Welcome to Medications.com

Hi All, I am a 37 year old mother of 4, with a history of severe ...

Posted at 11: 4 AM on Dec 19, 2007 by hemimigraines, #25759
Hi All, I am a 37 year old mother of 4, with a history of severe Hemiplegic migraines (up to 14 a month). I've been on Verapamil and Topamax for 7-8 months with a gradual increase of the Topamax to 150 mg a day. Before I start writing this I have to preface it with two things: First, Before Topamax I was one of those women my friends refer to as a "Supermom", I home school my kids and used to love it, we normally have a lot of fun and I have a successful, happy marriage. Second, on Topamax, I went from 14 migraines a month to 0. It didn't happen over night, they went away as we ramped up the dosage, but for the last few months I have had no migraines, I can feel it occasionally when my head is fighting one off, but nothing an Advil won't stop, and for those of us who've lived with trying to care for kids while having migraines (especially Hemiplegic) you may understand why I initially put up with the following: I started out with the tingling in my hands and feet (that went away in a couple of months), word finding difficulties (which never really went away, I just learned to accept it),occasional blurred vision which never lasts very long but which has been an issue the entire time I've been on the med, and weight loss ...I am 5'4" and was only 118 lbs to start with, and have nearly "disappeared" into a size 0 and 105 lbs, and it doesn't matter how much I eat, I've been trying 3 meals, snacks, cookies, candy, you name it, I can't gain weight. I was never nauseous, no diarrhea, I just don't get hungry... I had to start wearing a watch at one point to remind myself to feed the kids, because if they didn't ask, they weren't getting lunch until 2:00 because I wasn't getting hungry! Soda does taste like metal (fortunately I don't drink it normally anyway), and you do get loopy with one glass of anything alcoholic. Then to add to the lovely appearance of skin and bones, my hair is falling out. Before Topamax I worked out regularly, I am even on commercials for my gym (recorded a year ago), since Topamax, I was so tired, depressed, and so afraid of losing weight that I stopped working out. Now a woman who has always made it a goal to set a good example for my daughters that a fit body is the goal, not a thin body, has her mother in law telling her that she looks "bulimic"! In August I noticed I was crying a lot, then I thought well, maybe it's the Topamax, so I started drinking more water and it went away... so I've been very careful to drink A LOT of water and only decaf tea while on this med, but apparently that wasn't enough, because a few weeks ago my husband pointed out that I stopped showering every day. I have been crying at the drop of a hat for a couple of months again, and I have never been someone to cry in public, I have even started crying in front of my daughters friends' mothers and near tears in front of her teacher over the littlest things... then last weekend I found myself with four hours to myself in my house for the first time in months and I was thinking about how I might be able to use it for unspeakable things like running away, or worse... if those aren't signs of a pretty severe depression I don't know what are, fortunately I recognized them and put them together with the memory problems, etc. As for the memory loss, there have been problems with that for months as well, my daughter has been telling me I "have a bad rememberer" , This weekend everything culminated and other people were recognizing the memory issues that I had been keeping private until now (including my husband). Before that, I would be in the kitchen cooking and forget what I was doing, I went to drive to a party this weekend and forgot where I was going, so I called a friends husband and he had to tell me four times where to go before I could retain it (at first he thought I was joking) and then I still couldn't remember the name of the place, only the # and street, I haven't been able to remember routes to places I used to drive... I'll find myself sitting at a light not sure where to go, and making mistakes with our money because I forgot whether I did or didn't pay a bill (something I've never done, we have always had excellent credit). On Topamax I went from feeling like an attractive, successful, good mom,with a happy family... to constantly stressed, even by things I had previously enjoyed doing, and a completely depressed failure... but I had no migraines. I have now been weaning off the Topamax for a few days. I was playing phone tag with my neurologist... so due to the urgency of the problem I took myself down to 100 mg a day. I have since spoken with my neurologist and I am going off of it completely... by the way don't ever discontinue this med without ramping off of it, doing so can cause a seizure. I am unbelievably grateful that I put 2 and 2 together the weekend I had time to myself and got lost going to the party and I already feel more awake, less tearful and depressed... I know that things will be ok anyway. I hope that anyone reading this who is having memory or emotional issues on Topamax and just brushing them aside (because they don't want to risk going back to the migraines or whatever), will get off this med. Please realize that this med could have cost me, my kids and my husband a lot more than my migraines ever will. I have never experienced depression before Topamax, and I can't say that I'm completely back to myself yet, but I hope that when I am off this med I will find normal again, and I pray it will be without migraines, but I know that I wouldn't wish these past few months that I've put myself and my family through on anyone. Now, I need to go take a shower :) , then I'm going to my neurologist to pick up some 25 mg samples to continue ramping off! Good luck to you all!
REPLY TO THIS POSTING | Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Dec 27, 2007 by jodilynne, #3659

Good for you!! We have the same situation. I feel the same way you do. You wrote my story..almost to the letter. I am a Realtor and I sold my neurologist and wife a home and he was able to see my confusion in acion. :o) I have severe muscle aches and pains, too. I was on 200 mg/day...will go off with his help...btw....go to www.imitrex.com...$25 of coupon. I did. Have a great new year! Jodi

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Jan 12, 2008 by jenniferstuart, #4020

This is my exact story can you email me I need to talk to you. jenniferstuart853@adelphia.net. I am a mother of 3 36 years old on 150 mg og Topamax for almost 2 years and I am so depressed. I used to be happy. Please contact me so we can talk. Your story just made my day

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Jan 24, 2008 by stacy03, #4327

I have to tell you THANK YOU THANK YOU THANK YOU. I thought I was alone until I read your post. I was on Topamax for 2 weeks and in that time had taken an over dose of pain meds, banged my head on a counter, and cut myself with a razor blade. I cried all the time, was angry, depressed and thought I was going plain crazy. It got so bad my doctor wanted to put me into the mental hospital to monitor me. I have NEVER felt that way before taking Topamax and thank God everyday that I have been taken off it and that he was watching over me and you so that things did not get any worse.

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Jan 25, 2008 by hemimigraines, #4340

Since writing this blog I have been contacted by the three women here, and another woman locally who have had the same side effects as I had on Topamax, and all have felt better as they weaned off and eventually stopped taking the medication. As for me, I am back to normal, my weight has stabilized at 110 lbs, I am back to the gym, and back to a happy life with my family. Unfortunately my migraines have returned, but they are less severe than prior to the Topamax, and with no neurological deficits so far. I saw my neurologist today, and he increased my Verapamil to see if that helps. I have also been given the names of several organic daily meds by a physician friend of mine, I will try them and see how they work, then post them if they have decent results (I don't have the names with me right now, sorry). Good luck!

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Feb 15, 2008 by nancy13, #4862

Hi, I was so touched by your story. I hope you are feeling better now. I am a very young 67 and am having all the same symptoms as you are on Topamax, including hair loss, memory problems, forgetting to pay bills!! Yikes, I never, ever did that before. Sometimes can't remember where I'm supposed to be. I am only on 50 mg. daily but started weaning myself down to 25 mg and will call my doctor tomorrow. I can't live with the hair loss - it's making me more depressed than I already was! Thank you for your honesty. Be well, Nancy

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on Feb 19, 2008 by duncana2002, #4949

Oh my gosh! When I was reading this, it was like I wrote it! I too have battled migraines forever and have tried Topamax 3 different times. You should read my posting I just wrote. Although I didn't even get into my whole "inner" battle with depression and crazy suicidal thoughts I've had on it! I've even had a couple of drs. diagnose me with Bipolar and try to give me more meds. but they made me feel worse, so they decided I wasn't! I never had these problems before and was a happy, healthy, hyper person! I will find another way to deal with the nasty migraines as it's not worth it! By the way, I have had to re-type so much of this as I am so brain-dead these days... duncana2002

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 month ago on Oct 21, 2009 by granades, #23719

hello I sit here and read your postings and I'm horrified. My 8 year old son was given Topamax. None of these side effects were brought up by his doctor. but i weaned him off of it when he started getting most of these same side effects. He would fear the smallest things which he wasn't like that before. All the side effects got worse and worse so i slowly took him off of it. It has been 3 months since he stopped taking it but here recently he's getting migraines again. It saddens me because he gets them so bad it makes him vomit. He has had about 3 within the month. Has anyone found anything else that helps with the migraines but doesn't have so many side effects? My baby is hurting but I feel like the Topamax is worse....please help if you can. Thanks

Private Message me | Add as friend | Flag as inappropriate

Make a reply to this posting:

Type your reply to this side effect post:


Medical advice disclaimer
© 2002-2007, Skylabs Inc.  |  About Us  |  Disclaimer/Terms of Use  |  Advertise  |  Contact Us  |  Site Map  |  Developed by: W3matter.com | Sleep Apnea