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I think what a lot of people are posting here are more side effec...

Posted at 10: 0 AM on Apr 30, 2007 by lunchham, #21354
I think what a lot of people are posting here are more side effects of thyroid conditions rather than side effects of thyroid medication. After my RAI treatment I started on a generic brand of levothyroxine. I even got my doctor to let me try Armour Thyroid since many people do well with it rather than Synthroid. Armour didn't work well for me, but it definitely is the only way to go for some people. After months of misery, things finally smoothed out. I was a royal pain in the butt to my doctor because I questioned everything. The biggest side effect for me going from hyper to hypo was edema. A clinical name for water retention. It wasn't so much the bloated feeling that bugged me. It was the pain in my hands and feet from the water retention. I have never, ever had a problem with carpal tunnel syptoms even though I have always used my hands a lot for work and I play the guitar. I had to add a small dose of dieuretic to control the edema and relieve the hand and feet pain. Sometimes it does flair up depending upon what I eat and how much I sweat, but that's what goes along with this type of illness. It's not just a magic pill that makes you feel "back to normal". You have to be demanding of your doctor to try other things to get you to feel right. You even have to pay attention to how you feel at different times of the year to figure out how to adjust what you take, eat, or do to feel better. I have noticed that with all things remaining constant, how I feel in terms of energy level and edema is related to the season. The body is weird that way. I still have side effects from the treatment from time to time, but I finally figured out what seems to work best for me. Maybe things could change over time, but I've learned that medicine just doesn't have a black and white treatment plan that works the same for everyone for thyroid related conditions. To sum it up, question everything your doctor tells you, demand to try things that you think would help you feel right, pay attention to what your body is telling you and adjust, and fire your doctor if they treat thyroid problems as black and white. Your doctor is not the one suffering from the condition, you are. It's your life and there's nothing wrong with being demanding about wanting to feel right.
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Reply about 1 year ago on May 16, 2007 by emrys7, #116

Than you so much! I was diagnosed with Graves Disease after two years of dealing with the symptoms. My doctor recommended radio iodine and I underwent the treatment. Of course my thyroid reacted and now I'm taking Synthroid for the rest of my life. It took a while but as the hormone levels approached normal, I began feeling good again only to bounce around feeling good. I have finally come to accept that I am never going to feel as healthy as I did 3 years ago. But that this is my life and there are so many things that could be worse to deal with. I will remember to take seasons into consideration, and be aware of what is going on in my life as well as my body.

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Reply about 1 year ago on Jul 21, 2007 by meetzea, #827

I really appreciated your posting. I too suffer from terrible edema. I have been on 100mcg of Synthroid, and recently started taking Cytomel 75mcg. My edema became even worse with the Cytomel, I gained 6 pounds in 3 days. It was horrible. The pain from the edema was much worse than normal. I stopped taking the Cytomel, I'm still taking Synthroid. I wonder if Armour would work better than the Synthroid. Do you think it is worth asking my doctor to try it?

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