Our 7 year old daughter has had "problems" for several years. After a news report this evening, it now makes sense - her problems are being caused by Singulair. I have sought treatment from 4 doctors in the past 3 months disparately pleading for their help to figure out what is wrong with her.
She began taking Singulair when we found she had allergies to cats and dogs at age 2 (since I nursed her for over 1 & 1/2 years and her allergies didn't appear until about 6 months after my "immunities" left her system). After several middle of the night visits to the ER for her difficulty choking/coughing in the middle of the night, the ped. suggested allergy testing. She was always quite "in your face" but in a sweet way and was quite defiant, so we always thought she purposely ignored us, especially while watching tv, but definitely a "live wire" all the while.
After 4 years of pre-school and dozens of notes indicating that she didn't follow the teachers directions, she was found to have a hearing impairment, just as she was entering Kindergarten. Needless to say, life for her has been a roller coaster for the past year and a half. The behavior problems have not improved; terrible twos at age seven...
Then, just a couple of weeks ago, she broke down crying in the bathtub, and commented that she sometimes wants to hurt herself because she can't stop herself from behaving badly (she often will get bad behavior check marks in school for 10-15 days straight, and then seems fine a week or two later and the cycle repeats itself sporadically).
The treatment for her allergies - - - we got rid of our cat and dog 5 years ago, and only give her the allergy medicines as needed (Singulair and Zyrtec)...meaning that we proactive avoidance and contact of all pets and animals and the homes where they live. We will give them to her a day or two in advance if she has an upcoming trip to the zoo, etc. and continue for several days after being exposed.
The past 3 months, I have spent countless endless nights searching the internet for answers, knowing something else is wrong with her. I have begged her battery of different doctors (pediatrician, ENT, allergy, audiologists) for answers, and even specifically asked her allergy doctor a month ago if there is any way, shape, or form that her medicines could cause behavior problems. I was assured it was not possible. Tonight I found out that Singulair has "new side effect warnings".
My direction for finding answers has always (until now) been aligned with her hearing loss. I have read every study on children with hearing loss and behavior issues that I have been able to get my hands on. Our doctor office visits are overwhelming and average 4 times a month - for all different things. We have an appointment tomorrow for new ear molds for her hearing aids and I insisted she be tested again to be sure the hearing aids are working perfectly- hoping this is the missing link. She is being tested again for allergies on April 11th to see if new ones have crept up. She is having an auditory sensory processing evaluation on April 24th, again in my search for answers. Just last week, I demanded an emergency meeting at her school and basically stood up to the entire IEP team and told them they are doing a horrible job, since I can't get them to help me figure out the problem and freak out on them for the lack of help I receive with regard to her hearing loss and the FM (microphone) system I forced the school district to put in place so she can hear the teacher's voice in the classroom, over the sounds of the other kids.
I have probably been deemed crazy by all of her doctors & their staff, her first grade teacher, and everyone at the school district that I have encountered in the past 20 months or so. So much so, that her ENT (Ear) doctor called me a week ago after a recent visit to indicate to me that he thinks that not only does my daughter need to see a therapist to figure out what is wrong, but indicated that stress has taken it's toll on me as well and offered to write a prescription for therapy if necessary! I feel like I am living in a novel which is not even my life.
For all I know, she may be have really meant it when she told us once that she used to be able to hear just fine...so I cant help but to sit here crying and wondering if there is a link to her hearing loss from the Singulair too?
To hear her say she wanted to hurt herself was the hardest thing I have ever endured in my life. And so out of her world (she is the most outgoing extrovert imaginable) that I have lost myself in a sea of unknowing doubt, anger and frustration, since she said it. My boss, colleagues, family, school district staff, several doctor office staffs and several other "specialists" whom I contacted in late night emails, begging for guidance could atest to this mad attempt of mine to find a cause.
The best moment: when we drove away from the ENT with her new hearing aids, windows down, and she said: "Mom, I can hear the wind"
Worst moment in life: hearing my 7 year old baby say she sometimes wants to hurt herself because she can't stop herself from behaving badly.
My advice: for allergies, get a sharper image ionic air purifier for the bedroom- well worth $200!!! Get hearing tests for children who "do not listen" or follow directions. STOP TAKING SINGULAIR!!!! Send your information to the FDA immediately.