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I have being taking thyroid medicine since 1994. I was diagnosed ...

Posted at 5:19 PM on Dec 27, 2007 by c4d2b6g911, #25895
I have being taking thyroid medicine since 1994. I was diagnosed with Hyperthyroidism and prescribed Synthroid. It didn't work. Instruct to take radioactive pill. Now, diagnoses change to Hypothyroidism. Prescribe Levoxyl. Endocrinologist said I would lose weight, but instead I have gone from a size 8 to 16. I feel really bad when I miss my doses. Really anxious when I take it every day. I am noticing that I have moles growing out and spreading all over my body. Switch back to Synthroid three months ago. That when start experiencing a great deal of hair loss. Decide to switch back to Levoxyl but a lower dose. The hair loss has slowed down a little. But, hair is growing slowly. I am having problems focusing and some memory loss. I really don't know what to do. I have change endocrinologist twice. I really think that Levoxyl and Synthroid have bad side effects on human after long term usage. I am miserable because I can't control my weight. I know that it has something to do with this medicine. If anyone know of some other medicine that would Hypothyroidism in check without all of the side effects that I mention. Please share it with me.
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Reply about 1 year ago on Jan 04, 2008 by lillypad30, #3816

I agree to the bad side effects. I had RAI on 8/30/2007 - that week my life changed. None of my friends/family and my boyfriend understand how terrible I felt and am still feeling. My friends think Levoxyl is like an antibiotic and in 3 weeks I am done with it. It's hard to explain the joint aches and pains, stomach pains, acid reflux, blurry vision, thinning hair, burning skin, headaches, tiredness, etc., and it's all over my entire body. One doctor told me that I have transient pain.

I had to change my diet and what I can eat and when. I have alot of trouble going to sleep and getting up in the morning. My Endo also says that I have "other problems" causing these symptoms. Seems like they are there for life. What kind of quality of life is this? I've been reading alot of blogs and everyone has the same group of symptoms and everyone's Endo seems to think it's NOT the Levoxyl. Are there any doctors who take this into consideration?

You are not alone in how you feel. I wish a had an answer, but I am also searching for many answers myself on this.

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Reply about 1 year ago on Jan 30, 2008 by derekleeann, #4475

i went on levoxyl a year ago and I feel I have aged 30 years. I am 46 and recently diagnosed with hasimoto. I have gained 50 pds in 3 years. I am trying armour (natural pig thyroid) next week. I read reviews and it is very positive.
Take iodine drops daily with thyroid problems. Also adrenals get fatigued and I take extra calcium and potassium due to pain and cramps I am experiencing.
Synthroid and levoxyl do not have both the t3 and t 4 hormone. Armour does. Your doctor will tell you that you will convert it, but it is baloney.
My father has been on synthroid for 30 years and he can hardly walk and just got diagnosed with Parkinson's which someone posted that a lot of people get that is on these meds.
Do not listen to your Dr on these meds. There is research done in the 70's due to so many side effects on synthroid. It was almost pulled by fda. they will tell you armour is hard to regulate, but the studies say the opposite.
I will post how I am feeling in a few months after trying synthroid.

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Reply about 1 year ago on Feb 24, 2008 by dmroorebin, #5076

What doctors dont tell people that are taking synthroid is that they should also take calcium because the synthroid interfers with the bones, mass, and density. So start taking calcium with magnesim and Vitamine D for good absorbtion, it really helps good luck.

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Reply about 1 year ago on Mar 02, 2008 by barb973, #5242

I will be off synthroid for about 5 weeks and then will be trying the Armour. I was suffering from very deep leg cramps and cramps in strange places - e.g. spine, groin, etc. The doctor lowered the dosage and it did help with the cramping but the thyroid is still very inactive. I am almost 200 lbs. and climbing. I stayed on a diet for 6 weeks and lost 1 lb! I am always hungry. It is been a steady weight gain since I became menopausal about 5 years ago.
I am desperate to lose the weight. I can't stand to see pictures of myself. I do yogo every morning and weight training 2 x a week. I don't want to focus on this stuff and want to get on with my life. I am really hoping the Armour will work. I too was told that it wasn't used much today because it was inconsistent. However, currently my doctor is willing to work with me.
So I hope for some better results during the following months.

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Reply about 1 year ago on Apr 06, 2008 by dballard, #6738

I am having all of the same symptoms on Levothyroxin. When told I had "slightly low levels" by a doctor, I told him I do not want anything synthetic and I want very low levels because I am very sensitive to medicines. Instead he gave me Levothyroxin at 50MCG.
After four months on Levothyroxin my naturally blonde hair has gone from long and thick to short and very very thin, I wake up sometimes with legs cramps so bad I can hardly bare it, and my body has aged horribly. I AM GOING OFF! I am so angry over this. But I need help doing this. My plan is to wean myself off (every other day; every three days and so on) -be VERY strict with my diet and supplements and I have added a thyroid helper supplement from the health food store. I do not want to go on Amour-people; it is made from pig thyroid-that can not be good. I also have noticed a reaction in my family over milk products so that will be a part of my regiment. I live in the Dallas area ( but am willling to travel)and need a good holistic MD to help me wean myself. As has been stated, it does no good to go to most thyroid specialists. Any knowledge out there on this process?

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Reply about 1 year ago on Nov 26, 2008 by sweete1017, #14838

This is crazy reading all of this, I am 29 and am taking well was taking Levothyroxin to regulate my period so me and my husband can have a baby. Let me tell you I am miserable was going diarrhea at least two times an hour, Most of my day I feel nausea, lots of terrible cramping in my legs side and back....I feel like an old lady. The worse part is I am a newlywed....my husband asks me everyday if I love him. I have no energy to have fun with him and feel to sick to leave the house for more than an hour.
Spoke to my doctor he says take it at night. So instead of my day being all bathroom trips my early mornings became miserable woke up usually between 4:30am and 6:00am with more nausea and diarrhea. That just made me tired all day. Spoke to him again he made it seem like it is normal. Decided to stop taking it, my relationship was falling apart and my whole life really. Now I feel better I can leave and not have to worry if I can make it to a bathroom.....
Spoke to my grandma tonight and she was yelling at me, telling me you can't just stop taking a thyroid medicine and pretty much scared me into taking it again.
Like another person who commented on this I am angry too. I am so scared and all I want is to be a mommy.
Can someone please help me with this, what should I do?
thanks a bunch

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