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I have been a migraine sufferer for over 13 years and have run th...

Posted at 5:49 PM on Aug 22, 2007 by kyndall, #23133
I have been a migraine sufferer for over 13 years and have run the gammut of medications to prevent and deal with them. My mother took Topamax a couple of years ago with disastrous results. I didn't realize, but I guess she was so loopy and forgetful that it was enough to cause my grandmother and stepfather to perfom an "intervention" to get her off of it. So, here I am a couple years later starting it myself, wondering if the side effects are worth the trade off. I'll be honest and say that I love Coke. I mean, loved. Carbonated drinks of all ethnicities taste like slimy metal now. How disappointing. And considering that if I went a day without drinking a Coke, I would get a wicked migraine, I've resorted to putting Crystal Light Energy (Wild Strawberry) in my water to give me the needed caffeine. I've also noted tingling in my face, kinda like numbness. Nothing that is earth-shattering, but noticeable. I get dizzy a lot. I've also lost about 5 lbs since starting the medicine. And today, I could not find the word "prescription" in my mental warehouse. Not a difficult word on a normal day. I've only been on Topamax for a week though. I'm going to give it a good month to see if the side effects dissipate. But if I get any stupider, I'm going to have to go another route.
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Reply over 2 years ago on Oct 17, 2007 by harlie4duke, #2420
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Reply over 2 years ago on Oct 17, 2007 by harlie4duke, #2421

Take my advise get off this Topamax as soon as possible. If you are already getting tingling in the face and numbness it gets worse. I just spent last week in the hospital with a mini-stroke and I am a 55 healthy independent woman with migraines whom is scared to death, This stuff needs to be off the market. Would love to chat with you and tell you all the symptoms I have and am still having. Pam

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Reply over 2 years ago on Oct 17, 2007 by kyndall, #2423

Thanks for the reply. I was on the medicine for a total of 2 1/2 weeks before I realized that I would rather have a migraine that deal with Topamax. Everything came to a head the day I "lost the music." I have played the piano since I was 6 years old (I'm in my 30s). One day at church, after playing for 2 hours, I put a piece of familiar music in front of me and it was like I had never seen music before in my life. There were 2 sharps, but I didn't know what that was supposed to mean to me. The little dots on the lines intending to be music meant nothing. I had to call the chorister over and ask her to put my fingers on the notes to start me off. She knew I wasn't kidding because I had just told her I was having issues with my brain. I proceeded to butcher the song for about 4 measures, because although I could remember the timing and tempo of the song, I couldn't read the music. Then, SNAP, it came back. How utterly embarrassing. I play the piano VERY well, but I humiliated myself that day because the music just left me. I always said that if the medicine made me any stupider that I was getting off. So, I did. Migraines are back (not that they were gone while on the Topamax) and I'm awaiting an appointment with the neurologist. I'll take the headaches any day over losing the music!

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