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Posting my experience again. You are not alone and your childr...

Posted at 9:31 PM on Mar 30, 2008 by matthewct1, #28804
Posting my experience again. You are not alone and your children are NOT hypochondriacs (something tells me small children don't even know what that means). My 5 year old son was diagnosed with mild asthma and put on Singulair. Within a few months he began having uncontrollable fits of rage, displayed self-loathing behavior, had night terrors, and was inconsolable during these episodes. He became very destructive and was a danger to himself and our family. He even talked about killing himself and would say things like "I don't want to be in this life anymore" and "I want to kill myself". He would threaten my wife and his siblings and told them he wanted to kill them. It was a truly terrifying experience. Our pediatrician was clueless to these side affects and recommended we have our child go through a psychological evaluation. I knew this was not my child's normal behavior so I searched the internet for Singulair side effects and found some message boards where parents just like me were telling their stories of their children's aggressive behavior. I immediately took my son off the drug and within a couple weeks he was back to his normal self. He told us that he no longer has "that feeling inside of him". Five year old children don't even know what suicide is and to see my son talk like this was extremely frightening. He is a sweet, intelligent, loving boy who had never exhibited behavior like this until he went on Singulair. We have not seen this behavior after taking him off the drug. Please use your best judgment and connect the dots for yourselves.
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Reply 8 months ago on Mar 30, 2008 by willow22, #6264

This is unbelievable. My daughter was 2 1/2 when she was diagnosed with allergy induced asthma and put on Singulair. I never put any thought to her fits and tantrums because I thought they were due to the terrible twos. Then people told me that fours were worse so I thought everything was normal. Now she is five and we are still having problems. I have asked her doctor if she could possibly be Bipolar because somtimes her moodswings are so bad its intollerable. She often has nausea and vomitting. She complains of headaches, leg cramps, and ear aches. I just had her back to the doctor and was told that everything checked out fine. Possibly what she was experiencing was due to a food allergy- so we've been closely monitoring her food intakes vs. symptoms. She has so many ups and downs it is heartbreaking to read everybody elses posts. I feel guilty because my husband and I have punished her for her outbursts and actions. One minute she is bouncing off the walls and can't sit down, then she drastically goes to crying, hateful, and irritable. She will be playing with our 10 year old daughter very sweetly one minute and the next she hitting her or throwing things at her for no reason. Somedays we cannot get her to go to bed, others she sleeps for more than 12 hours and still does not want to wake up. She says things like " You guys hate me" or "Nobody likes me" or "Everyone thinks I'm stupid" She often thinks we are making fun of her if we laugh- even if we're watching TV. She hates to be alone and refuses to go into her room or other areas of the house that nobody else is in. She has never talked about death but nearly everything else that is being posted hits so close to home. I would have never put 2 & 2 together because she has been on the medication since she was so young. My grandmother babysat our daughters today, and because of my youngests actions asked me if Singulair was one of her medications. When I said yes I thought my grandma was off her rocker at first. Now after researching I am in shock. My husband said right away she will never take another but I'm not sure how to wean her off so I have to talk to her doctor first thing tomorrow. By the way to the people who have stated that we are only saying these things because this was on the news etc.- not every patient reacts the same to medications. If your child is fine on Singulair more power to you if you chose to leave them on this drug. However, there are several children out there that are obviously having the same symptoms.

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Reply 8 months ago on Mar 30, 2008 by matthewct1, #6265

I'm not a doctor but I do know my child and so do those who are now privy to this information. Do NOT let your pediatrician make you think you're crazy. Ask about alternatives to Singulair and I think you'll be happy with the results. It's gut wrenching what so many have gone through.
I've corresponded with a leading professor of pharmacology and pediatrics at the University of Florida and his direct quote was "In response to your last comment, I thing Singulair has modest efficacy, and if we take all of our patients off this drug, they won’t suffer. This is not an important drug for pediatric asthma, as are inhaled corticosteroids." Bring this information to your pediatrician in case he/she thinks your crazy. I've seen a lot of people comment that their pediatricians have been very cold when they've told them about the side effects their children are experiencing. I'm not including the professor's name for privacy reasons.

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Reply about 1 month ago on Nov 02, 2008 by bhope, #14073

Thank you for telling your story. My five year old son was also diagnosed with mild asthma, our doctor new of the side effects but said the chance of our son experiencing them was outweighed by the benefit of the drug. within the first week, our son became moody, etc... he would cry and cry and said he didn't know why he was crying and said he didn't know why he couldn't stop. he is off the drug.

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