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My then 8 yr old daughter was prescribed ADVAIR when her doc diag...

Posted at 6:58 AM on Aug 09, 2007 by noadvair, #22842
My then 8 yr old daughter was prescribed ADVAIR when her doc diagnosed her with mild asthma. 2 puffs twice a day.She had developed a wheeze during a 5 day rainy spell in our area. I notice the change in her early on. A gifted student, she began to display symptoms of ADHD. Lack of concentration, unable to focus. She became emotional frequently. Gained wieght in a short period of time. Nosebleeds, some so severe she choked on the clots. My daughter chronicled her levels daily, gradually losing lung capacity..she began at 300 on her flow meter and within 6-8wks she was below 200. She began to complain of leg aches, loss breath during ordinary gym activiites, climbing stairs, walking at the mall. I began to search online for forums such as this. I found that ADVAIR was intially to be used in chronic asthma..not like my daughter's mild case. Also, that ADVAIR was known to increase asthma symptoms in some cases,so severely that it was actually almost pulled of the shelves but "saved" when the FDA , instead, allowed for a black box to be printed on the label, stating a warning. I also read that ADVAIR should not be prescribed to children under 12. Many advair users made claims of exact symptoms my daughter was experiencing. Many said that when they went to their doctors with these claims, they were "blown off" or told " you can't prove it". Why would so many doctors take this stance? After 80 pages of comments from users who were athletes, vegetarians, parents, nurses, etc stating their negative effects and prolonged symptoms even after getting off ADVAIR, I called my mother. My mother is 63 and a more severe asthmatic. She had in the last 12 months been to the ER, 5 times. No oxygen, unable to breath, heart palputations, symptoms of heart attack, chronic bronchitis...twice having to stay for 2-3 days. When I told her I was going to wean my daughter off ADVAIR (NEVER QUIT ADVAIR COLD TURKEY. WEAN IT OFF) She told me that she had been on ADVAIR, for the past 16 months.... It has now been almost 2 yrs since my daughter and mother have been off ADVAIR. My daughter regained her lung capacity and actually improved it within 4 weeks of getting off. It took her about a year to lose the wt.Her concentration/focus returned to normal in about 6 months, but I had to meet with teachers to help her adjust. No wheezing, no joint pain, no severe nosebleeds. My daughter has only used her emergency inhaler 2 times last year, once during a field day in high humidity heat and once during flu season. My mother has not been to the hospital since getting off ADVAIR. She did notify her doc about getting herself off and he just looked at her with eyebrows raised and said "what have you been reading?"...He did put her on SINGULAR bec she has to be on medication....I do not know of any side effects she has form that. In my research, I did come across a few ADVAIR users who truly benefited from it. Also some who preferred the pros to the cons they experienced so they were content. I say, if you are lucky enough to have ADVAIR do what it's supposed to , good for you. BUT, if you are seeing an increase in severity of your symptoms please notify your doc, or get a new doctor if they won't listen. Asthma deaths related to ADVAIR have ocurred. The term "RARE" occurence of increase severity of symptoms or death is a misnomer. There are too many users citing this. Please be careful. Listen to your body and GOOD LUCK TO ALL.
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