February 8th
2009
2:40 AM
i was taking yaz for about 1-2 years. it was great - my moodiness subsided, lighter periods, no cramps, and it made my acne go away. i noticed that the longer i was on yaz, the more frequent my migraines became (4-5 per month). i didn't realize it at first because i have always gotten migraines (3 per month) since i was a child and i would always attribute the migraines to either stress or stormy weather. with the increase in migraines, i started trying various migraine medications, including zomig and maxalt combined with an alleve. however, i recently switched to nuvaring because my doctor said my blood pressure increased and i was placed on a low dosage of a beta blocker. nuvaring has a lower dosage of hormones and was recommended to me. i used nuvaring for 2 months and then stopped because i had problems with it slipping out. tired of trying differed birth control methods, i simply asked to go back on the yaz. this is when it dawned on me. the entire time i was using the nuvaring, i barely had any migraines (maybe 1 or 2 over 2 months compared to the usual 3-4 per month). i've been back on the yaz for 2 months now and i am having a migraine EVERY week and they last about 2-3 days long. i'm seeing my doc ASAP and getting of this pill immediately. i'm tired of the migraines interrupting my life. they completely immobilize me. i also noticed it completely got rid of any sex drive i have.
-- By nyc_gal | Reply | (1) replies | Private Message me
November 1th
2008
5:36 PM
It really is surprising that this drug is used. I had an episode when I was 18. My parents were out of town and I got a really bad migraine. I called them and they told me I should go to the emergency room. I went by myself and I don't remember what they gave me, but it must have been Reglan. With in minutes of the IV I got really nervous and agitated. I wanted to crawl out of my skin. I buzzed the nurse button like 3 times and after 10 minutes and no one came I panicked. I pulled the IV out and left the hospital. Crazy I know but I couldn't think clearly. I went home and after a few hours I was okay.
Well this brings me to 9 years later and to my most recent experience. I am pregnant and I got a really nasty migraine. I was puking, couldn't see out of my right eye. Since there wasn't anything I could take I called my OB. He told me I should go to the ER and so I went with my husband. They said they wanted to give me Reglan and Benadryl, since I didn't know that was what they gave my when I was 18 I said okay. With in minutes I was having the same reaction I did 9 years ago. I went nuts. I started freaking out. I told my husband I wanted to leave. I needed the IV out of me. My skin was itchy and burning. I was nervous, shaking, and having a hard time breathing. When I husband got the nurse she was really condescending. She was like, “Do you have a history panic attacks?” I said, "no." Then she got the Dr., who ordered more Benadryl. After about 15 more minutes I calmed down. This was an extremely unpleasant experience; I will never take this medicine again.
-- By nme | Reply | (2) replies | Private Message me
May 5th
2008
12:31 AM
Currently on and will be calling the doctor tomorrow to stop after reading everything tonight. I have the migraines still, I have the tingles in all the weird places, everything taste like pooh, which is wonderful, seeing that I myself am overweight and do need to lose the weight. I am not through my 1st full script,but up to my 100mg per day(50 in the morning and 50 at night). I have lost those first 20lbs. and Wow, how nasty those DP's taste now! I was up to 4 Zomig per day before the doc put me on Top and he thought it would help with the weight loss too, but the depression is uncontrollable. Can't sleep at all even while taking sleeping meds and very tired. Everything hurts.
-- By seven777 | Reply | Private Message me
March 27th
2008
10:38 PM
Hi, Reading all of your posts. I have been 100mg of Topamax for three years now and my side effects consist of tingle of the fingers/hands/feet,
oily T zone (face), short term memory loss, extreme fatigue, loss of taste. which I don't think is necessary a bad thing. haven't drank soda in three years due to the carbonation. Anything to sweet I can eat or drink. I have to water down my juices otherwise there to sweet. and I experience far less
migraines. from 2-4 a week or week long migraines where I would go to ER to get a shot of morphine and I was still feeling the pain. to only maybe 1 a month. But if I spot it fast enough a couple Tylenol will help before I have to take a Zomig to knock me out. It sucks being on meds for the rest of your life being young, this started for me age 30 I will be on migraine meds for life so my neurosurgeon says, and they don't think its related but I also ended up with 5 ulcers and a broken esophageal sphincter which now gave me GERD and requires life long meds which oh yeah I have constipation but is that from the GERD or the Topamax? So I don't take anything unless I absolutely have to. which includes my asthma inhaler or nebs. last thing I need is steroids on top of everything else. I drink coffee all day just to keep me awake but at the same time the min I stop I sleep hard and sound. Go figure.
March 23th
2008
1:12 AM
Been taking Topamax 300 mg a day for the past 4 year. I also take 450 mg of Wellbutrin. This is to help with migraine. Although my total count of Zomig pills I took last year was 120 pills and some of those I broke in half so I wouldn't have to use a whole pill for a migraine. So that mean, with the Topamax and Wellbutrin combined, I still had at least 123 migraine this past year. Three months of migraines. That's insane. I can't stop the "Dopamax" because my doctor says it would be really bad with it. I have terrible memory loss, forgetfulness, and loss of words that is embarrassing. The nurses did not inform me of the side effects when I first started taking it and I thought I was going crazy. I started looking up ADHD on the computer thinking I had developed it as an adult. I was made at the nurse when she asked me how I was doing remembering things and and if I was stumbling for word......I wanted to slap her off her stool.........at that point it was NOT funny.
-- By starleena | Reply | (4) replies | Private Message me
November 29th
2007
10:34 PM
I have been taking Topamax (25mg twice a day) for about 2 years now and it has greatly improved the frequency and intensity of my migraines. (I used to have a minimum of 4 migraines per week, and though medications such as Immitrex and Zomig often work, it's still hard to function properly when you have so many headaches. The Topamax has brought that number down to about 1 per week.) The side effects are not too bad, but I am freezing all the time and very tired - complete lack of energy. I almost feel like my head is in a cotton ball, like everything is just slightly fuzzy and I'm a bit disconnected. I wouldn't call it feeling stupid though... I am still able to do my job well; perhaps a slight lack of concentration. Some dizziness, but nothing serious. I have recently started experiencing weight gain, rather than weight loss (not sure if this is related to the Topamax). When I first started taking the medication, I also had that horrible numbness in the tips of my fingers, but that went away.
I wouldn't want to give up Topamax now, because I just can't go back to having that kind of pain and vomiting 4 to 5 times per week.
Good luck to everyone!
November 24th
2007
10:41 PM
I have been on Topamax for two years had most of the side effects I am used to them. The only thing is I am freezing all the time . Anyone have this?? I am cold all the time!!! I also experiance, in the summer, the no sweating thing, that makes me dizzy in the sun, I have to stay under an umbrella at the beach etc. I never had to do this , I was always a sun worshiper and could take it.
-- By reginajfk | Reply | (2) replies | Private Message me
October 11th
2007
9:54 PM
I've been on Topamax since just Tuesday, 10/9/07. I find that I get very tired a couple hours after taking it and I have horrible nightmares and very dark thoughts, too. Diet coke tastes so HORRBILE which is bad because I loved my diet cokes, but then again I guess that's good b/c I need to stop drinking them anyway. My worst side effect is that I have horrible mood swings. Is this normal? Is this going to go away over time? Because if not, I'm going to stop taking it now. This is not like me and I am not going to subject my family to this - losing weight is not THAT important to me. Thanks for any help. :(
P. S. I'm taking 25 mg in the morning, afternoon and evening.
-- By mazzy0774 | Reply | (7) replies | Private Message me
September 3th
2007
6:10 PM
I have been taking Topamax for chronic headaches migraines. I am really frustrated after trying Topamax for the second time. I tried it for about four months early in the year and here I am again trying the drug once more. I am using 100 mg both times and see no results even this time around. I have only been on it for about two months. My neurologist tells me to be patient, but it's really hard to when my life is ruined and I cannot work as a hairdresser (product fragrances and chemicals that trigger headaches). My career may be over and I am only 23. I just don't understand why I am on epilepsy medication. All of these problems have lead me into depression, which is a whole other topic. My neurologist keeps scheduling me for followups about once a month which seems pointless and extremely costly. I feel like I am getting taken advantage of money-wise. I want to stop taking my medication and try chiropractic care. I know better than to quit cold turkey... Should I just call my neurologist and cancel my appointment and ween myself off my medication???
-- By saram | Reply | (1) replies | Private Message me
August 1th
2007
9:12 AM
I had a shot of Imitrex in the hospital for a migraine and it made me feel like my head was on fire!!! I hated it so much. They gave it to me as a perscription in pill from the next day so I thought maybe since the other one was a shot this wouldn't be so bad. I took it with my husband home because I was afraid to take it alone. I felt fine for the first 10 min then my head started to burn and my whole body started to ache and I could not fall asleep it was horrible!! It got rid of my headache but I rather have the head ache than having my body feel like its dying!!
-- By tiffany13 | Reply | (1) replies | Private Message me
November 24th
2004
3:29 PM
Started taking 80mg verapamil for migraine prevention. my neurologist increased after one month to 120mg, then after another month increased to 240mg ...... within a week I started having a constant "chest pain" (I am 36 years old without any history of heart/chest pain.) I have not had any other side effects, however, still continue to suffer with severe menstrual migraines approximately 2-3 episodes per month. I also take zomig for attacks ..... with chest tightness, which offers some relief for migraines. Not sure what I will do next ....... anyone experience anything similar?
-- By marty_howard | Reply | Private Message me
February 17th
2004
8:31 AM
I've been on Topamax for about 6 months now (gradually starting out at twice a day (25 mg - 50 mg - 75 mg then finally ending at 100 mg twice a day). Lost 30 pounds and holding. At times very tired - GREAT not having anymore migraines - but depressed more often and edgy. Snapping at anyone at a drop of a hat! I sometimes take 100 mg a day instead of 200. If my stress level is very high and I do get a migraine regardless - I take my 5 mg of Zomig - it helps and I'm back on track again.
-- By drowne49 | Reply | Private Message me
Topamax (10) Zomig (4) Verapamil Hydrochloride (1) Reglan (1) Zomig-ZMT (1) Imitrex (1) Yaz (1)
November 3th
2009
12:53 AM
I've been on Topamax for about a month now for daily headaches/migraines with 50mg/day and will be moving up to 100mg/day in the next few weeks. So far I have noticed the tingly hands and the nausea but the worst is the dry lips and how every beverage tastes either flat or odd. The only thing that tastes good is water and I can't get enough of it because I am always thirsty. My urine has turned a bright yellow, which I noticed no one else has reported so I'm a little concerned about that. However the headaches and migraines due seem to be improving so I'm keeping my fingers crossed!
-- By dancingkris10 | Reply | (2) replies | Private Message me