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I'm 31 and a recovered cancer patient (in remission since 2001). ...

Posted at 4: 8 AM on Jul 05, 2007 by countblockula, #22155
I'm 31 and a recovered cancer patient (in remission since 2001). I've been trough it all. Surgery, chemo, radiation, BMT's, you name it. I currently suffer from three separate sleep disorders, as well as hypothyroidism. As you can imagine, I've grown to become very in tune with my body. And, having gone through everything I have over the years, and having taken all kinds of medications, I have never experienced such dissatisfaction and such a high level of negative side-effects as I have with Toprol XL. My primary care doctor, who is also a cardiologist, put me on Toprol XL to treat an elevated heart rate -- as a result of all my past health issues, my auto-regulatory system is, as he puts is, “just messed-up now.” He started me on 50 mg a day. Immediately, I experienced trouble breathing: I woke one night and felt as though I was drowning. Over the course of about 8 months, he's lowered my dose to 12.5 mg a day. And, for a while, that seemed to be OK. But, recently, the trouble breathing has returned. I'm at a point now where I'm afraid to go to sleep -- the moment I lie down, I find myself gasping for air. All day long, I have a constant wheezing. I can't go up a flight of stairs without needing to sit down and catch my breath -- I feel as though I'm about to faint from loss of air. I spend most of my day with a sensation of being suffocated. I cough frequently, but it gives me no relief. I have noticed other side effects. Notable is the weight gain. I've never in my life weighed more than 145 lbs. I’m 163 now. I was blaming the weight gain on the thyroid, but I'm on a fairly high dose of that medication, and I've yet to experience any loss of weight. I'm gaining, despite only eating one meal a day. I attribute this weight to the Toprol. Also, I have been experiencing moments of extreme anxiety -- this is very unusual for me. I also want to say that never once during all my dealings with cancer did I ever experience depression, and that right there should give you an indication of what type of person I am. Yet, now, since being on the Toprol XL, I find I lack the energy and desire to do much of anything anymore. My doctor seems very quick to dismiss my concerns, telling me, "you need to give this medication a chance." I think 8 months of my life is enough -- I have lost all patience with this medication, and I'm just about losing it with him, as well. I didn't survive cancer and all the other complications that came with it just to have my life brought to a total standstill by a single medication. This is so infuriating. I'm making an appointment to speak with my doctor right away. If he continues to insist I stay on Toprol XL and ignore my concerns, I will tell him I no longer feel comfortable with having him as my primary care physician. I want my life back.
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Reply over 2 years ago on Jul 06, 2007 by harmonytx, #664

I agree with your thoughts, I too want my life back. I've been taking toprol XL for about two years and speaking for myself, the side effects have been as bad if not worse than the problem I was having with cardiac PVCs that were pretty intense. What you've described sounds very familiar to me, and I am sorry to hear about what you've been dealing with.

While my PVCs did get better, I am dealing with a host of other problems I did not have prior to taking Toprol: I've gained almost 20lbs., have trouble sleeping, have to make little lists to keep up with things to do, have moments of feeling dizzy which have made it hard to drive a vehicle, feel anxious at times with no real explanation or reason, lately have had sharp upper left side chest pains that I've never had in my life, feel tired most of the time, and when I tried to cut back on my dosage some of these symptoms got much worse, especially the chest pains. I've read that this is a medication that cannot be safely discontinued without doctor supervision, and I believe it.

If I knew then what I know now, I would have tried to do something else before growing dependent on this medication. All I know to say is good luck to those who really need this medication, and to those who may not, I hope you consider finding an alternative that would be a healthier choice...take care...

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Reply over 2 years ago on Jul 08, 2007 by valharley, #668

Toprol as with other Beta Blockers, lowers the thyroid and blocks it in the body. Your symotptoms sound to me like Congestive Heart Failure in ti's very beginnings caused by LOW THYROID.Atenolol almost killed me when my doctors put me on it for BP when I was extrememly hypothyrod with NORMAL TSH and T4. My BP then was 245/148! It is now 117/72 with NO BP med just good thyroid support! Check this out www.stopthethyroidmadness.com

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