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This is my second course of Prednisone after several UC flare-ups...

Posted at 8:42 PM on Feb 12, 2008 by thewhiterabbit, #27131
This is my second course of Prednisone after several UC flare-ups. First time I was on 40mg for 2 weeks, then tapered down for two weeks. My first few days on Prednisone were great. I finally had energy, I was in a great mood and finally felt like I was living again. After 4-5 days, the weight/bloating began. My fingers and ankles began to swell, then my face. I no longer felt "alive" anymore, more slovenly. None of my clothes were fitting either. I developed a very noticeable "muffin-top" that made buttoning my pants difficult and wearing and snug t-shirts embarrassing. I returned to my doctor after my two week course (prior to tapering) and found that not only did I gain 12 pounds in two weeks, but my blood pressure had increased dramatically. I was assured that once I quit the Prednisone, my weight should return to what it was, as well as my blood pressure. Sure enough, they did. I would have to say the very worse part of taking this medicine, for me, was not the two weeks that I was on my 40mg course, nor was it the two week taper, but the two weeks after stopping the medication. My energy level was completely zapped, but I couldn't sleep. I also had the worse headaches and mood swings. I would snap at my family for the smallest of reasons. This medicine introduced a side of myself that I never want to meet again. Unfortunately, here it is 2 months later and I have been prescribed another course of Prednisone due to another colitis flare-up. I thought I was prepared for what this medicine will do to me since I experienced it once before. However, this time is nothing like the last. Unlike last time, I have yet to feel "on top of the world". My bloat came on quicker this time, as did my mood swings. I am depressed and really hating what I have become. Fortunately, I have enough sense to realize a lot of my depressive thoughts and mood swings are a result of the Prednisone, but it doesn't make it easier. My vision is blurred and for the first time I understand what others are talking about when they speak of foggy brain. I am physically present, but definitely not coherent. I just want this medicine out of my system. I would rather deal with the intense cramping and bloody stools from my colitis, then have to ever go on this medicine again.
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Reply 9 months ago on Feb 22, 2008 by twentworth75, #5052

As per your last sentence, I said the same thing to my husdband I would almost rather lose my sight then deal with these side effects of the prednisone. I have a rare condition in my eyes called "VKH" and it can lead to blindness and a whole mess of other things. I have been on prednisone for 5 months. I started on 70mg. and got tapered down to 40mg. then had to be bumped right back up to 60mg. just last week. I have the moon face, I have gained 20 pounds and grown hair on my face, and have the most terrible mood swings imaginable. My husband i think is at the end of his rope with all the mood swings and i can't say that I blame him. I am depressed and weepy and don't even like to leave the house anymore. I used to love doing things now I could care less. I just want off this medication and I want my life back. I have at least 4 more months of this if things go well and the way things are going I don't know that any of us can deal with much more. I pray your situation gets better and you can get back to your life as well!!!!

Tina

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