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I was taking Danazol for 20years in alow dose for pressitant brea...

Posted at 10:23 AM on Nov 20, 2007 by avrilhall, #25141
I was taking Danazol for 20years in alow dose for pressitant breast pain. I gradually began to suffer from muscle pains for no apparent reason. My doctor immediately stopped the Danazol, although wouldn't admit they were causing the problem. I ''fell apart at the seams''. None of my muscles worked properly, I had extremely high blood pressure, could barely walk, I was in constant pain and had to have massage for 2 hours per day. My eyes ached, I couldn't control my bladder and bowels very well. I thought I was going to die. My doctor sent me for numerous blood tests, endoscopes etc. But said I was depressed. I was depressed, because I felt so ill ! Its now 4 years since I stopped Danazol and I feel it has caused long term damage to my muscles. I have tried everything from massage to supplements. Things have improved a great deal, but I find it difficult to exercise as I tire very easily and particularly my back muscles seize up even after sitting for any length of time. Has anyone else been on a low dose of Danazol for this length time. Have you suffered?
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Reply about 1 year ago on May 30, 2008 by cunswort, #8760

Thank you for your posting regarding Danazol. I took it for nearly 14 years to curb PMS. It was wonderful, I probably never so good. Suddenly my cholestrol began to act up. My bad cholestrol was too high and my good cholestrol was practically non-existant. When I tried to get off it my periods returned very heavily (I was 58yrs., old) and so did the PMS. Finally I tried one last time and it was okay. No periods and no PMS (I was 60), Last year my doctor put me on Lipitor for my cholestrol. After about 10 months I began to have serious muscle pain and weakness from head to foot. Especially in my shoulders and neck. I cut out the Lipitor because that is one of that drug's side effects. Well it's been over a month now and this past two weeks has been awful. I can hardly get out of bed in the morning. Everything aches and hurts right down to my fingers. I am active and work in a factory so I am quite busy all day and early evening. I have tried all OTC drugs for relief and nothing helps except hot baths. Today a friend suggested I try magnesium so I bought some at the drug store. I take epsom salt baths every night. Next week I am off to the doctor. Any better remedies out there would be appreciated.

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