| Posted at 9:50 AM on Jun 27, 2007 by loisedavis, #22034 |
That is a terrifying story and I am sorry you had to experience it but I am so glad that your son is better. I understand how Topamax has deteriorating cognitive effects as I was on it for epilepsy and I becamse another person. My doctor was an idiot and refused to help me get on another AED (I had lost my job shortly after topamax because it had dumbed me down so bad it had negatively impacted my job).
Topamax is widely prescribed and enough people do NOT speak out about their negative experiences. Doctors pimp this drug for everything under the son. What I have discovered is mortifying and your story really disturbs me.
You should look for a lawyer. These doctors should know what they are doing and they shouldn't be diagnosing your son with a rare brain disease when it's the medication they're prescribing that's doing this to him.
Also, I am being weaned off the topamax and the rate by which i'm being weaned is 25mg decrease every 5 days. Your doctor is guilty of malpractice. HE SHOULD KNOW THE PROTOCOL FOR THE DRUG HE IS PRESCRIBING. I'm sure he's making enough money prescribing topamax, he really needs to take responsiblity for the damage he's causing.
What a frightening story. How is Jim doing today? How very sad that he, you and your whole family had to go through such a horrific ordeal. The more I read about this Topamax drug, the more it scares the hell out of me. Having experienced the horrors of withdrawing all too quickly from meds myself and the nightmares that can follow my heart went out to Jim and your family when reading your story. I wish you all the best. He sure does have angels looking out for him, some above and some here on earth.
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