After reading the side effects listed by other people, I realize many of my health problems may be related to Vytorin. I've been taking it for about a year. Insomnia, anxiety attacks, bloating and nausea, hot and itchy back, sore and stiff hands are the major ones. Last weekend i was in the emergency room for an unexplained right side pain that was excruciating (like being stabbed by a knife over and over again). All the tests revealed nothing but a higher white blood count. After I went home, I experienced lesser pain for a week, then the ah ha moment - I stopped the Vytorin and the pain stopped and many other symptoms subsided.
-- By bschmiege | Reply | Private Message me
February 14th
2007
12:05 PM
1-21-07 After 5 days of Prednisone 40mg per day (treatment for Gout), and 4 days off,
1-30-07 started back on Pred at 20mg. 1/3xday for 3 days, 1/2xday for 3 days and 1/1x for 3 days.
regular meds: Lisinipril 20mg daily, Coumadin 5mg daily (adjusted for Prednisone) and Lipitor, 20mg daily for 3 years (stopped on 1-24-07 due to Gout)
1-14-07 Symptoms: rash on lower stomach and groin area, frequent uninating (especially at night), neck and shoulder ache and
1-13-07 lab reports "liver elevated" and "irregular white blood count" (not sure if high or low).
I will appreciate any help you can offer.
-- By billrdot | Reply | Private Message me
January 12th
2006
8:09 AM
I have been on predinsone for 14 1/2 years. I have had weight gain on and off and now I am up to 270. I have chronic asthma, MS and bad allergies. I had seen a specialist years ago and they said I would never go off prednisone. I am dependent on it. Two different times in these past years I had gone down to two 1/2 mg. I was able to lose weight and I felt pretty good. I went down 85 pounds. I promised myself never to let it happen again. haha. I have 6 children and 3 grandchildren. I am 44 and have been married 23 years. My husband loves me the way I am (so he sayes) but I am very depressed and unhappy about the way I look and feel. I have moon face, I am obese, I have the lump on my back, I am taking numerous other medications for my asthma and MS. My nurologist has given me some anti depressants and I guess it helps but sometimes I just feel like asking if it is all worth the trouble. I can't take it sometimes, I just want to run off the side of the bridge. Then I think about my family and my mom who lost two sons, one to asthma when he was 17 and one who was shot when he was 21 and I know she couldn't take losing me. I recently had a dose of solumedrol in the emergency room and the next day my doctor took a CBC and dif. It came up that my wbc was 20,000. He said that was very high and I just wanted to know if anyone else has had a high white blood count after a dose of solumedrol.
-- By mary.carben | Reply | Private Message me
November 13th
2005
12:19 PM
my daughter was prescribed singulair at 3 years old after several visits to the ER. her asthma was controlled immediately, but her behavior changed too. she is now 6 (singulair dose upped to 5mg) and has slowly transformed from an intelligent, happy, fearless, excited child to someone who was having trouble in school concentrating, depression, scared of everything, tummy aches, heart palpataions, chronic sinusitis.
we went through several tests from cystic fibrosis to blood work for white blood count and also chrones testing because of the constant stomach irritation and cramping. i finally looked up side effects to singulair two weeks ago...read all of this and took her off of it, and off of zyrtec (please look up zyrtec...BAD STUFF) she is slowly back to her old self but absolutely not angry, depressed, and crying all the time!!!!! just had teacher conferences and her teachers were shocked at her personality switch. they were floored at her drive for learning and her attitude adjustment. they wanted to know what had changed so rapidly!!!!
she still takes advair 100 and i now have her on a heavy dose of vitamins/minerals (including quercitin, omega oil, vitamin a, vitamin c, etc.) recommended in a pediatric asthma health cures book i read. we are working toward a balance in controlling behavior and asthma and i hope to god this works. it is so nice to have my happy daughter back!!!
please, if anyone knows about other successful homeopathic approaches please let me know.
-- By jenglass | Reply | Private Message me
March 27th
2004
8:46 AM
I have been on pred for almost 2 years for bronchial pulmonary aspergillosis. Which is a fungus in the lungs. I started with 40 mgs. a day. At first no symptoms no even weight gain.But after first month weight gain started with the moon face and big belley. Then mood swings and I cry at the drop of a hat. Sex drive just sucks. I am 37 year old female with asthma and allergies. After 2 months was reduced to 30 mgs. a day, no change in side effects. My family pays the true price. They get all the nastiness. My daughter who is 5 now is always being yelled at.Seems she always pushes the wrong buttons. Now am down to 5 mgs. every other day. Have lost alot of the weight gain except in the moon face and the stomach. Gained about 20 pounds and am now just about 8 pounds more than my normal weight. But still bad mood swings decreased sex drive, headaches achieness, and poor sense of humor. Aggravated very easily. I recently changed doctors hoping to get off prednisone and be treated differently. Since dosage was lowered syptoms have increased with the coughing and wheezing.
If anyone out there has had this condition please email me with any information or encouragment.thanks
******
June 11th
2003
11:58 PM
HAD A HYSTRECTOMY LAST THURS.,AFTER BEING ADVISED THAT IT WAS NORMAL TO RUN LOW GRADE FEVER,WASN'T TO CONCERNED TO START WITH,BUT EACH EVENING THE FEVER GOT A LITTLE HIGHER, THOUGHT IT MIGHT BE KIDNEY OR URINARY TRACT INFECT. WENT TO THE DOCTOR TODAY ,SAID TEST SHOWED NEITHER.BUT BLOOD WORK SHOWED RISE IN WHITE BLOOD COUNT, SUSPECTED BACTERIAL INFECT. WAS THE CONCLUSION. THEY GAVE ME ASHOT OF SOME SORT OF ANTIBIOTIC AND PRESCRIPTION FOR LEVAQUIN. TOOK MY FIRST PILL AFTER SUPPER(7:00PM) POSSIBLY MY LAST. ABOUT 12:OOAM I FELT WIRED ,JITTERY AND ALMOST CRAZY . EVERYONE IN MY FAMILY WAS SLEEPING BUT ME, I WOKE MY HUSBAND AS I WAS PASING THE FLOORS .THATS WHEN I THOUGHT ABOUT LOOKING ON TH E-NET TO SEE IF I COULD FIND SOME HELP AND STUMBLED ON TO THIS PAGE. BY NOW I HAVE BROKEN INTO A STILL NERVOUS SWEAT AND HEAVY BREATHING (NOW 3:00AM) THANKS TO THIS , I KNOW I DONT NEED TO TAKE ANY MORE!
-- By carol858 | Reply | Private Message me
Levaquin (3) PredniSONE (3) Singulair (2) Gardasil (1) Bactrim (1) NuvaRing (1) Vytorin (1) Avelox (1) Celestone (1) Lipitor (1)
October 29th
2009
8:37 PM
I started NuvaRing 3 weeks ago yesterday after having the Mirena IUD removed (kept in all 5 years). I removed it yesterday as planned. 1 week ago, I felt a terrible pain in my right side under my ribs. I started having very slight trouble breathing, pain when laughing or coughing, etc. I applied heat and the pain subsided over the weekend and I could breathe easily. On Monday, I decided it best to go to the doctor since I had trouble breathing, I didn't want to assume it was nothing. I went to a doc in the box (bad idea) and I was told that I had a swollen rib cage (the cartilage). I'm certain I was misdiagnosed because the dude didn't even do xrays, even after I explained that I had just started NuvaRing. I wanted them to be aware of everything. The doctor dismissed it.
On Tuesday night, I was in so much pain and my difficulty breathing was worsening that I cried myself to sleep. Wednesday I went to work and was in so much pain that I was in tears and headed to URGENT Care, as my primary care physician could not fit me in. They xrayed, ran a urinalysis, a CBC to check my white blood cells and found nothing except for a bit of what appeared to be constipation, though I have regular bowel movements. My white blood count was slightly elevated, but distributed normally. I was prescribed a laxative and Lortab for the pain, which was excruciating. The doctor told me to come back the next day (today) to retest my white blood count. It went down a tad, as I had taken the Nuvaring out yesterday evening. The doctor seemed puzzled, but gave me my CBC results and urinalysis just in case I developed a fever or an infection of some sort, but told me that she thinks I am having side effects from the NuvaRing. She asked me to not put it back in.
On a side note, I had called my OBGYN on Wednesday before I headed to Urgent Care and explained the situation and they advised me to remove the NuvaRing as well.
I'll have to bite the bullet and pop the daily bc, such as Ortho Lo.
-- By eightthirty | Reply | (1) replies | Private Message me