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My 9 yo daughter has been off and on Singulair for several years ...

Posted at 5:40 PM on Apr 03, 2008 by enough, #29094
My 9 yo daughter has been off and on Singulair for several years trying to get her athsma and allergies regulated. She has been put on zyrtec, and claritin and it has been a constant battle with her. She has been in and out of children's mental health facilities 3 times in the past year and has been diagnosed as having ODD (Oppositional Defiance Disorder), Mood Disorder, Depression, Severe ADHD, Bi-Polar as well as ADO (Adjustment Disorder) and emotional disorder, just to name some of the diagnosis she has had. SHE IS ONLY NINE YEARS OLD. Due to ALL these other diagnosis, she has been on and off so many different medications that I cannot help but wonder if some of these diagnosis are due to her taking the Singulair. When she was taking the SINGULAIR, she could not sleep at night, she complained about her stomach hurting all the time, she was very angry, emotional, and cried very easily for no reason at all. I have not given her any SINGULAIR since I first heard about all this stuff two days ago and can already see a difference. The fact that these people are doing this to our children infuriates me and something needs to be done!!!!!!!!
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Reply about 1 year ago on Apr 03, 2008 by 64744, #6600

When you are sleep deprived, that is enough to cause a LOT of problems. I hope you continue to see lots of improvements. Thaks for your posting.

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Reply about 1 year ago on Apr 03, 2008 by kristina551980, #6614

My story is very sadly similiar to enough's story

I have also been following these posts since the story broke
My son is 11 yrs old has been on singulair for almost 1 yr now for allergies after suffering a SI that lasted over 2 months

He was dx'd with ADHD & ODD at age 4 & they have been trying to rule out bipolar for the last few yrs But Can't, so he has been on a ton of meds!!!
I have noticed that this last year has been worse though & he almost had to be admitted numerous times within this past year We kept switching the ADHD meds & trying Bipolar meds nothing seemed to work, So last friday night (almost 1 wk ago) the day I heard about this, I stopped the singulair But he also started a new bipolar med the same day & HE IS A NEW KID!!! so now I'm stuck with the terrible task to find out if it's a combo of stopping the singulair & the new med working or stopping the singulair & maybe he doesnt even need the new med? IDK right now BUT I DO know that Something is working!!! So I have decided that next Friday put him back on the singulair for a few days to see what happens?? we talked about it & he knows I will not punish him for anything he does while he is on it I just NEED to know if this med Made him worse!!!!!! That way I can take some kind of action here, I just would like to know why the heck would they put a kid who already has mental health issues on a med that could make those issues WORSE????
I'm positive that singulair did not cause his probs since they started way b4 him being on this med But I have a gut feeling that singulair has made his probs 10X worse!!

his S/A's have been the same as e/o has already described

itching (which I know for a fact was from singulair b/c that is gone now)
mood swings
crying
angry
crabby
irritable
violent
not sleeping well (even worse than what he had already)
aches & pains everywhere

I always dismissed the complaints or assumed it was one of his other meds causing them, I never ever in a million years would of thought it was the singulair!!!!

I held off on posting b/c I wanted to see if taking him off would work?? IDK for sure yet but I will come back in a week or so & let u all know

I'll pray for all the familes involved in this I'm still kind of shocked by it all but felt the need to share my story also

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Reply about 1 year ago on Apr 04, 2008 by danalunsford36, #6687

I agree, my daughter is 15 years old and has been very violent with many hospitalizations in the past two years, I have actually been looking into an out of home placement. She does have other diagnosis of moderate MR, ODD, personality disorder due to medical condition from birth, explosive disorder brain injury from birth due to a stroke she had, as well as being born with her intestines on her outside. she is taking other medications but after seeing the news, I too have taken her off this drug on 3/29 after her being on it for 4 years or so. I am seeing some differences in my child such as she has not tore my house up, physically assaulted me or others and she seems happier as well. I have seen some circulation issues such as her hands turned bright red tonight and when she held them over her head the red went away. two days after being off the med, her face became very pale and she felt like passing out and throwing up and complained that she could not hear and was hitting her ears at school. She has also complained of her neck hurting her. Is anyone experiencing any withdrawl symptoms?

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