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This is a nightmare. I have been on Lamictal 200 mg, tab in morn...

Posted at 1:54 PM on Jun 16, 2007 by jeb51, #21833
This is a nightmare. I have been on Lamictal 200 mg, tab in morning, for approx. 5 months. About 3 1/2 months ago I started getting muscles aches and weakness, muscle overuse problems, fluid retention ( like 12 pounds), stayed in a trance with very little short term memory. Thought it was everything but this medicine....I am an avid athelite, yes, even at 51. So, I blamed myself for not slowing down. Quick exercising totally, for 2 months, iced 3 times a day on leg muscles. Finally after making it to the summer without a mental breakdown, I went to the emergency room and a new internist to get checked out. Blood work, thyroid, hormones,ok.... Really don't care what they think , I can not walk, it hurts like hell. The Dr. did tell me to get off Lamictal....ok 7th day and I have some relief but it is not complete. Called manufactures, interesting, yes- these are side effects!!! But the studies are limited. Listen , unless you have seizures, get off this medicine... you read the full disclosure of side effects and then search yourself......It can ba a huge FOOOOOPA.....And you are the fool that will end up holdling the bag, not the manufacturer. Hopefully I will get better. Right now , I just trying to stay calm.
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Reply over 2 years ago on Jun 18, 2007 by kann, #449

DEAR JEB I TOO HAVE BEEN ON LAMECTIL 2 YEARS FOR MOOD SWINGS AND I TO SUFFER FROM LEG CRAMPS AND BEING VERY TIRED AND SLEEPY I DO STAY VERY BUSY WITH MY LIFE (WORK) AND OTHER ACTIVITES BUT I JUST DRAG THROUGH.....I HAVE READ SIDE EFFECTS ON THIS DRUG BUT HAVE NEVER SEEN LEG CRAMPS ..DID YOU JUST STOP COLD TURKEY? ANY SIDE EFFECTS? PLEASE LET ME KNOW I'M 50 YEARS OLD ALSO .... THANK YOU SO VERY MUCH JCP

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Reply over 2 years ago on Jun 30, 2007 by drj, #606

Jeb and kann-
I started lamictal about 4 weeks ago, and a few days after upping from 25 to 50 mg, started having swelling and pain in my feet and legs. One week after the increase, I stopped. I figured with a half life of 1 to 1 1/2 days, my symptoms should be clearing at about 6 days, but I'm now day 10, still swollen, sucking down motrin, and walking like I was 75, not 42. Just how damn long do these side effects last?
Kann, do not stop cold turkey if you've been on lamictal for two years-- you need to taper down over a month or two, depending on your dose, o/w a long list of withdrawal symptoms. DJ

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Reply over 2 years ago on Jul 01, 2007 by jeb51, #609

Hi DJ,

I am so sorry you are going through this,it is he--! I have been off the medicine for 3 weeks, 200 mg., the swelling and fluid is going away so slowly I can hardly believe it. I am still in pain but not quite as bad. I can walk the dogs around the block in the morning if it is not hot. The heat makes the swelling much worse. I am mentally feeling BETTER, thinking clearly. Everything else that seems to be a side effect remains the same. I am thinking this could take a while.....I called the manufacturer and they just told be the half life. How long it stays in your tissues is individual.

If you feel strongly about this med. having untold bad side effects (as I do) , call the manufacturer and they will make a report, give you minimum information, but they are required to report to the FDA.

Let me know how you are doing. I know there are many that just suffer silently....it just hurts to dang bad to keep my mouth shut ! This S.E. should be boldly noted.

Kann, she is right, if you get off the Lamictal, make sure it is supervised by an M.D.

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Reply about 1 year ago on Aug 04, 2007 by okiegirl07, #1046

Hi, I've been on Lamictal 25 mg for 4 days and for the past 2 days I have notice severe aching and muscle pains in my legs. The dr advice to quit taking it and see if it goes away but all my lab work was good so i keep taking it. I guess tomorrow I won't be taking it cause now its going up into my arms and making them ache and it hurts so bad.

Glad to know i am not alone. Mine is for stress/anxiety/despression they made a point to say it wasn't for bipolar

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Reply about 1 year ago on Aug 04, 2007 by okiegirl07, #1047

e been on Lamictal 25 mg for 4 days and for the past 2 days I have notice severe aching and muscle pains in my legs. The dr advice to quit taking it and see if it goes away but all my lab work was good so i keep taking it. I guess tomorrow I won't be taking it cause now its going up into my arms and making them ache and it hurts so bad.

Glad to know i am not alone. Mine is for stress/anxiety/despression they made a point to say it wasn't for bipolar

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Reply about 1 year ago on Aug 12, 2007 by mwaine, #1187

My side effects include lethargy, terrible memory loss including forgetting common words (which makes conversation quite difficult).

If I forget to take my dose (200mg) for even one day, I get dizziness, tingling sensations in my head and bad flu-like symptoms.

BUT.......it has really helped my depression, altho feel somewhat flat.

Trying to cut down slowly, as its so hard to work when you can't think clearly
but then again, I can't work when severely depressed......
ah, the conundrum of being bi-polar

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Reply about 1 year ago on Aug 12, 2007 by mwaine, #1188

My side effects include lethargy, terrible memory loss including forgetting common words (which makes conversation quite difficult).

If I forget to take my dose (200mg) for even one day, I get dizziness, tingling sensations in my head and bad flu-like symptoms.

BUT.......it has really helped my depression, altho feel somewhat flat.

Trying to cut down slowly, as its so hard to work when you can't think clearly
but then again, I can't work when severely depressed......
ah, the conundrum of being bi-polar

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Reply about 1 year ago on Jan 08, 2008 by mulan, #3922

hi im 22 years old and i have been on lamictl 200mg a day 4 about 10 years i never got tould about the side effects i dont sleep much ive gaind weight and some memory loss and sometimes get bad back pain
people that get stop takeing lamictal are lucky but me i have to take it for the rest of my life if idont i could get very sick
i feel ur pain

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Reply about 1 year ago on Jul 02, 2008 by tippyfluffer, #9709

I'm a 44 year old male who was diagnosed with mild BiPolar 1 last year. The doc put me on 300mg of Wellbutrin every morning and 200mg of Lamictal at night before bed. The good news is that my mood swings went away, and for the first time in my life I had consistent 8 hour/night sleeping habits. I went to bed on time every night too, which is amazing.

What went away with it however was my mental acuity, vebalization skills and alertness. What's more, I lost my 'edge', becoming very complacent and can I say 'wimpy'??? The combination of all of the above even led to my losing the girlfriend of three years as well. :( Oh well - who needs her

So I approached my doc and asked if I could reduce my dosage to 'find my happy place'. When I went from 200mg to 100mg for 30 days, I experienced a lot of anxiety and some minor chest pains. I got my edge back, and stopped fumbling for my words. That was a welcome relief, as I have always been very well spoken - eloquent even :)

A month later I went from 100mg to 50mg and the anxiety & chest pains became so bad it was debilitating after two weeks. I upped my dose to 75mg and that immediately solved the chest pains. My sleep habits are once again erratic and I'm constantly struggling to control my moods. I don't recall the mood swings being this pronounced before I went on meds.

So here I am, struggling to decide what to do next. It's definitely a love hate for me...

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Reply 11 months ago on Aug 07, 2008 by ddsfit, #10866

I have been on Lamictal 50mg for only a week and I am NOT feeling any better, in fact, I am crying more, sleeping all day and now experiencing extreme panic and anxiety. This is bizzare and irratic....someone help!

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Reply 8 months ago on Oct 29, 2008 by lotusblsm, #13953

I am on lamictal 2oomg for over 6 months now to alleviate the mood swings. I have an athletic background. I must say the reverse has happened for me, I have lost weight I did not need My moods are stable . I am enjoying my work and my exercise regime which includes a lot of walking 5-8miles mon-fri and hot yoga. I have my own business and so I walk a nice energetic pace to clients homes the five days a week. Thank goodness for this drug in my life. My only regret is that I was not on this earlier.

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Reply 4 months ago on Mar 01, 2009 by 4160mark, #17580

From: moguls222: I have been on this drug for a year or so. I see my doctor on 3/4/09. That's it I am off of this drug. I am very active, athlectic, snow skier all my life, gym guy 4 times a week. i had open heart surgery in 2005. was told most people go on this as a precauction due to after effects of heart surgery. I quess post pardon depression and anyother side effects from long major surgeries. I have major memory loss, very short term, makes me fell like an idiot. blurred vision, crazy realistic dreams, dizzy, you name it. Oh yeah also had a seizer for the 1st. time in my life will falling asleep about 8 months ago. flipped out my family and ended up in the hospital for hrs to be observed then released.Here's something very important to know. This drug may cause seizures, you would think the y would tell you that. I am going get of this drug asap little by little.If it wasn't for the internet and drug sites including the FDA site you would have to trust the doctors only. Everyone is different you have to do your own homework. One last thing, do actually believe all these doctors have the time to go on the internet for hours to do what i do or you to get information on drugs? Or do they trust the drug companies. That is a very profitable business to push drugs on doctors not letting them know about a few of use that the drug really screws us up. MALE: 52 yrs. old

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Reply 2 months ago on Apr 19, 2009 by engelvomtoten, #19002

When you go for treatment by doctors whether therapy or simply for medication, you are truly signing up for experimentation. I'm not pitting against doctors, however my first day to my third psychologist he asked how much Lithium I was on and I told him. He said my levels were low and according to his book that was not good. His book? What does that even mean? I'm not a build it yourself bicycle. I've tampered my drugs and taken care of myself outside of them calling in my pills for a while now enough to let him know his input was invalid when it came to Lithium levels. I am on 200MGs of Lamictal and have been for about a year and a half. As of late it has turned into a nightmare. Since early childhood I have suffered panic attacks, I endured a 4 day 4 night panic attack and did not eat, drink or sleep.This was before medication so seemingly most of my anxiety left with Lamictal and Lithium. Prior to all drugs I did hallucinate, people who were not present, voices and even given commands to act out regardless if it was criminal or not. I still see things or people on the medicine but it is not violent so there is no threat. Lately in the panic of this bizarre fatigue which cannot be described other than the equivalent of a diabetic coma practically weighing down on me along with my vision jolting and my memory being gone, I have detached entirely from Lithium without doctor's consent. The anxiety seemed to go until the night came and I'm back at square one. I take my Lamictal before bedtime and I discovered it was not the Lithium doing the damage. Though now the hallucinations are coming back as are the mixed episodes which do become addicting. I see my doctor this Monday or tomorrow. What I would like to say is within three years I have exceeded toxiticty twice under the care of doctors, I laid and slept for 3 days at a time on Seroquel 800MGs for many months under the care of doctors, I was pulled cold turkey off of Lexapro under the care of doctors who forgot a week later about me and my problems then put on Geodon when I complained it made me lethargic and sleep...under the glorious care of doctors. They do not know any more than you or I what these pills are capable off. I have always been against other drugs such as pot and the like. Is pot any worse than these drugs? Only that somehow these drugs we're fed were passed by who God only knows. I'm not into drugs and never will be, pills give me panic attacks alone. Some drugs work wonders for other people but I've yet to be on one pill that wasn't natural that did me good, they robbed me of my artistic, musical and creative ability. I dropped out of high school, failed college. I assessed in English 101, was the top 1 of 10 out of 700 students in that class and aced Art Class for my major and then just didn't show anymore. I can't hold down jobs. I vegetate in front of the TV, the computer and cannot even complete house chores. I do nothing. Absolutely nothing. I cannot be entirely angry, had I never done these medications I'd never know what a waste they truly are. Keep in mind this is strictly opinion and to each his own. I do not talk with my doctors without keeping in mind they probably know very little about these drugs when it comes to how it makes me feel even if I write it out, weep or rage to illustrate my panic and anguish. I'm not Manic yet, maybe it will come but where I'm at the Highs are worth the toils of the Lows. I'm a 19 year old Female, educated I can't have children on Lithium, can't drink alcohol, basically..can't function but hey it's worth being alive. No, I don't think so. Not really. So all I want to say is the doctors are human beings too and just as easily prone to fail as we are. Don't ignore instinct when it comes to side effects. As for side affects / withdraws, I know someone who went off of Lamictal and Lithium cold turkey and is fine. Another friend who went cold turkey off of Lithium and was fine, mild headaches. If I endured the trauma of being on the pills the withdraw symptoms are a mere Vienna Boys Choir by far.

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