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Having the Mirena IUD put in was the worst thing I have ever done...

Posted at 9:37 AM on Dec 29, 2007 by goodyearchic, #25928
Having the Mirena IUD put in was the worst thing I have ever done to my body! I am 33yrs old, have 3 kids - 9, 2 1/2, 1 1/2. They told me to come in when I started my period because it would be easier to insert, so that's what I did in early November 2007. (Since then, I have had non-stop bleeding or spotting every day.) I didn't have as much pain as some people have described, but it was more uncomfortable than I expected. The next day I developed a bad, bumpy, itchy rash on both of my legs from my ankles to just above the knee. I thought it was just a fluke, and it starting going away after two days. It was gone within a week. I started having very bad mood swings - angry, short-tempered, irritated, irrational, paranoid, and I wanted to cry over everything. (I normally don't cry over anything - I am not an emotional person.) I got a few deep, itchy pimples on my face, which normally I don't get either, but I figured I just needed to get used to the hormone. Then, my upper back and chest started itching really badly the second week, and I got pimples all over those areas - I have only ever had them at about age 13-14 and not as bad as I do now! I became fatigued, and I have gained 5 pounds. Don't get me wrong - I have been eating everything in sight, but I feel terribly hungry half an hour after I am done eating. So that part is my fault, but I'm not used to be being hungry all the time for no reason. I have religiously gone to the gym 4-5 times a week for an hour and a half a day for the past year and a half. For the past two months I have gone twice a week, and struggle to make it an hour. My endurance is terrible. My muscles - particularly my legs - burn like I've had long strenuous workouts, which I just mentioned is not the case. My sex drive - NONEXISTENT. Luckily for my husband, I know it's a side effect and haven't told him - he would probably take it personally - so I just go along with sex when he wants it. I finally had to get over the fact that I had non-stop spotting, but sex is not enjoyable when you feel self-conscious, and no foreplay because of the spotting if you know what I mean. (Sorry if that's too much information but I'm sure some of you can relate.) My husband was also not thrilled about the strings - I wouldn't be either if I was him. I had a non-stop migraine for 9 days straight - I maybe get two of them a year before Mirena, and they last about 3-4 hours. I normally have 20/15 vision - better than most people - and I found I was struggling to see things I normally could. I have been occasionally nauseous, but that has been minimal. My breasts have been sore. I am sure I am forgetting other effects, but as you can see the picture here is pretty grim. I went back to the doctor three weeks after insertion, and he told me that he couldn't tell me what to do, but that it is not rational to expect to feel perfect after 3 weeks, and that most people adjust just fine after about three months. He further explained that he has personally put in several hundred, and only one person has ever wanted it removed. He said my "side effects" probably had other causes and this was coincidental, and that the few that could come from the Mirena would settle down. Well, for the next month it got worse. Yesterday, after working a 12 hour graveyard shift, I forced myself to stay awake three more hours until the doctor's office opened. I went in with no appointment, and told them I would sit there all day if I had to, until it was removed. They managed to fit me in with the nurse practitioner, and she also asked if I was sure I didn't want to give it one more month to settle down. After reading everyone's stories on this site, I was pretty sure that was pointless. So she removed it as I asked, and at least treated me with respect and didn't try to tell me it was in my head ( like the doctor did.) She said it could take up to 20 days to get the hormone out of my system. (Which is funny, because when you get it inserted they tell you the hormone acts only locally within the uterine area and doesn't get into your "system" - LIES!!!) Well, I went home, went to sleep for 4 1/2 hours before I had to be back to work for another 12 hr shift. But guess what - even after getting little sleep, I felt much better than I had in two months. My headache was gone. While sitting at work, I noticed I could see things at a distance again. I had a pretty stressful night, and not once did I feel emotional. Just a little tired from lack of sleep - but it was worth it!!! I am almost 24 hours from when I had it removed, and see a light at the end of the tunnel. I hate to sound pessimistic, because I wanted really badly for this to work out. If anyone tells you what you are feeling is in your head - or has another cause when you know the symptoms started at the same time you got the Mirena - DON'T BE BULLIED. They will try to make you feel like you are the only one complaining, but you're not. There are many of us. Trust me on this one - you will feel better if you get it removed. If you are reading this and haven't gotten it yet - keep this info in the back of your mind. If you want to try it and it works out for you, great! But if it doesn't, don't stick it out any longer than you have to. I also extend my sympathy to those of you that had it in longer than I did and are taking longer to recover, especially those who have experienced traumatic pregnancies and miscarriages since. I hope you take some comfort in knowing your stories have helped me make a great decision - having it removed. I also had a friend read all of your postings because she was considering this as well - she has since changed her mind.
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Reply 8 months ago on Dec 29, 2007 by claudia1969, #3692

Could I please have your permission to post your story on my Dutch mirena forum? I'm trying to warn others for this device. Your nickname will be mentioned there as well as the medication.com site. I'm sorry you had to go through all this. Take care.

Kind regards,

Claudia.

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Reply 8 months ago on Dec 29, 2007 by lmt487, #3708

I am so glad to read I am not the only one having the exact same problem except the first time I went throught the 4 months of torture and surgical removal of a cyst- I had a new one put in 3 weeks ago and within 2 weeks of crying, raving like a lunatic , headaches etc. etc I demanded they take it out and had to really push the issue. I am glad its almost over- its out and the real me is making bigger and bigger appearances.

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Reply 8 months ago on Dec 31, 2007 by jcales, #3740

I had my mirena inserted on November 14, 2007 and every since I've had headaches, fatigue, and a bad rash that looks like contact dermatitis but will not go away no matter what I do. The doctor prescribed me a creme for the rash, (which appears mostly on my arms, legs, and stomach) and the creme does nothing for the rash. I bled for a solid month, before getting a break of about 4 days and then it was another visit from good ole aunt flo again. My sex drive is non existent, and my husband thinks I'm not attracted to him anymore. I could deal with the rash, the bleeding, the headaches, the fatigue, but the lack of sex drive is causing us marital issues. I'm afraid mirena will damage my relationship beyond repair.

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Reply 4 months ago on Apr 14, 2008 by mnmhughes, #7164

I was so glad to hear of your experience! I've only had my Mirena for 10 days and the bleeding has gotten heavier since insertion. Also the pain started as discomfort from day 1 to SO MUCH pain in my pelvis, hips, and back now on day 10 that I had to go to the Emergency Room because I could barely walk/move due to the pain. They did an ultrasound to make sure it hadn't perforated my uterine wall, it hadn't, but then they went in to find the strings and pull it out....guess what...no strings. They called my GYN at home and she said "Oh that happens, sometimes the strings migrate back into the uteris" (news to me, didn't know that was even a possibility) so I have to go in tomorrow to her office and hope she can "fish" out the strings, if she can't I get to have it surgically removed...LUCKY ME! I've heard nothing but how wonderful Mirena is from those who have it, so great for those people.....it is definately not a "perfect fit" for everyone. If it doesn't feel right, get it checked/removed, don't just deal with the problems!!

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Reply 4 months ago on May 01, 2008 by wifey580, #7825

oh wow. i have had mine for a year. since april of 2008. i swear i was tripping. so i have stuck it out. thinking i was a cry baby. they say the irregular bleeding stops after 3 months. nope a year later i have blood that just rushes out all of a sudden every evenning. no joke. now i am pregnant and looking up information to see if i am the only or one of the rare to get pregnant. this is point blank BULL SHIT!!!! why do the doctors lie to us about these iud. i am really upset because i already have 4 kids and i am bipolar. and i already have serous mood swings. but have been suciedal the last six months. i thought i was tripping. i knew it was the iud. i knew it. sex. i hate sex now. i use to consider myself a nemfo. something has to be done. they can not contiue to claim this as a safe birth control.

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This registry is a place to share positive or negative side effects of using Mirena. If you directly experienced a side effect while using Mirena, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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