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I was put on Lipitor in 2004 and didn't realize what was happenin...

Posted at 4:53 PM on Oct 26, 2007 by althea88, #24605
I was put on Lipitor in 2004 and didn't realize what was happening to me-I thought I was just getting old. (I'm now 66) I went from a very active person to one who struggled to get out of the car and my entire body ached. I was constantly tired, I had trouble putting thoughts together. I would sit at the kitchen table and cry because I felt so awful. I started losing my balance and falling down. In one of my falls in December 2006 I injured my left hip. I went to a chiropractor to see if he could help relieve the pain in my hip. While going over my symptoms and medications he pointed out that the Lipitor I'm taking could cause most of my symptoms. He suggested I call my doctor and talk to her. I did and she said that Lipitor could cause severe muscle aches-she wanted to do a blood test and said that I could just go off the Lipitor. My blood test was normal. That was in March 2007 and I have been off the Lipitor since. The fatigue and muscle aches have gone away. I still have the hip pain (bursitis) and have been going to physical therapy for that. My memory is improving but I still have to concentrate, repeat names and write things down trying to remember. I'm trying to lose weight (most of it gained around my middle). I go to the gym and exercise to try to build my muscle strength. I'm not tired all the time, I've read that the symptoms can last a long time and sometimes may never go away. I've been told by the doctor that if my cholesterol is up at my next visit that she wants me to go back on Lipitor. She also said that if it had been the Lipitor, the symptoms would have gone away right after I went off the Lipitor. I will absolutely refuse to go on any Statin-I cannot take the chance of feeling so badly again.
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Reply over 2 years ago on Nov 01, 2007 by newbe, #2699

I totally understand your situation. I am a 61 year old female who had been on Lipitor for 5 years (10 mg/day, 1999 - 2004). At first I did not associate the side effects because they came on so slowly. I assumed my joint, foot and leg pain was due to aging and I was on the statin for about 3 years before the pain became unbearable. In March 2004 I made an appointment with a podiatrist because of the foot pain and he sent me to a neurologist who diagnosed neuropathy. After the neurologist completed all the tests to rule out other disease he determined the neuropathy was from an "unknown" cause and prescribed Neurontin. After taking Neurontin for one week I decided I did not like the side effects of that drug and researched the internet to see if there were other options for treatment of my neuropathy. Instead of finding alternate treatment for neuropathy, I was very surprised to find all my symptoms may be a side effect of Lipitor and I made a personal decision to discontinue Lipitor on 3/17/04.

AFTER BEING OFF LIPITOR FOR 3.5 YEARS the one side effect that remains is NEUROPATHY.

i.e. burning, shocks, numb and very painful toes, pain on bottom of feet, unable to stand for long periods of time or walk any distance,

OTHER SIDE EFFECTS THAT HAVE VIRTUALLY DISAPPEARED ARE:

1 Severe cramps in calf of leg (worse during night)
2 Painful joints and a knee that would ‘lock up’ and unable to bend.
3 Difficulty getting up from sitting position or out of a car – needed to push/pull on something to get up.
4 Severe Psoriasis on hands and arms that required cortisone shots every few months. I had never had psoriasis before I took Lipitor nor after I stopped the drug.
5 A tremor in my neck that allowed my head to ‘bobble’
6 Unable to bend my toes due to extreme swelling in the ball of my feet. This swelling has decreased significantly since stopping Lipitor.
7 The burning in feet has diminished significantly – I used to need ice packs on them to cool them down.
8 Weakness in my arms and legs – I was unable to lift more than a few pounds while on Lipitor.
9 Blood Pressure went down from 90+ to 70-80 without any change in diet, weight, or other medication changes.
10 Increased Sinus infections/raspy voice.
11 Mood Changes
12 Thinning of hair (especially on top) – it continues to get thicker since stopping the drug.
IN THE PAST FEW WEEKS i HAVE SEEN SOME IMPROVEMENT IN THE NEUROPATHY. I AM NOT SURE IF THAT IS DUE TO THE LENGTH OF TIME OFF THE DRUG OR THE 200 MG OF COQ10/DAY I STARTED TAKING ABOUT 3 MONTHS AGO. I CONTINUE TO HOPE FOR A FULL RECOVERY AND WILL NEVER TAKE A STATIN AGAIN!

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