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I have been taking Levoxyl for 1 1/2 yrs, I had my thyroid remove...

Posted at 9:41 PM on Jan 04, 2008 by tx1234, #26081
I have been taking Levoxyl for 1 1/2 yrs, I had my thyroid removed due to severe hyperthyroid. In the past year, I have been getting pains and weakness in my hands. It is so bad now, I can't open a jar or lift a frying pan. It hurts sooo bad. My legs hurt and my knees have real bad joint pain. The funny thing is, it's not every day and not always both knees. It is however all the time in my hands. Last week I went to an Arthritis specialist in San Antonio. He ran every blood test avail. Tested for Rhum. arthritis, Lyme disease, AA, and all kinds of stuff. He x-rayed my knees and injected cortisone in my knees and hands. - that hurt - He found nothing wrong! I searched on line tonight for "Levoxyl and joint pain" and this site came up. Boy am I glad I am not the only one who is questioning this horribly possible side effect. Oh, I also have memory loss. I feel like I am 80 yrs old. Just to make sure you know what type of person I am, here goes: I am fit, active, 37 yrs old and 115 lbs, I eat well and take vitamins, non smoker, non drinker. On Monday, I am calling my doctor. I am printing this web site and all of the postings like mine. There must be something I can be put on that will fix this. Can anyone tell me if they have no Thyroid and have gotten off this stuff; does the hand pain stop? Does it get better or is this permanent damage? Kerrville TX
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Reply about 1 year ago on Jan 06, 2008 by amanda78254, #3849

I was given Taxotere for 3rd stage Breast Cancer and although that treatment of chemotherapy has been over since April '07 I too suffer memory loss and feel like a child. It's difficult to formulate a thought and to get a point across without getting frustrated and nearly brought to tears. The worst thing however is the joint pain. My Oncologist at CTRC in San Antonio has tested me for RA and that test came back negative. So, it's supposedly risidual side effects of the chemotherapy drug Taxotere. My primary doctor prescribed Norco 10/ 325mg and It helps but since I've been on it for nearly a year, my Mastectomy Surgeon wants me weaned off it and undergo pain management. I haven't sought out this type of treatment because once the Norco begins to subside the joint pain comes back with a vengeance and is unbearable. I literally feel like a cripple. My fingers curl up, my wrists, knees and shoulders ache horribly, I feel like one giant battered bruise. I need help. It's been too long. Sadly, after looking at this website I'm not alone although I certainly feel alone. When I saw that you were from Kerrville so close to San Antonio, I had to respond. Thanks. You've helped. Good Luck to everyone who suffers as I do. I wish you a pain-free 2008!

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Reply about 1 year ago on Jan 08, 2008 by 111784, #3911

I also saw that you so close to SAT that I also wanted to respond. I have been taking .075 levoxyl for 6 years, off and on with adjustments a few times. I just started experiencing heavy uterine bleeding in Nov 07. Then I find out that the mfg company has gotten bought out and levoxyl is now being sold through another mfgr. I haven't had any terrible unbearable problems with levoxyl in the past. But now I am beginning to wonder if the med has changed or my body is changing. I am 43 yo and could be perimenopausal. Also, night sweats have started since Nov. Anyone else have this problem?

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Reply about 1 year ago on Jan 08, 2008 by tx1234, #3913

No,I do not have that problem, I just have horrible joint and tendon pain in my hands and once in a while in my knees. I went to the doctor's yesterday, she is trying me on the generic for Levoxyl. She thinks it may be the chemical that they add to the pill to make it "quick release". The generic does not have it. It's worth a shot. It will be a few weeks if I notice any difference. Also, another doctor (arthritis spec) told me that Levoxyl is knows to cause problems such as joint pain if the dose is too high. However, my thyroid levels all test good. He said it does not have to very much over to cause joint pain. So if all else fails, I may try backing off the dose by just a little, maybe 5% or so. Will post my findings either way.

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Reply about 1 year ago on Mar 17, 2008 by kbrenzel, #5628

so what ended up happening to you because I have had some of these same symtoms and alot of mine started after being on synthroid. I was told it was a combo of my low hormones along with the no thyroid. i am better than I was but i am having some new symptoms with aches.

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Reply about 1 year ago on Mar 18, 2008 by tx1234, #5640

My doctor swaped me to the generic brand Levothyroxine. It took about 4 weeks for the Levoxyl to get completely out of my system it got much better and after 5 weeks the joint pain quit.
I am fine now on the Levothyroxine. I believe it was the quick release chemical in the Levoxyl. It made it hit my system fast instead of slowly over time. It seems to have been the culprit. I arthritis specialist told me that even if your dose is a little too high, it can case joint pain.
Mine was not too high, it was just hitting my system all at once and too fast. Maybe try the brand that fixed me. It is the Levothyroxine. If I would have listened to my doctor and not demanded a swap, I would still be suffering. She did not think it would make a difference she just swaped the brand because I demanded a change.

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Reply 11 months ago on Dec 23, 2008 by scarooo68, #15466

HI, I HAVE BEEN ON THE LEVOTYROZINE 4 6 MONTHS. FEEL HORRIBLE. I GET HEADACHES ALL THE TIME. HAIR FALLING OUT. INCREASED APPETITE. SWELLING OF FINGERS, FEET . BLOATED STOMACH. I'M 40, 5 FEET 3 INCHES.AND WAS 120 POUNDS. NOW I GAINED 10 POUNDS. DO NOT EAT MUCH. WISH I NEVER HAD THE TYROID PROBLEM.

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