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2 yrs ago I was diagnosed with peripheral neuropathy. I have been...

Posted at 11: 0 PM on Mar 01, 2008 by javajo, #27648
2 yrs ago I was diagnosed with peripheral neuropathy. I have been on Topamax since, because of the severe pain it causes. I have never experienced weight loss and I was on up to 400mg a night. I am now on 200mg a night. My tastes are fine and my drinking sodas were never like metal. But for the fatigue of the disease I also take Provigil in the morning. I have noticed my eyes have changed. Never gave it a thought to be Topamax. Plus I just got new glasses again 3 months ago and am seeing a change in my sight again. Also there is a noise in my ears,not ringing,but sounds like crickets. Never had that before. I was on 2 other meds but I took myself off of them because I really don't like taking so many. The others had worse side effects. Until they find a cure for this disease it looks like I'm stuck with Topamax. This is one pain I will not and can not live with.
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Reply about 1 year ago on Apr 15, 2008 by triciakaren, #7253

I just noticed your post rather late. I also have peripheral neuropathy and take neurontin for it. Have you used this med? I wasn't aware that Topamax helped with the condition although I have noticed improvement in hands and feet since taking Topamax. I also have noticed some ear noise (when in bed) that I didn't have before. As for your eyes, that has always been my symptom of oncoming migraines or behind the scenes migraines. I take fiornal for a migraine that pops in and it's amazing how my vision can be affected. I have been dealing with the neuropathy for many years now and my eyes were a problem before. In fact, I have already had surgery for the "floating cataracts". Good luck. If you haven't tried it, Depakote is another alternative to Topamax and helps with the neuropathy. I went off of it when I began the new drug.

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Reply about 1 year ago on Jul 14, 2008 by athorson, #10149

I am a 39 year old man with peripheral neuropathy and migraines. When I was diagnoised 3 years ago, the pain in my right leg was horrible and headaches daily. My Dr. put me on Topamax and I was so happy, it seemed to help but one night( about three weeks into it) I went to bed and awoke in the morning legally blind. Topamax was stopped that day but it took 4 months ( and changing the perscription in my glasses 3 times) for my vision to return to 20/20. The doctors tell me I was lucky as some people have perminate lens damage from the optical pressure change.
My Dr said I could not take any thing in that class of medications as it would probably have the same effect on me. So he decided to put me on Cymbalta for the neuropathy. He said it was being tested as a possible use for neuropathy but had not been proven. It works great for the pain and oddly my migraines have gone down to about two a month.

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