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i've been on synthroid for 9 years. started at some low dose and...

Posted at 7:39 PM on Jun 26, 2007 by simo, #22015
i've been on synthroid for 9 years. started at some low dose and gradually went up to112 mg. get extreme itching all day everyday if i don't take allegra for that.not a rash just itching. that doesn't bother me as much as the fatique. every joint in my body aches all the time. sure there are better days but fo rthe most part it's bad. tried physical therapy and chiripratic care but no avail. they ended my sessions. my legs get sooo weak and my feet burn lower back really aches. sometimes muscle cramps. i'm very negative towards my loving family and it hurts me to do so. can't seem to keep upbeat. soo tired all the time. is it the syntroid? i used to be very energenic and a doer. now i have spurts of activity in the morning , but then i just can't get motivated. help me any suggestions?
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Reply about 1 year ago on Jun 29, 2007 by klothian, #580

Your body needs the synthroid. Maybe you are not at the right dose and that is why you are having the chronic fatique. It you haven't been seen by an endicrinologist - maybe they could have some insight.

I have chronic hives and itching with my throid condition almost since the beginning - also around 9 years. It's autoimmune and has nothing to do with if my throid levels are ok or not. I'm in the middle of a bad episode now. I've been on prednisone and a cocktail of antihistimines and various other drugs. Unfortunately I'm starting to experience foot cramps and realized several of the meds I've recently added seem to contribute to these. I'm going to try eating more bananas. Everyone always says the potassium helps leg/foot cramps. Good luck!

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Reply about 1 year ago on Jun 29, 2007 by simo, #585

i get tested and my levels are good. havent had to change dossage. i purposely missed a day of taking my pill and the next 2 days took 50mg of the recommended 112mg dose. my itching seems to be much better and the aches in my joints is much different. instead of aching deep in my joints just a few select muscles are sore. sort of if i had a goood gym work out. i'm gonna try 50 mg for a few more days and see if this improvment holds true. so far no porbloms. i actually got motivated today to do some side jobs and my mood is improved. but what are the options if this reduced dose works?

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Reply about 1 year ago on Jun 30, 2007 by tami46, #599

iam also on 112mg but cut down my dose in 1/2 i am having bad pain in the neck and the back of my head the 112 made me very hyper so that is y i cut down to 1/2 of that can anyone comment

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Reply about 1 year ago on Jul 08, 2007 by 1952, #670

What you are describing is what MANY people have on Synthroid, including myself, and patients all over are complaining that it's a POOR thyroid treatment being only T4, a storage hormone. Your thyroid, if healthy, produces not just T4, but also T3, T2, T1 and calcitonin. There are lots of patients out there who are switching to Armour, which comes from pigs and gives all the above. They are also dosing NOT according to the TSH (which they find to be a lousy lab) but by the elimination of symptoms, which is the most important way to do it anyway! They also check out their free T3, which should be in the upper quarter of the range when all symptoms are gone, and which suppressed the man-made TSH lab. When I switched from Synthroid to Armour, my life made a huge turnaround. There's even a patient website about it all, called stop the thyroid madness. Good luck.

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Reply about 1 year ago on Jul 15, 2007 by jilleebean317, #742

I am a 44 year old woman in FL diagnosed with Grave's Disease 3 years ago. Tried PTU's for 8 months to no avail and finally had radiation (twice) to ablate my thyroid.
When labs said no more thyroid activity, Synthroid began. One year later Cytomel (T3 targeter) began. Huge feelings of being Un-Well began after Sythroid regime...these feelings intensified after adding Cytomel. Current dosaging os 137 mcg of Sythroid and 1/4 of a 25 mcg Cytomel daily, in the morning both on empty stomach...I cannot eat all day anyway...Cytomel makes body warmth, which is nice, and some energy but also creates paranoia and stomach issues and, I suspect, many other things I have been experiencing. I have never tired the Armour but am quite willing. Has anyone here tried Armour T3?
Current issues (in addition to above) are joint pain...began about 8 weeks ago, elbows, wrists and shoulders sharp pains.
3 lesions, resembling shingles, appeared on my abdomen, butt and hand. I took Zovirax and this seemed to help the burn-like blisters go down and no more have appeared. This was last night. I also am serverely B12 deficient (209) and have been on self given home shots for 3 months with labs scheduled for 3 days from now. I am at wit's end with this disease and also have the eye disease with great pressure on both eyes.
I will close now...it's so easy to ramble about the many factors of this disease.

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Reply 12 months ago on Jul 21, 2007 by dg2x, #829

I was diagnosed with Hashimotos (hypothyroid) 18 months ago. About 6 years ago I started having pigment loss on my face and arms and I was diagnosed with Vitiligo and sent to an Endocrinologist. I was told that I was pre-thyroidal and would probably have thyroid problmes in the next few years. About 2 years ago I started gaining weight even though I wasn't eating that much, I was always constipated, my back was itchy, I was always cold and I was very tired unable to focus or concentrate which was making work very difficult. My TSH was at 6.9. My doctors goal is to keep my TSH below 2.0. He started me on 25mg and I've had blood tests almost every 4-6 weeks since then. My dosage has been increased after almost every blood test. I'm at 150 mg now and my blood test last week showed my TSH at 2.9. So its time to increase the dosage again. I can usually tell that my TSH is going up based on my the way I feel. The last two weeks I've been extremely tired and had trouble focusing and concentrating at work again. It usually only takes me a few days at the new dosage to feel better. I've struggled with my weight constantly over the last 18 months. I've had success in the past with Weight Watchers but anytime my TSH is not down around 2.0 it is really hard for me to lose weight. I've been on Weight Watcher this time for 4 weeks and I started losing weight quickly at the beginning and then the weight loss just stopped. That was about the time I started feeling tired again. I have not had any side effects from taking Synthroid and for me it has made a drastic improvement in the way I feel.

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Reply 10 months ago on Sep 09, 2007 by argentina, #1705

hello! my name is Ana, and i have beeb same like you, with so much pain in all my body because the Synthroid medication, i was a dancer and very active woman, i also have not only physical problems,but also emotional, because being with the medication makes you more sensitive to all people around you, and sometimes very angry emotions you can feel with no cause yes?..this condition is sad, and i still looking for the right doctor, the one that understand that taking Synthroid "hurts" it does your body ache all over, i agree with you, if you want to write me my email adress is anagraciela2005@sbcglobal.net i hope you can find a good doctor, and GOD BLESS YOU!

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Reply 10 months ago on Sep 11, 2007 by challenger300, #1737

for anyone who has itching, lower back pain, joint pain, bad mood swings because of this, heart beat irregularities, weak arms, legs,etc...i have been having this for 8 years, been on synthroid for 17 years. tried all thyroid meds, all do the same. found amazing relief by taking pain/anti-inflammatory medication"apo-nabumetone" also i have realized going without synthroid for just one day and i have no symptoms. i take synthroid and get symptoms within 1 hour. i am still doing research to find out what is going on. the thyroid meds or maybe how they are absorbed seem to cause inflammatory symptoms

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Reply 8 months ago on Oct 26, 2007 by dochdoch, #2592

I feel for you. I too have many of your symptoms (joint aches, agression, feeling driven, now energy at night and weird skin break outs). I know its the medication, like you, because if I skip it I feel like my old self again. Of course you can't skip you medication because you'll eventually get sick.
I have tried taking my medication at night in stead of in the morning, this seems to have helped somewhat. It doesn't bother my sleeping at all like I thought it would. How I made the transistion is like this. Each day I took my medication two hours later than the day before until finally I was taking it at night. Try it might help.

Good luck to you, I feel for you.

Dianne

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Reply 4 months ago on Mar 13, 2008 by pshumaker, #5517

I'm Pam I was diagnosed with HASHIMOTOS in December of 07, I was put on Synthroid and ever since then I have had this weird breakout on my face and chest which I thought was Adult acne. After reading this i'm not so sure. I feel very itchy around my neck and chest all the time. Is there any relief?

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Reply 2 months ago on Apr 21, 2008 by mmosa29, #7510

I have been on Synthroid for 1 year due to a partial Thyroidectomy and a low TSH. My doctor just increased my dosage to 150mcg and I have been feeling kind of dizzy, like when you have held your breath for a long time. I'm not sure if it is just my body adjusting or if I should be concerned. Anyone have any suggestions?

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Reply 2 months ago on May 17, 2008 by simo, #8377

i finally got the doctor to put me on armour synthroid and so far so good. been getting motivated more and geting things done. also not so angry all the time. still have leg , back, & feet pain but maybe not so much. all in all it's good so far. happy i made the swithch

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