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My 44 year old, otherwise very healthy husband has been taking Li...

Posted at 2:39 PM on Mar 26, 2008 by kcclary, #28374
My 44 year old, otherwise very healthy husband has been taking Lipitor (10mg) for several years. Currently been showing ALS-like symptoms. Left foot dragging, muscle cramps, twitches, etc. We are headed to Duke University to find out of he has ALS. He is off of Lipitor for 3 weeks now, taking CoQ10 and lots of vitamin C. If anyone else has had these symptoms and they've been rectified, could you share how long it took and how soon you began to feel the initial improvement? Thanks KCC>
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Reply about 1 year ago on Mar 26, 2008 by oldcarpetcleaner, #5872

MY symptons were far worse than what you describe here. The heat & intensity of the pains and all over body cramping reduced a little within 48 hrs.
Now 3 months L8R I still tremor, get sore muscles in fact still take pain killer every day BUT I would have to say that I am 60 - 70 % better and improving.
In this modern society how can a corporate manufacture something like this (statins) without the anti dope for people who have adverse reactions? If you are fit and healthy it does get better sometimes slowly. My deep depression,night sweats and vile dreams have gone - so good bloody luck from a kiwi down under.

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Reply 9 months ago on Feb 11, 2009 by lipper22, #16985

hello:

I have the exact same symptoms. Twitching and cramps and I have been on simvastatin; no wasting or weakness though which would be expected with ALS. What was the outcome for your husband? I hope he is ok.

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Reply 9 months ago on Feb 11, 2009 by kcclary, #16986

My husband was diagnosed with ALS shortly after that posting. I urge anyone taking stantins to look at alternatives. Although there is no scientific corrolatoin yet b/t statins and spontaneous ALS, all of his physicians (GP, neurologist and ALS specialist) summarily removed him from taking the drug. None of the doctors believe there is enough evidence to indicate a causation connection, but none were willing to keep him on the drug. Can't help but wonder what is between the lines.

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Reply 8 months ago on Feb 13, 2009 by lipper22, #17049

Hi again;

Could you resend your last message. For some reason I can't seem to access it. You said your husband is in a trial? How is he doing? Has he deterioted signifcantly (I hope not).

Feel free to email me directly at Lipper22@comcast.net

I am thinking I might have MS, not ALS, since I have other optical symptoms and itching and pain and urinary delay as well as cramps and twitches. I have no weakness though, which is a good thing, but who knows what the future holds.

Please email me back your husband. My wife has a friend who was recently diagnosed with MS and apparently there are some new stem cell treatments they are trying also. Is you husband in a stem cell trial.

Regards

Gary

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