| Posted at 9:55 PM on Jul 25, 2007 by marysunshine, #22536 |
I too was diagnosed with the same allery along with my asthma. After a 5 day stay in the hospital and being treated with 5 antibiotics, nothing worked on the aspergillias. So I was put on 80 mg of prednisone and sent home to wean off after the next couple of months. After 10 days I took every 2 days to wean off on my own. My gums receeded, face swelled, eyes like slits, cheeks like chipmonks and one leg swelled. next visit to the dr was told I am not allergic to aspergillias but I must wear a full face mask to garden! Tomorrow is appointment with pulmonary dr and next month I made an appointment on my own to the University of PA Lung Hospital.
Low does of prednisone (5 mg) of pred. never gave me a problem but 80 mg ruined me. Be careful out there!
I am so sorry for what your daughter is going through.You stated that she is having terrible pain in her torso, it very well may be her pancreas as I have found Prednisone can cause the pancreas to become inflammed. Hope things turn out well.
My husband is retired military and we have Tricare standard (had it when he was also active duty). You can go almost anywhere with that. In fact, I am seen at Johns Hopkins Sarcoidosis Clinic in Baltimore, Maryland, for Sarcoidosis (I live in Florida). I have been on prednisone for 3 yrs. Maybe she has Tricare Prime which is bad! You have to have a referral for everything and no one wants to accept it b/c Prime pays very little. Hope this helps!
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