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My thyroid troubles started in 1993. I am not sure how long befor...

Posted at 10:22 PM on Apr 01, 2008 by debredz2r, #28960
My thyroid troubles started in 1993. I am not sure how long before the discovery I had the problem. Mine started as a nodule on one side. I was immediately put on Synthroid and had to go see the Endo every 6 months for a biopsy. In 1995 I became pregnant. I had one more biopsy until after the birth of my daughter. The Endo told me he wanted to see me right away after she was born to do another biopsy. I had my suspisions, but didn't think anyhing until after she was born and went for my biopsy. Well, I had cancer. I went through the whole thyroidectomy, the 3 days isolation with radio-iodine, and every year to every few years after I had to go back and get the radio-iodine treatment, while not the high dose as the first time, it went with the complete body scan. In fact, I am due now, but don't have health insurance. My dose has been switched a lot, I have probably been on every dose from the lowest up to .200mcg, which has been the highest for myself. Symptoms: pre-thyroid disease, I am 5'2. I was always 110-115 lbs, I was 22 yrs old and 120 lbs. when I married in 1993. I did notice gradual weight gain, probably because of my thyroid problems. I am sad to say that now I am around 180 lbs. I cannot seem to lose the weight unless I go on a total starvation diet. I managed to lose 10-15 lbs over the past summer, but unfortunately for me it has come back over the winter. I tried to stay as active as possible by going to stores and malls to walk around. I do for a fact notice that when my dosage for Synthroid goes higher, so does my weight gain. I was on .137mcg over the summer, and I think that was a good dose for me, that was through the regular dr. The Endo is the one who put me back up to .150mcg. My Endo told me the thyroid is a regenerative organ, so it CAN grow back. I guess they don't want that in case of cancer again, and I guess that is why he keeps me on higher doses. I personally cannot stand it. I feel it is a horrible curse. I feel very robbed of my previous active life. I have been dealing with this now for 12 years not having a thyroid and being on this medication. I feel angry that I do not have the energy to do things with my 12 yr old and 3 yr old. I miss the way I was before having thyroid disease. I feel very sad when they come up to me asking to do certain things and they (nor anyone else I know for that fact) can understand that I just feel so whooped, and no energy. All I ever seem to want to do is take a nap. I have migraine headaches constantly, I am constantly tired. I cannot concentrate, I have some memory loss. My ex-husband, and my current husband too for that fact think I am just being lazy. Well, that is not so. There are moments when I do feel a burst of energy, but then, I have to use that burst to do the things I need to do around the house. Pre thyroid disease I was always active, never tired, could do anything. After: TIRED, I was 24 in 1996 and felt like an old lady, dry skin, no matter how much lotion I put on. The tub is full of hair, while it doesn't come out in clumps and I still have thick hair, I have hair all over the place. Irritable, mood swings, happy to angry and the snap of a finger. I can have insomnia some nights, constipation, lots of the same stuff others have listed on this forum. Those side affects are the same no matter what dose I am on. And like I said the higher the dose for me, the more weight I pack on. It is instantanious. Over Christmas, and no, it wasn't from eating all the goodies, I gained a lot of the weight I had lost over summer back, and that was because a few weeks before, the Endo had put me on the .150 mcg.
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Reply 5 months ago on Apr 01, 2008 by sms1554, #6448

I too had side effects from synthroid, so much so that I took myself off and started taking vitamins regularly. Mine started last year, I'm in my mid 50's and decided to continue with my education and was constantly pushing myself to exceed. It seems that I was always stressed to the max. I wasn't sleeping, eating alot of sweets and gaining weight. It wasn't until I completed school that I realized that I had all the symptoms listed for hypothyroidism. Moody, angy, always tired, hair loss, even my finger nails were splitting down the center, the memory loss was terrible since I am now an instructor, and of course the dreaded weight gain and the severe headaches. I had been to my Dr. several times and she told me that my blood work was borderline and that I shouldn't worry. At one point I felt that no one understood what I was going through so I found an Endo that redid the blood work and decided that he wanted my levels to be mid way and he put me on synthroid (.25 for 10 days and then up to .50) I felt good for awhile (about 3 weeks) but I gained an additional 15 lbs. I was already fighting with weight gain before all of this and to gain 15 lbs. put me over the edge.I felt that everyone I talked to thought I was crazy. No one seemed to understand what I was going through. I decided that I didn't want to rely on a medication that would do the work of my thyroid so I took myself off the synthroid. I am currently taking vitamins, getting enough sleep (at least 8 hrs), eliminated alot of stress in my life, and have started dieting and doing some exercise. I don't know how long this will take but I feel that I am now in control of my body and my endocrine system will heal. I hope this has helped you see that there are many, many people that are going through the same symptoms and that certain medication levels work for some but not for all. Hope all goes well for you

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Reply 20 days ago on Aug 15, 2008 by mahasin, #11186

I have been on Synthroid for a little over 2 years. I still feel tired, my hair has NOT grown back, infact i looks like something bit a chunk out of my hair in the middle. I loved my hair before this all began. It was bouncy and soft. I also did not have "acne" either, now it seems like an uphill battle to keep my skin clear. I probaly lost about 10lbs when beginning the Synthroid but that hasn't put a dent in the 60 or so I gained while I was trying to find out what was wrong with me. Also, I COMPLETELY understand the "brain fog" and memory loss. Family and friends used to rely on me for information (they tease me calling me "On Star", "Yellowbook", "Encyclopedia Britannica" etc.) because I know a little about a lot of things, but I feel like I lost some of my brain "MOJO". My sex drive is kinda low too. I have intermittent pains in my arm and neck when i dont take my pill every 24-26 hours. I did see an article that discusses hair loss as one of the side effects of Synthroid. I am now researching a solution because I do not want to continue losing my hair. My hair was so thick growing up that my mother didn't really know what to do with it as she had very fine curly hair. And now after reading your post, I need to know if the Synthroid is keeping my weight on too. Just so you know, you aren't lazy. I went from working two jobs full time and going to the gym 3-4 times a week to not having anough energy to do much else besides go the ONE job i now have. Its an unexplainable misery and we do appear lazy to the average person. My mom is a nurse and she says she cann tell how much this has effected my life and changed me. I hope we all find relief. Have a good day. Mahasin

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Reply 1 day ago on Sep 03, 2008 by jmays, #11910

I have been through a terrible time with my thyroid/synthroid. I have been on Synthroid for 16 years. At some point the beginning of 2007 the pharmacy switched me to a generic without me knowing about it. Last year was a nightmare for me. My moods/crying spells affected me at home and at work. My hair was falling out in hand fulls, the brain fog was horrible and I really thought I was losing my mind. I even went through what they thought was early menopause (at 43) but it was actually ovarian failure. I believe that all of this was due to the change in Thyroid Meds. For some of us, it is important to stay on The real stuff and not use the generic. I am also only using half of what is prescribed. Not everyone can do this, so I don't advice it. I just feel better and so far my lab work is within the ranges I need. If Ii have to take an antibiotic or some other sinus medication for short term, I seem to get really tired and then for a few days I will increase to my normal dose and I regain my strength and energy. My Symptoms seem to be getting better too as far as the hair, etc.

A word of advice, as your symptoms sounded so much like mine. Try having your Vitamin D level checked and possibly some of the other minerals that are essential for your body. I found I was Vitamin D Def (my bones began to hurt). I was also low in magnesium. I did some research and also started zinc. I feel like a new person again. I have energy like you wouldn't believe and feel like I have a totally different outlook on life. I take the vit D twice a day. Magnesium once a day and zinc once a day. You can even split mag and zinc twice a day until your body gets used to it. Vit D shouldn't give you any stomach problems. I also have to take a prescribed potassium supplement and that helps too. I wouldn't make any changes without getting checked out and having labs on these things. If any of them are even in the lower range, I would def. go and buy some supplements (each individually). It has changed my life. Best of Luck to you.

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This registry is a place to share positive or negative side effects of using Synthroid. If you directly experienced a side effect while using Synthroid, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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