Whole truth symptoms and conditions

cannot believe how many stories I have read about mirena and hair loss etc..etc.. etc.. I have experienced many of the side effects that everyone is mentioning.. I actually feel I could live with most of them if it weren't for the hair loss. I have had ( copying from other post.. ridiculous right?)Tired all the time
~ Depression
~ Hungry all the time
~ leg cramps
~ HAIR LOSS TO THE POINT OF BALDING IN SEVERAL AREAS
~ oily skin and bad breakouts
~ Mood swings (huge...yelling fits at my husband and the kids)
~ fluttering in uterus
~Sore breasts..

I have medium thick hair that is about 10 inches. I noticed a bald spot in June and now have discovered 4-5 others starting. I just had the iud removed today and my OB pretty much tried to convince me that there is no way that the IUD is causing my issues. I have never had any of these issues before. I got the Mirena on 4/30 of 08 and noticed slowly but surely all of the side effects mentioned. My OB told me that the progesterone could not be causing my issues because it is such a small dosage that it would be comparable to spitting in the ocean as far as the amount that is in my blood stream. She said because I am black and 35 that I may have an autoimmune disorder and that I should stop reading blogs. I told her that all of my research wasn't from a blog and that ALOPECIA is a side effect just not mentioned in my pamphlet that I can find. I understand what she is saying and that she is the one that is the doctor, but nobody knows my body better than I do.. I am in it!! I have never had any problems and have been healthy my entire life. There is no history of autoimmune disease in my family. I am going to my primary care doctor.. to have some blood tests done. I think that the mirena has caused an autoimmune response in my body.. it may not necessarily be the progesterone..although I don't rule it out no matter what she says . the progesterone is synthetic and has an androgynous like activity that is similar to testosterone the main thing that causes male pattern baldness. also Mirena is made out of Silicone.. perhaps those of us that are having hair loss are having it due to our body trying to fight off the foreign invader of the IUD itself. I was going to go and have the Paragard inserted.. because i was thinking it may just be the progesterone.. nope... I read that many women are complaining of ACNE and HAIRLOSS even with that because its made out of copper. So with that being said.. not sure what to do.. may have to go back on Yasmin.. didn't seem to have any problems with that.. I really just don't want to risk putting another hormone in my body.. We all need to get together and look into a class action suit because I am tired of being made to feel crazy by doctors.. sometimes what seems to not be possible is .. especially when there are so many women having the same problem. Feel free to e-mail me re: a class action suit.. if they took depo off Mirena needs to come of too. It seems like it has really screwed a lot of peoples system up.. Hopefully I won't find out I know have a thyroid problem etc.. etc.. ******e-mail me with Mirena in the subject line!!

i have had my mirena for about 1 1/2 months now, and so far i love it, i have had the spotting for the first month which doesn't bother me and now my period is on and i do have very bad diarrhea which im sure is associated with the period more than the mirena itself. haven't had any lack of sex drive in fact i 've wanted to have more sex, and i haven't' been irritable or anything else, so some of the side effects i believe everyone is having may be made up, think about it if you read over and over and over again how bad the mirena is your going to begin to feel that way i know if i tell myself that my arm hurts all day long then eventually it feels like it hurts..neways all im saying is relax stop reading these scary ass posts and do something to take your mind off of it, i know 3 other people who have the mirena that live down the road from me and NONE of them have had any of these problems...ladies i think you are just trying to find something to blame it on...

I am 34 years old. I am a pharmacy tech. I have asthma and allergies. I have taken singulair pretty much every day since it came out on the market. I've had asthma since i was about 10 years old. I took theophylline as a kid. Steriods on and off especially during times when my allergies are bad. I still use Advair during the fall and spring. Every drug has a side effect. However breathing is pretty good damn thing. Do I have days when I feel low? Yeah. Do I sometimes have nightmares? Yup. Are "natural" products the answer. Not always. The fish oil that some of the posters are touting can also cause GI problems. Some of the natural products contain herbs and other plant derivatives that can be harmful for a child that suffers from allergies. Not proactively treating asthma can be deadly. Some of the parents are suggesting steriods as the answer - those can cause weight gain, growth suppression and can lead to a worsening of asthma.

Singulair has never made me feel like I've wanted to kill myself. I was more depressed and angry as kid when my asthma did not allow me to partipate in normal childhood things. I was sad and hated life when I couldn't keep up with friends at recces because I was having trouble breathing. You have to outweigh the costs with the benefits. I am more irritable when I have asthma flareup then I am on a normal day. For me, I choose to breathe. And singulair has been helping me for almost a decade.

I'm not saying the medication isn't causing these symptoms but maybe there is an underlying cause to your child's depression.

Any drug has a side effect. But without medical research and the medications that come with them - people would still be dying of simple diseases and we wouldn't have vaccinations. As a society, as a whole, we are a culture that looks to someone else to fix things and then blames the people who try to fix it. We need to stop being the "hot McDonald's coffee'" society.

Today is Christmas day 2008. And a Merry Christmas to me ha!!!!!!!! I was given a prescription for the drug Levaquin on the 19th of December for a suspicion of pneumonia. The x rays done at the hospital found no evidence of pneumonia but my doctor wanted me to take it anyway because since I have asthma and my lungs sounded so bad I was told that I was at risk for developing any secondary infection that was out there. My husband filled the prescription on the 20th which was Saturday, took the first one of a seven day supply 500 mg tablets. About 4 hours after taking just one pill was awakened by severe and agonizing pain in both of my feet and my knees that I was writhing in pain. Since I have nerve damage in my feet anyhow I know what the pain that I normally experience feels like and instantly knew that this was not normal for me. When I thought that I finally might be able to walk I hobbled into the kitchen and dug the list of side affects out of the garbage (stupid me had not read them first.) I discovered that it was one of the side affects. Called the on call doctor in the morning since it was on the weekend and he stopped it immediately and put me on something else. I only took that one pill and since Saturday night every night I wake up in agonizing knee pain and I have never had pains in my knees before. The pain is so bad that I feel like I am ready to go on a morphine drip, or cut my legs off above the knees. Six days now from one pill, how much longer can this go on? I really feel bad for the people that contined to trust their doctors and continued with the full course of the medication and I realize that what I am experiencing is minor compared to what others are going through. This drug should come with a handout that says: Take this drug at a risk to your health!!!!!! Last night the pain lasted all night and I cried all night. Have to get through this day am entertaining for the holiday and have had no sleep. Actually getting afraid to go to sleep at this point.............D.

I had a chronic sinus infection and my doctor put me on Levaguin and 80 mg of prednisone. I am 62 and I take only synthroid as a prescribe. drug. I told my doctor I was a borderline diabetic. She told me the side effect were bone weakening in the hip and pelvis and stomach upset. At first I had a lot of energy and sleep a lot less. I just thought I was getting better. I tapered down to 1 1/2 . After taking them for 11 days I was not able to function. My body was under extreme distress, I have very excellent blood pressure and I am in very good health. I have been off the drug for 4 days. I am still experiencing sweating, hypertension, extreme muscle spasms. I am unable to wear my contacts, I am short tempered and I am normally the opposite. I have horrible headaches and I very seldom ever get headaches. I told my doc and she said it would go away in time.
My body is fatigued I am have trouble focusing,sleeplessness. I don't know where to turn at this point. Sometimes I feel like I should go to er because of the hyperventilating and rapid heart beat. I am afraid to exercise. I am eating a lot of high protein foods, I am not gaining weight, I have lost 7 lbs in two weeks. PLEASE EVALUATE THE RISKS OF THIS DRUG IT HAS BEEN A NIGHTMARE FOR ME. DOCTORS DON'T ALWAYS TELL YOU THE WHOLE TRUTH AND THEY NEED TO BE HELD ACCOUNTABLE FOR THIS.

It is so funny to read all of the negativity but nothing positive! I came here looking for side effects and get a bashing about how horrid Yasmin/Yaz is! Let me first start off by listing my side effects that I wanted to know about:

breast tenderness
change in appetite
tiredness
red spot in eye

Next, let me tell you that I researched BEFORE taking this medicine because 1. I have MS 2. I suffer from migraines and seizures and 3. I take a whole boat load of medications! My doc recommended Yasmin for PMDD coupled with Sarafem to help my mood right before and during my time of the month. I must say that I have only been on it for about 10 days so I do not know anything of how it works with my period.

I am APPALLED at the fact that there are few, if any, positive comments about this pill! I know for a FACT that it works because I know 7 people personally that are on it that have NO PROBLEMS! So, I ask you all that have negative comments, what is wrong with you, other than you HATE the pill? What OTHER meds were you on while taking it? I read a few comments about stopping for a month and then starting again and then wondering why they felt like crap?? Well HELLO?! You are effing with your body's hormones! And there is a difference between Yaz and Yasmin hormones. If you had a bad experience with Yaz, make sure you are not confusing it with Yasmin! Yaz is a 24 day hormone pill where Yasmin is only 21 days.

I am not a doctor, but like I said, I have done my research. I have suffered with adult acne and PMDD for years. It sucks. If Yasmin helps, I want to know. I don't want to read a bunch of bull about people who mess up their cycles by taking the pill and smoking or taking the pill with meds they shouldn't be taking them with. I know what I can and cannot take. Most of what I take is natural and what is not, well, it CAN be taken with Yasmin. Like the website for Yasmin says and like most of the informational, non-biased websites say, Yasmin and Yaz is not for everyone. Some people cannot handle this type of hormone.

I can guarantee you that some doctor or pharm company can tell you that whatever symptom you are having is from something completely unrelated to the BC you are taking. Warnings are clearly marked...read them and obey!

I discovered this site last Wednesday morning - without taking the time to list all of the grief I felt reading through the pediatric postings, I will briefly note my 4 year old daughter has been on Singulair for 2 years now. What I now realize is all the behavior issues, night screaming, etc. are so easily dismissed as stages of a toddler. She has suffered (as well as our family) every symptom and behavior listed by parents on this site with the exception of leg cramps.

Our entire family can see the dramatic results since taking her last pill last Tuesday night. The melt downs and tantrums are all but over, she even commented "hey, I listened right away" on the second day without Singulair. She is still having night terrors - I call them that because they are in no way a dream or nightmare, but rather agonizing moments that break our hearts to hear. I hope those will soon go away as well so her sleep pattern results in a restful night.

Am I angry that we have all suffered for 2 years only to find we have been basically poisoning her? Am I angry that for the 2 years her dad and I have sunk pretty low, feeling inadequate as a parent to teach and discipline our child? Am I angry that after 20 years of marriage, raising a great 16 year old in the midst of all this, we were to the point of the ADD, bipolar, etc. theory that would have been misdiagnosed? Heck no, we are all so thankful to have come across this site and are so giddy and excited to be happy again.

What I am angry about is this - when I called our pediatrician last Wednesday and relayed what I had seen on the Merck website for side effects added in recent months she had not heard this information and asked where I saw it. At that point I had not seen this site. I asked her how is it the well dressed pharmaceutical reps come in with doughnuts, exotic trips, etc. to market a drug with "ABC" treatments and "XYZ" side effects, continue to market the drug and never update the doctors when original selling points are altered - ie; new side effects.

The FDA website is troubling for two reasons: Merck is in charge of their own investigation regarding recent complaints and the FDA expects this to take 9 months. Gee, who gets to investigate themself? Secondly, in February the site notes the FDA and Merck are trying to find the best way to communicate the concerns being investigated to prescribes and patients. HELLO - we live in a world of real time, instant communication methods, two examples being the United States Postal Service and an internet connection.

Today is April 30 - a full two months after "trying to decide how to pass this information on" and my doctor, nor my pharmacist have received any information. Apparantly since we missed the story and coverage on Dateline we are out of luck.

I plan to start from ground zero to get our voices heard to change the way, or the law if you will, to implement an immediate communication link between the FDA and prescribes when an investigation such as this has been initiated. I realize Singulair has most likely benefited more humans than it has destroyed while on the drug and the FDA would have to clearly not communicate "panic". However, when a drug is used for pediatric treatments we need information quickly to assess on behalf of our children. In my case, since my daughter had been on the drug since 2 years old, I do not know what her "normal behavior" should be as that is the age they start to develop and show personality. Additionally, when enclosed prescribing information is updated with a prescription -MARK IT IN RED, "UPDATED INFORMATION". I read every ounce of information that accompanies a new prescription for any family member. I would NOT, however read the information every 30 days for an ongoing, long term prescription over the course of 2 years.

I am looking for anyone that may have started contact with a congressional representative or otherwise to change the communication to our doctors. Please note - I am in no way interested in any legal action regarding Singulair and our nightmare. We are moving forward and do not wish to live the nightmare one moment more. I simply want to see our doctors and pharmacists have vital information as it happens.

Thank you to all for sharing your experiences - I truly believe it is changing lives and making a difference. I am personally telling everyone I know about what is happening with our child and all of yours. Andy by the way, by telling one of my long time friends our amazing discovery, she realized she had been suffering from depression for some time and chalked it up to various things going on in her life. She had her last Singulair last week and feels tremendous! So keep the word going!

Iam a 26 year old wife with 2 kids. I had mirena in since may 2007
2 months after I had my 2nd child. First I had spotting for a while. It seem to be ok. after 6 months until now I feel the following side effects:
TIRED, CRYING FOR NO REASON, MOOD SWINGS, GET MAD EASY WITH KIDS AND HUSBAND, CHEST FEELS TIGHT, PANIC LIKE ATTACKS, NERVE PROBLEM, DIZZY, HEADACHE, MENTAL FOG FEELING, CONCENTRATION IS LACKING. my sister had hers put in a little before me and she took hers out about 2 months ago. I am going to take my out also. All hormone birth control is just not natural for our bodies. but at the same time I dont want no more kids but not sure about getting my tubes cut. I dont know what to do. But the SIDE EFFECTS OF MIRENA IS NOT WORTH IT. FOR YOUR SELF AND YOUR LOVE ONES WHO HAVE TO PUT UP WITH THE EMOTIONAL DISTRESS IT CAUSES ON OUR BODIES.

IF YOU ARE THINKING ABOUT IT I WOULD SAY DONT GET IT IT IS NOT WORTH IT. THE MIRENA WEBSITE DOESN'T TELL YOU THE WHOLE TRUTH OF SIDE EFFECTS. DOCTORS DONT TELL YOU ABOUT THEM EITHER. THEY JUST WANT THE COMMISSION OFF OF IT. BE YOUR OWN DOCTOR AND TAKE CARE OF YOUR BODY. YOUR BODY TELLS YOU WHEN SOMETHING IS WRONG.

I can't believe I have found this site!!! I have been having horrendous but very petty arguments with my boyfriend just lately, to the point I do not know if we are over as he is only speaking to me in a temper voice. Obviously I believe eveything is his fault(!) and now after reading the site I am wondering if it is all actually me and down to my pill, yasmin, as everything I have read about everyones mood swings rings true! I am almost 3 months in and have been experiencing headaches for the first time in my life and I thought it was just one of those things. My breasts are nearly up a whole size and I have become really really self conscious which I have also never been like before and few of my clothes appear to fit. I have also recently visited the Dr's with dizziness which I actually put down to Jasmin although she said it couldn't possibly be the pill and put it down to a dodgy eardrum which she thinks I have - also I believe I have become increasingly deaf... could that be the pill too or am I now blaming everything that is going wrong in my life on that one tiny little tablet????
I am going to book an appointment with my Dr for tonight but am really conscious that I am going to burst into tears the moment I walk into the surgery - is this the table or because of the rows with my boyfriend? (Like the chicken and egg!)
I have been on Dianette for years and have never experienced any problems - surely it can't be that bad, can it?????