My experience with Remicade has not been good. On one hand it did...

HI I JUST WANTED TO LET YOU KNOW THAT YOU ARE NOT ALONE.. I HAVE NO IDEA WHY THE DOCTORS AND DRUG COMPANY IS IGNORING THIS VERY SERIOUS DEBLILITATIING SIDE EFFECT... MY LIFE HAS BEEN DESTROYED.. FOR THE LAST 3 YEARS LIVING THIS WAY HAS BEEN SHEER HELL. I STOPPED THE REMICADE 2.5 YEARS AGO OF MY OWN ACCORD.. I THINK I WOULD BE DEAD HAD I NOT.. ALONG W/ BLODD DISORDERS. PERSONALLY I WOULD LIKE TO GET TO THE BOTTOM OF THIS W/ AN ATTORNEY AS THIS IS THE ONLY WAY ANYONE WILL LISTEN TO US.. I CANNOT TELL YOU HOW MANY TIMES I RESPONDED TO THIS TYPE OF E-MAIL OVER THE LAST YEAR. IT IS BECOMING MORE AND MORE FREQUENT, SADLY. INTITALLY DOCTORS THOUGHT I HAD SOME WIERD DISEASE PROCESS. BUT EVERYTHING WAS NORMAL EXCEPT FOR AN ELEVATED (>150 CRP).
EVERYTIME IT OCCURED THE IFLAMMATION WAS HORRENDOUS &THE MY CRP WAS OFF THE RECORDS. THIS IS SO FRUSTRATING .
A RHEUNATOLOGOIST PRESERCIBED KINERET IT WAS WONDERFUL.. I TAPERED OFF AFTER 1 YEAR (IT ALSO IS A BIOLOGIC) AND NOW AM TAKING 2MG PREDNISONE + PLAUENIL.. & NSAIDS.. STARTING TO WORK AFTER 4 MONTHS.. I HAVE NO IDEA WHY SOMEONE (MD. ATTORNEY) HAS NOT COMPILED DATA ABOUT THIS. GOOD LUCK !