September 25th
2008
6:29 PM
I had my Mirena put in Feb 08. I heard wonderful things about it from other women I know who have it. So, I gave it a shot. Wow. I had wonderfully clear skin before the Mirena. Now it is so embarrassing. I get huge pimples all over my chest, my neck, and my face. They are so painful. I have spent so much money on face cleaners and what-not and nothing has worked. Within a week after getting the Mirena put it, I was in the ER for unbearable pelvic pain. I had developed large cysts on both of my ovaries. It was awful.I still get the lovely sharp pains in my pelvic region that will at times make me double over. My periods last a full week now and I can have 2 periods a month (everyone who has it told me they don't even get periods anymore...what gives?). My breasts get so tender that any touch sends me through the roof and outing on and taking off my bra is so painful. And the WEIGHT GAIN. I had just 40 lbs of pregnancy weight and finally started feeling good about myself again. I get the Mirena and I have gained 15 lbs. I am bloated and disgusting. I look 4-5 months pregnant. I feel horrible. I have no health insurance right now and I don't have enough money to pay out of pocket to get the Mirena removed. As soon as I get back on track, I am definitely getting this removed. I can't stand what has happened to me. I look and feel utterly disgusting. :(
-- By woahbilly | Reply | (3) replies | Private Message me
September 6th
2008
8:38 AM
Hey to All.
I know that the ALA study got everyone upset and I am happy we all emailed her.We all pretty much got the same response from Heather,defending the study and the integrity of the results.If only this investigation would conclude!
The Merck company contacted our Senator and indicated there was a conclusion and then ,they never got back to her before the weekend.I will have news early in the week.Please everyone just keep on voicing your concerns by reaching out any way you can.Sometimes it seems unbearable and I have to take a break with the communications on this website but,I continue my communication with my local contacts and the FDA.
I would love quick results and everyone would love this to get the publicity this story deserves but,if you look at how far we have come getting attention focused on this drug it is amazing.
This website has been here for years and people have complained and nothing has been accomplished until now.Our system is so broken it will take time to fix it.Drugs get approved everyday and when they are put out for multi use,the population benefit -risk ratio changes and there is little oversight on this matter.
The problem is much bigger than just notification of updated side effects,which indeed is why our son died from this drug.It is reporting adverse events to the FDA and the drug company and following up on your report.We can only fight within the system of the government that is in place at the moment and push for change to take place in there programs.
This is what has take place as of this year,The FDA's new 'Safe Use "iniative(which when it gets further developed will increase our partnerships with physicians as well as patients) and the July 2008 AAM report" Education in Safe and Effective Prescribing Practices" which aims to address the education of the next generation of physicians on how to best use medicines.This may help in notification practices and over prescribing but, we want the drug companies to lose the unprecedented control over the clinical research and and evaluation of there own drugs.What other company in the USA, gets to self regulate.Change will come ,we have asked for accountability by having a signature exchange when new and updated side effects are found.Full disclosure of all reported adverse events to doctors from the company representatives,with signature required upon full understanding of the benefit -risk ratio change. A prescriber should know all the good and the bad about a medicine they have chosen to dispense,if not then they should not be able to dispense it.If we were not knowledgeable about selling mushrooms and we sold the poisonous ones ,because we did not take the time it would take to educate ourselves about them,would we not be legally responsible for our actions.
Accountability is what we are asking for and maybe the candyland doctor prescribing practices would stop.They seem to ,not have a responsibility to their patients and the company has no responsibility to the prescribers,so who is responsible for our safety?
I will keep fighting for real change and all you people must do the same ,make an appointment with your representatives and have them contact our Congress representative of NY,maybe with enough onboard we can get the legislation we need to put a law in place for proper notification practices.Kirsten E. Gillibrand Member of the US House of Representatives 120 Cannon House Office Builing Washington, D.C. 20515
This is how change is made ,if you want to help please go forward and do this and don't stop until they listen.I am always willing to do whatever I can,it is physically exhausting and sometimes I just have to step away but, my daily review of this site has not stopped and my fight will continue.Dave and I sit here and our hearts just break for all but, we need people to push their Representatives they do work for the people just remind them of that.Any one with questions or that wants to communicate via private email just ask for my email address or phone number or leave me yours and a time and I will be sure to contact you,Kate M.
August 26th
2008
10:00 AM
I had Mirena put in on August 15th. It hurt like crazy. Worse than labor pains. I had it put in on what should have been the last day of my cycle. Well that was 11 days ago and I am still bleeding. I cramp some and i have had very blurry vision. I did not have a sex drive being on the pill and that has not changed. I am going to try to wait it out a little longer to see if it gets better. I have several friends that have it and they love it. We will see.
-- By angie08 | Reply | (3) replies | Private Message me
June 18th
2008
3:52 AM
I have been on Femcon Fe for only 2 1/2 weeks. When I started the third week which is a week before the brown pills I got my period. I understand that I need to give the BC time but the way this pill is headed I don't like. Its my first type of birth control and I am upset my GYN put me on it. I hear such wonderful things about Orthro-Tri Cyclen. After reading all of the responses from different women I am nervous things will not get better. Aside from getting my period early which I understand is normal at first because my body is adjusting I also feel very fatigued and mentally slow. My breast are certainly tender as well and I also feel lightheaded. Ladies I am getting off the pill and getting on Ortho. I should have in the first place but the doc really pushed FEMCON-FE. I am beginning to feel that there is some hidden agenda. Maybe they get extra money in promoting one vs the other.
-- By es1 | Reply | Private Message me
April 17th
2008
10:32 AM
im 14 and take 50 mg of adderal a day for ADHD and Bipolar, and i am unsure of it. I weight 96 lbs.... and i am almost 5 1/2 feet tall... so i am very underweight... and i do notice that when i take it, after it kicks in i seem more aditated, and cranky, and i obvleisuly dont eat.. and my mouth is always dry. i am just unsure about the whole crankyness change after i take it... does anyone else seem more agitated when they take this meds and it kicks in.../ plz reply. thanks
-- By brittybabyx0x0 | Reply | (3) replies | Private Message me
December 5th
2007
4:47 PM
Have been taking 400mg of Topamax for 7 years for severe chronic pain condition. Currently experiencing some new issues. Originally had only wonderful things to say, never had any complaints and thought Topamax was doing it's job for me. Tried going off once after developing kidney stone (thought was only side effect), but new med made liver enzymes escalate. Doctors just exploring which of these troubles may/may not be attributable to Topamax. Currently taking several other meds, as well. Which came first, chicken or egg?
-- By rsdlifer | Reply | Private Message me
July 10th
2007
4:40 PM
My 41/2 year old has been taking Singulair for about 2 years. It has done wonderful things related to her asthma. But she does complain of frequent stomach pains which I see others also have. However, she is not saying she has severe aching in teeth. She says it is not one tooth but moves around and it hurts. she refuses to eat any food that forces her to chew. And I believe her teeth really do hurt because she is refusing food I know she really likes. Anyone else having tooth sensitivity?
-- By mom35 | Reply | (1) replies | Private Message me
March 8th
2003
9:58 AM
Sorry everyone, I have to say the only real side affect I'm having from this drug is dul intestinal cramps and when I eat they become a little more severe that I have to lay down untill it passes. I've taken prevacid and tagment and this seems to work, along with tylenol for the mild headaches and to help ease the pain. I've just taken the fouth of seven doses. I'm glad I started taking it as my dizzyness, headaches and malice are slowly going away and I'm finally sleeping. I have several other problems that have been going on before I started taking the medication. I'm currently being tested for these other problems that are similar to what everyone else on this board is complaining is a side effect. I can not blame it on this medication. I've had at least four flu bugs and all the wonderful things the flu puts you through since December, severe lower back pain, headaches, ringing in the ears, muscle aches, joint aches, etc......This has been a bad year for illnesses for my family and I. Maybe this medication is curing what it's meant for and uncovering underlying illnesses for some patients, have one of the 70 possible flu virusis that are out there, rushing to get better or lifestyle is catching up to them. Then again, we are all different and can't all take the same medications. Vicki
-- By vicki | Reply | Private Message me
Singulair (2) Mirena (2) Femcon FE (1) Adderall (1) Levaquin (1) Synthroid (1) Topamax (1)
September 26th
2008
5:03 PM
Hello Ladies....I am 56 and diaged Hashimotos disease 3 years ago.At the moment on 112mcg of synthroid....dosage started off low and have gradually worked up....So angry with drs...was seeing endo, but moved and using family practice...so frustrated with weight gain approx 25lbs since diag. Also does the word sweat ....mmmm perspire for all us ladies, mean anything? I can't even wash dishes without breaking out in to a sweat...mmm beads of perspiration....Dry skin, I own stock in Aveeno....Also....does anyone get "boil type" skin eruptions in the nether region...butt, inner thighs etc? Does anyone or has anyone done any serious research on Iodine? I try to eat as well as I can, was doing Weight Watchers and gained weight do ya hear me? I am questioning my idodine intake or lack of....Presently take mulit vit with 150mcg. Considering uping it and dc ing my synthroid...cuz docs have been useless....eat less, (how much more less?) exercise more...I swim so much I look like a freaking prune....Any comments?
-- By bboyzgram | Reply | (6) replies | Private Message me