In 1993, my son ( then aged 9) commented that he might need glasses, then never commented again until 2000 that he was having trouble seeing. From 2000 to 2006 he lost the majority of his eyesight, being treated for long periods of time on Prednisone without any significant response. Up to 60mg when the inflammation was severe, coming down to 5mg when it would flare up again. His diagnosis was at first scarcoidosis, then Unidentified Eye Virus and eventually Par Planitis, however they are all medically treated with the same medication, Prednisone. My son, became very psychotic, so much so that he forcefully committed. He became and was physically and mentally incapable of getting or being taken to the Ophthalomlogy clinic to have the Prednisone adjusted, would refuse to take the medication due to the pressure in his eyes and the eye vessel bleeds into his eyes as he said it made him worse. Developed glucoma, has had two cataract, operations. His physical wellbeing was complicated as mental health are not specialised to see the slight warning signs in his eyes that indicate that he needed urgent attention. During this period, he was on Prednisone 15mg and was also in the high security section of the mental health clinic, without memory, always seemed dazed yet when he spoke, he would sit and struggle to drag what he wanted to say from the depths of his memory and would speak very intelligently,when he did. Since 2002, he has been treated for a mental illness. His 18th birthday is imprinted in my brain, he lost his memory completely and the Police services throughout the state. were involved to find him. More time in the mental health unit. Trialed numerous medications for mental health but he never responded as they expected. When he came home to be in my care, he refused Prenisone as he insisted it made him worse. It was all out of control and not a comfortable nor 'prettey' sight watching him go off it. It was sad. He would go into spasms occasionally, have heavy sweats, behaving so unusually that I was frantic watching him 24 hours around the clock. If I had known as much about the medication Prednisone then as I know now, I would have had him hospitalised against his will. I am thankful now that I respected his wishes as his eye condition was no worse off the Prednisone than when he was on it. In 2005, I sent my son to have the amalgan dental filling out of his teeth. A process of elimination in trying to find some miraculous cure in what had become an impossible situation. All the dentist knew was that the patient had a mental illness and I wanted the fillings replaced with another material other than the amalgam. He found that there had been no barriers placed between the old fillings and the flesh in the root canal (1993) and that was where the chronic infection was repeatedly occurring. Surgery cleaned and repaired the damage.The past 4 appointments at Ophthalmology has resulted in good news with the active damaging cells being consistently 'quiet', though in the last visit when I mentioned the dental work, the Ophthalmologist stated that it would have no connection whatsoever. My son's future prospects for employment is not bright though he is always thinking positive. He is overweight, lethargic, has no night vision and is borderline 'legally blind' and has been in a rehabilitation centre for the past 6 months to manage 'a medication' for his mental illness. It also has its side effects which we will have to manage for his quality of life. His mother. Judith
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