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50 Side Effects posted for will take some time

October 28th
2009
1:13 PM

I have a 15-yr old. She's been taking singulair since she was 7. These are a few of the things that I have noticed over the last year but ignored because I too, as many of you have, thought it was because she a teenager.

1. Stomachache .. she complained all the time. Thought it was nerves because it was usually before she went to a training session or game.
2. Restlessness.
3. Headaches.
4. Moodiness.
5. Tired. Fatigue. Weak. Even after she gets hours and hours of sleep. Figured it was because her schedule is whacked. We've had fights over her not going to bed at a certain time.
6. Menstrual cycle changed last fall followed by acne when as before she was perfectly normal with clear skin. Recently put her on BC because of her hormonal change. Blood tests showed she was normal. We tried it anyway to regulate her periods. Took her off of it after she had her period for 3 weeks straight. Probably won't put her back on BC since taking Singulair might be the problem.
7. Tired all the time. Falls asleep in class.
8. Lost interest in her favorite sport which she rocks at. Thought it was because of a 2-month down time due to an injury.
9. Several times, have seen signs of depression but when confronted she says no she's fine. Depression is probably from being unhappy with her appearance. Being on the pill made this worse.
10. Doesn't want to go to school. Whereas before not a big deal. Most kids don't like school, but lately, she talks about how much she hates it. Usually excited to start the new school year, this year not so much, more like dreading it and her attitude hasn't change about it.
11. We argued last week and it was the first time she screamed at me and told me she hated me. She's never done this before. Her thoughts and moods have been horrible but they come in spurts.

After reading everyone's experiences, I am taking her off Singulair. I know it's not an overnight cure and will take some time, but I just want my little girl back. I find it strange that this all occurred within the last year even though she's been taking Singulair since 7. Do you suppose it's in teenagers and puberty?

-- By nzcarter | Reply | (3) replies | Private Message me

October 26th
2009
3:09 PM

I am soo glad I am not crazy. I am almost in tears, because I can not believe that so may women are experiencing this. I have had it for almost two years now and in the beginning I just had heavy cramps and a lot of bleeding. I was told every woman's body is different and this will take some time. I went back within 4 weeks to get it out and my doctor encouraged me it would get better. It did and I loved it. Never had a problem. Until recently, I went to the doctor thinking I was pregnant, I had ever symptom that a pregnant woman experiences and I they told me it was in my head. I am constantly tired, bloating, sick, dizziness, headaches (which they told me contributed to my sinus - then I started seeing an Allergist who kept me on Antibiotics. It got really bad they did an CAT scan on me and still nothing). I thought I was going to lose it, I had mood swings, memory loss, attention span, worst than my 5 year old and the list goes on. I am so hurt now, because I am no good with the pill (2 pregnancies from the missed pill) and loved the convenience of the Mirena, but my life is worth more than convenience.
Thank you ladies for sharing your story! But remember please go with your gut feeling. Now that I recall I went twice to get this removed, the doctors will tell you anything. They are new to this product also!!!

-- By crossroad | Reply | (1) replies | Private Message me

August 4th
2009
4:26 PM

It has been a month now since I had it removed and I am feeling much better but STILL not 100%. My joint and muscle aches had almost all disappeared, and I have more energy. My skin has cleared up nicely and my breast are back to their original size with no more pain!! I haven't had a period yet but I am sure it will take some time. Saw the dr today and I am down 2 lbs, which is great and my lifestyle habits have not changed a bit. Hopefully the other 15 or 20 lbs will go AWAY sooner than later!! I am still a tad moody but my dr said it will still take time to have this thing completely out of my system, so I'll keep you posted! All in all I am SOOOO glad that I got it removed. I only wish I didn't wait so long to feel half-normal again!!

-- By scooper201 | Reply | Private Message me

May 2th
2009
4:39 AM

i posted on April 27th, on April 23rd, i stopped taking singulair, so i am here to UPDATE. after i stopped taking this death trap of a medicine, i already am seeing changes. i actually am breathing better then i have the whole time i was taking singulair, i can sleep through the night, and no HORRIBLE nightmares. jsut some normal ones, if any. but i feel like all the problems it has cause on my mental stability are still there, im guessing its going to get worse before it gets better with that. its really hard. now, me and my mom are starting to wonder if i ever had asthma in the first place, or if my dr. some how diagnosed me while i had a slight case of pneumonia. because the first time i was tested i was only breathing 60% of air, and even the nurses said i should be dead, or in an emergency room and she never not once, checked to see how my asthma was for 2 years. i honestly feel like i have been robbed of my life. its so hard to know something so little and simple, can have such a evil effect on you. because if i didn't have asthma i have been taking singulair for 2 years without needing it at all. imagine what that could have done. now im just so scared to sleep, because im scared i wont wake up. everything in my life is suffering and i don't feel like i have the strength to keep living the way ive been, im so scared every second, i am constantly checking my pulse, and now its even worse because i stopped the singulair. i already sent something to the FDA, and all that, but i doubt they'll listen. someone asked me a couple days ago "aren't you glad you at least found out your not alone" and i said "no, no one should ever have to go through what im going through, especially little kids". i feel like no one understands truly how hard this is, because its just an asthma medicine. this killed my mind, my spirit. and i don't know if ill ever be the same care-free person i once was. im constantly scared of everything, i always feel like no one wants to be around me, i just don't know. but not he positive side, im also not as weak, or tired during the day. i can actually bend down or reach up without feeling like a 98 year old women. my body is doing a lot better. its just my mind i really want back. i repost in a couple days, and hopefully everything will be a little better. PLEASE DO NOT TAKE SINGULAIR. i honestly think that, if it doesn't effect you at first it will in the long run. even if its 10 years later, you will start to slowly see something happening. just don't take it. i don't want anyone to feel, the way i do.

J.

-- By jaclyntaylor89 | Reply | (4) replies | Private Message me

April 8th
2009
8:20 AM

IF YOU FEEL/EXPERIENCE ANYTHING ABNORMAL FOR YOU OR DO NOT FEEL QUITE YOURSELF SEE YOUR G.P./NURSE AND SERIOUSLY CONSIDER GETTING THE MIRENA COIL REMOVED
This medication may be suitable for some people but if you experience any of the following, I urge you please, please please, 'demand' that you want the Mirena removed. My symptoms were noticeably worse around my time of ovulation. I've also found out that people previously treated for/suffering from depression should not be prescribed this medication. (I've been on Prozac in the past). I had it fitted in Aug 2007 to combat very heavy periods and severe PMT at the recommendation of my G.P.and had it removed Sept 2008. Symptoms I experienced :-

Dry/furry mouth
Headaches (over time these became migraines)
No concentration
Poor memory
Lethargy (constantly tired and drained)
Smelly discharge (still noticeable straight after washing)
Very heavy legs
Numbness in my legs
Joint pain and clicking (mainly in my shoulders and knees)
Developed facial hair (mainly under chin and jawline)
Hair loss
Weight gain around my stomach (without increasing my food intake)
Feeling constantly bloated.
Spotting randomly for duration of Mirena being fitted. (Brown spotting)

Panic Attacks ( awoken in the middle of the night with them) escalating to the following:-
Palpitations (for no apparent reason)
Clammy/sweating palms and feet
Aggitation ( during an episode if someone was talking to me I wanted to really yell at them 'Just shut the **** up! You're doing my head in!)
Feelings of madness (actually wanted to run away from my own mind)
Pins and needles/Tingling in my hands and feet
Electric shock like surges going through my body (my nerve endings were obviously suffering)
Muscle tremours/shaking (mainly arms and legs)
Eyes became extremely light sensitive
Heightened awareness of sound

Insomnia
Terrible nightmares
Depression
Feelings of detachment from the real world.
Visual disturbances
Episodes of blurred vision

These symptoms did not appear straight away but appeared gradually and with more veangance the longer I had the coil. The more concerning episodes I experienced happened after about 3 months and very erratically. I could not predict when or what time of day I was going to have an episode or pinpoint any reason for bringing on an attack. I had no control over the effects, was absolutely petrified when I experienced a panic attack and just had to ride it out.
All my G.P. did was prescribe me anti-depressants to which I reacted badly. Blood tests also failed to show anything abnormal.
I even tried herbal medicines as an alternative and experienced similar reactions to the prescription drugs. I've now become very pill-phobic and would rather ride out and get over symptoms myself. Paracetamol & Ibuprofen being the only medicine I trust to take now. I had a horrendous year and everyone suffered. Not only my family, but I was signed off of work for 3 months. It was a very worrying time for my husband and my children, who all had to keep an eye on me and witness the effects of my symptoms. On looking back now, I don't know how I managed to function at all and even do my job. Most of the time my energies were spent concentrating on trying to appear normal and held-together to the outside world.
Although I feel 100% better in myself, I noticeably experience more migraines and headaches than I ever did in the past, along with palpitations, usually during my week before. Two days before it I often really feeI like I'm losing the plot! I also really bloat up now a week before my period, feel sick and have a feeling of being ' very full', so am hungry but don't really want to eat. One of my big toe-nails has gone black over the past few months and not through injury. This has just been sent away for analysis. The one on the other foot is raised/ridged/thick/yellow, but normal growth has resumed half-way up now, which I feel co-incides with the state of my health on having Mirena removed. The nurse I saw recently explained that it is true that nails and hair show the history of our health so, for me, this would seem true.
I wish I'd been made fully aware of all possible side-effects of this medication and am now actually concerned that the effects I've suffered may have left some permanent damage.
In spite of all this, it's so good to be me.

-- By debbi18 | Reply | (6) replies | Private Message me

February 15th
2009
1:52 PM

Hi, I just had mirena put in a little over a week ago and it has nothing but a nightmare for me.The day I had it put in I had extreme cramping and im having heavy bleeding.The cramps finally stopped yesterday but i still am having heavy bleeding.However ever since three days after having it put in I have been having severe anxiety attacks to the point were im feel like im going to pass out or even die.when i go out to eat i have a panic attack and the restaurant its very embarrassing and scary.I have never had this feeling before.All day i feel completely out of it and have confusion through out the day.Its very scary.I went to my family doctor and he prescribed anxiety meds.Im definitely calling my ob tomorrow first thing and telling him about this.I thought there could be no way my anxiety was being of mirena but im starting to think so.I feel so relieved knowing im not the only one going through this nightmare.How long after getting it taken out do u start feeling better?

-- By katie32790 | Reply | (1) replies | Private Message me

November 30th
2008
2:25 PM

I posted a while back about the symptoms I was experiencing from Yasmin. Well, I've been off of the drug for just about a month now. My libido has DRASTICALLY improved, my moods are better, and I am getting along with my boyfriend like I haven't in a long time.

The only problem I'm now having is that my weight is continually creeping up. I have been very busy with various things for the past few months (searching for and finding a new job & new apartment in a different state, going on a week-long food-filled vacation, packing, moving, unpacking etc etc). I thought that I was up a few lbs (3) as a result of being very busy and not having as much time to commit to exercise and eating healthy. Don't get me wrong, I have still been exercising and eating healthy, I just haven't been able to commit quite as much time as normal to these things.

In the past two weeks I have gotten back into my old routine and have been doing 60 minutes of cardio approximately 5 days/week and really not eating very much. Most days I have eaten a big bowl of oatmeal for breakfast and not been hungry until dinner. Since I've gotten back into this routine I have done nothing but gain MORE weight. Additionally, I have absolutely no appetite. My stomach looks poochy and my pants are getting tighter.

I have been able to keep my weight in the same range (127-129) since I started running, 4 years ago. It would VERY occasionally creep up to MAYBE 131, but I haven't seen a higher number than that until now. I feel that I literally LOOK at food and gain a pound.

Has anyone else experienced this? Could it be that my hormones are just adjusting? Honestly, I'd almost rather deal with the side effects of Yasmin than deal with gaining weight as a result of not being on it.

-- By mela39 | Reply | (2) replies | Private Message me

October 17th
2008
9:49 PM

I have contacted an attorney in Delaware who is willing to pursue a possible class action suit. I explained my side effects from this drug and told him of the countless others that are suffering as well. He said if I was willing to do the "legwork" and gather up names of others who would like to join this suit, perhaps we could get a class action started. If anyone is interested please reply by contacting me at ***** Please be sure to type "Kenalog" as the subject and include your name, email address, and a description of your experience with Kenalog. I will than gather your responses and forward them to the attorney. He will than contact you individually, so please include a contact number. This will take some time. So please be patient, as you know these cases take time. I have spent 15 months trying to get some kind of help from various doctors, to no avail. Someone needs to step up and take responsibility.
Hope to hear from many of you. Thank You

-- By tricia38 | Reply | (24) replies | Private Message me

September 17th
2008
8:48 PM

I am replying to my first post here yesterday....So today I didn't give my 3 yr old son the singulair and do not plan on it ever again! I have to say though...I am very very concerned. I think tonight I truly saw one of the bad behavioral side effects :( He got upset over something so small. Said he didn't love any of us, he didn't want Chinese which is his favorite! He didn't want to do any of the things that we gave him options on that he normally would jump right up to do! This devastated me! I right away thought to myself is this going to get worse before it gets better? He is still complaining of back pain which I know that will take some time. He punched a little boy just before dinner in the neck. He walked out of the neighbors house to go home and usually I have to carry him out. This is seriously scaring me! I'm not sure what to do ? My fiance, his father, doesn't understand and started to yell at him for his behavior. (We don't get much time to talk and when I try to his dad just says he is ok but I know, deep down he isn't) I am the one with him everyday at home taking care of him. I am now being more patient with this behavior when normally I would lose patience and punish him with time outs. Do I continue to do time outs?
Why should I punish him when its not all him ? This is so unfair :( I mean, he is a boy and yes he acts like one. Doesn't share at times, hits sometimes, he is a or was a normal 3 year old boy. His dad will follow my footsteps on this as he see's how I handle things but I'm a little witty on how to handle it now. At this point I am babying my baby! I will tell him when things he does is not right but I'm at the point now that I don't want to send him to preschool! Do I inform the teachers? Can someone give me some words? Its just hard because he is my oldest and is only 3 so not only am I learning to deal with regular behaviors, I now have to understand how to cope and deal with this until its over. Thank you in advance very much for any help and advice!!!!

-- By italia2 | Reply | (5) replies | Private Message me

September 17th
2008
1:00 AM

Well after reading these posts...I am very sad that I didn't read this before I allowed my 3 year old son to start Singulair! The last month he has been complaining of lower back pain. Just recently, stomach pain as well. Says his head hurts, and at times is not himself. I pick him up from preschool awaiting a very energized little boy to talk nonstop about what he did and he doesn't:( He was put on this med for allergies with Flonase and Zyrtec as needed. I took him to the doctors for this lower back pain and they said it possibly was from playing too hard or growing pains. Trusting our pediatrician I took it as that. My son continued to complain and continued to, at times, seem depressed. I took him to the ER because the last week and a half he has had fevers of 100-102. They said its all viral. I came home, looked Singulair up trying to figure out what was wrong and found all of this. I am so sad I never researched this before and continued to give this to my little boy trusting it to be good for him. Needless to say, I am making another appointment for him tomorrow to discuss other options. Thank you all for the information!

-- By italia2 | Reply | (2) replies | Private Message me

September 8th
2008
9:45 PM

I have been in a monogamous relationship for 3 years so me and my boyfriend have been using condoms for a long long time. I had a scare last month and thought I might be pregnant so after my period finally came in early August, I made an appointment so I could get birth control. My dr suggested the nuvaring (I took the pill about 8-9 yrs ago and I always forgot to take them plus I hated the side effects.) I went home and put it in on August 22. About 4-5 days later I began to have what felt like menstrual cramps, always hot, always tired, and then at night my legs would ache so bad. Not to mention, I had headaches every day and every morning when I ate breakfast I would become nauseous! I also would wake up every night between 4-5am to pee - and it felt like it was a full bladder even when I would pee before I went to bed! Oh, and on September 3 my nerves were so bad that I had bipolar-like mood swings - one minute happy, one minute crying, another minute upset - I had NEVER had this type of anxiety occur before!

After Google-ing "Nuvaring side effects" in the early morning of September 4th, I came across this site. I read all the reviews on this site and removed the ring on September 4 which was 8 days before I was supposed to. Since then I've seen many changes. No more cramps, no more nausea in the morning, no more feeling lethargic and sleepy. I am, however, still getting a headache every day! I guess it will take some time before all the hormones come out of my body.

-- By mahealani | Reply | (2) replies | Private Message me

August 21th
2008
10:49 AM

Have been experiencing the same serious behavioral issues (screaming, launching every toy he has out of his room, knocking over his night stand, hitting, kicking and just being hateful) with my 4 year old who has been on Singulair for 2 years as I'm noticing many of you have here. My wife and I have a wonderful relationship and happy home and tons of love and support from other family that's close buy so the kid has a very nice environment. We have taken him off the medication as of yesterday. I have consulted his doctor but I'm anxious to hear what methods of treatment for the asthma all of have chosen in replacement of Singulair or did you just maintain with an inhaled maintenance program with something like Pulmicort? Also, how long was after taking your child off of Singulair did take to for the outburst to subside and the behavior to become more mellow and normal (what is normal for a 4 year old?). Any info would be greatly appreciated.

-- By rhettro73 | Reply | (6) replies | Private Message me

August 8th
2008
2:49 PM

OMG! I thought I was losing it. Have had the Mirena since April and have gained weight (an entire dress size) for NO REASON, been foggy, moody, no sex drive, joint pains, cramps, etc.I thought I was alone, Did I mention EXHAUSTED all the time and acne on my face and back-sever enough to get antibiotics from the dermatologist?
I also suffer with PCOS--does anyoen else on the Mirena suffer with PCOS? Would be interested to see how it has affected you. Tried BC pills and after awhile they stopped working then switched to the YAZ--DO NOT GO THERE--the worst Pill ever--so not many options for those of us with PCOS. Just can't wait to go to the DR and get this thing out.

-- By deanab | Reply | (8) replies | Private Message me

May 25th
2008
10:05 PM

I had my Mirena inserted about 4 months ago and I have felt like I'm falling apart ever since. I have experienced the following symptoms: numbness/tingling in arms and legs, EXTREME fatigue, depression, anxiety, acne on back, my hair is thinner, bloating, sore stomach, lower back pain, etc. Most recently, I have had a lot of heartburn and my voice is kind of hoarse. Also, when I went to the doctor, they did a urine test and found that I have a trace of blood in my urine. Along with this I feel like I need to pee all the time, but I seem to have no bladder infection. I am fed up with this device and feeling like total crap all of the time. I have no energy and can't seem to get enough sleep. The only thing good about this thing is that I don't have a period. Of course, my doctor swears all of these symptoms can't possibly be due to the Mirena, but I don't see how it could all be coincidental. Please let me know if anyone else is experiencing these weird symptoms like the bladder issue or the heartburn/hoarseness.

-- By johnssugar | Reply | (10) replies | Private Message me

December 29th
2007
2:54 PM

Update for Danielle, it has been 32 days since removal, I am still nauseous, have some anxiety and depression, no more panic attacks thank God, I have been put on an anti-depressant for the next few months until my hormones balance out, I hope it is effective, I have always been a happy person, the Mirena has ruined the last month of my and my family's life, all I want to do is feel like me again, I hope one day I can look back on this time and be thankful I got through it, the one thing I will never take for granted is my health, laughter. I will keep you all posted on how I am feeling, good luck to those of you who are going through the same thing.

-- By danielle123 | Reply | (1) replies | Private Message me


 

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