I was dianosed with an immune disorder of the inner eye. It was a...

If your condition comes back, tell your doctor you are "allergic" to prednisone and to put you on hydracortisone. This is the natural cortico steroid like your body makes. It takes more of this, but as it is not a synthetic, it doesn't mess you up as much. Doctor's don't know how to give this drug any more. Drug companies only push what they can make money from.

Thank you for your post. For the whole of 2007 my eyes were swollen and red from what was presumed a side effect of thyroid (mine has been eradicated and I have been on eltroxin for17 years with no other problem till then). At the beginning of 2008 I was started on prednesone and was told I now had another auto-immune disease attacking the eye muscles, related to thyroid. I was on treatment of 30mg. @ months later I suddenly starting losing my sight and going blind in both eyes. I was given introvenous cortisone of 1,500mg a day (not a typo) for 4 days to try and stabilise the muscles so they stopped strangling the optic nerve before they could operate. Without going into details I had the optic decompression op, but till May this year was on doses of 100 or below trying to reduce in continuous cycles unable to go below 20mg a day without sight loss, so I had a second op and for the first time in 19 months am off cortisone for 1 week, however, for the last few month whilst reducing I still have all the horrific side effects including Cummings disease with the humps on my back. My vision throughout, and is still, awful and I am waiting for the disease to subside before I can have a corrective op on my muscles so I can see again. The loss of independence...no driving, difficult to walk but I can, cannot easily shop or deal with multicoloured situations, however I have kept on with my work, dont ask me how, magnifine glasses, lights, wierd glasses with peep holes. In the worst of times I was out of my mind with panic and the combination with anathaestics gave me daytime hallucinations for weeks. I have all your affects. When will it end?? As you say the constant choice has been your mind or blindness, and we choose to see.
About oesteo I dont know but I had a bone densinometry test at the beginning and will once it ends then I could tell you. My skin is paper thin, I have lost hair on my scull and fought increased facial hair, I feel displaced as a person and have to avoid crowds or social situations, and this body is not me, but my spirit remains true to myself. The last op has caused my nerves in the middle panel of my face to prickle unrelentingly and freeze so I cannot eat easily in public...charming set of circumstances! But lets remind each other that there are many who are blind and that is worse by far. You said you want to do things but not sure if you should, like what? I have started swimming and walking with a friend as I am as weak as a kitten.