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I was prescribed 25 MCG tabs of levothyroxine (generic for Levox...

Posted at 1:45 PM on Sep 24, 2007 by maggb1, #23834
I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?
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Reply 10 months ago on Oct 05, 2007 by fsantos1, #2244

Hello, I can understand your dilema. I've been hypothyroid for 19yrs and I have yet to find a doctor that would listen to my issues. I tried "Thyroid Helper" from wellness resources and it helped me eleviate symptoms I was having but I was also taking it with Synthroid. I had to have my synthroid dosage lowered a few times, so I do believe that thyroid helper works. It helped me function better.

Good luck and best of health!

fsp@umd.edu

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Reply 10 months ago on Oct 07, 2007 by lindasue645, #2268

hello, i have graves disease and i have been sick for about 3 years all the doctors say its in my head and i no its not i no its the levothyroxine im on i take 75mcg

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Reply 10 months ago on Oct 15, 2007 by dirich, #2394

I have been taking Levothyroxine for about 1-1/2 years, do not have the side effects that you do. But, my doctor had to change my type of medication plus my dosage multiple times until we found one that seems to work. Thyroid helper is meant to nourish your thyroid, but is not a replacement for the thyroid hormone. It is possible for your thyroid to heal sometimes, but not usually. If your doctor doesn't listen to you or care about how you feel on this medication find another doctor. Life is too short to be treated like that. My doctor listens to every complaint and symptom and goes out of her way to work with me about it. It can be hard to find a doctor like that I know, but don't give up. You may just need to be on a different type of thyroid medication and you will feel fine. Go to a website called "about thyroid.com." They have a reference to help you find doctors that prescribe natural thyroid hormones such as "Armour Thyroid." If you need thyroid medication and you don't take it, it can cause all kinds of problems for you down the road. If you get on the right medication you may be able to take the Thyroid Helper and it possibly will allow you to decrease your dose. Be proactive about your health don't let one doctor bully you into giving up. Read all you can on the internet and find out about different types of medications and dosages, and what doctors will work with you. There is an answer out there for you.

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Reply 6 months ago on Jan 28, 2008 by halo096, #4433

Hello and bravo! Iwas diagnosed with hypothyroidism about 2 years ago. I was started on Levoxyl 25 mcg, then the pharmacist switched the prescription to generic, saying there was no difference. All the while, I was experiencing the same side effects as everyone else, albeit on the mild side. Then, my hair loss seemed to have picked up about 3 months ago, so I switched to Synthroid. My hair is not shedding quite as much but I am gaining weight, bloated all the time -- my symptoms are worse. So, I decided on yesterday to try a holistic approach for a while. I am trying Thyroid Support, and am cleaning up my diet a bit and will resume my daily workouts. Have you had any success without taking the prescription med? Please let me know. Thanks.

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Reply 5 months ago on Mar 13, 2008 by christy39, #5515

I am on 25 mcg of levothyroxine I have chest pain, Doc says it is unrelated. I am looking for a different way of controlling hypothyroid

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Reply 4 months ago on Apr 03, 2008 by firefly69, #6596

I originally came to this site looking for info on Synthroid rotting teeth and I came across your entry... I too have noticed new aches and pains... So much that I've wondered if I could possibly have another condition.... lupus, etc... Seeing your entry makes me wonder... I've been on Synthroid for 2 & 1/2 years now.... I only take 25 mcg per day... I have a slightly underactive thryroid... Did you ever find any other information on this?

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Reply 3 months ago on Apr 28, 2008 by pepa, #7705

I'm taking Armour (45) but still feel sluggish much of the time. I did try Thyroid Helper one time and it made me dizzy. However, I'm thinking about trying it again because I feel that it was possibly something else that was causing the dizzyness. I have hashimoto's and am not sure if that would mean something different. Or whether i should reduce the Armour. Any thoughts?

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Reply 7 days ago on Aug 14, 2008 by alphaman, #11101

maggb1, the symptoms you describe are NOT consistent with any reported side effects of synthroid/levothyroxine. It sounds like you may have been sick with a mild flu or some other "bug" or virus that lasted 7-10 days (not unusual for a virus).

All the other "alternatives" listed that I've been able to find have been nothing more than alternative formulations of the same thing. And if your T4 is low, there's nothing but T4 that will raise the levels.

Taking a doctor's recommendation based on a blood test that you need to increase your T4 levels, but then ignoring his recommendation on how to increase that T4 by attempting to medicate yourself with "alternative medicines" is inconsistent and destined to failure. Work with your medical professional, not against him.

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This registry is a place to share positive or negative side effects of using Levoxyl. If you directly experienced a side effect while using Levoxyl, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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