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My Mother was diagnosed with Rheumatoid arthritis 30 years ago. ...

Posted at 3:47 PM on Sep 15, 2007 by rosemiller, #23628
My Mother was diagnosed with Rheumatoid arthritis 30 years ago. She has been on prednisone at low doses since then. About 3 years ago she started imagining things, and hallusinations. About 2 years ago her prednisone dose went up to 60mg a day due to a stroke of the optic eye nerve. She has since been tapering down, now at 15mg a day. But tapering down makes her arthritis more painful. She has developed diabetes, loss of sleep, loss of apetite, loss of muscle tone. When she gets bumped, it's a big opened gash, rather than just a bruise. With the higher dose she was more moody & would get angry easier. The hallucinations & paranoia continue & are making me more & more concerned. I haven't read about this in any of the stories. Has anyone else experienced this side effect? I spoke with her Rheumatologist who suggest a psychiatrist to prescribe anti-psychotic drugs. She's already on 11 pills a day, does she need another? Please let me know if anyone has experienced this as well. Thank you.
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Reply about 1 year ago on Sep 15, 2007 by paperworkfairy, #1817

Hi,

Yes I experienced major psychotic episodes when on was on the prednisone. It was so bad that my psychiatrist told them to get me off it otherwise I would become permanently bi-polar.

They had me on anti-psychotic drugs. It really didn't help that much.

If you can possibly do it get your mother to a naturopath who might be able to deal with the rheutmatism naturally.

I myself take fish oils for my sore joints (as a result of being on prednisone).

It sounds like the meds are driving her nuts. Get her off it as soon as possible but be prepared for major mood swings when she gets off it as her body tries to produce its own cortisone.

I went through hell while my body tried to work it out and I have been off them for three years now and still at times experiences those crazy mood swings which i had on the prednisone.

Good Luck,

Give me an email at paperworkfairy@gmail.com if you want to talk some more :)

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Reply about 1 year ago on Sep 23, 2007 by richard515, #1989

My father also had Rheumatoid arthritis and was taking many pills as well, including prednisone. He became crippled and could no longer run his business and was becoming very depressed. He was very lucky to find out about Dr. Carrillo in Mexicali, Mexico. To this day he is still unsure about what he is taking but he takes one pill a day and has zero side effects and says he feels like a kid again. Also, his asthma is now non-existant and diabeties completely under control. My brother has also recently gone to see him and within one week of taking the medicine that dr. carrillo makes individually for each patient, has noticed that his asthma has dissapeered completely. I would strongly recomend going to see him. Visit www.clinicacarrillo.com, and your mother will have her life back, and it is likely cheaper than what you are paying for med's right now($200-$400/year).

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Reply about 1 year ago on Oct 11, 2007 by bman65, #2344

Yes. I have also experienced these side effects to an extreme degree after only taking for 5 days and will NEVER take this med again. Loved ones of people who take predisone need to watch them very carefully and I wouldn't let a dr "mask" these psycological side effects with other drugs as they can make the problem worse.

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Reply about 1 year ago on Oct 22, 2007 by jewels385, #2509

It's called "Prednisone Psychosis". On "mega-doses" psychotic symptoms are induced, which is one of the reasons people aren't allowed or suppose to be put on such high doses for long at all. That is very disappointing the docs are not only not aware? but are actually creating the problem. When I was hospitalized and had a high dose for the first day or so I was told they will be/need to cut me back right away and then I'd taper off at home. My specialist told me this is a well known medical situation, and they don't fool around with it as a standard practice. Would you consider getting a second opinion? Sounds like medical incompetence to me. Best of luck.

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Reply 2 months ago on Sep 08, 2008 by ralea, #12163

My mother was on prednisone. She was given high dosages in the hospital and her pulmonary doctor had her on it. Later, after she became a widow, I found a doctor who said her condition was not alzheimers, vascular dementia, picks disease but prednisone psychosis. I was told it would take two years to get it all out of her system but they didn't know how long the effects would last after that. I've been to hell and back over prednisone and its effects. I'll be taking her to another neurologist. She's never been the same. I just wish there had been more information about it five years ago. Wish me luck in helping her.
Ralea

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