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I have been on Fosamax since 2003. In 2004 my left hip starting h...

Posted at 7:58 AM on Feb 22, 2008 by deenen, #27388
I have been on Fosamax since 2003. In 2004 my left hip starting hurting so bad it would wake me up during the night. I had dislocated my left hip in 1994 so we put the pain down to complications from the accident. The x-rays were fine however so she sent me to a Rheumatologist to see if something else was going on. He told me I had Inflammatory Arthritis (even tho there were no markers in my blood) and put me on Plaquenil. After 6 months, the Plaquenil had done nothing but the Rheumy wanted me to stay on, and truthfully, I was afraid if I went off, the pain would become worse. Next came wrist pain so severe at times I couldn't lift a glass without wincing.To make a long story short, the joint pain has continued to migrate throughout my body. My thumb joints (where they join the palm) are so painful I can't undo jars or bottles, the small bones in my fingers ache all the time. I also get shooting pains in the long bones of my left leg and both arms. Back to the Rheumatologist last week. He said the Plaquenil was not working so he gave me an RX for Methotrexate 20 Mg once per week. This drug is one of the first-line chemo drugs for Cancer and it's effects on the body can be devastating. I have been crying since last Wednesday and had just decided yesterday to start taking this medication. I sat down at the computer to just test the drugs I am currently taking and one by one entered the drug name with "and joint pain". Plaquenil came up with only good things such as "less joint pain" etc. Mobicox also came up with good things. I entered Fosamax "and joint pain" and the top 15 hits were unbelievable. It was my problem in each and every article. I am dumbfounded. I have been seeking Dr.s help with my pain for 4 years, a GP, a Rheumatologist (2 actually) and an Orthopod, not one of these people ever mentioned a problem with Fosamax! What is going on. I am NOT going to be starting the Methotrexate and I feel I have been given dangerous medications over the past four years which I should not have been taking. I was a Personal Trainer and aerobics instructor for 12 years - now I can barely get through a yoga class without modifying the stretches because the pain is so severe. Thank goodness for this site. I have made an appointment with my GP but I am stopping the Fosamax today (it was my day to take it). I pray I can regain some of the pain-free movement I used to have. In closing, I do have to say that I have regained some bone mass on Fosamax but...was it worth it? Was there another way I could have done this? Who knows. How long does it take for the pain to lessen after dropping Fosamax?
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Reply 13 days ago on Nov 11, 2009 by blackgorilla, #24352

Hi deenen, I've just been googling fosamax and arthritis and ran across your note. You mention that where the thumb joins the hand, it hurts and you can't open bottles etc. Back in 1982 I had the very same problem and at that time, the solution was to replace the trapezium bone (google that) in each hand. The laft hand was done in the Fall of '82 and the right in the spring of '83.

For almost 28 years it worked and I had no problems. However, this area on both hands is bothering me again, but not to the extent that I cannot use my hands to open containers, etc.

I've been on fosamax and its generic for the last 10 years, but am now off the drug because I could not find any tests that covered more than a 10 year span. Most were for 5 years with the drug. And, I read that after 10 years the drug could indeed rebuild bone, but it would be more brittle bone and I don't want that.

I'm fortunate that I can go to a fitness center 3 times a week and I work out both my upper body and lower body, use the treadmill and walk the fitness trail upstairs, too. When I'm up there I walk forwards, backwards and sideways, starting with the left foot first and then turning around and starting with the right foot so I'm working all sides of the femor.

I had a 4.4% increase this past October in my spine, but a 7% decrease in my hip. I've been doing a lot of researching and I'm sure my Western acid diet is to blame for some of this. Apparently, with an acid diet, the body requires something to alkanalize the body and it takes minerals from the bones to do this. That, in turn, causes osteoporosis. So it isn't just calcium, it's lots of different minerals and vitamins. My goal for this next year is to maintain an alkaline diet, increase my exercise, stop caffeine almost completely. I quit drinking soda with phosphorfic acid two years ago and upped my intake of milk.

But, from what I've read an alkaline diet will do a lot of good. I found mention in both a New England Journal of Medicine article and something from the Linus Pauling Institute in Seattle that discussed this buffering etc. and they seemed to think it needed to be researched more thoroughly and that it could have a lot benefits for those of us with osteo who don't eat all the fruits and vegetables we should be eating!!

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