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Posted at 9:38 AM
on Dec 20, 2002
by jank,
#1339
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To the mother of the child for whom Neurontin acts like speed:
Neurontin takes away irritability (or nerve-firing threshold) of the involuntary muscular system, and it sounds like the physical phenomenae is just another manifestation of the seizures for which she had the drug prescribed.
Poor kid, those side-effects sound TERRIBLE, and as her mother I would immediately talk to her doctor about change of dosage, or something else -- anything else -- the effect N has on her shows it's either not the right thing for her problem, not enough dosage, or another not-yet-understood indication of inappropriate treatment. The fact that she has headaches indicates it's not just her Mom's unwillingness to deal with a hyperactive kid. Having-headaches means it's poisoning her system. Please act as her advocate and protector in this matter.
And it's NOT the last-ditch treatment for seizures: ask her medical team about surgeries. If they won't do that, then either find new doctors who will give you access to everything possible that modern medicine can provide to help seizures, or explain the trade-offs of living with medicinal side-effects and the risks of surgery.
Jan S. Kauffman, Neurontin userid, parent and grandparent, Masters in Counselling, certificate in elementary education, survivor of decades of fighting the American medical system