July 14th
2008
4:04 PM
This site has made me realize that I am not crazy. Well, now I am... But not for long, I have had my Mirena since 2/2005 after the birth of my daughter. Yes, there was a lot of cramping at first and the insertion was awful. The Dr. reassured me that I would begin to feel better and gave me time frames as to when cramping and bleeding should stop and may even stop completely. Wow, this is great! I thought... I nursed my first year and at the 6 month mark my production slowed. I've heard this was normal. I was proud that I had gotten down to the pre-baby weight. No credit to Mirena. This was strictly due to nursing and some exercise. At the year mark I became more and more irritable, per my husband. I was Forgetful or should I say had difficulty holding conversations due to forgetting simple words... I was depressed and just plain mean... He was right. I didn't notice until he said it, I was angry all of the time. I was reluctant to go on any pills; I feared I would be labeled as crazy. So, instead of meds we ended up needing to see a marriage counselor. Yep, after 5 months of babbling about my childhood and bringing about a normal conversation with my husband again, I end up taking medication. I had been convinced this was simply a little postpartum and everybody is depressed after a baby so I was put on some generic version of Prozac (temporarily). Had some dizzy spells at work (very embarrassing). In the summer of 2006 I started have pain during sex. I could tell it was coming from the ovary. It was on my left side. Of course, my husband had to deal to with the constant feeling of rejection. I was thinking I'm just constipated and the added pressure is well... you get the idea... Hurting everything else. After a few months of this I made an appointment with my OB doctor. I had a 5 cm cyst! I was told this could burst or possibly twist. Then I am restricted to no sex and light exercise. Within 3 months that cyst burst it sent a burning sensation through my abdomen to my upper thighs. I have a lot of abdominal pain and bloating. I went in several times later but was never diagnosed with having anything wrong. Suggested to see an Oncologist (never went). Now to the current year of the Mirena... I mentioned earlier that I had lost all of my weight back to 114 pounds (I'm petite). Within the last 4 months I have put on 17pound and still climbing. I am having some horrible pains on the right side now which I know is the return of another one of those cysts. It must be a dozy, this one really hurts. And having acne breakouts of a teenager. So let’s review... From this post I have experienced the depression, cyst, weight gain, acne, forgetfulness, dizziness, stomach pains, bloating. I want it out I had scheduled to get it done on 7/17. My husband freaked and now has scheduled to get a vasectomy. He has asked me to wait until his procedure has been done before I go through with it. So, I am waiting but am interested to hear how soon we become normal again when all foreign objects and medications has been removed.
-- By jandringa | Reply | (5) replies | Private Message me
April 7th
2008
12:24 AM
Reply on 12:20 AM on Apr 07, 2008 by losthope18, #1539
THANKS FOR RESPONDING... THE TRAGEDY WE'VE ALL ENDURED IS... AS YOU SAY BEYOND WORDS AND MORE THAN WE COULD PROBABLY OR EVEN POSSIBLY WRITE. PRIOR TO STARTING IN JAN 2005, I WAS ALREADY SUFFERRING WITH MANY OF THE PROBLEMS AND UNTOLD LOSSES OF MY LIFE, MOST ALL MY RELATIONSHIPS ETC. WHEN I WAS 28 YRS OLD I HAD A SEVERE HEAD INJURY AND AM A TEXTBOOK CASE OF A TRAUMATIC BRAIN INJURY SURVIVOR. MY LIFE WAS MAYBE 95% DESTROYED AT THAT POINT. EVEN STILL I HAD SOME FIGHT LEFT IN ME TO FIND OUT WHAT WAS WRONG & HOW I COULD GET BETTER. THE MEDICAL COMMUNITY AT LARGE STINKS AND DRS WHO THINK THEY KNOW "EVERYTHING" ABOUT HOW THE BRAIN WORKS AND WHAT EFFECTS IT ARE IGNORANT FOOLS. ONLY ABOUT 2 YEARS AGO, AFTER DOING MY OWN RESEARCH DID I FIGURE IT OUT AND NOW THE DR'S ARE NOW FALLING IN LINE & SAYING... YEP... THAT'S IT. NOT THE 50 PSYCH DIAGNOSIS THEY STUCK ME WITH... I AM 50 YEARS OLD NOW AND LOST, FOR ALL INTENTS AND PURPOSES MY ENTIRE ADULTHOOD TO AN UNDIAGNOSED T.B.I. THEN IN JAN 05, I STARTED THE SINGULAIR... I KNEW THE LAST COUPLE YEARS OR SO I HAD BEEN GETTING WORSE & WORSE. NEVER MADE THE CONNECTION. I STOPPED THE SINGULAIR A WEEK AGO THE LAST FRIDAY. DAMAGE ALREADY DONE. THE REMAINING 5% OF MY LIFE AND LOVE IS GONE AND I DON'T HAVE ANY FIGHT LEFT IN ME. I'M TRYING TO HANDLE THE REMOVAL OF THE SINGULAIR AS SCIENTIFICALLY AS I CAN TO DETERMINE WHAT'S WHAT. BOBANDSHERRI, I HOPE IT'S STILL TWO OF YOU... DOING/LIVING/EXISTING/FIGHTING ALONE WITH EVERY DREAM YOU EVER HAD AND EVERY PERSON YOU LOVE, NOW PRIMARILY MY PAST. MY MARRIAGE GONE. MY FAMILY... I WAS SO CLOSE TO MY MOM & DAD...LOTS OF BROTHERS & SISTERS... THINK IT'S ALL PRETTY MUCH IN MY HEAD. I DON'T KNOW WHAT OR HOW MUCH IMPROVEMENT I CAN EXPECT... I'VE BEEN SO SICK/DESTROYED ETC. FOR SO MANY YEARS. BESIDES MOST ALL OF THE PROBLEMS MENTIONED, I LEARNED A VERY SMALL BRAIN TUMOR-MENINGIOMA HAS GROWN 3MM FROM 7MM TO 1 CM. WHAT'S WEIRD IS... IT'S ON MY LEFT FRONTAL LOBE, ALTHOUGH AT THIS POINT NOT CAUSING ANY OF THE PROBLEMS. IF IT GROWS ANY FURTHER... BRAIN SURGERY FOR ME. WHAT I DON'T GET IS... I READ SOMEONE ELSE HAVING A MENINGIOMA TUMOR ALSO LEFT FRONTAL LOBE... WONDER WHAT IF ANYTHING IT HAS TO DO WITH SINGULAIR... PROBABLY NOTHING... I GUESS?? CLING TIGHT TO EACH OTHER AND REMEMBER HOW FRAGILE LIFE IS. I'M NOT FEELING BETTER YET...(ABOUT 8/9 DAYS WIHTOUT). IN RETROSPECT, I HAVE A GREAT DEAL MORE CLARITY AS TO WHY I'VE WORSENED SO MUCH IN THE LAST COUPLE OF YEARS. I HOPE WHATEVER IMPROVEMENTS I WILL HAVE HAPPEN SOON! THERE IS SO MUCH MORE I COULD SAY BUT I'M ALREADY FORCING MY FOCUS HERE TO WRITE THIS MUCH. MAY BOTH YOUR LIVES BE BLESSED BEYOND ALL YOUR DREAMS & THANKS AGAIN! losthope18
January 29th
2008
3:03 PM
I have been having Doxy since last June (about 6 mo. ago) and still taking it. Its effects on my acne problem has just gotten apparent about one month ago. (Yep. For 5 months, I kept my faith and it is beginning to pay off.) I was determined to take the stuff as long as I need to. However, I just noticed that my stomach is bloating and I got tired very easily. I could play several games of rigorous racquetball before but no longer. My breathing has gotten harder and felt like something was obstructing my breathe just below the rib cage (in the middle).
I will see my derm to see if there is any long term problem with this side effect. He once told me I have to take this drug at least 2 months after all the major "bums" have disappeared. I hope that is within the next few weeks.
-- By windycity_guy | Reply | (3) replies | Private Message me
October 27th
2007
4:11 AM
I took levaquin, cipro and avalox in a 4 month period due to a severe sinus infection, back in Jan to april of 2006. I had tolerated it most of my life, but at that time, I had had 'neck surgery due to 2 pinched nerves, left shoulder operated on, major tears, due to extreme 'flat roof roofing repair' for 6 months trying to save our 'dream home from satan'. (we lost it, foreclosure)
I complained to my dr the next day, (and most every week) he ignored my halluciations, (actually "snickered" in my face), mood altered, ignored my complaints of feeling like a hot rake tearing my muscle and tendons apart. pain, told me to continue taking it:(, blame me for listening and NOT doing research soon enough, I learned later the dr is supposed to STOP the drugs immediately to rule out tendonitist to prevent pernanent irreverable damage AND it's not to be given to 'muscle challanged people'). after that 3rd round in a 4 month period, I told him I'd rather die than to take them again. mom always told me I was allergic to pennicilin, I wasnt, it helped clear my infection.
I now have hodgkins lyphoma, (affects men mostly, i'm female, 51 yrs of age), I shouldnt have 'this cancer'. My face started breaking out w/2 types of skin cancer, basal cell, and precancer A. keratosis eveywhere. I was 120 lbs, cut muscles, always had been physical. Now, flab, lost mucle strength everywhere. Every day now is filled w/severe pain and NO dr will listen, I've been called crazy so many times, I could puke. The dr's dont WANT TO KNOW because of the extensive lawsuits that will exist due to them NOT knowing side effects and stopping meds, it's their 'brotherhood', protect each other no matter what the patients 'cost' is, as in mine, complete mind and body destruction:(
To MOST people, this drug is okay. To many of us, it's a life destroying slow death. Cant work, cant get disability. Have reached for 'help to heaven' so many times, but never followed through:(. I still HOPE for some dr to listen and do necessary tests so I can sue the crap out of my previous g.p. He should have known . HOPE is a forbidden 4 letter word, yet I cuss like a sailor.
Peace my fellow quin sufferers, Sandie in S.C.
October 1th
2007
6:32 PM
I am so happy after taking myself off ZORCOR in mid August 2007. I have my ankles back. They had been swollen. My knees were swollen and were so painful. Although I am 66, I have been active all my life in activities which included running(now walking) aerobic dancing, swimming, hiking to name a few. In June 2006 following a strenuous down hill hike, I experienced knee pain and swelling. I was taking 10 mg. of Zorcor at that time. I went to see an orthopedic doctor and he gave me an injection of steroid in the knee joint. It did relieve the pain. Then the right knee started. My knees were so painful, that I could not sleep, I had difficulty doing stairs. In fact I began walking backwards down steps so the knees would not bear the weight. It was after I was advised to increase the dose to 20mg.that the addtional side effects began. I was having difficulty standing from a seated position and even purchased a sofa that was more firm so I could rise from it.
I could not sleep,I had shoulder and arm weakness and lethargy set in. Normally I am active from 6:30 AM until 10:30 PM still working and very involved in my community as well as hobbies. At 20 mg. I was tired, losing interest and was content to be a couch potato. So I went on the internet and read everything I could find on Zorcor. I noted that I had 5 of the 7 major side effects which included itching skin, particularly from the knees down, itching,scalp, trigger fingers (thumb index and middle fingers were locking as much as 3 times a week. Just touching my legs to put on body lotion was painful. I felt as though I was getting the flu, just really down(depressed) and tired. I decided to stop the ZORCOR so I could sleep. Within 3 days I found that the pain in my knees was gone. I had my ankles back (no swelling). It has been six weeks since stopping Zorcor and I am back to my former self. I will never take STATINS again!
I will continue to exercise and maintain a diet rich in fiber and fruits and veggies.
Quality of life still vies for Quanity in my book.
September 28th
2007
4:16 PM
HI,
I had my Mirena fitted in March 07, the first fitting was a nightmare as I went into spasm so the doctor was able to fit it, that experience was so painful so i had to go back again about 3 weeks later, that time it was a little painful but bearable. I thought at the time brilliant, no probs at all except for the obvious bleeding and cramps for the first month or so till it settles in. Things weren't too bad to start with once I stopped bleeding even though I bled every month, I did at this point start to get what looked like acne on my face which was so itchy. Then one night in July I experienced the most horrendous pains in my right side, i didn't know what to do with myself, i thought to myself I'll leave it for a few days and see how I feel, so 4 days later I went to see my doctor as I wasn't any better starting to feel worse, started getting pains in my lower abdomen, she checked me over and wasn't sure what it was, I said it feels like my reproductive organs related, she wasn't convinced !! done a few tests etc.
So she sent me home and said if I wan't any better in a few days then to come back. That I did as I felt even worse, it was so painful to walk, I felt so ill, tired, you name it. She did check to see if my coil was still in situ and it was, so she sent some swabs off and urine sample even done a pregnancy test. We can't treat you until we know what it is we're treating she said !! How great did that make me feel, come back in a few days if you're not feeling any better, yet again I done that. Eventually the doctor said we'll try you on 2 different kinds of antibiotics to see if that sorts it and treat it as a pelvic inflammatory disorder !! Both myself and my husband wasn't convinced, but I thought hey I'll try them. I had to wait a week for the test results which turned out to be all clear which I thought they would be.
I still felt so sore all on my abdomen and in my side, really hard to explain, it felt like something was pressing on my bladder when I walked and me pain, then one night both my husband were on the internet trying to see if we could find out what was wrong with me, thinking all sorts of things, then we come across this website and it answered everything.... Now the pains in my stomach and side have gone away but I seem to constantly be bleeding which isn't very good for my sex life (my poor husband), My skin looks terrible with the acne (which I never have suffered from not even in my teens) and I'm 30.. people at work even comment on it saying whats wrong with your skin !! of course I feel tired all the time and get the pains in the legs, arms, I'm really not sure what to do now, I want to get it taken out to be honest. I've said if my skin doesn't sort itself out then Its going and thats that.... I've really had enough of it now... Is it painful to have it removed?? Any answers would be appreciated.. thank you for listening, Paula from Cornwall xx
-- By pacey | Reply | (3) replies | Private Message me
September 27th
2007
8:58 AM
I was on prednisone for 6 days 60mg the first day and then 40mg for the remainder and beginning the day after the last dosage for the following 3 days my body would crash. I would go through these severe mood swings I would be fine one and then about 1/2 an hour later feel very depressed for a while. I also felt swollen and heavy. I knew it must have been the prednisone because I have no other reason to be depressed and then somone else I knew had similar emotional side effects
-- By fran8119 | Reply | (1) replies | Private Message me
September 26th
2007
8:02 PM
I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.
-- By smoore74 | Reply | (21) replies | Private Message me
August 19th
2007
8:06 PM
I'm a 56 year old woman. 5'4" 116. Very fit .Have hypothyroidism and take Synthroid.. Was diagnosed with high blood pressure (which I beleive is due to a too high dose of Synthroid) Was prescribed toprol, just 25 Mgs. Wow!! Was that a bad experience. With the first few days of taking it, began the Foggy brain, dizziness, no ability to concentrate.. no energy.. Head aches, joint pains. Complete lack of interest in doing much of any thing including sex!. Have became almost reclusive because I didn't feel confident interacting with people (I'm a VP of Sales.. not good for my job)! I was bumping into things.. Felt like I was on another planet.. Thought I was nuts... Great to have found this site Also.. Have gain 5 pounds that are not falling off since I stopped this med on my own after only 10 days.. YIKES! Who does this stuff work well for?
-- By tgamble | Reply | (2) replies | Private Message me
April 12th
2007
10:04 AM
Several months ago, my doctor switched me off of Pulmicort and onto Advair 250/50, in addition to the Singulair and Zyrtec that I take. Yep, an asthmatic with allergies...ain't life great?
At first, Advair did control my symptoms better, as I was able to excercise without feeling chest tightness. However, other side effects, such as an extremely dry throat, and hoarsness to the point of pain while talking--let alone singing--has occured. I've also noticed increased tightness in my throat, and weight gain. Now, I had a fairly sedentary lifestyle before, but always maintained the same steady weight.
These side effects are extremely troublsome for me, because I am a professional singer! Since taking it, I have lost the upper part of my register, and have pain while singing anything more than a few bars. My doctor has decided to lower my dose and send me to an EMT, however, my pharmacist thinks I should switch back to Pulmicort. My sypmtoms were not as well controlled, but at least I could function.
-- By wathen_dd | Reply | Private Message me
March 23th
2006
7:41 PM
Yep - that's me - the poops are ihere and not leaving - the stoamch pain is super intense - I am so glad everyone shared - I thought I was going crazy or dying of some crazy sickness not yet discovered. I am stopping and hope I find the relief you all have!!! I too will research more options - Tums for now..........
-- By shannoncoto | Reply | Private Message me
March 3th
2006
7:32 PM
I have been on dilantin for 20 years for seizure disorder called cortical dysplasia. Didn't even know I had it until 2004 when I had a grand mal seizure that lasted too long and different tests were run by my neurologist. It was suggested at that time that I switch from dilantin to something else due to taking it "too" long but all I knew is that it kept me seizure free and I was unwilling at that time to change. Well now here I am in 2006 with the side effects of the dilantin taking the chance of switching meds. Have been put on topamax, have been taking it for about a month. Very difficult transition for me, expecially when the dilantin was stopped all together. A lot of it was "in my head" I believe as I knew the dilantin did work and was not so sure about the other but I have struggled with feeling "hung over" in the mornings, confused, off balance, slow in answering questions, and anxious regarding these symptoms. My Dr. assures me I will adjust as my dosage is increased. Just when I get used to one I have to go up so it is very stressful times for me at the present but at this point I'm willing to ride it out. I have a MRI and a 24 hr. ambulatory EEG scheduled within the next 2 weeks so we shall see the results from that, but in response to side effects.......yep.....at least for me...but some are mind created
-- By kathyef | Reply | Private Message me
December 2th
2005
5:49 AM
I am so angry by reading all of these posted side effects. I have been complaining of hair loss, itchy eyes, swollen eyes, rapid heart rate, palpations, and leg cramps ever since I started this drug. What in the world is going on? Women are sensitive to hormonal shifts PERIOD! These doctors act like our complaints are related to "mental status". I HAVE HEARD IT ALL. They would love to give me MORE drugs to counter the effects of Levoxyl. Drugs for heart problems, pain, hair loss, OH, and my favorite.....depression. After all, we have no clue what is going on with our bodies...it is ONLY IN OUR HEADS! Where in the world is the FDA? How is it that Hundreds of thousands of women are complaining (check other websites and local support groups, you'll be amazed how many of us there are!) and the FDA has not done a thing? The problem is OUR DOCTORS. Yep, they do not report our complaints because the synthetic versions of thyroid medication is a huge cash cow. The only way we can get someone to listen is by complaining to the FDA ourselves. The doctors are not looking out for us. I am 37 years old. My heart rate has doubled in just one year of being on this medication. I am going bald and I feel like garbage. This drug has destroyed my life as I once knew it. I AM GOING TO FILE A COMPLAINT WITH THE FDA. It doesn't matter what form of synthetic thyroid I take, I feel like garbage. I am honestly worried that this drug is going to kill me. I SUGGEST EVERYONE THAT HAS A SIDE EFFECT FROM THESE DRUGS WRITE TO THE FDA WITH YOUR CONCERNS. Enough is enough. We need to take control of our lives. It amazes me how our parents and grandparents lived so well with thyroid diseases when the only drugs available in their days were natural forms of hormones. Doctors need to be doctors, not investors in the pharma industry. God be with us all!
-- By mattdefeatsodss | Reply | Private Message me
October 10th
2005
2:16 PM
hey girls... this is for AG...
yesss i get the tingly feeling in my left arm too!! and even in the back of my head and ears sometimes.... yep definitely a side effect of yasmin....
try not to think about it... as the days go by it does get easier but the progress is slow....
ive been off yasmin for 3 months and still getting palpitations more so when im due for my period....
things will take time to get back to normal but dont be worried its just your hormones thats all...
take care !! xox
chris xox
July 11th
2003
6:18 AM
Yep...........I trashed mine last night.
Did not take a second pill. Even though I did not get
any rashes, itching or other serious side effects my body
was just telling me "there ain't something right about this
drug". The side effects I had were total insomnia two
nights ago and frequent peeing yesterday. Never peed
so much in a day? Last night I got some sleep and I woke
up today feeling normal as I usually do. I think this drug
is terribly dangerous for anyone with rheumatoid or joint
problems to begin with. It is too powerful. My doc said
the same thing to me....let's try it..........wrong answer.
I probably don't even have a sinus infection since they
feel alright today. The only thing I have had for the past
two months is a feeling like my head is warm inside alot
but I don't have a fever? I am pretty sure it is all due to
allergies since I have environmental but went on immunotherapy again this spring.......3rd year in a row..take
9 shots. They definitely helped but I still take an antihistamine
but I find my joints and sinuses are always a little done in
this time of the year once again probably due to inflammation?
Anyhow......Thank you all for the input on this drug. I am
grateful it was here. I have heard so many horror stories
on this drug the past few days. Good luck to you all who
did suffer physical or mental ailments. Hang in there and I
hope you get peace of mind, body and soul.
Later............
Mirena (3) Levaquin (2) Singulair (2) Klonopin (1) Yasmin (1) Aciphex (1) Doxycycline Hyclate (1) Levoxyl (1) PredniSONE (1) Zocor (1) Topamax (1) Lipitor (1) Toprol-XL (1) Advair HFA (1)
August 22th
2008
7:44 AM
I am a 51 year old male. November 2007 jaw pain sent me to the hospital where they found a 99% block in my right coronary artery, yep 4 stent's. Three month late the same this time 2 stent's and two weeks later 2 more. I now have 8 stent's. My DR. put me on several meds including Zocor. The zocor made me very tired and headaches. He change it to Lipitor 10mg. I have been on it for 7 months and a few day's ago I have notice pain in both knee's and hip. I once again find it hard to concentrate, feel sluggish and have headache's. I NEVER have headache's. Stopped taken the Lipitor, hope the pain goes away. It a shame that the medical field is so quick to put us ALL on drug's, how about herb's instead. I'm going to look into a natural way to lower my cholesterol.
-- By tigerbillv | Reply | (8) replies | Private Message me