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Hello, everyone. I didn't know there was a page like this, but I...

Posted at 6:48 AM on Oct 24, 2007 by justforkhix, #24539
Hello, everyone. I didn't know there was a page like this, but I'm glad there is. I've been on Topamax for 3 weeks because the medicine I was on for 2 years didn't do anything and the headaches weren't going away at all anymore; they were continuous. The first week at 25 mg I had the tingling for a day or two, the involuntary muscle twitches, the terrible mouth taste, and the chest pain. All but the terrible taste went away by the second week at 50 mg but I started getting wobbly legs and dropsy. I read an article somewhere where a person on Tomamax called the drug Stupamax or Dopamax and said anyone on it turned into a box of rocks. The box hit me at 3 weeks and 75 mg. I'm not wobbly anymore, I'm still irritatingly dropsy, and I am doing things that only a person with half a brain would do. Plus, my ears have been ringing for two days, and today I feel like I'm in a tunnel and everything is far away. I'm getting ready to call my doctor. On the OTHER hand, I haven't had a headache that lasted for more than a half hour in 3 weeks. So what's best? Going back to headaches or continue to evolve into a box of rocks?
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Reply over 2 years ago on Oct 24, 2007 by sickofmeds, #2549

I would probably say the headaches. I have been on Topamax for two days. I feel like I haven't slept in a week. I have been prescribed it for seizures. I am currently transitioning from Trileptol to Topamax. Since I am on two medications it is hard for me honestly comment on the Topamax. I can say that coke taste terrible now! I will comment again in a few weeks if I continue to take the Topamax. I have read so many horror stories that it kind of scares me to continue to take it.

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Reply about 1 year ago on Jul 27, 2008 by gemmygirl, #10491

I don't know if this is related but I have been on Topomax for 3 months and suddenly my mouth is raw. The skin is all broken around my lips, inside my mouth and I suddenly have really bad asthma! I was thinking it's eating away my tissues or something??? Very weird. I know my doctor is going to think I'm nuts and just say "no you just have asthma." But I'm 47 years old, why would I suddenly have severe asthma? I have restless leg syndrome but Topomax makes it 5 times worse. The good thing is weight loss! Hooray! I've lost ten pounds. I don't want to go off Topomax because I take it for migraines. I was needing my Maxalt (migraine medicine) literally every other day but they would only allow nine pills a month, not enough for every other day. It controls my migraines pretty well. What to do, what to do....

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