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I am taking Lupron as I had horrible endometriosis, two large-gra...

Posted at 10:14 PM on Mar 19, 2008 by suzannes, #28186
I am taking Lupron as I had horrible endometriosis, two large-grapefruit sized tumors and several smaller implants removed. I lost my right ovary, and part of my left in the process. I am 28, newly married, otherwise healthy, and I want to have children, so I went on Lupron that my surgeon/OB suggested- monthly for six months. I read a lot of side effects and was TERRIFIED to go on it. My own husband is an M.D. and I made him call different doctors in his hospital to see what they had to say...in a few days he called about 5 different OBs. Thankfully, they said that those that had side effects that were extremely severe was pretty rare. Still, I was scared. I am now into my second month on Lupron and I have to say that the side effects aren't nearly as severe as I thought they would be. No hot flashes, no hair loss, no crazy depression, no anything else. I DO have fatigue, but it's manageable with coffee and extra sleep. I have some mood swings- mostly I feel more grumpy. The most noticeable and bothersome is the lack of sex drive and vaginal dryness. I also have trouble achieving "the big O." Still, so far, very manageable. I'm not sure if it'll be worse if time goes on. But I feel like everything on the internet is really negative. I'm not discounting the tales of people who have had a bad time, but I wanted to put out there that it isn't always the worst thing in the world.
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Reply 8 months ago on Mar 20, 2008 by zen27, #5689

it was nice to hear from someone who is not having an extremly hard time on this drug. i have just been diagnosed with staage four breast cancer that has spread to my spine, ribs, and femur bone. my Doctor is recomending lupron and zometa and i am scared to death. THANKS FOR YOUR POSTING

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Reply 6 months ago on May 20, 2008 by judyhk, #8464

I took Lupron for endometrosis a few years ago and had the same experience as you. Last year my endometrosis came back and was very bad. I tried Lupron again. This time was different. I could only tolerate 2 shots and then agreed to a hysterectomy. I'm older and have 1 child. One of my worst long term side effects is neuopathy. Hopefully your experience will continue to be good.

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