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Hi my name is Jessica an I was diagnosed with Chrohn's on 3/4/08....

Posted at 12:21 AM on Apr 07, 2008 by jcole, #29245
Hi my name is Jessica an I was diagnosed with Chrohn's on 3/4/08. I started with the Entcort for two weeks and that did nothing for all the pain and suffering that I had been going through since November. The put me on Prednisone at 40mg a day. I have been on it for about 3 weeks. After 3 day I noticed the moon face because I had lost so much weight because of being so sick for so long. I still hardly eat and am still losing weight. I can't sleep more then 3 hours at a time unless I take something to strong enough to help me fall asleep and if I sleep for more then 5 hours I will be up for the next 20 before I can even try to lay down. I have OCD which I have never had and cant stop cleaning when I feel up to it (kinda like this side affect). I have been haveing awful leg cramps and walking into stuff all the time. I forget what Im doing or were Im going. BUT the WORST PART is the ACNE... I am an Esthetician and I never had anything like this. I mean I have breakouts during the normal times ect... But this is bad an everyday there are more of them. I use really good stuff on my face to begin with an the things I would use on a client are not the same for treating acne that is caused from this drug so those things are not helping either. Right now my makeup covers it ok, but Im going to be on Prednisone for 3 more months before they will start weening me off and then going on 6-MP drug. I cant go 3 more months if this is going to get worst. PLEASE IS THERE ANYONE WHO KNOWS WHAT TO USE TO CONTROL THIS ACNE ????
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Reply 4 months ago on Apr 07, 2008 by dima82, #6766

Dear Jessica:
I've been on prednisone for a long time and I know how you feel. Your skin will return to normal after you discontinue prednisone. You should definitely put the Crohn’s disease into remission. Change your diet, reduce your fiber intake. High-quality (professional-strength) supplements are also of crucial importance, as the cheap, "A-to-Z", all purpose, one-a-day" vitamin tablets aren't going to come close to what our bodies need. There's a lot of useful info (including on Crohn's disease) on the following website:

http://www.fibermenace.com/index.html

Be well, and if at all possible, stay away from corticosteroids as their side effects are many and far reaching.

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Reply 4 months ago on Apr 09, 2008 by zamba, #6897

hi...the acne as long as you do not touch it will stay for as long as you have the treatment...stay away from fatty foods, eat the right foods, excersise and if you can steam and sauna helps....the acne is the least of your worries...for three months you might gain maybe 20 pounds....so watch your diets....no sugars and specially no salts...the moon face stays...good luck....(I have been in this medication for 14 months between 100 mgs per day and today going down to 20....I still have the acne but not too bad!!...the weight went from healthy 140 to 190)....

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Reply 2 months ago on Jun 25, 2008 by joelle17, #9513

hi,

YOU CAN USE TEA TREE OIL TWICE A DAY. IT REALLY WORKS ! I WASH MY FACE WITH DOVE SOAP IN THE MORNING AND NIGHT AND THEN PUT THE OIL ON. I HAVE GOTTEN EVERY POSSIBLE SIDE EFFECT THT GOES ALONG WITH TAKING THE STEROID MEDICATION AND THIS OIL IS WORKING. THIS IS THE ALLTIME WORST DRUG WITH HORRIBLE SIDE EFFECTS BUT IT IS HELPING ME SO I KEEP TAKING IT

GOOD LUCK!!!!

ELIZABETH

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