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My 14 year old son began Lamictal 2 weeks ago for absent seizures...

Posted at 7: 8 AM on Sep 14, 2007 by sherryrn, #23603
My 14 year old son began Lamictal 2 weeks ago for absent seizures, starting at 12.5 mg at night for one week, then 25 mg for one week and then will increase by adding a morning dose at this rate; ultimately to titrate up to 100 mg at night and 100 mg in the morning. The slow increase in dosing is supposed to avoid the life-threatening Stevens-Johnson syndrome (indicated initially by a rash). I have noticed he is moody, angry and tearful now. I find this concerning since it is also prescribed for mood stabilization. He complains of body aches and especially leg pains/soreness. I think his short-term memory difficulties are worsened. He has made comments that he doesn't care if he lives or dies. I noticed that his lymph nodes in his neck and just below his skull are a little enlarged, though he saw his pediatrician yesterday and they are not big enough to be considered outside normal range. I am a nurse, and drew blood work at home today to rule out infection and look at liver function. There are no tests which quantify a therapeutic range for lamictal--it's very individualized. I want to take him off of the lamictal and am looking for alternative ways to minimize seizures, such as exercise, diet, vitamin supplements, omega oils, perhaps neurofeedback, massage therapy, music therapy--any and all things which may help. I feel like my child is sliping away from me with this personality change; I want to find out why he is having seizures rather than just treat symptoms which are the siezures. I'm reading--night and day and will not give up until I am convinced there are no natural approaches which are better than drugs. It's exhaustive to put the work into it, but I think it is necessary. It is recommended that Lamictal be tapered off over about 2 weeks, to prevent siezures--whether you are taking it for this or not. I don't know how his neurologist will respond to this request to take him off. I think it's important to have a good working relationship with your doc. However, in my view a good doc is open to individualized concerns and alternative treatments. My heart goes out to all of you who are struggling with your own problems and suffering side effects. I wish I could do something to help you. In my journey to learn, I will post any things which I discover to be helpful to my son, though they may not pertain to your particular problems, they may also be of help to you. I have learned that seizures cause oxidative stress to tissues, just like an apple browns once you have bitten into it--it does so due to oxidation. Vitamins C, E and selenium may help, since they are antioxitants. Siezures disrupt the metabolism of essential fatty acids, so supplementing with omega 3 and 6 oil may be helpful--these oils also stabilize cellular membranes, because cell membranes are constructed of phospholipids derived from these essential oils. At minimum, I would do these things. Exercise may help, and also a modified Atkins diet. I have always struggled with depression, and nothing helps me other than exercise and eating a diet restricted in simple carbs and sugars. I think this is important for everyone, as this is the way to prevent and sometimes also reverse type 2 diabetes. Everyone should eat like this and exercise--this is the best mood stabilizer of which I know. I think that most illnesses are related to metabolism, and in this day, we are exposed to unhealthy foods continuously and our lifestyles/jobs make it difficult to get physical activity. I believe our bodies are screaming at us to make changes in this, and that is why we are having so many problems with illness in general. I know it is hard to exercise when you are depressed, but if you can do it, you will see the changes in the quality of your lives. Be careful though, becuase the meds you all are taking may put you at unknown risks for injuries that I have no knowledge of. I wish you all well. Sherry I believe that it is best to try to find natural ways to help
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Reply over 2 years ago on Oct 15, 2007 by mmjazz, #2404

My advice is get your son off it asap. Be firm with the doctor. The feelings your son is having are real. Please read my side effect that I just posted. I didn't taper off. I had to make a choice; risk a Siezure or I would kill someone and/or myself.

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