Hello everyone, My name is Tina and I am a mother of 5 childr...

hi tina. my names cassie. im having the same problems as you with the prednisone. i hate going out in public or doing anything bc of how i look now. ive never been unconfident or self conscious and thats all i am now. i used to go out and party and do evreything and now i stay in my cave at home. i hate it.and it causes major relationship problems. ive been with my girlfriend for a year now and shes gone through this with me for the past 6 months and its been crazy. im so afraid its gunna mess stuff up with us because im so different right now. its just scary. i hope i go back to normal. i cant wait to hear what your doctor says about the side effects and how long they last when youre off the pred or if its a really low dose. i start 30mg tomorrow i was on 40 this past month. i cant stand being like this tho. it makes me feel better that there are more people out there that are going through what im going through and can relate to me. it helps. thanks

You are not alone.
Prednisone can cause some very complicated side effects. All family members need to be aware of these effects.
I researched VKH and understand it is an inflammation of the inside of the eye?
My father was prescribed Prednisone for Optic Neuritis.
Feel free to email me.

dear friends,
i am on prednisone for 5 years now and can sincerely relate to your pain. i had optic neuritis in my left eye which wasn't properly treated and i lost the vision. now eye.my struggle is to keep optic neuritis from stealing the vision from my right i have been on 1000mg IV solumedrol all the way down to 5mg of prednisone. i went off prednisone in 2004 for 2 months, slimmed down to my normal size , got engaged, *in a bikini* and suddenly relapsed. i eat the closest thing to the south beach diet (lots of protiens and greens) and work out 5-7 times a week yet i am 200lbs.
I get angry when friends post pictures with me in them on the social networks like myspace and facebook. i don't see myself i see a swollen . bloated verson of the cute little greek girl i used to be. i am so blessed ro have a gorgeous husband who tells me i'm beautiful , but i know what its like to want to just hide from the rest of the world. just hang in there. i think that science will come up with a better way sooner than later.
the good diet and exercise are great ways to "feel" better even if you don't "look better"..... and i strongly suggest keeping a journal or having an outlet where you CAN just ramble on and vent all the anger and confustion, and mood swinging. surround yourself with people who WANT to understand what you are going through. even after 5 years i STILL have sleepless nights and moodswings. i even dissolved my relationship with my father and step mother because we were involved in a family business and they had no compassion for my erratic attitude and mood swings. *but that's a whole'nother story* make healthy choices that help YOU cope with what's happening to you. and stay positive. i can say that even though i look like a cabbage patch kid, i still get compliments on my sunny attitude and gleaming smile.

Your not alone and may God bless you and your family.